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~Seek first to understand, then be understood~
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If you're looking for information on a particular topic, type that word in the search box below. If I have written about that subject, a list of posts will appear. If no posts come up, I haven't written about it...yet. Emails, and questions in the comments section for possible posts, are welcome.
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I have a "friend" who shows up once a month. She turns my world upside down, over and over again.
I am a good person, caring and sweet, but when she comes to visit, I could rip off your head.
She takes no prisoners, foul words she does spout, I try to keep the words in, she lets them come out.
People don't understand me, or what this is about, to have this creature inside my head.
I despise who I am, half of the time, I feel sorry for my daughter, family and friends.
There's no way to describe it, for those who don't know, it's a living nightmare, she really needs to go.
~Neysia Manor, Rest in Peace
Showing posts with label love. Show all posts
Showing posts with label love. Show all posts

Sunday, February 16, 2020

What Real Love Looks Like


Since February is the month for relationships, I've linked to a post by fellow author, blogger, and women's health and wellness advocate Tara Mandarano, written about relationships.  It's not PMDD specific, but the wisdom in it applies all the same...  

A real relationship is two flawed people refusing to give up on each other. It's encountering everyday obstacles and unexpected hurdles and finding a way through them together.
It's talking it out when you'd rather give each other the silent treatment. It's listening to the other side of the story when you believe yours is the only valid perspective.
It's holding hands and hugging it out after an argument. It's hanging on for dear life when you go through emotional hell and feel totally beside yourself.
It's finding time for each other at the end of the day, when you're feeling fraught and spent and just want to read a book or scroll through your phone.
It's putting away your phone.
It's not hiding things on your phone.
It's being together in the same room even when you feel galaxies apart. It's building a bridge between hurt feelings and new beginnings even though it's so, so hard.

To read more, please go here.

Tara is also the author of an essay in the newly released BIG: Stories about Life in Plus-Sized Bodies.  

Sunday, August 26, 2018

PMDD and Self-Awareness - What Has Your PMDD Taught You?


Today's post is an insightful guest post that describes a journey of self-awareness.  I have long said that self-awareness (and then self-acceptance) is the key to mastering your PMDD. You know yourself better than anyone else does.  Take the time to get to know you, and learn to be your own best friend. Not a moment of that will be wasted, because doing so will bring you many steps closer to wellness.  Get to know who you are on good days and bad days.  Learn to love and accept all of you.  For me, personally, the results were life changing.  I learned to focus on my strengths, and, on days when I could not be anything resembling strong, to focus on my needs. My guest today shares the difference it has made in her life, and in the comments we both hope you will share what you have learned about yourself through your PMDD.

Ladies here is what I have learned about my PMDD, or what PMDD means for me:

1) Low tolerance for fake and false people.
2) Hate lies and lying.
3) Low tolerance for people pleasers.
4) We are super intuitive and creative (could be blocked).
5) Don’t push me or have me multi-task above the pressure I put on myself.
One thing I am grateful for is PMDD has allowed me to get to know all of me, the good, the bad, the ugly. Yes, I am super loving and passionate and I can get super irritated and angry as well especially if I feel sarcasm, slimy, abusive, inauthentic, people pleasing, shifty behavior.  Also, to the ‘super smiley-my life- is-perfect people’ - I don’t buy it one single bit.
I am glad that I know my rage, I know her well.
I know my grief, I get down on my knees and weep.
I know my sexy bad ass, she can be sensual AF.
I don’t want to be around fake people or people pleasers, I will have to mirror that bullshit.
I am not interested in small talk.
I am an extrovert but my introvert demands a lot of alone time and I love her for that!
I need to create and often. If I don’t I get cranky.
I need alone time. If I don’t I become a bitch on wheels.
BOUNDARIES are super important.
Successful relationships are ones that are mutually beneficial and fair. I have stepped away from all the ones where I was giving more.
I follow my turn on. I don’t bother if I am not turned on by a place, a person, an event, a function. If I do go I will just become cranky.
My anger and my bitch are there to protect me to remind me to get back into my body and out of my head. To tell me when I have self-abandoned me in order to please someone else or self-sabotaged me away from my dreams.
Next time I will be kinder to me and not leave me again.
No means NO and does not convert to yes the more you whine or beg. With my kids: I am your mom, I won’t always be popular. Suck it up.
On any request: I will tune into my body and ask Do I want to do that now with this person? (It's okay to say maybe another day).
I need variety. People and places. Sameness bores me.
Nature turns me ON. It’s not a luxury but a necessity!
My body needs to move! OFTEN.
Music makes me FEEL good!!!
I would love to hear what you have learned about yourself on your PMDD journey.

