Laura Murphy
Showing posts with label rage. Show all posts
Showing posts with label rage. Show all posts
Friday, March 29, 2019
Shine a Light on PMDD - April is PMDD Awareness Month
BOSTON, MA, March 29, 2019 -- A global awareness campaign will kick off this April to help
“Shine a Light on PMDD” on a little known, debilitating and life-threatening condition that
takes an average of 12 years to be correctly diagnosed.
Premenstrual Dysphoric Disorder (PMDD) is a cyclical, hormone-based mood disorder which
impacts approximately 1 in 20 women and individuals assigned female at birth (AFAB) of
reproductive age - a staggering 60 million worldwide. With symptoms including severe
depression, overwhelm, and anxiety appearing in the two weeks before menses, PMDD takes
a toll on sufferers’ ability to work and maintain relationships with partners and family. In the
2018 Global Survey of Premenstrual Disorders, out of 1,425 patients with
prospectively-confirmed PMDD:
● 16.8% reported having lost a job due to PMDD
● 56.7% reported having lost an intimate partner relationship due to PMDD
● 98% and 97% feel PMDD puts a significant strain on their intimate partner relationship
and family relationships, respectively
● 42.7% reported problems with parenting due to PMDD, with 10.5% feeling completely
unable to parent during PMDD
The relentless emotional and (for some) physical pain also drastically increases the risk of
suicidal behaviors. In the same survey, 30% of patients with PMDD reported that they had
attempted suicide to escape their symptoms. Sadly, this number does not include those with
PMDD who have died by suicide, which suggests that 30% is a low estimate for the rate of
suicidal behaviors in PMDD. Appropriate identification and treatment of PMDD are therefore
important not only for reducing suffering but also for saving lives.
The same survey also showed it takes an average of twelve years and six healthcare providers
to receive an accurate diagnosis of PMDD. After years of suffering, individuals with PMDD
describe learning about the disorder as a ‘lightbulb moment’.
“PMDD has been invisible for far too long,” according to Amanda LaFleur, Co-Founder &
Executive Director, International Association for Premenstrual Disorders (IAPMD), the global
leader of PMDD awareness and education. “It’s underdiagnosed, misdiagnosed and, at worst,
the lack of understanding leads to harmful ridicule and shaming of suffers. During PMDD
Awareness Month we need to create millions of life-changing lightbulb moments across the
globe so people can get the support and treatment they need!”
This year, IAPMD is again collaborating with a coalition of organizations, including U.S.-based
Me v PMDD and U.K.-based Vicious Cycle: Making PMDD Visible, to ‘Shine a Light on PMDD.’
Resources to support awareness-building are available on pmddawarenessmonth.org.
Website visitors can access the PMDD Awareness Month Toolkit, find facts and figures about
PMDD, create a fundraiser, and share their story.
Individuals with PMDD are encouraged to add their voice to the women's reproductive and
mental health movement and receive timely updates on work underway to inspire hope and
end suffering in those with premenstrual disorders.
“This is a galvanizing movement in women’s health,” according to Sandi MacDonald, IAPMD
Board President. “PMDD is a perfect storm where #MeToo and #TimesUp, meets mental
health awareness, meets suicide prevention. This campaign will be that ‘eureka!’ or ‘light
bulb’ moment of insight, and then sufferers and activists around the world are empowered
to raise awareness of PMDD and increase access to effective treatment options.”
While PMDD is directly connected to the menstrual cycle, it is not a hormone imbalance but
rather a severe neurobiological reaction to the natural rise and fall of estrogen and
progesterone. Symptoms occur the week or two before menstruation and go away a few
days after bleeding begins. There is no blood or saliva test to diagnose PMDD, but these tests
can rule out other underlying disorders. Diagnosis is done by tracking symptoms for at least
two menstrual cycles. As noted above, women and AFAB individuals with PMDD are at an
increased risk for suicidal behavior. Although PMDD has been included in the Diagnostic and
Statistical Manual of Mental Disorders (DSM) and International Classification of Diseases (ICD)
for years, it continues to be disregarded or misunderstood by doctors and the general public.
