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~Seek first to understand, then be understood~
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If you're looking for information on a particular topic, type that word in the search box below. If I have written about that subject, a list of posts will appear. If no posts come up, I haven't written about it...yet. Emails, and questions in the comments section for possible posts, are welcome.
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I have a "friend" who shows up once a month. She turns my world upside down, over and over again.
I am a good person, caring and sweet, but when she comes to visit, I could rip off your head.
She takes no prisoners, foul words she does spout, I try to keep the words in, she lets them come out.
People don't understand me, or what this is about, to have this creature inside my head.
I despise who I am, half of the time, I feel sorry for my daughter, family and friends.
There's no way to describe it, for those who don't know, it's a living nightmare, she really needs to go.
~Neysia Manor, Rest in Peace

Sunday, October 31, 2010

Women and Insanity -- Pioneers with PMDD?

A little something extra today in honor of Halloween. PMDD is not a new condition. It's been around in one form or another since at least the time of Hippocrates. Back then it, and just about any other condition relating to women's hormones, was called hysteria, hystera being the Greek name for uterus.

This is why anyone with a uterus is considered hysterical at times, and why they call the removal of your uterus a hysterectomy.

But I digress. PMDD is not, as some believe, a disorder made up by the drug companies to sell more drugs. It's a condition happily exploited by drug and supplement companies, to be sure, and even some doctors (more on this in a future post), but it's far from a made up condition. You know it, and I know it, and anyone who has ever lived with a woman who has PMDD knows it.

That doesn't mean we're not accountable for our actions. PMDD is an explanation--not an excuse, or free pass--for bad behavior. We owe it to ourselves to understand the condition (and therefore ourselves) as fully as we can, and to then promote a positive awareness of PMDD everywhere we go. It's only by focusing on the positive--what works, what helps, what provides solid help and answers--and not the negative--the fear, the stereotyping, the ridicule--that we will get mainstream medicine to pay any genuine attention to PMDD and other women's health issues.

That said, today I thought I'd offer up a special post on women and insanity, to let us know where we might have ended up, had we been born in another time.

Please welcome my guest blogger, Wild Rose Press author Loretta Rogers.

Because divorce was a rarity during the pioneer/frontier days, men devised other ways to get rid of unwanted wives and children, and that was by declaring them insane and placing this unwanted loved one in an insane asylum. Actually these early asylums were in reality prisons and not medical centers. These institutions were filthy, dark places where people were treated more like animals than human beings. The asylums usually provided only the basic necessities of life. Food was poor, cleanliness was not stressed and the rooms were often very cold. Diseases were quick to spread throughout the asylum.

Some of the reasons women were institutionalized are unbelievable. In the early 1800’s wives and daughters were often committed for not being obedient enough to their husbands or fathers. You’ve heard the term, “children are to be seen and not heard.” This applied to wives as well. If a woman spoke out and went against the “norm” she could be committed.

With no birth control, it wasn’t unusual for a woman to give birth to another baby while still nursing her last child. And a brood of six to twelve children wasn’t unusual either. With her body no longer firm and supple, her energy level somewhere between zero and double zero, and with the daily routine of cooking, cleaning, plowing, and all the other demands, a woman was run ragged. It’s no wonder she grew old long before her time.

All the husband and/or father had to do was simply write the word “lunacy” on the admission form. Lunacy was an acceptable reason for divorce. The woman’s husband would declare her insane, put her in the asylum and then file for the divorce. A few months later, his marriage records to a younger bride usually showed up.

Other reasons to be “put away”, were depression, alcoholism, just being a little different from the norm, and even going through menopause. Doctors just didn’t know how to deal with mental issues and the result was to put their patients in the asylum. These women were locked up and forgotten by their loved ones. The fathers/husbands often forbid the family members to visit. It was as if the wife or daughter had simply died. Most of these women did stay at the insane asylum until their death.

If a father had no sons, but didn’t want his daughter to inherit his fortune or worldly goods, he could have her declared insane, institutionalized, and leave his money to a favorite nephew or his ranch to a ranch hand he considered as a son. If a man’s wife had died in child birth and he couldn’t find a woman to wed who was willing to become a stepmother to his large brood, or if he couldn’t marry off any of his eligible daughters, he simply declared them as lunatics and placed them in an asylum. Sometimes daughters were committed for unwanted pregnancies. Other children were committed for being disobedient or for illnesses such as Down’s Syndrome or Autism. Being born deaf or mute, retarded or physically disfigured was another reason a child might be committed.

Oftentimes, the husband might tell others that his wife or child had died. If a newspaper office was available, he might even have an obituary printed. Yet the person was very much alive at the asylum. While it was rare for a sane person to be released from an asylum, it did happen. Imagine what it was like for this woman. Having been declared dead, she had no identity.