Sunday, March 4, 2018

The Voices of PMDD: Tough on Relationships

Anyone with experience can tell you, PMDD is tough on relationships. By the time I was 25, it was certainly getting tough on my parents and sisters, and then my first husband. This was before I knew anything about PMDD. I thought it was just PMS, but no one else with “just PMS” seemed to be going through what I was. When I would try and explain to confidants, I would be warned off blaming everything on hormones. Yet once a month, like clockwork, I would dread interacting; I could feel my personality morphing. I would cancel plans, back out of things, even leave vacations to go home! I would have massive flip-outs. Family thought I was just a moody, selfish and spoiled brat. In truth, I was being ruled by my hormones. I hated it as much as they did. It made it so hard to make plans or get excited about anything. And since it was cyclical, it seemed like “just who I was”.
I’m married for the second time now, and it seems I decide to divorce my husband pretty much every month. For nearly a year, I’ve been pulling my luggage out of storage and packing my bags only to put it all away again a week or so later when my cycle shifts again.
Maybe I had no business getting married in the first place, but we had to. We lived in separate countries, and it was the only way to be together. As much as I may have wanted to live abroad, I quickly realized I didn’t have it in me to deal with the culture shock, language shock, new roommate shock, etc. and all of the loss…of home, work, friends, family, belongings, car, etc. I had no idea the impact of moving overseas and all it entailed would have on PMDD!
Over the first two years of our relationship, the stress I endured was enough to give me PTSD and a whole new level of experience with PMDD, which by the way, I had only learned about half-way through our marriage, as I desperately looked for answers about why I was suddenly such a full-on raging lunatic every month. When I read about it, it was like a string of lights lit up in my DNA. When I started tracking my symptoms, I had all the evidence I needed. I hadn’t been imagining this plague! It was only in hindsight I was able to piece together aspects of my history that pointed toward PMDD and that those pieces of a near life-long puzzle started snapping into place.
In this marriage, our problems have centered around my PMDD. It’s an easy target. Once I knew what it was, we’d talk about it on the good days; I’d try to explain it and tell him what I needed from him. He’d listen and nod and say he understood. But for some reason, month after month, he just couldn’t deliver. Was it me? I thought so. I really, honestly blamed myself. Maybe I was asking for too much space. Maybe I was demanding too much help. Maybe I wasn’t trying hard enough!
Our marriage passed through a very difficult season of intense arguments, usually when I was in the throes of PMDD. These arguments only served to further impair my already affected mental state and merely re-traumatize me in all the ways I’d lived with growing up. It was becoming unbearably painful. Again, I blamed myself. If only I didn’t have this disorder. If only I wasn’t so needy, so messed up, so controlling, so…me. Of course, I blamed him too. If only he’d clean up, do what he promised, give me space, be…someone else!
Then one day, after an excruciating and emotionally abusive exchange between us, a genuine turning point arrived. I realized this endless struggle simply wasn’t what I wanted for my life. If I had a disorder that made relationships challenging, then I had to decide whether my marriage was a help or hindrance to my healing. I realized it had become a hindrance. Yes, I had my issues, AND my husband had his own issues, and all of it was creating a mess I couldn’t bear. We weren’t being “good for each other”. It was plain and simple reality, regardless of fault. That’s when I knew it was really over. I told him I wanted out, for real this time.
I started to focus on my own healing (or refocus, truth be told). I got into positive psychology, started taking B-12, Magnesium, and Ashwaganda for my blown-out adrenals, and hired a counselor, too. I learned to focus my mind out of hormone-created mental “shit storms”, and on the days I couldn’t, I treated myself gently. I began to process all the changes and losses of the past couple of years. I thought about what I still valued in life and took notes. I also realized that I had to at least try and communicate with my husband what I was going through, if just for my own experience. It didn’t matter if he got it or not; I just had to learn to communicate it. I began to want to understand what it was like for him too. I wanted to know all the ways I had been unskillful in our marriage so that if I ever got into another one, it would be better. It was really painful work, digging in the underbelly of so much suffering, much of it self-created. It was also difficult letting go of all the things I simply couldn’t control…like certain symptoms of PMDD or my husband’s perception, understanding, or lack thereof.
Shortly after I took on this mending, a miracle happened. We started really talking again and meeting each other in a different playing field. We both got more skillful. We accepted what we’d been resisting and/or taking personally. We found our love for each other again. We were finding our way to being “good for each other” again.
We are definitely a work-in-progress. Believe me, we still piss each other off, but now, we know when to back off and give each other space, and we know and understand a little better the ways we are either too different or too much alike to help one another. There’s more respect between us.
 So, despite hiring a divorce lawyer, we’re still married and going on three years now. Will we make it to four? It’s possible now, though it had gotten to a point where it wasn’t. There are still times of the month when my cycle shifts gears that I see through the eyes of judgment instead of love, when I just want to get the hell out of here, and when fear tries to take a hold and make me see only problems. Yeah, yeah.
Whatever, dragon!
When I try too hard to understand it all, I often don’t know what to believe. Do I believe the judgments that say he’s a total jerk, agonize over the crumbs and spills in the kitchen, and ruminate on stories about how everything is so terribly wrong? Or do I put my faith in the days when I’m overjoyed to see him, love his hugs and kisses, laugh with him, and feel grateful for his presence in my life and all the ways he blesses it? I know now that for the most part, both heaven and hell are inside me, and no matter where I go, I’ll take them with me. It all boils down to where I place my focus! 
Liana's note:  The above guest post was written by the blogger Cheekyminx. With her permission, several of her posts about PMDD are featured on this blog. In the meantime, to find out more about her work as a PMDD Advocate, please visit her Facebook page, PMDD Life Support.