# # #
Organizational Contacts:
Amanda LaFleur
Co-Founder & Executive Director, IAPMD
1-800-609-PMDD (7633)
Laura Murphy
Project Co-Founder/Director, Vicious Cycle
Twitter: @viciouscyclepmd
+44 7739 342590
Sheila H. Buchert
Co-Founder & COO, Me v PMDD, Inc.
727-421-1489
Sunday, March 4, 2018
The Voices of PMDD: Tough on Relationships
Anyone with experience can tell you,
PMDD is tough on relationships. By the time I was 25, it was certainly getting
tough on my parents and sisters, and then my first husband. This was before I
knew anything about PMDD. I thought it was just PMS, but no one else with “just
PMS” seemed to be going through what I was. When I would try and explain to
confidants, I would be warned off blaming everything on hormones. Yet once a
month, like clockwork, I would dread interacting; I could feel my personality
morphing. I would cancel plans, back out of things, even leave vacations to go
home! I would have massive flip-outs. Family thought I was just a moody,
selfish and spoiled brat. In truth, I was being ruled by my hormones. I hated
it as much as they did. It made it so hard to make plans or get excited about
anything. And since it was cyclical, it seemed like “just who I was”.
I’m married for the second time now, and
it seems I decide to divorce my husband pretty much every month. For nearly a
year, I’ve been pulling my luggage out of storage and packing my bags only to
put it all away again a week or so later when my cycle shifts again.
Maybe I had no business getting married
in the first place, but we had to. We lived in separate countries, and it was
the only way to be together. As much as I may have wanted to live abroad, I
quickly realized I didn’t have it in me to deal with the culture shock,
language shock, new roommate shock, etc. and all of the loss…of home, work,
friends, family, belongings, car, etc. I had no idea the impact of moving
overseas and all it entailed would have on PMDD!
Over the first two years of our
relationship, the stress I endured was enough to give me PTSD and a whole new
level of experience with PMDD, which by the way, I had only learned about
half-way through our marriage, as I desperately looked for answers about why I
was suddenly such a full-on raging lunatic every month. When I read about it,
it was like a string of lights lit up in my DNA. When I started tracking my
symptoms, I had all the evidence I needed. I hadn’t been imagining this plague!
It was only in hindsight I was able to piece together aspects of my history
that pointed toward PMDD and that those pieces of a near life-long puzzle
started snapping into place.
In this marriage, our problems have
centered around my PMDD. It’s an easy target. Once I knew what it was, we’d
talk about it on the good days; I’d try to explain it and tell him what I
needed from him. He’d listen and nod and say he understood. But for some
reason, month after month, he just couldn’t deliver. Was it me? I thought so. I
really, honestly blamed myself. Maybe I was asking for too much space. Maybe I
was demanding too much help. Maybe I wasn’t trying hard enough!
Our marriage passed through a very
difficult season of intense arguments, usually when I was in the throes of
PMDD. These arguments only served to further impair my already affected mental
state and merely re-traumatize me in all the ways I’d lived with growing up. It
was becoming unbearably painful. Again, I blamed myself. If only I didn’t have
this disorder. If only I wasn’t so needy, so messed up, so controlling, so…me.
Of course, I blamed him too. If only he’d clean up, do what he promised, give
me space, be…someone else!
Then one day, after an excruciating and
emotionally abusive exchange between us, a genuine turning point arrived. I
realized this endless struggle simply wasn’t what I wanted for my life. If I
had a disorder that made relationships challenging, then I had to decide
whether my marriage was a help or hindrance to my healing. I realized it had
become a hindrance. Yes, I had my issues, AND my husband had his own issues,
and all of it was creating a mess I couldn’t bear. We weren’t being “good for
each other”. It was plain and simple reality, regardless of fault. That’s when
I knew it was really over. I told him I wanted out, for real this time.
I started to focus on my own healing (or
refocus, truth be told). I got into positive psychology, started taking B-12,
Magnesium, and Ashwaganda for my blown-out adrenals, and hired a counselor,
too. I learned to focus my mind out of hormone-created mental “shit storms”,
and on the days I couldn’t, I treated myself gently. I began to process all the
changes and losses of the past couple of years. I thought about what I still
valued in life and took notes. I also realized that I had to at least try and
communicate with my husband what I was going through, if just for my own
experience. It didn’t matter if he got it or not; I just had to learn to
communicate it. I began to want to understand what it was like for him too. I
wanted to know all the ways I had been unskillful in our marriage so that if I
ever got into another one, it would be better. It was really painful work,
digging in the underbelly of so much suffering, much of it self-created. It was
also difficult letting go of all the things I simply couldn’t control…like
certain symptoms of PMDD or my husband’s perception, understanding, or lack
thereof.
