PMDD Tales from the Front: Hitting Rock Bottom

I have a favor to ask… a gentleman has written to me asking What does rock bottom look like?

His story is in the comments section of my post Dealing with PMDD - Advice for Men.  His wife is in denial about her PMDD, and in other posts I have written that the denial is part of the PMDD, while guest poster Cat Stone added that often you have to hit rock bottom before you seek help.

My rock bottom was in early 2009, when (due to the onset of perimenopause) I realized I was spending more days in PMDD mode than not.  I didn’t like myself, didn’t like who or what I had become (basically a sad, unmotivated recluse) didn’t like feeling so freaking sad for what seemed like all of the time.  I knew I had PMDD, but I was convinced I could beat it with positive thinking and mind over matter alone.

So I went to my doctor in tears, and asked for anti-depressants.  She obliged, but a few days later the PMDD cloud passed, and I put the anti-depressants away (for good), and started my PMDD research in earnest.  The result was this blog, which I started in 2010.

Others, though, have reached a much worse low point before seeking help.

I hadn't alienated friends, family, or co-workers, because I tend to withdraw when an episode hits.  I am also a writer who works at home, so people are used to me disappearing for weeks and months at a time while I work on projects.  So I hit my personal low when I was alone in the house, and it didn't involve any sort of public meltdown.  My tears that day were because I felt like I was admitting to failure...admitting I couldn't handle my PMDD all on my own.

Admitting I had PMDD was never a problem for me.  I was grateful and relieved to learn the nonsense in my head had a name.  It was admitting I couldn't handle it without help that was my personal low.  I wanted to think I was stronger than that.

It turns out that I am.  But I wasn't on that day.

If you would share here when you reached your personal rock bottom, perhaps we can be of some help to this man asking for insight, and, I suspect, for hope …  at least enough hope to allow him to continue to stay in the relationship until his wife accepts that she has PMDD. 

Taking Time Out to Catch Up on My PMDD Research

It’s Wednesday, and time to put up another post. Things have been hit or miss the past few months, due to having so much non-PMDD stuff going on in my life, and not having enough time to write any well-researched posts. I’m grateful to Cat Stone for allowing me to share her awesome artwork and PMDD Crisis Guide, which has allowed me to keep something new and fresh on the blog at least every other week. She’s been a lifesaver in that regard.

Yesterday, when I was thinking about what to write for today’s post, I realized I once again didn’t want to throw something out there just to have something to post. This is a blog devoted to helping people with PMDD and those who love them to better understand this often debilitating disorder. It’s not about me and my ups and downs, it’s about using what I’ve learned to help others to find peace and some sense of normality. So there’s no need for me to share whatever vague thoughts are rumbling around in my mind just to fill up an empty space.

That said, I haven’t been completely idle regarding the blog. To follow up on my last post, I’ve been busy doing more research into the connection between PMDD and the cycle of menstruation—have uncovered some fascinating stuff--and once I have my thoughts and facts in order, I’ll post them here. On a more personal front, I’ve been seeing a nutritionist in my ongoing efforts to manage my PMDD. That is not going well, and when I write up the account of my experience, I’m sure a lot of you will nod your heads in understanding, as I’m sure many, if not most of you have experienced the same frustrations. But again, I need to wait until my research is complete to write about it.

So for this week, I invite you to browse through past posts—a good place to start would be the over on the sidebar, under Popular Posts. (I’ve moved it to the top of the page for now to make it easier to find.) You’ll notice three of the top ten are posts for men on how to deal with a partner who has PMDD. Lots of good information there, and well worth reading (or passing on to a caring partner) if your relationship is in any kind of trouble.

Another good post is More Things That Make Your PMDD worse. A Perfect Storm of PMDD describes in detail what it’s like to have an episode of PMDD. And if you haven’t read it already, my favorite post is They Only See Our Failures.

Until next time…please continue to read, learn, rest, relax…and Be Well.

PMDD Crisis Guide - The Mental Realm of PMDD

This week we continue with Cat Stone's PMDD Crisis Guide...welcome back, Cat!