Saturday, March 25, 2017

PMDD: Into Me See

The following is a guest post by the blgger Cheekyminx. With her permission, several of her posts about PMDD are being featured on this blog. To find out more about her work as a PMDD Advocate, please visit her Facebook page, PMDD Life Support.
I've said I wanted to write about some of the things that help me to cope with PMDD. Maybe another day. Right now, NOTHING is helping. In fact, everything is just making it worse! I suspect, hell, I know from reading the forums, that this is pretty common. Nothing helps, at least it seems that way, and everything is an irritation. A speck of dust in the wrong place can make me want to jump out the window. Yes, it’s irrational. That’s kind of the point, and I don’t need to be reminded of it…  At least I have some control over a speck of dust.
The reason nothing helps is because nothing makes this chemical shit-storm of body and mind go away. It is still there, demanding attention, making me behave in ways I cannot stand. But there are things that do bring modicums of comfort. I can take a bath. Sitting in the sunshine smelling the grass helps, too. There are also my standbys of yoga and meditation. I would be lost without them, but sometimes, they aren’t enough. Really, they’re never enough…not during PMDD. They just offer a bit of relief and keep me as stable as possible.
The saddest thing may just be that so many of us have to get through this pretty much unsupported and alone. Very few people get it enough to be of help. The fact is, if you don’t have it, you just don’t get it. This includes friends, roommates and partners who, needless to say, have a very hard time of it, and often wind up making everything worse, even if they don’t intend to. Even if it was me on the receiving end of this phenomenon, I don’t know how I would respond. I guess it would depend on my own mental state that day. Sadly, PMDD ruins plenty of relationships.
But one can dream that suddenly, it wasn’t such a horrible thing for others to cope with…
Dream Sequence
I wake up and I can feel the stirring of hormonal reaction inside my body. The good days have passed. Shit! Here we go again. Two weeks until my period when I can think and act straight again and not detest myself for having no control.
In walks my husband with a bouquet of flowers. “Good morning, sunshine!” he says.
“Drop dead.” Shit, I think to myself. Did that just come out? Oh, crap, oh crap, oh crap. I want to enjoy the flowers. They are so beautiful. Please, please, please let me just enjoy the flowers. How did he know how much they would mean to me? And yet, I can’t express it. The only words out of my mouth are “drop dead?” What is wrong with me?
“Honey, I won’t take what you said to mean anything,” he says. “I know what day this is…um…I know any day now I’ll be losing you for a week or two to that whatever it is…but I just want you to know, I’m going to do everything I can to make it easier for you this time.”
Really? I think, heart melting inside while I roll my eyes on the outside thinking of what a damned irritating [insert cuss word] he usually is at this time. How does he intend to do that? Go on vacation for two weeks without me? He would abandon me like that!
I go down to the kitchen expecting crumbs on the cutting board, knowing I’m about to get all wound up, and what’s this? The kitchen has been cleaned! I mean, really cleaned! The floor actually sparkles. It’s a miracle!
“Do you want breakfast?”
“Just leave me alone,” comes out of my mouth while "Yes, please make me your lovely eggs" never leaves my lips.
“I’ll make some eggs. If you don’t want them, you don’t have to eat them. If you do, I’ll leave them here for you.”
Hmm…what’s gotten into him? I start to think paranoid and judgmental thoughts. I just manage to hold back the bitter words that want to exert my independence, “I can make my own eggs!”
“Oh, by the way, I know how much it’s been bothering you that I hadn’t fixed that sink since we moved in two months ago, so guess what?”
What? Another empty promise to fix it…someday…next year? I’m biting my tongue because I KNOW I’m thinking with way too much exaggeration. Words start leaking out…words I KNOW will only do more harm than good…
“I called the plumber. He’ll be here next week when you feel better.”
He… I can’t help but smile. The tension in my body that usually just gets tighter and tighter is starting to untwine. This is all getting to be too much.
“I also tidied my room just so you won’t have to be repeatedly irritated by the disorder in there. I know it affects you and makes things worse. In fact, I’ve decided to take care of everything on this here list that I normally force you to tolerate and remind me of month after month like I’m deaf. I may let things slide at other times, but I realize it just makes things worse once your cycle again. Besides, it really is my responsibility…”
Oh, my God! I just want to cry now. I have to cry. So out it comes. I am sobbing uncontrollably. Great. Now he’ll take it personally and the world falls to shit.
He doesn’t say anything. He gets a pained look on his face…and then, it happens. Another miracle. He takes me by the hand, leads me upstairs, and holds me on the bed while I finish crying. At first, I push him away. I can’t bear to be touched. It actually hurts. But he holds me even tighter. He isn’t trying to get me to stop crying, or offering me Kleenex, or asking me what’s wrong. He’s just there. Strong. Reassuring. And I feel safe for what feels like the first time in my life.
When I stop, I feel stupid. I feel embarrassed. And I push him away. He doesn’t say, “I can never do anything right.” He doesn’t throw up his hands. He doesn’t call me crazy or make me feel worse than I already do. He just says, “Honey, I love you. I’ll give you some time and space. I’ll go get some groceries because I know we are out of bananas and chocolate…and frankly, that scares me right now.”
I want to say, “and we need lettuce” but I can’t get it out my mouth. Why the fuck can’t he remember the fucking lettuce? And then I cry some more, ashamed of my ridiculous thoughts but also, feeling a strange sweetness inside. I think I’ll bake him some cookies.
I know. It’s just a dream. Maybe it is too much to ask. Is it catering and kowtowing? Is it just too utopian? To expect another person to be able to behave this way when faced with judgment, contempt, rage, and the other unpleasantries that consume a woman in PMDD? Is it too much to expect someone not to take such seemingly personal attacks personally? To be able to be in our heads knowing what it is we need or want when it is suddenly impossible for us to just speak it? To be able to set aside their own discomforts with whatever has taken us over to wonder, my God, what is it like for her?
I suppose so. People are people after all. There no such thing as a Stepford Husband.
Then again, maybe this is all it would take to change the patterns and break the cycles. Maybe, PMDD is a dis-ease in consciousness designed to make us learn things we never would have otherwise about ourselves and each other, given the compassion and support to get through it. What are the lessons? If we knew that, we wouldn’t be going through it. Maybe learning them would be the difference between escalation and management.
Or is it just spiritual bullshit to think there are lessons. And even if there are, what if they aren’t being learned?
If nothing else, maybe this little dream illuminates the secret machinations of the very complicated and unsettling PMDD mind.
I hope so.
Postscript: I shared this with my husband who said it helped him understand me better. I told him I wasn’t going to post it because it just felt too exposing. But then, on one of the Facebook forums, I read a post from a young woman who had just had a blowout with her boyfriend. She was so upset, and I could feel the shaking in my own body…  I thought about what my husband said, that this helped him understand. I thought about what he did for me after reading this: fixed the sink, took me grocery shopping, didn’t walk away when I was emotionally over-stimulated but held me instead. He just wants me to be happy. Given a little information, he actually wants to put it into practice. So, I’m getting over my damned self and sharing this now because it just may help someone else.

Wednesday, March 16, 2016

PMDD - One Woman's Prayer

Below is a poem written by a young woman before she had children.  I asked to post it here because I spent many years hoping the same--and for the very same reason.


I Hope I Never Have a Daughter
I hope I never have a daughter
I don't want to see her cry
I don't want to have to tell her
That sometimes there are no reasons why
Why you feel completely alone
And that no one really cares
Why you cry yourself to sleep at night
And, get angry/upset unawares
Other people just don't get it
But your Mama she understands
Because she went through the same thing
And will be there to hold your hand
Some people just think it's an 'excuse'
Well, I'm here to tell you it's not
Don't blame it on yourself, love
This isn't a disease that you've got
It might have a few names or titles, if you will
But, if you haven't suffered from it
Others usually tell you to just 'chill'
Chilling doesn't really help
'Cause the pain doesn't disappear
I can't quite put my finger on it
'Cause nothing at all is clear
If I ever have a daughter
I hope she isn't like me
I don't want her to suffer
incessantly
because of
PMDD
©Sarah Prais - 2016