Shortly after I took on this mending, a
miracle happened. We started really talking again and meeting each other in a
different playing field. We both got more skillful. We accepted what we’d been
resisting and/or taking personally. We found our love for each other again. We
were finding our way to being “good for each other” again.
We are definitely a work-in-progress.
Believe me, we still piss each other off, but now, we know when to back off and
give each other space, and we know and understand a little better the ways we
are either too different or too much alike to help one another. There’s more
respect between us.
So, despite hiring a divorce lawyer,
we’re still married and going on three years now. Will we make it to four? It’s
possible now, though it had gotten to a point where it wasn’t. There are still
times of the month when my cycle shifts gears that I see through the eyes of
judgment instead of love, when I just want to get the hell out of here, and
when fear tries to take a hold and make me see only problems. Yeah, yeah.
Whatever, dragon!
When I try too hard to understand it
all, I often don’t know what to believe. Do I believe the judgments that say
he’s a total jerk, agonize over the crumbs and spills in the kitchen, and
ruminate on stories about how everything is so terribly wrong? Or do I put my
faith in the days when I’m overjoyed to see him, love his hugs and kisses,
laugh with him, and feel grateful for his presence in my life and all the ways
he blesses it? I know now that for the most part, both heaven and hell are
inside me, and no matter where I go, I’ll take them with me. It all boils down
to where I place my focus!
Liana's note: The above guest post was written by the
blogger Cheekyminx. With her permission, several of her posts about PMDD are featured
on this blog. In the meantime, to find out more about her work as a PMDD
Advocate, please visit her Facebook page, PMDD Life
Support.
Friday, December 8, 2017
PMDD Symptom Play by Play Number 2
The following guest post was written by the blogger Cheekyminx. With
her permission, several of her posts about PMDD are being featured on this
blog. To find out more about her work as a PMDD Advocate, please visit her
Facebook page, PMDD Life Support.
I did promise to write another PMDD
symptom play by play, and since my symptoms just kicked in today, I thought now
would be as good a time as any to bare my "hormotional" soul. This
isn't easy. In fact, it sucks. It's dreadfully intimate, questionably revealing,
and even harder to admit. But I am committing. So here we go...
8 Days Out
So what changed in me that I knew that
symptoms had kicked in anyway? Well, I felt constipated and bloated today
(first time since last cycle), I started pulling my hair out (not intentionally...my
fingers just go to my hair and when I pull them away, my hair follows!), and
most importantly, I feel just plain flippin' irritated for no extraordinary
reason about EVERYTHING. I feel somewhat hair-triggerable, if you will. So I'm
starting to avoid the things that trigger me (being everything, meaning
isolated myself). I have to add that this month has been an incredibly stressful
one already with plenty of relationship tensions. I was already irritable, but
it felt different than it does today. I wish I could explain it. There is an
accompanying intolerance now that wasn't there before...an inability to censor.
My diplomacy skills are fading. Many say that PMDD magnifies what is already
there. If that's true, this month ought to be a "real blast".
7 Days Out
I just flipped out over my husband
saying, "don't worry", when I couldn't find how to reverse an action
he told me to take in some software, messing up my work view. I did warn him my
symptoms were coming on.
So are men really that stupid? Don't
ever effing tell me how to feel! And certainly DO NOT belittle my frustrations
with your petty sentiments of projection. YOU "don't worry"! I'm
frustrated. Deal with it! Ouch! Okay, last two nights...a touch of insomnia.
Today, RAGE! I think I could pick up this 20-ton glass desk and hurl it out the
window like it was made of cardboard! There is a jittery tension just
underneath my skin accompanied by an overwhelming desire to be alone in the
house...for the rest of my life. I have ghost cramps too. That's what I call
cramps that arrive before my period.