Some of these asylums were built next to, or part of, the prison system. This was to help cut back costs of care, food and facilities. Rape was prevalent in asylums. Because women had been declared insane, it was deemed they had no powers of reasoning, no feelings or emotions. In other words, they were considered walking zombies. Because of this deranged thinking, (no pun intended) prisoners and even asylum employees used the women for their own pleasures.

If you are into genealogy and have run into a brick wall trying to locate a female relative, the US census has a place on some of their census, example 1850, that had a place to mark if deaf, dumb or insane. The probate section may carry Lunacy Record Books at the county courthouses. Some Wills will declare if someone is insane or having lunacy. If someone seems to have disappeared, they may have been “sent away.”

Therefore, when we refer to the ‘good old’ days, we might remember these women and their lives, and be thankful that they paved the way for us.

Loretta C. Rogers, Isabelle and the Outlaw.

Wednesday, October 27, 2010

A Perfect Storm of PMDD

Unfortunately, I’m one of those atypical types who has my PMDD served up in three different courses, which is one big reason it took me so long to get diagnosed. All the sites and information said specifically that for it to be PMDD, all symptoms must abate at the onset of menses, or when your period begins.

But mine never did. Mine came in three separate stages. Which I finally learned is possible as well. God knew I’d been living it long enough—but to see it actually mentioned in a book? Finally I could go to my doctor in confidence and get diagnosed.

I often compare my symptoms of PMDD to the course of a hurricane. Prior to the onset of my period is the building storm, the wind and the rain, with symptoms of irritability, edginess, an inexplicable, almost ravenous hunger, and cravings for salt and three specific foods---cheese, chocolate, and oranges. I have yet to figure out why, although occasionally I get glimmers of understanding and I am sure I will find the answer some day. But for now it’s enough to know that that’s what I crave, and when I find myself reaching for nothing but those three things, I know a storm is about to blow in.

On my pre-period days I also get jittery, clumsy, confused, and distracted, unable to focus on any one task for any length of time. My handwriting even changes. Usually, it’s comfortable, loose, flowing. When I’m having an episode of PMDD, it’s spiky, jerky, and messy. At times it looks like the handwriting of a much older woman. I’m always startled to see it come out that way, but not totally surprised, because as I’m writing, my hand doesn’t seem to work properly—which might also account for my tendency to drop things more than usual during those periods of time.

Anyway, the unfamiliar handwriting is generally one clue that something is happening in my brain. My typing is also affected. I have a friend who pointed out that I don’t bother to capitalize in my emails when I am having an episode of PMDD and I don’t do a lot of smiley faces. It’s as if to do either would take too much effort.

So in my case first comes the storm of irritability, anger, and rage. Snapping out at the drop of a hat. Lashing out at someone who didn’t say anything out of the ordinary, but just struck me as wrong. Feeling under attack and wanting to hit someone, anyone. Just give me a chance. Not a reason, but a chance. I call these my wanting to “drink, smoke, and be bad” days. Impulsive behavior does its best to take over, and I can fully understand in those days why some women go out and do completely irresponsible things they later regret. I’ve felt like doing so more times than I can count, and have complete empathy for those who give in to these bizarre urges. If I didn’t have a core of responsibility inside me that keeps me anchored in good times and bad, I would go out and do the same.

Usually the worst thing I ever did was go shopping and buy all sorts of things I didn’t need or never wore. If I were to look at my credit card statements for those time periods I’m sure I would see a pattern of spending that coincides with the pre-menstrual portion of my PMDD episodes. Fortunately, now I understand what is happening and stay home on those days instead of going shopping. Because inevitably the bill would come, and I would wonder why on earth I had done such a thing.

When I worked as an analyst for the government, on my pre-menstrual days I would suddenly notice that I hadn’t received a response on this project or the other, and would call up the parties in question and remind them I was waiting to hear from them. On any other day it wouldn’t have bothered me. People get busy, people go on vacation, people have priorities, people forget. In the overall scheme of things, my projects were never that vital. Most of the time, I was tolerant and flexible.

But on a PMDD day, everyone I came across was either incompetent or personally holding me back from untold success. I might not rant at them directly--after all, even on my worst days I knew you catch more flies with honey than vinegar--but I would complain to anyone else who would listen about how I seemed to be the only person around who could get things done and do them right. I had no tolerance for even the slightest delay or mistake. On those days, you didn’t want to mess with me.

Then my period would come and I’d be miserable in a new way for a couple of days. Cramps, backaches, and pain that sometimes radiated as far down as my knees, and made me feel like I wanted to throw up. Breathing hurt. I would lie very still, hot pack pressed to my lower abdomen, which felt like someone was slowly trying to pull my insides out with a three pronged gardening tool. Every single month. That, if you want to believe it, was the eye of the hurricane. The first two days of my period.

Then the sadness kicked in. On Day Three. Always on Day Three. If it was going to come, that would be the day. It didn’t always come, still doesn’t. Now I know it has to do with whether I release an egg or not that month. No egg, no sadness. Woo hoo! Party time.

