Sunday, July 30, 2017
CIZE Does Matter - A PMDD Exercise Challenge
Saturday, October 29, 2016
The Voices of PMDD - Battling the Darkness
Wednesday, July 11, 2012
PMDD and Why Me?
Friday, November 4, 2011
The Queen of Denial
Liana Laverentz is the award-winning author of two books on PMDD, PMDD and Relationships, and PMDD: A Handbook for Partners. Both books are based on the most asked questions by her readers, and therefore the most popular posts on her blog, Living on a Prayer, Living with PMDD. Both books are also an excellent resource for understanding your PMDD and starting a meaningful conversation with loved ones who want to know more about this debilitating disorder we live with daily.
Wednesday, March 9, 2011
Sharing Our Stories of PMDD
Today we have a guest blogger, Joya, who has graciously agreed to share her story of PMDD. I invite others to contact me who would like to share your story of how you discovered you had PMDD, were diagnosed, and what treatments--both successful and unsuccessful--you have tried in an effort to cope with this debilitating disorder. This helps every woman with PMDD to understand that while you are not alone, every case is as individual you are.
Welcome, Joya, and thank you for sharing your story with us.
I was diagnosed about three years ago.
Before I was diagnosed I felt awful & sick. I also thought I was losing my mind. It took a while for me to realize the awful feelings and the craziness were associated with my monthly cycle. I began to dread my cycle, but always looked forward to getting my period because I felt such a relief. There were times when I literally thought I was going insane. And the awful physical symptoms were at times too much to bear. I am grateful for my diagnosis as I have been empowered to find ways to help myself.
I am very fortunate I have a wonderful Doctor who listens to me and I believe he actually cares about my well being.
I have tried the following:
The Pill
Anti-Depressants
Accupuncture
Herbal treatments
Supplements
And I am currently using the Mirena IUD
Side effects & benefits I have experienced:
The pill was not a good choice, I cannot handle the extra estrogen at all. I completely lose it. For whatever reason the pill intensifies my symptoms.
Anti-Depressants-at first seemed like a cure! Then I started to feel depressed all the time, and I became listless and lethargic. I gained 25 pounds and felt awful and the benefits seemed to have flown out the window. I am not a fan of anti-depressants. I am no longer using them for treatment of my PMDD.
Acupuncture helps-mainly it helps with relaxation. It is also not a cure-all, but can be very helpful in terms of relaxation. It can be expensive and it takes quite some time before it actually reduces any symptoms. I would like to return to acupuncture if for nothing else, but the calming effect it as.
Herbal supplements & supplements: for me they help, but do not have the strength to reduce my symptoms to a manageable level. I use supplements in conjunction with the IUD.
The IUD has been helpful, it has reduced my symptoms. However, after a little over a year of using the IUD I feel the effectiveness wearing off. It makes me want to cry. And I do not really have a period at all and I don't like this part of it. The idea of searching for another effective treatment feels a little frustrating at the moment.
I consider myself blessed. I have very loving and supportive friends and family. I have been honest about my PMDD-it does affect my ability to socialize and I can withdraw pretty easily. I hate when I am unkind, or I lash out at someone I love when I am PMDD-ing. It is awful and I feel horrible, and guilty. In some ways I try to keep to myself so that I do not do anything I will regret later. I live alone and work primarily alone, so I do control my interaction with people as much as possible. I have recently entered a romantic relationship-I have been upfront about my PMDD, and he is a very understanding person. However, I am terrified I will scare him away, and I know this is a large part of why I keep to myself. I try to keep myself and others safe, but I am starting to feel that it is not the solution.
I cannot think of a shape for PMDD, as it tends to have several forms for me. At times it may be rigid and square, uptight and bound, whereas other times-it is wide open and expansive...It encompasses many colors...red would be the primary color, as well as black and dark blue...perhaps with flashes of purples and greens.
The worst thing about PMDD for me is the darkness, the sadness, and the nasty voice inside me that gets so loud that I believe it. I believe every ugly lie the voice utters. I have made some serious life decisions while under the influence of the PMDD monster, only to wonder later-'what the hell was I thinking'. The other thing is I feel like I cannot trust myself and I do not want to be around anybody. It sucks, I am for the most part a friendly, upbeat and kind person. The PMDD twists things and I get twisted with them and then come out the other side-wondering what happened. I hate that I listen to the ugly angry distrustful voice, rather than my true core voice.