6 Days Out
6 days? I don't know if I can last
another six days. Today was rough. I cried this morning. I cried this
afternoon. I cried tonight. I'm feeling incredibly insecure, let down by and
estranged from everyone in my life, anxious, grumpy, and deeply sad. I have
wished that I would simply die. Since that's unlikely, I just vegetate with
Netflix until bedtime with grateful anticipation of the total unconsciousness it
brings...and hope I never wake up.
5 Days Out
Didn't sleep well last night,
ironically. In fact, I was ruminating in a way that only comes on with PMDD...a
hateful, angry way. I swear, I don't know where this shit comes from. I seem to
manufacture it in spite of my desire for peace. Each time I woke in the night,
I pounded my pillow and cursed bitterly. This morning, I did my best to isolate
myself. I tried to be on my best behavior too, bearing in mind today's best
bore more resemblance to a caged animal than to a somewhat decent human.
Despite my PMDD Tourette's, a lovely symptom where pure shit just gushes from
my lips, I managed to hold-back on some of my impulses to push and stomp. With
every bite of my tongue, a part of me celebrated the tiny victory (quite
alone...as it was evident to no one but me) while in the next moment I was
unbridled...judging, criticizing, blaming, fed up with the same old
crap...emotionally abusing my husband while at the same time hearing in some
vague and distant background all the kinder things I wish I was saying instead.
They were too remote for access. They were a distant land. I wanted to run to
my room, to be safe, to protect not only myself but him--the only measure I
have at my disposal...isolation. It was too late. His deepest wounds were
activated, his own mind becoming the same enemy mine had become to me. It would
seem PMDD can be contagious, even without the hormones. My husband reacted and
in turn became the emotional abuser, taunting me, drilling me, pressing me,
driving me to tears with his own screams of how crazy I am, how uncaring, how
hopeless, telling me nothing my PMDD mind hasn't already been telling me, but
reinforcing it in a way that broke and battered my already damaged spirit. He
threatened me...with quitting, with walking out. He's promised that so many
times, and today, I wish he'd follow through. That same distant part of me was
proud of him for speaking up for himself in the only way he knew how...not for
how he did it, though. How he did it hurt. I must admit today, I had suicidal
thoughts. I had world-destroying thoughts. And I cried and heaved, shook and
crouched in a corner, desperate to be free of this storm inside of me and the
external manifestations of it. Emotionally spent, I listened to a looping
recording of a mantra about 20 times which calmed my suspiciously empty mind. I
can't believe I'm writing this.
4 Days Out
After yesterday, I'm really emotionally
exhausted and kind of blank. I've lost a day. I thought it was Thursday but
it's only Wednesday. That's been happening a lot, but I don't relate it to
PMDD. It's living in the middle of nowhere! There's nothing I want to do...or
feel or think. Despite needing some groceries, I can't make myself go. I feel
like the remnants of a bird that has burned in flames but has yet to arise once
more from the ashes. I continue my deluge of mantra listening. And I eat chocolate.
I know my situation is complex. I have many marks against me right now. To be
honest, I probably have some form of PTSD after two years of the worst stress
of my life which I admit at least half of it I took on willingly, arrogantly
even, in addition to being peri-menopausal and PMDD. I also have no grounding,
having moved to a foreign country where I cannot speak the language and where
my support network is still fairly non-existent. I had a massage therapist when
I could afford her, and now, I have a talk therapist who I will have my first
session with tomorrow (Thursday. Not today, Wednesday.) It's a trade-off.
There's the recent passing of my mother, too. It's a lot to cope with. Add
"relationshit" to the mix, and it's tough to tease apart the symptoms
of PMDD from the disaster that is my life. So everything just swirls together
into a big complicated mess. Charting saves the day and preserves what little
sanity I have left by revealing an intensity of symptoms at certain times of
the month. I will persevere. I am resilient. I am determined, too. And in
moments, I am remembering who I am.
3 Days Out
This morning, every bone hurts. It was
very difficult to get myself up and moving. I would love a massage, but I don't
have the funds for one. Yin yoga will have to suffice. My symptoms were less
today, which historically, has happened...things can actually mellow before the
actual onset of my period. Although, usually without fail, I blow out the day
before. We'll soon know...