Not quite. But at least it’s a lot more pleasant around here when the sadness doesn’t come. Because when it does, I’m tired all the time, my head feels like it has an iron band around it, I sigh incessantly, big, deep sighs like the weight of the world is on my shoulders—and for me, it is. Most everything looks hopeless, every good idea I had during the month goes to s***, I want to weep at every turn, you don’t dare tell me a joke or tease me, and I spend a lot of time wondering why I even bother.

During this phase of my PMDD, I used to beat myself up incessantly over the people I had snapped out at the week before. Now, at least, I don’t do that any more. I know I didn’t mean it, and in most cases it doesn’t get that far anymore, because I have a much deeper awareness of what is going on and can catch myself in counterproductive behavior.

Now, when I catch myself starting to snap out, I apologize and explain I am having a bad day. Most of my friends know what that means. If the person isn’t my friend, it’s okay to leave it at an apology without an explanation. By all means, if at all possible, never ruin a perfectly good apology with an explanation. You don’t need to justify yourself or your behavior. You just need to acknowledge it, apologize for it if the incident warrants an apology, and move on.

But back then, as I said, I would beat myself up incessantly. Which only intensified my sadness and made me feel like a totally worthless human being. My friends couldn’t possibly be my friends. They wouldn’t be my friends if they knew the real me. How would I ever find anybody to love me if I was so impossible to be around. Yada yada yada. You know how it goes.

The bottom line is the first part of my personal hurricane is the moody, bitchy, out of control part. Then would come the eye of pain and two days of solid pain but surprisingly clear thinking. Fortunately, now, as I begin to enter menopause, it’s just the clear thinking part, and a huge surge of positive energy. It’s a definite reprieve in the storm.

Then the sadness comes. The first D in PMDD. My depression. Or The Fog, as I call it. Back then it was devastating. How could anybody not hate me? Now I am able to separate myself from it and while it is still not pleasant, I know I am not my depression. I rest, relax, take it easy, spend time reading or listening to music or doing something quiet and non-demanding, secure in the knowledge that it will pass. I do what I can to help it pass sooner. I take walks, take naps, eat right and take supplements. I do not allow my negative thoughts to take over. In fact, I smile at them, knowing I know better. God does love me and so do the people in my life. My ideas are good ones and I am full of creativity. I am strong, capable, and competent. Just running a little slower than usual today. Just a tad off my stride. It will pass and I will be fine.

And I am.

One day The Fog lifts, and its back to the torrid pace of my life as usual—until the next wave of cravings and irritability hits.

Liana Laverentz is the award-winning author of two books on PMDD, PMDD and Relationships, and PMDD: A Handbook for Partners.  Both books are based on the most asked questions by her readers, and therefore the most popular posts on her blog, Living on a Prayer, Living with PMDD.  Both books are also an excellent resource for understanding your PMDD from within and starting a conversation with loved ones who want to know more about this debilitating disorder we live with daily. 


Wednesday, October 20, 2010

Overcoming Your PMDD Starts With Being Good To Yourself

I am a work in progress. One thing I have that a lot of people don’t have, or don’t make the time for, is self-awareness. I’ve been digging into this PMDD thing for so long that I’ve finally learned how to separate my real self from my PMDD self. How do I do this? I’m constantly checking in with myself to see how I am feeling, and trying to determine the reasons for why I am feeling the way I am—if it could possibly be my PMDD (based on where I am in my cycle) or if it’s something else.

In doing this, I’ve learned I’m super sensitive to just about everything I eat, drink, and breathe in. For instance, yesterday I went to get my hair cut. This morning I woke up with a sore throat and congested cough. Am I coming down with something? No. It’s a reaction to all the chemicals I inhaled while getting my hair cut. All I have to do is drink plenty of fluids today and I will be fine.

So I’m constantly weighing, measuring, sifting, adjusting. If I feel a little off, I ask myself—what’s new? What did I do differently today or yesterday? Where did I go that I don’t usually go? What did I eat or drink that I don’t usually eat or drink? What stresses did I encounter that I don’t usually encounter?

By constantly doing this, I’m able to detect patterns, and learn what (and who) to avoid. For instance, just going to church gets my sinuses flowing. I can smell the cloud of perfume ten feet away from the front door. The same thing can happen in restaurants, theatres, sporting or music events. This doesn’t mean I don’t go to those things. It just means I’m aware of what can happen, and if I feel a little funky afterwards, I know why.

I’m determined to live my life drug free. Because I feel this way, even taking two ibuprofen affects me as much as say, taking a narcotic painkiller would affect someone who isn’t used to it. Oddly enough, since the birth of my son--a major hormonal event--anything I take that is supposed to make me drowsy tends to have the opposite effect. I can’t take decongestants at all. Narcotics, like Tylenol with codeine, forget it. I’ll be up all night.