Sunday, February 14, 2016

A PMDD Valentine: Not All Chocolates Are Equal

For Valentine's Day, a post about chocolate (and a few other things), first written in 2009, but updated and still relevant today.
Having come freshly off a week of spending up close and personal time with my evil twin, who kicked my butt so badly the last day she was here I had to take a three-hour nap in the middle of the day, on top of getting a full night's sleep, today I feel uber-qualified to write about how it feels to experience PMDD. The thing is, now that the episode (aka her latest visit) is over, it's the last thing I want to think about.
I look around and see all that didn't get done over the week, the laundry piling up, the floors that need to be cleaned, the clutter of all I didn't feel up to coping with and simply set aside, and would much rather regain some semblance of control over my life—if only its external appearance—than write about the dark place I inhabited for eight full days and change this time around.
Why such a long visit this time? I think I know. I think it had something to do with my recent road trip: the stress of travel, the staying up later than usual, sleeping in strange environments, the change in diet, the miniscule amount of alcohol consumed, although in comparison to my usual alcohol intake, it was a big jump. Add that to the copious amounts of caffeine I consumed while on the road, the pasta-heavy fare at the conference, and I think I'm getting the picture. At home, I'm usually alcohol and caffeine free-or close to it. An occasional cup of coffee, usually one cup of caffeinated tea in the morning, if I feel the need, and chocolate only when "the cravings" come.  I hadn't had pasta or bread in weeks before the conference.
Why? All of these are bad for women with PMDD. Caffeine, alcohol, sugar, flour, hence the bread and pasta. But why am I so sensitive to their effects? I know women who practically live on caffeine and sugar, others who drink freely, others who love their bread and pasta. Is it possible they feel as miserable as I do, or more so, but deny their misery and continue to self-medicate with food and drink?
Because attempts to self-medicate is what these addictions (for lack of a better word) are. My research is showing there are very few true physical addictions in life. Most compulsions are emotionally or psychologically based. Only in rare cases is an addiction physiological.
That's not to say we can't get cravings. But cravings are cravings, temporary urges for some kind of substance to relieve our mental, emotional, or physical discomfort. Cravings are not addictions, although when you are in the throes of one, it can feel like an addiction. But as someone writing a book on dealing with addiction recently pointed out to me, "You're not going to stick a gun in someone's face for a piece of cake."
Cravings are the body's signals that some physiological need is not being met. You're low on some vital nutrient, to be exact. Your body is saying, for instance, "I'm low on magnesium," and you feel a sudden urge to eat a banana, or some almonds, maybe some oatmeal, or, yes, some chocolate.
Chocolate is one of the best known substances we crave. What confuses the issue with chocolate is not only its physical healing properties (of which there are many), but its emotional associations. We associate chocolate with feeling good. But not all chocolate is equal. Some are better for us than others. Much better. Others are almost useless, physiologically speaking. In the example above, a banana would provide as much magnesium as a 1.5 ounce chocolate candy bar, but a handful of almonds or cashews would provide almost three times as much magnesium as either the banana or candy bar.
So why do we reach for chocolate? It's as much for the emotional fix as the nutrients needed. More confusion arises when we don't know the difference between types of chocolate, due to the marketing and advertising claims of their manufacturers. Manufacturers is the key word here. Quality chocolates from true chocolatiers abound with the beneficial properties of chocolate. True dark chocolate is a rich source of flavanoids and antioxidants, with the cacao bean containing more than twice as many antioxidants the so-called superfoods like blueberries, kale, spinach, or broccoli.
It's the cheap, mass-marketed brands that—while they may contain tiny amounts of chocolate's beneficial properties—have processed most of the antioxidants and flavanoids right out of the chocolate. To derive any benefit from eating these lower quality chocolates, you need to eat way more than is healthy for you. When this happens, the negatives outweigh the positives—and you could end up outweighing all your friends.
Meanwhile you're bewildered, thinking, "Chocolate is supposed to be good for me, right? Milk is supposed to be healthy for me. Isn't that what the ads say? By eating chocolate and drinking milk, I'm doing something good for my body, right? So why do I feel so miserable?"
Because all the chocolate in the world isn't going to solve your problems, honey, and while I may crave it like mad at times, neither is it going to make my PMDD go away. For all its mood-enhancing abilities, even the finest Belgian chocolate won't "cure" dysphoria.
Dysphoric is the opposite of euphoric. Euphoric means happy, dysphoric means depressed. As in depression. But only pre-menstrually, which I suppose can be considered a blessing.
In some atypical cases, however, the dysphoria can come AFTER a woman begins her period. Lucky me, I'm atypical. Mine usually starts on Day 3, if it's going to come. It doesn't always come. Which is what drives me batty, trying to keep on top of what I need to do—or to avoid—to keep it from returning.
I lead too full and rich a life to keep being knocked flat by this unwelcome change in my body. It makes me feel like I'm constantly behind—on everything.
As women, we all know "it will never get done," but to have something come along and steal a full week or more out of your month, something that no matter what you do or don't do seems to be totally beyond your control...it's more than frustrating. It's crazymaking.
I'm here to tell you you're not crazy. I'm here to tell you there are scientifically proven physiological reasons for why you crave the things you do—like carbs—and what happens to your body as a result of that. I'm here to tell you there's help, and hope, but it's far from easy, living in a body that seems to have a will of its own at times, and a manufacturing and marketing culture that promotes unhealthy foods as healthy because of their base ingredients, while completely ignoring the toxic effects of their processing processes.
That said, the first step is to forgive yourself for falling short of your own expectations, and to understand that what is happening to you is as involuntary a response as an allergic reaction. You cannot control it. You can try to soften it, to be sure, by living a universally healthy lifestyle (once you understand what that truly is) but you cannot control it.
Nor can you deny it and simply plow through it, as most women do. We have commitments, responsibilities, schedules, and deadlines. We have people counting on us to be there for them.
But first, we have to learn how to be there for ourselves. My book PMDD and Relationships, addresses this topic in detail. I can hit on a subject here and there in a blog post, but the book...the book covers it all, from start to finish. And if you are a partner here looking for information about PMDD and how to live with the woman you love: PMDD: A Handbook for Partners is for you. Click on the book covers in the sidebar for more information.
So be good to yourself today, and every day, and when it comes to chocolate—insist on the good stuff. 
Because you are most definitely worth it.
Happy Valentine's Day, all!
Remember: When it comes to chocolate, the darker, the better.  You might have to work your way up to it (I'm now at 70% cacao), as it can taste bitter at first.  But the darker it is, the better it is for you (and your blood pressure!).  And don't drink milk with it because that interferes with your body's ability to absorb the antioxidants in the chocolate and therefore dims its beneficial/healing effects.