2 Days Out
Last night, I slept 12 hours!! Pretty
typical right before. My dreams were very bizarre. My hair continues to fall,
and I had ghost cramps again. Another thing that's started today is a weird
head-to-toe itchiness; I've heard other women complain of this too, so I'm no
longer surprised. When provoked earlier, I quite easily lost my cool outwardly,
but overall, in my head, I feel more stable today, so I'd have to relate any
emotional symptoms to other things in my life and not necessarily PMDD. Or
maybe I'll start early. The cramps are a good indication I might.
1 Day Out
Surprise! Guess what's here, sparing me
an extra day of misery and uncertainty? How am I feeling? The first thing I
noticed was the intense ache from head to toe as I pulled myself out of bed at
a fairly human time of day. I feel about 20 years older in body. Add a headache
and the typical cramping in my lower gut, too. But I can handle the physical
symptoms; they are kind of a joy after the week I've had. Emotionally, I feel
tentative (as the rest of my life is still incredibly challenging). But I don't
feel that uncontrollable sense of building blood-level tension that prompts me
to catastrophize and explode (not that I couldn't given the right
stimulus...but that I don't feel that "hair-trigger" thing). My mind
is also quieter. When I woke this morning, from a dream about pastries and
cookies, my first thought wasn't "Oh, fuck, I'm still here; shit, shit,
shit!", it was more like, "I'm up." There was no punching of
pillows or immediate tears. How do I explain it? It's like an equilibrium, a
balancing out. A relief! So can I count on a few days of relief? Or will
something fluctuate and turn me mental again? Sometimes, on day 5 or 6, I
rebound into "crazy-land" for a day. Sometimes, I'm okay until I
ovulate. It's difficult not knowing. It's difficult not knowing, too, whether
outside circumstances will inflict traumas that bring the stormy inner waters
back to the surface. I hope not. I need some peace. I need some rest. My
problems are all still there. My relationship is still falling apart. I still
live in the middle of nowhere in a foreign country. I'm still dealing with loss
and grief and change of massive proportions and living an unrecognizable life.
Somehow, somehow, there's something accessible now that feels like strength,
like resilience, like patience, and even serenity. Holy crap! Did I just feel
myself smile?
Sunday, June 4, 2017
An Open Letter to Partners of Women with PMDD
Dearest Partners of Women with PMDD,
First of all, let me be clear. This letter does not come
with answers or solutions. This is not a "be all & end all" to
the chaos of PMDD. Every situation for every woman is different. Ergo (a word
not used often enough), no household is the same. After many conversations and
emails with men and women around the world, I've realized a few common traits,
however. There are similar feelings, circumstances, emotions, issues and
experiences...this letter addresses and recognizes them. This note recognizes
the real, true emotions and thoughts emanating from the souls of men (and
women) coping with a partner with PMDD. This is not a happy letter to make
everyone feel better...it's one that draws attention to the mindset reality of
living with PMDD. This isn't about me. It's about all of us.
I know you.
You're tired. Exhausted. You feel drained of all energy -
emotional, physical, spiritual. Perhaps you feel absolutely nothing at all.
You're like a zombie, going through the motions every day. But you're used to
it...it's who you've become. You don't like it - you wish you had more energy
and lust for life - but you give yourself a daily pep talk to survive the day,
praying that today might be better...and you're not even the one with PMDD.
You are constantly on edge. You never know when her
hurricane will hit. Predicting how one day to the next will transpire is
fruitless. Hour to hour, day to day...hell, even minute to minute, is a
pointless exercise. You see her, you love her, you feel for her but you wonder,
"What else can I do?" - you've already tried everything!
You've thought about divorce. You've thought about having an
affair. You've questioned your life choices...and those thoughts scare the hell
out of you. So why do you stay? Why do you remain committed in a relationship
that causes you stress and, most likely, shaves years off your life? Perhaps
it's because of the words, "...in sickness and health...'til death do us
part..." or maybe you're a glutton for punishment or feel, deep down, you
can fix her or save her. Possibly, you fear what she'd do if you left. If you
have kids, my guess is, you're there for them, more than her.
You've probably heard from her, more times than can count,
that she "needs to do (this) or (that) because it might help" - this
may include taking a course, going for a run, spending a day or two at the spa,
getting massages, nights out with her girlfriends, binge watching Sex & the
City or Supernatural, spending a few days here and there away from you (and the
kids)...but can you do the same? No. Can you just take off for a few hours and
have the day just for you? Probably not. Deep down, you wonder, could she handle
the kids for 3 days without me? Your/my gut says no. The time you have out of
the house is, most likely, spent getting groceries and doing things that need
to be done to make the house and your life a little better.