I’ve gotten so sensitive that even certain foods affect me strangely. It sounds crazy, I know, but what’s really happening is just a strong bio-chemical reaction that when processed in my brain affects my moods. So what is a natural physiological reaction to a substance, because of the imbalance in my hormones, manifests itself as a mood symptom. This can include irritability, weepiness, anxiety, lethargy, depression, or even euphoria.

I believe there are many women out there just like me. Women who perhaps aren’t blessed with the time and opportunities I have had to really sit down and be still long enough to try and figure out just what in the world is going on in their bodies and brains. We live in such busy times, running from one commitment to another, taking care of the loved ones in our lives, conditioned by our culture, society, and religious beliefs to serve others and place our own selves last.

This drastically affects our health and well-being, but since we are so busy all the time, we don’t have the time (or energy) to figure out what’s wrong, why we are feeling so out of kilter, maybe even miserable most of the time. And then our cycle kicks in, with our PMDD, and everything really goes haywire. We scream, we yell, we snap, and have wild mood swings. We lash out at loved ones and coworkers and store clerks and other drivers, and then, if we haven’t found a way or two to numb our conscience, we feel badly about our behavior and find ways to beat ourselves up and/or try to make amends if we can. We spend so much time trying to make it right with people, or beating ourselves up and engaging in even more destructive behavior, that we get even further run down and behind.

And then the cycle begins again. So we look for quick fixes, anything that will keep us in motion, fulfilling our commitments and obligations, keep us awake and moving long enough to get everything we need to get done in any given day done before we crash in front of the TV or into bed, exhausted, grateful that another day has ended and we have somehow survived.

It’s no way to live. So several years ago I made the effort to strip my life down to what’s important to me, and just focus on that. One of those things was my physical health and well-being. I figured if I could just take care of that—the rest of it would take care of itself.

Little did I know how difficult just doing that would be. It’s no wonder more people don’t take time out to do the same.

But I’m a persistent soul, and determined to figure this thing out. What I present here are things I have learned along the way. They might apply to you, they might not. Every woman is different, and due to her menstrual cycle, every woman is just a little bit different every day. That makes us mysterious and exciting, not bitchy and crazy. That makes us worth taking the time to get to know.

I’d like to take the time to get to know you, to hear your story, and find out what works and doesn’t work for you. I’d like to share those stories here and try to find common ground so that we can help each other to feel better if we can.

It can be done. It’s just that the information out there is so confusing and so conflicting. And we’re all so busy. It would be heaven if we could just Google PMDD and get the answers we need, find the quick fix, and get on with our lives.

But it doesn’t work that way. The first step, I have found, is to take the time to get to know yourself, physically, mentally, and emotionally. Emotionally, because you have to know what emotions are being caused by your PMDD, and what emotions are normal and natural for you to be feeling. Contrary to popular belief, women are allowed to get upset, become irritated, annoyed, and angry. It doesn’t always have to be PMS or PMDD causing it, and we shouldn’t have to put up with snide comments about it being “that” time again, every time someone doesn’t hold up their end of the bargain and we express our disappointment in that.

It’s about accountability, and knowing yourself enough to know when it’s your fault, and when it’s not. I don’t know about you, but I’m not interested in taking the blame for things that aren’t of my doing. I make enough mistakes on my own, without that added burden, thank you.

That said, I’ve come to realize that PMDD is an explanation, not an excuse, for why I do the things I do when I’m having an episode, and I still need to be held accountable for those things, to take responsibility for myself and my actions, no matter how badly I may be feeling. It’s up to me, and me alone, to sort out what’s the real me, and what’s my PMDD, and keep the two as separate as I can. You know how you feel like you’re a totally different person when you’re having an episode. You know that’s not you. It takes a lot of strength, determination and willpower to separate the two, and the effort can be exhausting. But it can be done.

For example, the past few weeks I’ve been feeling just plain blah. No energy, no willpower, no motivation. I wondered if it was my PMDD, just come to roost for a while, but no, PMDD comes in cycles. This had to be something else. My thoughts were validated when my PMDD did arrive, and whew! It was like the difference between night and day. For just a couple of days, I sank into that abyss, and knew the difference. Clearly, on those other days, there was something missing in my diet that needed to be boosted…what that is I’m still sorting out, but I now know that lethargy is not my PMDD.

But I also know my PMDD is not me. And so I’ve learned to separate the two, and set the PMDD aside when it comes. I know it’s there, and it would very much like to take over and run (ruin) my day, but I won’t let it. I acknowledge that it’s present, and that I’m not crazy, and I warn my loved ones that I’m having a bad day and it has nothing to do with them, but it would be best to avoid me for a day or two.