I have changed my diet, I eat mostly vegetarian. I focus on nutrition. Whole grains, veggies, I do have fats, like peanut butter and such. I love fruit too! I make 90% of my meals at home, this is very helpful. Honestly, diet and exercise have had a profound effect on my ability to cope. I make sure I get enough rest as I cannot function without adequate rest. I LOVE to exercise and I LOVE yoga and walking outdoors! However, when the monster (PMDD) is in house, I have to literally fight with myself to exercise, and do what is best for me. As there are times when I drink wine, or eat too much, and usually regret it.
I also remind myself what is happening and that it is not ME-it is PMDD and it is chemical and biological, but this is not always helpful. I take hot baths and drink tea, I use drops of white chestnut for anxiety. Basically, I try to take of myself and be loving towards myself. I do struggle and sometimes I cave to the cravings for fatty food, wine, or cigarettes. I realize that this is a work in progress, and from experience I KNOW that taking excellent care of myself is my best bet!
I work with a master metal smith-he is my dad. We design and create custom wedding rings. I work with 30 stores and retail clients from all across the globe! I am very fortunate to have the work I have. I work alone as most of my correspondence is via email. I love working with an artist and I love working with my clients. I am grateful for all of my clients. So I do not have a career I have a job, a wonderful job. I long for a career, but that is a long and painful subject for me. I have searched for 15, plus years to answer the 'what am I going to do with my life'? question only to still not know the answer. It causes me extreme grief. As I have taken endless classes and been in and out of school, etc...
For now, I am letting it go. I just recently withdrew from school, as the combination of work, school, PMDD and my learning disabilities proved to be too much for me. I am struggling with not feeling like an utter failure and feeling like I have liberated myself. I do not have children, I have a cat, whom has been with me for 15 years. I care for her deeply and she has been a most loving and loyal companion over the years.
I would like to have a career that I can pour my heart and soul into. I would like to love freely and create. I would like to be of service to the people, the Earth and the animals. It is unfortunate that every single month for two weeks I kinda fall apart and lose my grip. However, I refuse to give up and I hope that I can find a way to do what I long to and be even with PMDD.
I believe yoga and meditation are helpful. Yes, they help me to relax and change my focus and help me to slow down and breathe.
"Love all, trust a few. Do wrong to none." Unknown.
"Everything we see or seem is but a dream within a dream." Edger Allen Poe
Wednesday, March 2, 2011
Cat Stone's PMDD Crisis Guide Continues
- brush teeth
- take kids to school
- wash up dishes
- go for a walk
- EAT
- have a shower
Wednesday, February 9, 2011
Top 20 Tips for Partners Dealing With PMDD
Unfortunately, my research has uncovered a complete lack
of serious information for men on the subject of PMDD, so here
it is, short and sweet, a list of the top 20 things you can do for
your partner with PMDD.
1. Believe her. When she tells you what she’s
experiencing, believe her. Even if it doesn’t make sense.
Because PMDD doesn’t make sense. The symptoms are as
unique and individual as the woman having them.
2. Do not tease her. Do not make fun of her, as this is a
serious and often debilitating condition. Would you tease a
combat veteran for having PTSD? During an episode, a PET
scan of a woman with PMDDʼs brain shows the exact same
configuration as that of a vet with PTSD. This womanʼs brain
truly believes she is under attack, and will respond accordingly.
(This will cause her to do and say things she would never even
consider during her non-PMDD days.)
3. Chart her symptoms daily, either together or on
your own. If she refuses to admit there’s a problem, then do it
on your own so that you can be prepared for when the storm
hits.
4. Consult your chart or app when considering social
events, activities, or vacations and such. Surprises and big
decisions come under this heading, too.
5. Learn as much information as you can about
PMDD from reliable resources. If they have a product to sell
you, any type of product, proceed with caution.
6. Understand that if it is not treated, her PMDD can
only get worse. It could end up as Major Depressive Disorder.
7. Help her to find a doctor who will listen to her and
help her. This may take several tries, as most doctors are not
trained in the treatment of PMDD. Traditionally trained
medical doctors will only offer you birth control or
antidepressants, since they are the only drugs medically approved
for treatment of PMDD by the FDA. Your best bet is to find a
naturopathic doctor or nurse practitioner.
8. Don’t let her negative thoughts and feelings get the
better of her—or you. If she shares them with you, gently
remind her it’s the PMDD talking, not her, and postpone any
major changes or discussions/decision making for a few days.
9. Be supportive and encouraging as she tries different
things to feel better. Make a note of what works and what
doesn’t. Share this with her doctor. Do not blame her if any
medication she is prescribed does not work. It does not work for
most women. Science does not yet understand the brain well
enough to know what is biologically going on during an episode
of PMDD, despite what the television ads tell you.