You can find the Introduction to Cat's Crisis Guide here.. and her post on the Physical Realm here.

The Mental Realm

This realm is where you will find your thoughts, and inevitably, the things you say. Over time this realm is programmed with reactions and responses to things that you are told, or things that happen around you. This realm for a PMDD sufferer is usually very chaotic.

During the hormonal changes in a woman's cycle, her body will undergo changes and present physical problems. These are a little easier to deal with than the changes that go on in the mind during this time.

This is probably best represented by the term, 'mood swings' although that would suggest the problem is just an emotional one. It isn't. The chemical changes in the body actually create false moods, which often bring about 'false thinking'.

A PMDD sufferer will experience random thoughts, seemingly crazy thoughts during their 'bad' time of the month. Thinking outwardly becomes impossible. Seeing the bigger picture seems impossible. All thoughts become inward and bad memories surface. Reactions to what people say, can trigger a negative spiral of thinking that can be overwhelming.

For me, it's like a constant battle in my head. I KNOW how I would normally react, what I would normally think, but during that time, things are not normal. I begin thinking I'm the worst person in the world, that my kids would be better off without me. I think about my past and all the painful things that have happened. I think people should leave me alone, not bother with me.. I lose all my self esteem and belief. All the things that normally get me through no longer work... The clothes I wore last week don't look right, even though it's the exact same outfit. I look in the mirror and see something completely different. This change in perception is quite common in all women who suffer from PMS, but when it means you don't leave the house because you have tried on 10 outfits, are full of tears, anxious, stressed out and frustrated, you know you are suffering from something worse.

My thoughts spiral out of control during my PMDD time, but I am learning to control them. Realising that your thoughts are not really your truth, takes time to happen. I often say... 'In my good head, I know this is true... but right now, I think that blah negative blah' I can recognise what I would think if I were in a good week, and what I am actually thinking. Dealing with the emotions that these bad thoughts bring up is harder than trying to control the thoughts, but keeping your thoughts in check goes a long way to steering a breakdown off course.
After talking to many women who have PMDD, it is obvious that they all feel like 'Jekyll and Hyde'. In fact, you will find that term used quite often when describing PMDD.

A woman with PMDD will find herself thinking about abandoning her kids, and how she'd do it, and how she'd get away. Or leaving family, friends or job. She may think the answer is suicide and spend many hours debating suicide, going through plans or writing her note to leave behind. She may think about drinking till she sleeps, or hurting herself. Her thoughts will turn to guilt, and she'll sit and think about all the damage she has done to her family or friendships, how lonely she is, how no one will ever understand. I know this to be true because I have done all these things, on repeat... for years. These thoughts are what drive people to harm themselves, along with the negative emotions, and it's why it is important to try and get these thoughts under control.

What also changes at this time of the month is the way you speak. This is governed by your feelings, and the things that are going on in your head. A chilled-out, mild-mannered woman will turn into a screaming, shouting, crazy, scary beast. You think I'm joking? This is one area the most damage can be done to your family and friends. The things you say. I would bet that every woman with PMDD has had an episode, and when the storm has died down, has had to think about what she has said to the people she loves. Nasty, spiteful, bitchy, outrageous things. Stuff you would never let leave your mouth. Goddess forbid you argue or fight with a PMDD woman having a bad episode.... Sanity has left the room. Like a caged animal, you want to fight. You are feeling so tired, so low, frustrated, wired, scared, you want to die, you don't care what happens. In your head, your mind is telling you you are terrible, shameful, worthless, then it tells you you will never get away from this nightmare, you will have to do this till the day you die. You worry about every aspect of your life. Will my partner stay with me? What if I hurt my kids? How can I keep doing this? I'm tired... oh so tired... I just want to go to sleep and not wake up.... What will happen if I just walk out the front door now. Mind is on OVERDRIVE.

There is a great lyric, by one of my favourite 'bands'.

How hard is it to decide to be in a good mood, And then just be.. in.. a good mood?
Dan le Sac vs Scroobious Pip - Waiting for the beat to kick in.