You don't get enough downtime and, when you do have the
opportunity to sit back and chill, your mind's still racing. Most likely, you
just want to watch something pointless or mindless, have a beer and fall
asleep. The thought of watching a show that has deep thoughts, intellectual
content or educational information further stresses you out because your mind
can't relax...there's no shut off switch to settle your brain.
You probably don't hear "Thank you" or "I
love you" nearly often enough...and, as for, physical expressions of love?
Not so much. (Or, at least, not like it used to be). But when SHE wants it, you
must provide! Perhaps sex - or any form of intimacy - feels like a
chore...another task to complete. Or perhaps, when it finally happens - a
moment together, both of you in a positive, awake state of mind - it's a
relief...an opportunity to forget about the trials of tribulations of the past
few days.
You say words but may not mean them...or they don't have the
same feeling behind them like they used to: "I love you" - perhaps
it's said so she can hear the words but, your feeling behind them is different.
"It'll be okay" - knowing, deep down, it'll get better for her but
not for you. Her diatribes, constant needs, argumentative statements,
vitriolic, mean words...you'll remember them and hold onto them and think of
them all too often. You'll start to believe them - or, at minimum, question who
you are based on her hurtful words. You say, "I'm here for you" but,
perhaps deep down, you wish at that moment, you weren't. "
You question everything & constantly overthink. When
you're sitting on the porch with her, having your coffee or glass of wine, and
you hear her sigh heavily, you wonder if that's a sign of impending doom -
something dark on her mind, or a coping mechanism to calm herself...or maybe
she's just relaxing for the first time in awhile. In any case, you don't ask
because "is everything okay?" or "what're you thinking?" or
"something wrong?" might set off a chain of events you don't want to
deal with.
You constantly look for ways to control your environment -
from the way you schedule your day to what you cook for supper or how you
organize things around the house. More often than not, when she's in her state,
decisions are a further stress and amplify her anxiety. What do you do? You
make all the decisions, thinking that'll make life easier for her. Yet,
unfortunately, it doesn't often work out that way. Perhaps it's her response of
"you should've asked/told me" or "why didn't you let me
know?" or "if you loved me you'd have..." Friends may say,
"Damned if you do, damned if you don't" but, to you, it had to be
done. Survival instinct kicks in and you do what you need to do.
On the good days, when she's positive, upbeat, full of
energy, revitalized, you struggle to enjoy the moment...you don't know how long
it'll last...you fear the bubble popping...you're still on edge and, most
likely, get down on yourself for not being fully present with her. Even when
you know you SHOULD be enjoying yourself, you can't.
You're not fully present on a good day. You're not fully
present when you're supposed to be having fun or enjoying life. But you ARE
fully present when you're surrounded by her chaos, negativity, anger,
frustration and darkness. Think about that for a moment:
You're only fully alive when you're being torn down, when
your life force is being given to someone else, when every moment of your day
is spent making sure your partner (and your household) lives to see another
day.
You probably mutter or mumble under your breath as you walk away
from her...things you wish you could say out loud but, knowing the damage
they'd do to both of you, respecting her mental state, you keep it to yourself,
tucking it deep inside where the feelings fester and ferment. Maybe those words
of resentment will go away...or, maybe they've established a symbiotic
relationship with your soul. These periods of resentment...they grow in number
as the years go on...your thought process dips its toes into the murky waters
of ire more frequently and easily.
You're constantly seeking an outlet for your tension.
Nothing seems to work. Perhaps you go to the gym but, for some reason, you cut
your workout short because you're worried about her...or you're too stressed to
even relax to workout fully. Or, maybe, you go for a pint with your mates but,
you're not fully present...your mind is elsewhere, wondering if she's okay. And
you cut your night short because you know you need your energy to deal with the
next day.
You feel guilty when you do something for you. Whether a
ball game or buying something online, you wonder how she'll react or what
she'll think or if she'll resent your 'selfish' ways. So you begin doing less
and less for yourself, channeling your energy into your family and her.