10. Help her to get enough rest. Sleep is when our
bodies re-regulate themselves. If we don’t have enough (sleep)
time to do the work needed, we start the day at a disadvantage.
11. Join her for moderate exercise. Exercise is always
more fun with a friend. I have found a walk of 45 minutes can
buy me up to two hours of PMDD-free time.
12. Encourage her to eat healthy. (Avoid alcohol,
caffeine, sugar, sugar substitutes, energy drinks, anything made
with high fructose corn syrup, and white rice and flour, for
starters.)
13. Buy her some high quality dark chocolate. Keep it
on hand for the bad days.
14. Do what you can to keep stressful situations to a
minimum. PMDD feeds on stress.
15. Do not accept any behavior that is abusive. Ever.
16. Do not return such behavior if it happens. Calmly
walk away and resume your conversation when she is more in
control of herself. Be firm about refusing to engage when she is
out of control or abusive. When she gets this way, the PMDD
bully in her brain is in full control, and determined to destroy
whatever it can.
17. Remember that she literally is not herself during
an episode of PMDD. Try not to hold the things she says and
does against her. It’s not personal, and it’s not about you. It’s the
bully that has taken over her brain egging her on.
18. Be as comforting as she will allow you to. If she
won’t let you near her, let her know you will be nearby if she
needs you. To her brain during this time, allowing comfort
equals weakness. Weakness equals vulnerability. Vulnerability is
dangerous to the PMDD brain.
19. Don’t expect her to be full of sunshine and
laughter when she’s not having a PMDD episode. A
healthy, balanced, and emotionally well-rounded woman feels
every emotion—not just the good ones.
20. Last, but not least: Do not blame every time she
becomes irritated, annoyed, angry, afraid, or upset on her
PMDD. Nothing is more irritating than having a genuine
concern or grievance, and being told, “It’s your PMDD again,
isn’t it?”
Maybe it is, and maybe it isn’t. Take the time to check her
chart to see if she’s supposed to be having an episode, and then
carefully sort through (usually by talking it out) and separate
what is her PMDD and what is a genuine fear or concern on her
part. Encourage her to feel and express the full range of
emotions, just like people without PMDD do.
More than anything, a woman with PMDD just wants to
feel normal. These 20 tips will go a long way toward helping
your partner do just that.
Note: PMDD: A Handbook for Partners, and its sister book, PMDD and Relationships, are available in both ebook and print. If you participate in the Amazon Smile program, please consider designating the National Association for Premenstrual Dysphoric Disorder (NAPMDD) as your chosen charity. You can also buy these (print) books on the NAPMDD website, where $1 from each purchase goes to support the NAPMDD Awareness Fund.
Thursday, December 2, 2010
Relationships Begin With You
Relationships are hard, no matter who you are, or what your situation might be. Relationships for a PMDD woman can be almost impossible to sustain, because, due to our hormonal fluctuations, we’re literally a different woman every day. We feel differently, think differently, and act differently every single day.
There’s an old joke that goes like this: A woman marries a man thinking he will change. A man marries a woman thinking she won’t change.
Unfortunately, both end up being disappointed.
Change is inevitable. That’s our only guarantee in life, short of death and taxes. Life comes and goes in cycles, and nothing stays the same. You will change, I will change, your family and/or partner will change, your circumstances and situations will change. Mentally, physically, emotionally, spiritually, financially, and otherwise. Accept that now, and you’ll be a lot further ahead of the game than most of us.
Why? Because nobody likes change, even when it’s a change for the better. Change takes work, whether it’s a change we embrace, or a change we resist. We like to be comfortable in our surroundings and relationships. We like knowing what we’re in for, how our day will go, what we’re up against, what to expect. A certain stability gives us a good foundation for dealing with all the surprises Life throws our way, be they blessings or challenges.
A PMDD woman, just like anyone else, likes to have stability in her life. Unfortunately, that’s not a luxury we can rely on, given the tumultuous ups and downs caused by our menstrual cycles. And what affect us, affects the people around us—in particular the people closest to us. Our friends, relatives, and significant others. It takes an incredible amount of inner strength to be the kind of people we want to be, when our brains just won’t work right. Even the most patient and loving person loses it at times—think of Jesus in the temple, ranting at the moneychangers.
So how can you expect yourself to be any better, or different? How can you have the kind of relationships you want?