Ha.. yes, it's a man talking, and he has never experienced PMDD, but sometimes, you do HAVE to just decide to have a better day! FOCUS on having a better day. Focus on other things other than the thoughts.

Writing or creative outlets can help focus the mind on other things. Baking a cake, going for a walk, going to the library. Having a job can be a great focus... Distraction, distraction, distraction.
If you cant work, volunteer.. or use your time more wisely. It is too easy to let yourself dwell on the past, and mistake hormonal thoughts for the truth. It's easy to let yourself spiral. It's much harder to find the strength to change your thoughts. (Italics added by Liana.)

Some days, it is too hard to get out of the spiral. Some days, you just CAN'T. So what do you do?
Allow the thoughts to come, acknowledge them, then let them go. It's holding on almost compulsively to negative thoughts that feeds the downward spiral. You can even start talking to yourself (assuming you don't already!) and by that I mean...

'Oh hello, negative thought... what was that? I am crap mother?'

'Yes.. you are the worst mother ever, look at you, you hardly take the kids out anywhere, and most the time you are so caught up in your selfish head, You are so selfish. You slept the whole day away and someone else looked after your kids... '

Now this can go two ways.... You can either agree, or totally kick its ass.

'So, you think I'm a bad Mum? Who else cooks for the kids and washes their clothes? Who else finds things to do on a shoe-string? Who else creates a tea party in the garden, with 5 mins notice?

I have seen my kids through everything, to the best of my ability... I love them, I put 100% in when I can, and when I can't, I may sleep, or be a bit distant, but isn't that better than screaming and shouting at them. I am not a bad Mum, and will not accept that. Next?

'You dont have a life.. you sit on your fat arse all day, and never go out. What career have you got? People think you are a sponger, you drain everyone. Your friends never ask you out, cos you never go. You might as well be dead.'

(Are you going to take that?)

'Of course I have a life! I'm here, aren't I? I have this and that, and am planning on doing lots of things in the future. Just because things have been difficult, doesn't mean I will always be like this. I do have friends! And the ones that don't bother with me, aren't worth worrying about. I'm happier with a few close friends, doesn't mean I'm not liked. I give what I can to others, when I can, so, NO, I don't accept that, today I'm feeling vulnerable and a bit depressed, but thats today. Not tomorrow.. or forever...'

Don't commit the future by how you are thinking or feeling on a bad day. (Again, Liana chiming in!)

If you can learn to remain calm, and blow up every negative with a missile of positive you will soon feel stronger and more in control.

We often feel we need outside help, but there is much that can be done by you, by just changing your thoughts.

If you feel you would like more professional help with your thoughts, I would recommend looking into CBT – Cognitive Behaviour Therapy, which helps you to define your thinking patterns so you can begin to change them, and NLP – Neuro Linguistic Programming, which helps you learn about your own ways of communicating and has an excellent way of re-shaping the way you perceive yourself, others and your thoughts and words..

We only use about 20% of our brains, and unfortunately, with PMDD sufferers, we have created such strong neural pathways, that we really do end up in one cycle of thinking. The connections our brain first started making years ago, that created the chemical imbalance, have become stronger and stronger. The more you sit back and allow it to happen, the more the brain feeds off the same thinking patterns. By attempting to break the cycle of negative thinking, you can start re-training your thoughts to support you, be your friend, rather than be your enemy.

Be careful of your thoughts, for your thought become your words.
Be careful of your words, for your words become your actions.
Be careful of your actions, for your actions become your habits.
Be careful of your habits, for your habits become your character.
Be careful of your character, for your character becomes your destiny.
~Author unknown

"Any intelligent fool can make things bigger, more complex, and more violent. It takes a touch of genius -- and a lot of courage -- to move in the opposite direction." ~Albert Einstein

A PMDD Crisis Guide, Guest Blogger Cat Stone

I figured you might be getting tired of me going on and on about relationships and such, so fellow PMDD blogger Cat Stone has graciously agreed to step in and do some guest posts, starting today with her PMDD Crisis guide. Please help me welcome Cat to Living on A Prayer, Living with PMDD...