If you have kids, you wonder what they'll remember about
life in the house, growing up. Will they remember how Mommy hardly slept in the
same bed as Daddy? Will they remember how Daddy would always wake them up in
the morning, get them dressed, make them breakfast, pack their lunches, cook supper,
clean the kitchen, do the laundry, get the groceries? Or will they remember
that Daddy didn't have enough time to play with them because of everything he
did to make the house function?
You cry. Sometimes there are tears streaming down your face
or sometimes you're crying on the inside. But, regardless, you're sad. You're
upset - at yourself, at her, at a higher power, at anyone, at no one - yet you
keep it to yourself. It's your burden. Perhaps you feel like you asked for
this. Perhaps you believe this is your own private challenge. Know you're not
alone. There are people out there to help. People are there for you. They want
to help...they're waiting at your doorstep...it's up to you to let them in.
This letter is part vent, part affirmation. Maybe you've had
some (or all) of these thoughts. Maybe you can't relate at all. In any case,
you aren't alone. Like a phoenix rising from the ashes, strength builds from
pain. For whatever your reasons, your resolve to remain committed to someone
struggling with the very fabric of being, is powerful. While my words may not
be enough, you are a great person, standing beside someone who needs you more
than words. You may not hear it enough or feel it or even believe it but your
presence is an amazing gift - not only to her but to the universe. You make her
world - and the world around you - a better place.
Sunday, April 30, 2017
PMDD Awareness Month Ends, But the Struggle Continues
Today wraps up the
end of PMDD Awareness Month. I've spent
the month sharing on Facebook and Twitter several posts from my Voices of PMDD
series, where women with PMDD and their partners have shared their stories. The quotes that follow come from Hormone Hell, the personal journey blog of a fellow PMDD Advocate, Jarrah, who asked her readers to describe
what PMDD feels like to them. I've
chosen several responses that I fear we can all relate to in some way. Please read on, and, if nothing else, know that you are far from alone
in your struggles with the demon that is PMDD.
Perhaps one or more of these descriptions will help you to put into
words for a loved one what it's like for you, each and every month, and raise
awareness in your own way.
On my bad days it feels like my nerves are on the outside,
that everything hurts, and there’s a heavy blanket on me that I can’t get out
from.
It feels like nails in
my brain that prevent me from thinking correctly. The nails stay in my skull
for about 2 weeks and then they finally go away and I can think again.
Your brain feels like mush, your memory is poor. You're
actually scared that one day you’re going to wake up and forget who you are.
Your digestive system is going crazy, you’re constipated one minute, rushing to
the toilet the next. Your bladder needs to empty itself 6 times
in a single hour. You're hot, no you’re cold, umm, you’re hot again. You love
your husband one minute and consider filing for divorce the next. If one more
person chews, breathes or coughs, there will be bloodshed.
I’m angry, I’m sad,
I’m laughing…now I’m crying. My joints ache. I am only 29 but I feel 99. My
hair is thinning; it’s so dry it feels like straw. I have permanent dark
circles under my eyes. My skin is so dry it’s flaking.
You’re so tired but no matter how much sleep you get, you
still wake feeling tired. You’re hungry one minute, you’re nauseous the next. You
can’t breathe; your heart races and you can’t stop sweating. You don’t want to
be touched, you feel suffocated if someone sits close to you.
Overthinking is an
everyday occurrence and often your head is swimming with thoughts that leave
you feeling terribly anxious. You no longer look forward to anything, as each
day is just a matter of survival. You have no passion and no longer think about
the future. You hate this empty person you have become.
You start daydreaming about dying. Deep down,
you know there’s a part of you that definitely does not want to die. You know
that, logically, things are fine and you will be okay. But you can’t FEEL that.
All you feel is despair, hopelessness, and a suddenly strong urge to leave this
world.
Worthless. Empty.
Angry. Bloated. Exhausted. Sometimes I just wish I could disappear…just lay
down in the grass and get absorbed in to the earth somehow. Oh yeah, and Crazy.
I know what I feel isn’t normal, but I can’t change it…at least until my period
comes and then I’m right as rain.
Anticipation for hell week becomes a hell week in itself. I
can’t control the choking wave of anxiety or the rage of this demon but I have
changed my outlook. It will not own me. I will not let it drown me. I will swim and swim until I come up for air.