With that in place, I go about my business, and get as much done as my energy level allows. If I need to take a nap, I do it. If I need some quiet time, I take it. If I need to eat some carbs…I do it. Guilt-free. That’s the key. Never feel guilty about taking time to care for yourself. Would you feel guilty about taking care of someone else? Then why don’t you deserve as much care and comfort as they do?

I listen to my body and give it what it needs, without giving in to the wild emotional swings that wait in the wings, and without giving any air time at all to the negative thoughts swirling in my brain. That’s just my PMDD talking, I tell myself, and I refuse to listen to it.

So the next time it happens to you, give it a shot. Just take a deep breath and refuse to give in. You are stronger than your PMDD, and it’s time you let your PMDD know it. You can channel your rage and anxiety and depression into strength and calm and control with simple awareness and practice. It won’t be easy, not at first. It’s a lot easier to just give in and go with the flow. But where has that gotten you?

Think about it, and you’ll know.

Any time you’re feeling out of control, just go to any number of PMDD sites and vent. We know. We care. We understand. We won’t take it personally. We’ll help you through it…because really, we know all you want to do is vent and be heard.

And then, maybe, while you’re visiting one of the message boards, or blogs, you’ll come across a bit of info that makes the next time a little easier to handle.

Baby steps, is all I can say. Be good to yourself, and things will get better. I promise.

Wednesday, October 13, 2010

Confusion City

This post was completely updated September 23, 2015

One of the main problems I find in researching PMDD is that every woman’s hormones fluctuate daily in concert with her menstrual cycle, so it’s hard to separate what’s caused by normal female hormonal fluctuations and what’s caused by PMS or PMDD. To be clear: PMS and PMDD are not the same. PMDD is *not* PMS on steroids, although it can feel like it when you’re having an episode.

There is a definite brain component to PMDD that is not present in PMS. PMS mostly deals with physical symptoms (aches, pains, tenderness, cramps, bloating, etc.), with some minor mood fluctuations…a little irritability, a lack of energy or motivation, some weepiness, maybe more anxiety than usual.

PMDD ratchets these symptoms up a few hundred notches, to the point that these mood disturbances affect your ability to function and maintain stable relationships.

A lot of books and websites discuss the more mild symptoms of PMS, and then simply transfer the same thoughts and theories to PMDD. A lot of these sources even call PMDD a more severe version of PMS. This is not true. They are two separate conditions that unfortunately have enough in common to confuse everybody. But in the end, they take two different paths.
However, since they are often treated as similar, even interchangeable, by many media, for years I thought I had PMS, and couldn’t figure out why—if more than 80% of all women experience some form of PMS—why couldn’t I cope like everyone else did?
Because it wasn’t the same thing, and I didn’t know that.

So, while PMS affects (mostly) your body and (mildly) your mind on more or less a regular cycle, with more or less the same cluster of mind/body symptoms each month (specific to you as an individual), PMDD affects your brain’s ability to regulate itself, and therefore affects just about every other hormone in your body, too.

This is why you often feel as if something or someone else has taken over your body. You think one thing, and something totally different comes out of your mouth. You think you’re eating right, getting enough sleep and exercise, and suddenly one day you have no energy and your body simply won’t cooperate. There’s a missed connection there, and while it’s not “all in your head,” as many friends, relatives, co-workers, and even medical personnel would have you believe, it is happening in your brain.

So what are some of these hormones, and what do they do?

Here (in alphabetic order) are the ones most likely to affect your levels of PMDD.

Aldosterone – Never heard of it? Doesn’t matter. It still contributes to excess water weight gain when your progesterone levels are high, like in the second half of your menstrual cycle, when you feel all fat and bloated. Now you know (in part) why you get that way, and why (short of diuretics) there’s really nothing you can do about it but avoid salt, celebrate the fact that you’re a woman, and know that this, too, shall pass…

Androgens (DHEA and others) – When levels of these are too high they enhance your sex drive and aggressive tendencies, produce unwanted facial hair and apple vs. pear-shaped bodies in women, stimulate your appetite and contribute to waistline weight gain.

Cortisol – This affects your metabolism and tells your body to store more (more! more!) body fat, and is produced in even higher amounts under stress. (Remember, a woman with PMDD is more sensitive to stress to start with, so don’t be surprised if your levels are off the charts.)

Think about this: Our bodies have not changed much biologically since prehistoric times, and so are designed to respond to stress in a certain way that back then was perfectly normal and balanced. But stress back then might be due to a natural disaster, imminent death or starvation, attack by a wild animal, or, in later times, attack from a warring tribe.

Now our stress comes from sources like electronic devices, over-commitment, dashed hopes and unmet expectations, financial strain, unsafe drivers, emotional upsets, and major life changes like birth, death, marriage, divorce, surgery, change in employment or living location, to name just a few.

But our bodies still react in the same way they did in prehistoric times to these threats and upsets—as if we were literally under physical attack.