The first step is awareness. First you have to realize and accept that your PMDD is a part of you, and isn’t going to go away, not without making some serious changes in your life. The more awareness you have, the better it gets, but it never really goes away. You have to stay vigilant, and when you slip, as we all inevitably do, there’s a very good chance our symptoms will return.
So how do you gain this awareness? By taking the time to listen to your body and be good to yourself. Your first, and most important relationship, needs to be the relationship you have with yourself. You’ve got to take care of you, before you can take care of anyone else. You’ve got to love yourself, before you can truly love someone else, no matter who that someone else might be.
Most PMDD women spend a great deal of time hating ourselves. Beating ourselves up, for things over which we have no control—in particular our thoughts and moods, which then affect our words and actions. I don’t need to tell you how the cycle goes. You’ve already been there, done that, at least once a month for as long as you’ve had PMDD.
So the first thing you have to do, no matter how awful may think you are, or might have been to yourself in others in the past, is to stop beating yourself up. Just stop it. Right here. Right now. Stop it. You are who you are, and that’s where you start. Don’t be dragging all that baggage from past PMDD episodes along with you. Let go of it and start anew. Today is a new day, and today you are going to be good to yourself, if only for a few minutes.
Because change is hard, and works the best if you do it in baby steps. Not many of us can suddenly start shoving everyone else aside to carve out time to be good to ourselves. We have commitments and responsibilities, and if we’re very lucky, people who depend on us for some measure of support, comfort, and stability.
But we also have a commitment and responsibility to ourselves, to be as good to ourselves as we can possibly be. That doesn’t mean chucking it all and hopping the next plane or cruise ship to some exotic destination, as tempting as that sounds. It just means take a few minutes, either at the beginning or the end of your day—or even in the middle, if you miraculously find yourself alone for a few minutes with nobody around you wanting or needing something from you—and remember what it is that makes you happy.
The choices are as limitless as the number of people reading this. Each one of us has at least one thing in this world that makes us truly happy, probably a couple dozen such things if we really take the time to think about it, but for now, just start with one. What is it that makes you happy?
Now what do you need to do or change to make that situation happen? How far are you right now from making that happen? What do you need to do right now to get there? Is it something you do, or something you want to do for someone else? Is it some way of being? If it’s something you do, then what do you need right now to do it? Do you need ingredients? Supplies? Or do you just need to pick up the phone and call someone? Send them a letter or card? Get in the car and go and see them? Or do you just need to cross the room?
Figure out what it is you need, then figure out a time when you can do it. If you’re not doing anything right now, then get started. Make a list if you want to. Write it down. Then put it somewhere you’ll see it often. Go to the store if you have to, to get those supplies or ingredients. If you’re not feeling up to doing that, then work with what you have right around you. Do you like to doodle? Read? Pray? Listen to music? Take a bath or long, hot shower? Talk to friends? Cook? Sing? Dance? Sew? Garden? Take walks? Maybe playing with your children brings you joy. Or spending time with a pet. Spending time with your significant other. Not everybody recharges best when they are alone.
The bottom line is whatever it is that makes you happy, find a way to do it. Nobody should deny you the time and space you need to soothe your spirit and settle yourself. If they try, be gentle but firm. Say I’m doing this for me, so that I can be a better mother, spouse, partner, sibling, daughter to you. Be the change you want to see in the world, and your world will change around you.
But don’t expect it to happen overnight. Part of the problem is we live in a world of quick fixes and instant gratification. People have come to expect things to be easy, to right themselves with the swipe of a credit card, the popping of a pill, the immediacy of a text message. With PMDD, it doesn’t work that way. With PMDD, you have to work doubly hard to be the change you want to see in the world, because not only are you bumping up against the rest of the world, who most of the time is bumping back (to say the least), half the time you’re fighting yourself.
But it’s not really yourself you’re fighting. It’s your PMDD. I don’t want to be like this, you say. Then don’t. Stop fighting your PMDD. Accept it and roll with it. Start where you are, and start being good to yourself, by eating right, getting enough rest, taking the time you need to calm and settle yourself, then listening to your body and giving it what it needs, and listening to your heart and doing the same.
As your relationship with yourself improves, little by little, your relationships with others will improve, and your PMDD won’t be running (or ruining) your life anymore. Eventually, it will end up being nothing more than a bad memory.
Liana Laverentz is the award-winning author of two books on PMDD, PMDD and Relationships, and PMDD: A Handbook for Partners. Both books are based on the most asked questions by her readers, and therefore the most popular posts on this blog. Both books are also an excellent resource for understanding your PMDD and for starting a meaningful conversation with loved ones who want to know more about this debilitating disorder we live with daily.