Liana Laverentz is the award-winning author of two books on PMDD, PMDD and Relationships, and PMDD: A Handbook for Partners.  Both books are based on the most asked questions by her readers, and therefore the most popular posts on this blog. Both books are also an excellent resource for understanding your PMDD and for starting a meaningful conversation with loved ones who want to know more about this debilitating disorder we live with daily.   More information on PMDD can also be found on Liana's Facebook page, Living with PMDD.


Thursday, January 28, 2016

The Voices of PMDD: Our Seven-Year Struggle With My Wife's PMDD

Recently on Facebook I came across a conversation where one couple who had experienced PMDD was reaching out to help another. The first woman had asked her husband to write a letter to the other woman, to help the second woman explain PMDD to her husband. She then posted his letter on Facebook. I knew right away this man's wisdom and clarity could help so many others...so I asked the couple if I might share the letter on my blog, and they graciously agreed.
Her name is Twilah, and she has a blog of her own, one having to do with navigating the American medical system. His name is Alec Johnson, and here is his letter:
I was asked to write this in an attempt to explain PMDD from my perspective as a husband who has experienced PMDD. I am also a Clinical Scientist with a quarter century experience in medicine and healthcare. I can tell you from my experience, PMDD is one of the most difficult disorders [to diagnose and cope with], for both the patient and her family.
I speak from seven years of experience living with my wife, who was Jekyll and Hyde. I only hope to provide some assurance to you that your feelings of frustration, anger, hurt, and disbelief are normal and understandable.
I also wish to convey from a clinical standpoint that your wife is not making anything up, nor is she able to control her disorder. Even if she had the greatest willpower of any human, she cannot will a hormonally-mediated disorder away.
My wife is a very intelligent, driven, and willful person whom I adore. That's why I married her! When we met she was a runner who ran 4-6 miles every day of the week. She was less than 10% body fat, and thus did not have periods. It is common for women with this low amount of body fat to stop menstruating. When we began dating we went out to dinner often, and shared more than a few bottles of wine. This slight change in her lifestyle over approximately 2 years caused her to gain a small amount of weight. Maybe 8-10 pounds on her 105-pound frame was enough to restart her hormones and periods. She began to change.
I noticed her becoming moody and anxious as well as not being very nice to me. I marked it off as stress from our upcoming wedding and honeymoon as well as normal work and life stress. Things were mostly fine and then one morning she called me from the emergency room saying she wanted to kill herself. This was all completely from left field. I had no idea what was going on.
My wife had been experiencing PMDD for a number of months at that point, and was doing okay at suppressing the symptoms. On this particular day she could no longer control the most powerful human chemical, hormones. Hormones are intensely powerful chemicals for both men and women. I would imagine you and I are at least similar in experiences as teen men. You most likely remember the intense desire for girls. Hormones, and particularly testosterone, were front and center in that. You and I could no more control that intense desire that my wife could control her desire to die due to progesterone and PMDD.
I will not bore you with many details, but she and I went through hell for 7 years before her PMDD was eventually properly diagnosed and treated.
PMDD primarily manifests as a mental disorder. It appears as if the woman is depressed, or anxious, or suicidal, or any number of mental disorders or combination of mental disorders. My wife was treated with every depression, anxiety, and mood compound known to man—with no positive effect. There were numerous bad side effects though. After 4 years it was obvious that it was directly linked to her hormonal cycle. For about 2 weeks of the month she was perfectly normal. Then every month without fail she would wake up as a person I didn't recognize.
She was suicidal, depressed, and most of all had the worst anxiety imaginable. We told every physician we could tell that her symptoms were hormonal and directly linked to her cycle. They gave her more mood drugs and ignored the hormonal aspect.
Finally quite by accident she saw a reproductive endocrinologist doctor. This physician not only recognized PMDD, she knew how to treat it appropriately. Some women can be treated successfully with birth control pills or psychiatric drugs. Some women can't take those because of side effects or other reasons. For some women there are only 2 cures for PMDD, either a COMPLETE hysterectomy, or menopause.
To prove that it was PMDD, the reproductive endocrinologist prescribed a drug named Lupron. This is a once a month or once every 3 months injection. My wife was to take the injection for 6 months. Lupron shuts off the ovaries and hence mimics menopause or hysterectomy. After a couple of weeks on Lupron my wife was back. It was completely obvious that what we had been telling many doctors for years was true. She had PMDD. No amount of willpower or mood drugs was going to fix or control my wife's complete [and biological] inability to tolerate progesterone.
Progesterone intolerance made her crazy and out of control, and controlled our lives for 7 years.
After 4 months the side effects of Lupron became debilitating, so the doctor referred my wife for a complete hysterectomy. That's when the real hell began. From the time between when the Lupron wore off and before the surgery could be arranged, my wife's ovaries rebounded. They produced massive amounts of hormone in an attempt to bring her absent hormone levels back into range. It was so bad I truly believed my wife would be arrested and put in jail before we could get her into surgery. I could tell you stories...
She finally had surgery on 24 December 2014. Literally the next day my wife looked at me and said, "I feel a calmness I've not felt in many years."
She was cured and our life together saved. This is our story.
I would imagine that right now you are experiencing the worst PMDD has to offer. Please understand that your wife can't will her PMDD away. She cannot "just try harder." She cannot simply "pull herself up" and "get it done" at times you might feel she should. I COMPLETELY understand. I'm sure I was not the nicest husband all the time when we were going through our hell. There were times I could barely maintain my sanity.
The only things that got me through was my love for my wife and knowing it was not her fault or choice. If I ever thought she could have chosen to act differently and she just chose not to, I would have left. Thankfully I knew it was not her fault.
From someone who has been in your shoes, I ask you to please understand your wife needs you more than ever. I know how completely maddening and frustrating it is to deal with right now. Get her to a reproductive endocrinologist who understands PMDD. Make peace with the fact that she may need birth control, psychiatric medication, or even a complete hysterectomy, and do what you can to get her the necessary treatment.
If surgery is appropriate do not allow a doctor to leave either of her ovaries. Ovaries are the problem.
As an aside, both my wife and I had our DNA sequenced for genealogy purposes last year. After that we found a website that would analyze our DNA and give us health information. It shows my wife has a known genetic mutation that makes her unable to metabolize her own progesterone.