So up goes your cortisol, which, among other things, suppresses your normal immune functions, leaving you susceptible to every cold and flu that comes your way. In time your body can get so run down that you develop something serious, even terminal.

The Estrogens – Estradiol, Estrone, and Estriol These three wonder hormones are involved in over 400 crucial functions throughout your body and brain, including your metabolism, moods, body heat regulation, insulin sensitivity, pain levels (think muscle and joint pain, and headaches), and carbohydrate tolerance. Both too much and too little estrogen are bad for you, in ways too numerous to go into here. But know this—you have estrogen receptors in your brain, bladder, bones, muscles, blood vessels, skin, breasts, uterus, eyes, heart, and colon. It’s not just about sex anymore.  With all those receptors, you can easily take in too much estrogen—or, more appropriately, too much of the WRONG kind of estrogen (aka xenoestrogens).

Insulin – Lowers your blood sugar, stimulates fat storage.

Melatonin – Regulates your sleep cycles and body rhythms, promotes fat storage for hibernation (remember those cave dwellers) and increases your appetite for carbs. Melatonin also plays a role in Seasonal Affective Disorder (SAD) syndromes that affect your energy levels, weight gain, daytime sleepiness, and depressed moods.

Norepinephrine and Epinephrine – aka your Adrenaline Hormones. These govern your “fight or flight” responses. They increase your heart rate, lift your mood (or in excess cause anxiety), increase alertness, and dilate your arteries to provide more oxygen, glucose, and nutrients to your key organs in times of distress.

Remember what I said about how our bodies were initially designed to respond to threats and the differences between threats then and threats now? Some of us are living in a nearly constant state of fight or flight simply due to the lifestyles we live. But on top of that, when a woman enters her PMDD zone, her fight or flight switch comes on, but because of some missed connection in the brain—it does not shut off
Until her period comes.  That can last up to three weeks in the worst cases. 
Being trapped in that fight or flight state is exhausting, to say the least. You know how you feel when you're exhausted...apply that to a woman with PMDD ten-fold and you may begin to understand her emotional instability during her episodes. 
Progesterone – The jury is still out on this one. Some sources say too much progesterone can increase your appetite, increase fat storage, reduce insulin sensitivity, make you sleepy, depressed, and depress your sex drive.  Fatigue, breast tenderness, bloating, and vaginal dryness are also symptoms.  Other sources say too little progesterone can cause many of these same symptoms—in addition to anxiety attacks, insomnia, dizziness, irritability, difficulty concentrating, extreme changes in mood, muscle pain, joint pain, and urinary incontinence.
Who to believe?  All I know is progesterone supplementation is something that needs to be fine-tuned over the course of your cycle    .  I have found that, much like an upside-down U-curve, there seems—for me—to be a sort of sweet spot at the top of the curve; too little progesterone creates symptoms, too much progesterone creates symptoms.  The dosage needed can vary daily.  I have to constantly adjust and readjust my progesterone intake, using supplementation and nutrition.
So be wary of progesterone creams, especially over-the-counter brands.  Depending on what else is in them, you can get too much, too little, or none at all.  They are not regulated.  Other ingredients in the creams can also clog your pores and provide added fake estrogens if you do not read the label carefully.  Only a precious few progesterone creams perform the way they are intended to.  I use a cream when symptoms are particularly bad, but for the most part I take a 100 mg capsule of micronized progesterone daily, and double that on symptomatic days.  If you would like to know which brands I use, contact me directly. (info (at) livingwithpmdd (dot) com.)

Testosterone – It’s not just for guys. Too little testosterone can negatively affect your bone and muscle growth, metabolism, mood, energy level, and sex drive.

Thymosin – This little-known hormone plays a major role in the development of your immune system. Be good to it or be betrayed by it.

Thyroid – Affects your metabolism, nervous system, muscles and bones, energy levels, heart rate, body heat production, and brain activity. (Hello? Brain activity? Remember this.)

Okay, now I’m no doctor, but if you take the major symptoms of PMDD and bump them up against these hormones, you’ll find that too much or too little of eight of them can lead to weight gain, five of them can cause problems with your metabolism, five of them can affect mood disorders, six can cause problems with your energy levels, two can make you anxious, two can make you aggressive, three affect your sex drive, two reduce insulin sensitivity, two affect sleep cycles, two can depress your immune system, and two can affect your brain function…which can affect all of the above.

Let’s break that down into something more understandable.