Recently, I have been feeling much better. This is a real turnaround after many years of feeling like a pendulum swinging back and forth. I feel I have more control. I am coping with my bad days more effectively and achieving more on my good days... AND it's winter!

Up until now, it has been hard to write without getting too emotionally involved, and that's no good if you are trying to help others in an emotional state. I finally feel that I can share some practical advice, and I really hope it helps other women cope with PMDD.

Firstly, here's a little about what I have learned and coped with over the years. I'm not a Doctor, but I am an Aromatherapist, and have researched many therapies and theories over the years. I have also had PMDD for 20 years... since I was 13. I have lived with this disorder all my adult life. I don't remember a time when I wasn't feeling crazy and out of control on a regular basis. I used to believe I was really mentally ill. I just wanted to be taken away and put in a padded cell.

When I look back at this, the desire to be taken away, away from my kids and life, stemmed from the overwhelming feeling of being unable to cope. A week or month in a psychiatric ward looked more like a holiday. A break from the pressure, the relentless cycle of life, bills, kids, shopping, etc.

That never happened. They never took me away. I was a single mum with a 3 year old. No family or friends as I'd just moved to a new area after separating from my adulterous husband and being homeless. I would hit crisis every month. Crisis at this time in my life was volatile... I had been through so much emotional trauma by this time that I was reacting to everything, and was feeling more and more suicidal.

Screaming, frustration, anger, rage and shouting. Throwing things, kicking things, punching, scratching my arms with my own nails, drinking, sobbing, weeping, and suicidal feelings.

I would lose all control over myself. An ex-boyfriend said once that I made no sense while I was having an episode. Words would come out, but he couldn't understand me. I figured I was a raving lunatic. I feared for my daughter. I thought I was an inadequate mother. I felt she should be taken away from me. I digress.... I know that ladies reading this who have PMDD can relate to my story, and those people who don't suffer, will never be able to truly understand how it feels.

The point to my story is that I have been in crisis more times than I care to remember. It's taken me years to understand, years to develop ways of coping, years of trying different meds... I grieve the years I have lost to PMDD, the opportunities lost and the events I've missed.

In everything I study, there are different realms... We live in physical, mental, emotional and spiritual realms. In holistic therapy, we can become unwell or suffer dis-ease in any of the realms. I believe in the theory that everything is interconnected. An illness in the mind can become an illness in the body, and PMDD is a disorder in the body that causes a disorder in the mind.

PMDD is an invisible disorder. Women that suffer look no different to women that don't (unless you count the extra grey hairs and bags under the eyes!). PMDD dis-ables women. It robs them of approximately two thirds of their life, every month, without fail.

PMDD often gets misdiagnosed as Bi-Polar. I asked my Psychiatrist what the difference between the two is, and he said 'Bi-polar sufferers will have periods of time (weeks, sometimes months) when they function normally. Life is relatively normal. Then they will swing, either up or down, again for a longer period of time, and the cycle continues.

PMDD works on a much faster cycle. The ups and the downs can be weekly, sometimes even daily, and there is no long period of normal, functioning time.' PMDD sufferers may get a few days in a row of feeling OK, and believe me, there is MUCH to do during those days... sort out problems, fill in forms, do the shopping, clean the house, catch up on work. It all too quickly deteriorates and jobs end up having to wait again till the turmoil is over.

If you can get to the point when you know you're about to explode, when you can recognise the feelings building, when you are aware of your actions, then you have half a chance of diverting disaster. In my next few posts, I will be looking at each 'realm' in turn, and how PMDD affects you on different levels.

This is my interpretation, my opinions, theories and my experiences. One thing is for sure.. although there are a lot of commonalities between PMDD sufferers, what works as a treatment, what helps you get through and survive is usually very different. There is no one way to treat PMDD. I am just sharing my way, in the hope I might be able to help others find their own path through PMDD.

My next post.... PMDD and the physical realm: Looking after the body to look after the mind.