I didn't need a DNA test to know that, but it was a nice confirmation of what we had experienced. 

Sunday, January 17, 2016

PMDD Quote of the Week

Women with PMDD want to feel normal,  We don't want to admit there's something going on in our brain that isn't right.  Something that even the medical professionals can't agree on, much less define.  We can find a thousand excuses for why we are so clumsy at times, or so ravenous, or irritable, edgy, disoriented, anxious, or weepy.  We deny and deny and deny there is anything wrong with us, or that we are in any way acting strangely, because to admit that we are doing so means we will have to stop and deal with it somehow, and how can you deal with something that defies description?

Sometimes it's a battle you just don't want to fight. 

From my books, PMDD and Relationships and PMDD: A Handbook for Partners  


Wednesday, December 30, 2015

PMDD: A Handbook for Partners

At the request of my readers, I have written a PMDD book especially for partners of women with PMDD:

PMDD: A Handbook for Partners  
Does your wife or girlfriendʼs personality change drastically every month? Like clockwork? Youʼre far from alone. It could be Pre-Menstrual Dysphoric Disorder, or PMDD, a debilitating hormonal disorder which affects 3 - 8% of women in their fertile years, including many using birth control. PMDD is what makes it seem like sheʼs gone Dr. Jekyll and Mr. Hyde on you once, sometimes twice a month. Sometimes even for half of each month or more.

Inspired by the most-read posts in the blog Living on a Prayer, Living with PMDD, this book is for the partners of women with PMDD. Inside you will find insights as to what is going on in her mind during her seemingly inexplicable bouts of confusion, irritability, anger, rage, fear, anxiety, sadness and/or despair, what contributes to her state of emotional chaos, and tips on how to cope with and care for the woman you love during these, her most vulnerable days of the month.

Thereʼs no need for you to ride the rollercoaster of PMDD like you do. There are ways to help her manage her PMDD. Let this book help you to do just that, and find peace in the midst of the wildly careening emotions that PMDD brings into your relationship and life.

On sale now for Kindle at Amazon.  Introductory price of $4.99.  Available in print from Amazon as well for $9.99.  More than 200 pages of information and understanding about what itʼs like to be caught up in the unpredictability of a relationship with a woman who has PMDD, and what you can do about it.

Friday, December 11, 2015

Readers Speak Out: Advice for Partners of Women with PMDD

Today I uncovered another gem of wisdom from a reader on how to approach your partner's PMDD.  Rather than leaving it buried in the comments section of another post, I've decided to feature it here:

I just found this blog searching for something to help my husband know what to do with me. I feel better now, but I fear I'll regress and we'll struggle again as a family. I have PMDD. I say DO NOT bring it up when she is at her worst. She is completely irrational and doesn't want to answer stupid questions or talk about how she is feeling. [In that moment] it seems so obvious to her that you should know how she is doing. Don't bring it up on a date or otherwise special time between you two. It is better to ruin a good day or week to get her help, than to keep living like how you are and end up divorced.
First, you need to get your wife medical help. When you have an opportunity to talk—not in public—ask her if she's ever had PMS. She may not have realized her moods are associated with her cycle. You're either going to get a "Yes, dumb***" answer or a "No, not really, I don't think so."
Depending on how that goes, tell her you've done some research, you think her moods might be associated to her cycle, or, if she knows she has PMS, that it might be something more serious. Tell her about PMDD. Read her the symptoms. Ask her if this is how she feels sometimes. Feel bad for her, say you're sorry she has to endure that every month. Let her know there is help available.
I know it sounds insane. I know you shouldn't have to put up with it. I also know how well I'm doing now and wonder how much better last year could have been for my marriage if my husband would have reacted to me differently. If he could have said, "How are you doing? Not well? Let's get you to the doctor," instead of "You're so mean and I don’t have to put up with this." I think I would have felt better. I was already on an antidepressant. It wasn't working.
What I need to feel better is a new prescription and a husband who will back off when I'm irritable and take care of the kids. When I have a bad day, I need him to think, "She's mad, hmm, let's look at the calendar, yep, she's pre-menstrual, I'm going to leave her alone, not mention PMS, and take care of the kids until she feels better."
It might be a few hours, it might be a few days, but it won't be a few weeks like it was last year when he was mad at me for having a bad day; then I felt worse, then there was a fear he'd leave me. I get it, I wanted to leave me, too, but women with PMDD, I'll speak for myself at least, need to feel wanted and loved and worth it to help.
So that is my advice, stranger. Ruin a good day to get her the medical help she needs. Say, "I took next Thursday off work, would you like me to take you to the doctor?" If you have kids, arrange babysitting. It's so hard for moms to find an hour to go to the doctor, especially if she doesn't feel she's worth helping. Even if it's not PMDD she has, make sure she gets bloodwork done. They should be testing her thyroid to make sure there aren't issues there.
Either way, good luck, and from the wife's perspective, thank you husbands who stick it out and deal with us. Some of these marriages seem beyond repair, but husbands can do so much to help. Think of how she is doing and what you can do to help, even if that means just leaving her alone for a bit. She’s not rejecting you. She feels like s***. Unless she comes to you, your touch will be repulsive. It’s not personal, it’s just how she feels. Know that she cannot help how she feels when she is pre-menstrual. For me, I feel angry, tired, sad, and irritable so I am distant to try to protect the ones I love most (from me).

Perhaps your wife [doesn't] care so much if she is mean, but I care. I bet deep down she cares too because she loved you enough to marry you and doesn’t want to be mean to you. You don't have to understand it, you won't ever. You just have to love her through it. Hopefully she's worth it to you.