Imbalances (for lack of a better word) in the following can cause weight gain:
Androgens
Cortisol
Insulin
Melatonin
Progesterone
Testosterone
Thyroid
Aldosterone (water weight gain)

Imbalances in the following can cause metabolism problems:
Cortisol
Estrogen
Testosterone
Thyroid

Imbalances in the following can cause mood disturbances:
Estrogen
Progesterone
Melatonin
Testosterone
Thyroid

Imbalances in the following can cause your energy levels to plummet:
Estrogen
Insulin
Melatonin
Progesterone
Testosterone
Thyroid

Imbalances in the following can compromise your immune system:
Cortisol
Thymosin

Imbalances in the following can reduce insulin sensitivity:
Estrogen
Progesterone

Imbalances in the following can cause problems with brain function:
Estrogen
Thyroid

Or, to cross-match it another way…

DSM-V Symptoms of PMDD affected by hormone levels:

Markedly Depressed Mood (feelings of hopelessness, or self-deprecating thoughts)
Estrogen
Progesterone
Melatonin
Testosterone
Thyroid

Marked Anxiety, Tension, Feeling Keyed-up or On Edge
DHEA
Norepinephrine
Epinephrine
Thyroid

Marked Affective Lability (feeling suddenly sad or tearful or increased sensitivity to rejection)
Estrogen
Progesterone

Persistent and Marked Anger, Irritability, or Increased Interpersonal Conflicts
DHEA and other Androgens
Testosterone
Thyroid

Decreased Interest in Usual Activities (work, school, friends, hobbies)
Estrogen
Insulin
Melatonin
Progesterone
Testosterone
Thyroid

Subjective Sense of Difficulty in Concentrating
Estrogen
Progesterone
Testosterone
Thyroid

Lethargy, Easy Fatigability, Marked Lack of Energy
Estrogen
Insulin
Melatonin
Progesterone
Testosterone
Thyroid

Marked Change in Appetite, Overeating, or Specific Food Cravings
DHEA
Cortisol
Insulin
Melatonin
Progesterone
Testosterone
Thyroid

Hypersomnia or Insomnia
Estrogen
Melatonin
Thyroid

Subjective Sense of Feeling Overwhelmed or Out of Control
Estrogen
Progesterone
Thyroid

Physical Symptoms, such as breast tenderness or swelling, headaches, joint or muscle pain, a sensation of bloating, or weight gain.
Aldosterone (water weight gain)
Estrogen
Progesterone
Cortisol
Insulin
Melatonin
Testosterone
Thyroid

Do you see where I’m going with this? You could have PMDD, or you could have some kind of hormonal excess or deficiency that is exacerbated pre-menstrually (called Pre-Menstrual Exacerbation). It might actually be an insulin problem, or a thyroid problem, an auto-immune system problem, and not PMDD at all. Some doctors have been making great strides with theories of inflammation. Your problem might be PMDD or it might be something entirely different.
The reason to get a diagnosis of PMDD is not to brand you with the PMDD label, but rather to rule out any other treatable causes for your symptoms.
Once you get that something else identified and dealt with, you might be left with only PMS to deal with.  And wouldn't that be wonderful?
The bottom line is only you and a caring, knowledgeable, and forward-thinking medical professional will be able to identify and separate the many connected hormonal threads in your body and figure out what's working right and what is not. 
You are a beautiful, complex system of individual ups and downs, highs and lows, checks and balances.  Don’t let medical professionals simply hand you prescriptions for one-size-fits-all blanket treatments and/or try to make you feel to blame or as if you are not trying hard enough when they don't work. 
And most of all, don't let anybody tell you you’re crazy.
Because the only things out of kilter here are your hormones.
Keep searching until you find the right practitioner and answers for YOU.

Wednesday, October 6, 2010

PMDD and Maple Syrup

Okay, time to check in again. One of the things I make a point of here is to be as honest with you as I possibly can. But my information is only as good as what I have personally experienced, so I can’t—and won’t--recommend things I haven’t tried. I’m just as eager—and sometimes just as desperate—as the next woman to find a way to feel well all the time, but I’m not one to just throw things out there to see if they stick. I’ve chased enough dream cures for PMDD in my forty years to know I don’t want to send any of you down the same road of futility and despair.

Because every time one of these so-called “miracle cures” fails to take away our PMDD, we tend to blame ourselves, and not the product we just spent another $20, $50, or $100 on. The problem must be with us, right?---not the stuff in the pretty package with all the glowing testimonials of how it worked for other women.

Wrong. The only problem here is you fell prey to hope.

That said, the only thing I know for sure is a woman with PMDD needs to pay careful attention to what she eats and drinks, and needs to listen to the signals her body sends her about whatever she is putting into her body, be it food, drink, supplements, creams, hormones, or medication of any sort. It’s only through this total body awareness that we’ll be able to get a handle on our PMDD.

Our bodies are amazing, and communicate with us constantly. Think aches, pains, tingles, queasiness, sleepiness, nervousness, whatever. Unfortunately, we’ve been conditioned to ignore these distress signals from bodies, and therefore our health and well-being, as long as we are able to get done all the things we need to do. It’s this ignoring of our bodies that leaves us wide open to using and abusing them in ways that invariably come back to haunt us, via cravings and weight gain, irritability and mood swings, and susceptibility to illnesses of all sorts, both physical and mental.

So the number one thing you need to do is take the time to get to know your body, what nourishes and sustains it, and what sends it, and therefore you and your life, out of kilter.

Last week I thought it was the cottage cheese bringing me down. I’ve since figured out that it was--and it wasn’t. It wasn’t bringing me down in the way I thought it was. As most women with PMDD, I need a certain level of carbs to be functional. Carbs are the precursor to making serotonin, which is a hormone a woman with PMDD lacks during certain times of the month.

There aren’t a lot of carbs in cottage cheese :). So after coming off the fast, which was a cleansing fast, and not one I would recommend for everybody (which is why I’m not openly promoting it here), I was (and still am) determined to watch my calories. Not count them—never again will I count calories—but I am determined in general to stick to a reasonable level of healthy fuel for my body intake.

Full fat cottage cheese is 30% fat—that’s what makes it so tasty. But by eating the cottage cheese, I was putting something in my body that wasn’t going to help improve my mood. What I should have been eating was something that would provide some healthy carbs to fuel my serotonin production.

In short, I substituted fat for carbs. And while it satisfied my hunger and the pleasure/reward area of my brain, it did nothing to improve my mood, or sense of mental clarity and well being. The key, in my case, is to keep a steady supply of carbs in my system, so my body has enough resources to make the level of serotonin I need to stay happy and focused. There are a few ways to do this. One, by eating some dense, healthy carbs—like oatmeal, or multi-grain toast with no sugar added preserves, or even bananas, grapes, apples, or oranges. (But you have to be careful about eating too much fruit if you have problems with insulin resistance.)

Another way to boost your serotonin levels is by exercising moderately. Too much exercise, and you deplete your body’s stores of carbs, therefore defeating the whole purpose. So a nice, moderate, 2-mile walk really helps. Maybe a some kind of dance (Zumba is great for this) or Pilates class. But if you don’t have time for that, even 10-20 minutes of walking or light aerobic exercise will help—just enough to get your heart rate up and break a light sweat.

A third alternative is to take some 5-HTP. I have two kinds here…one with 37 grams per capsule, and one with 100 grams per capsule. That way I can take whatever I need, based on whether I feel like I need a big boost in mood and focus or a small one. However, it is not recommended that you take 5-HTP if you are already taking any MAOI drugs or SSRI anti-depressants. The main reason being that they accomplish the same purpose so you could easily overdose by taking both. For more information on Serotonin Syndrome, go here.

An alternative to 5-HTP is to take a SSRI-type antidepressant—but only while you are feeling symptomatic. There’s no need to take any kind of drug every single day, day in and day out, for something that troubles you only part of the month. SSRIs have been proven to help with symptoms of PMDD in 60% of the women who take them. You won’t know if you’re one of the 60% unless you try. But what they don’t tell you is that for PMDD, you only need to take them when you are feeling symptomatic. It’s just easier to prescribe one for you to take all the time, and when it starts to fail, up the dosage (and all the unpleasant side effects). It’s like we can’t be trusted to know when we need a boost and when we don’t.

But while an anti-depressant takes a few weeks to kick in for those who are truly depressed, if you have PMDD, a SSRI can somehow affect the part of your brain that boosts your serotonin level within hours. So yes, I have a 10 mg prescription handy for those days when nothing else seems to work. But those days are few and far between, Thank God (in six months I’ve taken them three times, for 2-3 days each time), and I much prefer to use the natural methods of treatment available.

Other options are to increase your intake of Vitamin D, or to simply get more sleep. I realize that this last one is the least simple of the options available, but sometimes nothing less will do. For it's when we sleep that our body has a chance to re-set itself, and put everything back into balance if it can.

I did mention that while on the cleansing fast, I had no symptoms of PMDD. My guess is this was due to the maple syrup component of the fast, which kept a slow, steady supply of carbs circulating through my body and brain all day long. One serving of maple syrup contains 53 grams of sugar, 10 more grams than a can of regular soda. But all sugars are not alike. Sodas not only don’t add anything to your body but calories, they actually rob your of vitality and nutrition, and leave you dehydrated, to boot.

But since I was using organic Grade B maple syrup, I was getting all of the nutritional benefits (Grade B organic maple syrup is filled with all sorts of vitamins and minerals), without any negative side effects. However, at one point I was running out of Grade B syrup, and since the Whole Foods store was on the other side of town, I went to the grocery store instead to find a replacement to get me through the weekend.

No dice. All I could find was 100% pure Grade A maple syrup (not organic). One serving of that, and I had an immediate headache and was sick to my stomach. I went to the internet to find out why, and learned that non-organic Grade A maple syrup is sometimes processed with formaldehyde.

My body was letting me know I was not giving it something that was good and healthy. Back to the Whole Foods store I went, and the problem immediately went away.

So now I sweeten my tea with a little Grade B organic syrup, and it does wonders to keep the healthy carbs flowing.