Sunday, November 22, 2015

PMDD Wisdom for the Holidays and Beyond



I received two excellent comments from readers this week, both of them spot on, and rather than leave this straightforward wisdom buried in the comments section at the end of an older post, I thought I'd bring it front and center for your consideration.  Please keep these comments in mind as we move into the craziest and most emotion-filled time of the year, and may your next six weeks be filled with more peace and understanding because of it:

Here’s some advice for anybody who lives with a woman experiencing PMDD from somebody who has it herself: If you suddenly find that the woman you live with is irritable, seems distant, or has actually left to be by herself, leave her alone! She’s not mad at you, you didn’t do anything wrong. If you follow her around, touch her, stare at her, and ask her questions when all she needs is to be by herself for a bit, you’re going to piss her off. Look at the calendar. Is she premenstrual? Yes? Then that is your explanation for her behavior. She doesn’t need to explain it to you every month. She doesn’t want to talk about it. This is super predictable, guys. I know you may see her not feeling well and worry about her and your natural reaction is to touch and comfort and find out what’s wrong. For the love of all that is holy, just leave her alone. She can’t control how she feels and she doesn’t like it either. Don’t make it worse. She most likely already feels terrible you have to deal with her. :(  ~Anonymous comment on my post, Dealing with PMDD - Advice for Men

Guys. I’m a wife. I’m a mom. I have PMDD. I get how you would think that if your wife/girlfriend can keep it together at work that you would think you are not her top priority. But, consider this. What if she is a mess around you because you and your kids are everything to her? Think about it. Work is important, but it’s just a job. Friends are important, but they are just friends. Wanting to be a good wife and mom is everything to most women I know. Personally, I find it challenging, if not impossible, to be a good wife and a good mom at the same time. Both roles require completely different demands. This is stressful. So then, take into account that when your wife is premenstrual, she has lost her ability to cope. She’s so stressed out and so overwhelmed she cannot deal with anything. It’s upsetting when the toast is taking too long to pop up let alone the child who is screaming because she said he can’t play with the electrical cords. So, it’s hard. We care so much about being a good wife and mom, that when we can’t be, we feel incredible guilt. We are incapable of being loving, fun and efficient all time and feel so bad about it that we think you and the kids would be better off without us. These feelings can affect us physically to the point that we can’t fulfill any of our roles. If we didn’t care about being a good wife and mom, it wouldn’t stress us out. When we’re premenstrual, we can’t handle the stress.
If that’s not the case with your wife, there’s another explanation. If she’s at work all day and comes home to you and the kids at night, that means she has spent the whole day trying so hard to not be a monster. This is exhausting. There is so much she wants to do and say, but she can’t. She holds it in. Coming home to the demands of being a wife and mom put her over the top, she has nothing left. She just can’t deal with it anymore. It’s not that you aren’t her top priority, it’s that when she has time with you, she literally has nothing left to offer.
Another reason would be that work is validating for her. She's probably good at what she does, and she gets a paycheck for it. There's a reward and purpose and it feels good to be a good employee. There is not much that makes you feel good about being a wife and mom. If the house is messy, you don't know what to make for dinner, dinner sucks, laundry isn't done, etc., it's easy to feel like a subpar wife. If your 3 year old isn't potty trained, your 15 year old doesn't know how to load a dishwasher, your kids watch too much t.v., your kids eat nothing but junk, your kids fight, your kids don't obey, you forgot your tooth fairy duties, etc., it's easy to feel like a failure as a mom. It's not hard to feel inadequate at home. Maybe the "needed benefit" for her going to work is that she feels good about herself the 8 hours she's there, and that 8 hours is what gets her through the other 16 every day.
There you have three explanations. I hope this gives you insight on what you’re wife might be thinking. We’re all different, but it was sad for me to hear you think you’re not a priority or of less importance to your wife because for me, it’s the opposite. It’s the anger and frustration and questioning of our love for you that gets us stuck in depression. Try responding to her with love. If she comes home from work a crazy angry person, or if you come home from work and she’s clearly irritable, that would be a good time for you to say, “Kids, Mom doesn’t feel well. Come to me for everything you need. Let’s clean up your toys, I’ll help with homework, I’ll feed you dinner, I’ll give you baths, I’ll put you to bed.” Just try it. See how much sooner she feels better. She needs to know you love her even though she’s having a bad day. I know it’s a lot of work to do everything at home after you’ve worked so hard all day, but contemplate this: If you get divorced or she kills herself, which is something women with PMDD think of often, you’re going to be doing everything every day anyway for the rest of time. ~Anonymous comment on my post, Dealing with PMDD - Advice for Men

Monday, November 16, 2015

PMDD and How to Survive Family Gatherings, Part One

The following is an excerpt from my book, PMDD and Relationships.  

There are a lot of us who genuinely would like to get along with our families and have our family gatherings filled with happy memories of good times shared. There are also a lot of us, who, for one reason or another, aren’t willing or ready to make any sort of break with our fundamental family ties—because without family, what are we, but alone?
Nobody likes to be alone. Especially on the holidays, when according to what we see on television, everyone else is having the time of their lives.
So in this section I want to offer some positive thoughts and information on things you can do to make your family gatherings, be they over the holidays or for any family occasion, a little more pleasant.
1. Lower your expectations. Most people go into the holidays with Norman Rockwell expectations and end up deeply disappointed, even depressed and suicidal. Where do most of these expectations come from? The media. Starting as early as September, advertisements abound showing happy families sharing holiday joy. Keep in mind that these advertisements are designed to sell you products, and are not a realistic representation of what goes on in most families. Just like rail-thin runway models are not true representations of the average woman, warm and fuzzy advertisements with everyone laughing and smiling around a holiday table as they pass the food and drink are not true representations of a holiday family gathering. They are somebody in advertising’s image of an ideal—and ideals are extremely hard to reproduce in everyday life.
So don’t blame yourself if your holiday event falls short of the idealized version you see on TV. This is tantamount to blaming yourself for not having a body as hot as your favorite movie star’s. Looking good is what they get paid to do. If you got paid to look that good, you would, too. Any woman can look sexy with the right hair, clothes, and make up. If you don’t have access to the same spas, trainers, dieticians, life-coaches, personal chefs, housekeepers, nannies, drivers, and secretaries or assistants they do, then how can you expect yourself to look as good as they do?
The same goes for the happy families on TV. If you don’t have access to the same funds and props and wardrobe and production crews that they do, how can your family holiday be as picture perfect as they portray theirs to be? They probably don’t even know each other. They’re just a bunch of strangers acting like a happy family.
Don’t fall for the hype. Work with what you have, and stop trying to imitate some marketing specialist’s unrealistic image of what your holiday gathering should be like. For instance, for Thanksgiving this year my husband and I tried out a new recipe for veggie chili, made cornbread, bought some ice cream, invited one (one!) friend over, and had a great time. This same friend and I used to do the whole turkey dinner thing with a big group of friends, which was fun at the time, but since then have shifted to more low key activities.
For Christmas, we went our separate ways. No harm, no foul. For Easter, my husband and I spent the weekend in a lakeside cabin with different friends, from my high school.
It’s all good.
2. Arrive with a smile and determination to look for the positive throughout the day. If someone brings up a topic you’d rather not discuss, just smile and say, “Gee, I really haven’t thought much about that lately.” Then excuse yourself to head off for the food and or drink table, maybe ask if there is anything you can bring back for them. Deflect, divert, disarm. (If you’re already at the table, pick up the nearest serving dish and offer some food. “Would you like some more mashed potatoes?Ë® Switch the focus to them, in a polite, non-threatening way. Don’t let them get your goat.) Once you’ve returned with whatever they might have asked for, just smile and say, “Here you go,” and then be on your way. Either way, the uncomfortable topic has been diverted.
3. Use the event as an opportunity for growth as a person. Practice the skills of patience, kindness, tolerance, acceptance, and/or self-control. Congratulate yourself every time you manage to take the high road and not snap out at the person who is trying to get you to lose your cool, either deliberately or inadvertently. Use the occasion as an opportunity to learn about how and, as I said in chapter three, who you “don’t” want to be.
4. Set your intention to have a good time, no matter what. Do everything in your power to get a good night’s sleep beforehand. Read up on prayer or positive thinking and prepare yourself to view the gathering as a “spiritualË® event. One in which you know your spirit will be challenged, and you refuse to let anyone shake your good mood. One of the best books I’ve read that has to do with dealing with difficult people is Thank You For Being Such a Pain, by Mark Rosen.
5. Eliminate three words from your vocabulary for the day -- Always, Never, and Ever. Try it. Practice in advance. As in so many other areas, awareness is the key. Become more aware of these “conflict coals” and do your best to not add any more to the fire. Or, as an exercise in self-entertainment, start to notice how often others use these coals of conflict to fan the flames of family discontent.
6. Stay sober. I know this is a hard one, because a lot of people use alcohol to get through the day, thinking it’s the only way they will be able to deal with it, but in truth alcohol only contributes to the problem, because it magnifies whatever issues are already on the table, or lurking just beneath the surface. Besides, a woman with PMDD needs to stay away from alcohol. Like stress and trauma and abuse, alcohol only makes your PMDD symptoms worse. If you must drink, down a full glass of water in between each alcoholic beverage to both hydrate and pace yourself. My personal philosophy is when you get to the point where you feel like you “really want” another drink to keep that buzz going—the buzz is already on and it’s time to start backing off or you’re sure to regret it come morning.
7. Don’t choose sides in any conflict that develops. Period.
8. Stay away from discussions involving sex, politics, and religion. Arrive prepared with alternate topics to bring up…bring (or bookmark on your phone/tablet) photos of the kids or your last vacation. Anything important to you or your family that you’d like to share. Try not to get your feelings hurt if your efforts to share are brushed off, ignored, or dismissed. Congratulate yourself for at least having the willingness to try.
9. Invite a friend or two who has nowhere else to go for the holiday dinner. Sometimes bringing new people into the situation will help to keep unruly relatives on their best behavior. Or will at least make them consider restraining themselves in the presence of guests.
10. Drive separately, so you can escape if need be. If you can’t leave the house, then leave the room. Go into the kitchen and see if you can help there. Busy yourself with clearing plates and empty drink glasses/cans. Or just go and refill your own (preferably non-alcoholic) drink. Maybe spend some time in the bathroom, practicing deep breathing exercises. Go for a walk if you can. While you’re in the bathroom or on that walk, text or call a friend you’ve arranged to contact beforehand if things get dicey. Enlist some moral support, and do it guilt-free. If no friends are available to text, there are always PMDD groups on Facebook you can vent to. There is usually someone online 24/7.
11. It may well go against the grain, but if you feel you absolutely must go to the family gathering, then go and aim for one positive encounter during the event, and build from there. Next time aim for two, and privately celebrate your successes. It might take a few years to get where you want to be, but if this is your family, or your partner’s family, you’ll have as many years as you need to work on it.
12. Another sanity-saving option is to arrive late and leave early. Limit your time with your relatives so that whatever of the above you might be willing to try has a bigger chance of success.
When all else fails, disengage.

Because sometimes nothing less than to Just Say No will do. Plan an alternate holiday gathering/event and proceed with it guilt-free, telling your family you’re taking a break and will see them next time around.

Liana Laverentz is the award-winning author of two books on PMDD, PMDD and Relationships, and PMDD: A Handbook for Partners.  Both books are based on the most asked questions by her readers, and therefore the most popular posts on this blog. Both books are also an excellent resource for understanding your PMDD and for starting a meaningful conversation with loved ones who want to know more about this debilitating disorder we live with daily. More information on PMDD can also be found on Liana's Facebook page, Living with PMDD. 


Saturday, May 23, 2015

To Moms Everywhere...

With thanks to Brandi-Lee Davis, a belated Mother's Day guest post just for you...


This is to the mom
Who forgot to eat today
This is to the mom
Who has barely slept
This is to the mom
Who wanted to just give up
This is to the mom
Who spent all day cleaning
This is to the mom
Who begged for sleep
This is to the mom
Who cried to herself while everyone slept
This is to the mom
Who makes sure everyone has what they need
This is to the mom
Who feels unnoticed
This is to the mom
Who feels unappreciated
This is to the mom
Who feels like she's failing
This is to the mom
Who feels she's alone
I see you, I appreciate you
You're doing great and you're not alone