Until the next storm. There have been a few hell weeks where no matter how hard
I swam I could not escape the urge to let it pull me under and take me in its
entirety. Those days and those times I don’t know how anyone makes it out
alive.
Rage, anxiety, mind
going crazy, all of those things attacking you all at once. You wish it was
over and the sad thing is you have no control over it. You see yourself doing
all these dumb things and you try and stop it but it’s so hard to control. But
you keep fighting because you love your family and you love yourself too much
to give up!
Like a tightness of the skull above the eyes, like my skin
and hearing is super sensitive, so I have a headache and am easily overwhelmed.
This coupled with lowered patience and attention span means I’m really
short-tempered. Sometimes that results in a snappy comment and then
unreasonable crying (e.g. about burnt pine nuts), but other times it’s
disproportionate rage. Sometimes it’s just a brain fog, where I sit and stare
at the work computer, trying to figure what I’m supposed to be doing, and how
someone is paying me to sit and feel like my powers of logic and reason have
been pulled out through my eye sockets.
It’s like a switch
that is flicked inside me as soon as ovulation begins. From that point on I
become the opposite of what I consider to be my “normal” self. I’m suddenly
extremely anxious, paranoid, worried, irritable and I can snap at the smallest
things. The rages are life-destroying. They hurt everyone I care for, and scare
off anyone else. My period finally begins and within a day or two, my mood
lifts. The anxiety goes away, the paranoia is no longer there. I can think
rationally and logically. I have energy to do anything I want, and sadly most of
that time is spent picking up the pieces of the storm that lives inside of me,
and has--for now--disappeared.
At the start depression starts to set in, aching body, foggy
head, headaches, high anxiety, pains in the stomach, sweating, panic attacks
when I go in public, hysterical crying, at my worst, thoughts of suicide. Then
my period arrives...all those feelings and thoughts are gone just like that…I’m
back, me again, I’m back to normal. I can go to work with ease (if I still have
a job). I can go out anywhere with no panic attacks, anxiety (what anxiety?) I
am fun, I enjoy being around people and they enjoy being around me. I wish I
could be this person all the time, I hate knowing it is short lived and the
devil lady will be back again soon.
Sensitivity to light
and sound…my son talks and talks and I just want to curl in a ball to escape.
That’s horrible to say…but I just can’t handle it.
I always wonder if this mental illness will kill me one day—I’m
sure it will. The brightest days are good. I enjoy them. The darkest days
however, seem like I won’t ever escape them. Each time it feels like maybe this
could be it, the one that I don’t come back from. But somehow I make it
through. PMDD is cruel. It’s like every month, sanity is dangled in front of me
and I have to hold onto it. There’s a glimmer of hope that this month I’ll be
cured, then suddenly it’s ripped away.
I was sitting in my
seat watching a movie, my whole body was tense, I was clenching my teeth, my
heart was racing, and I was swallowing back the nausea I felt…I tried to push
all those feelings out of my head so I could try to enjoy the movie. As I sat
there I couldn’t help but think…So this is what my life has come to? It’s a
movie for goodness' sake and my body is acting like I need to be on alert just
in case at any second someone might try and kill me.
I ended up going for a walk to try to clear my head. My legs
would only carry me half way around the block, my whole body was so fatigued
and I was so nauseous the symptoms reminded me of how I felt when I was in the
first trimester of pregnancy.
PMDD….a war you’re
constantly fighting that no one else can see.Saturday, March 25, 2017
PMDD: Into Me See
The following is a guest post by the blgger Cheekyminx.
With her permission, several of her posts about PMDD are being featured on this
blog. To find out more about her work as a PMDD Advocate, please visit her
Facebook page, PMDD Life Support.
I've said I wanted to write about some
of the things that help me to cope with PMDD. Maybe another day. Right now,
NOTHING is helping. In fact, everything is just making it worse! I suspect,
hell, I know from reading the forums, that this is pretty common. Nothing
helps, at least it seems that way, and everything is an irritation. A speck of
dust in the wrong place can make me want to jump out the window. Yes, it’s
irrational. That’s kind of the point, and I don’t need to be reminded of
it… At least I have some control over a speck
of dust.
The reason nothing helps is because
nothing makes this chemical shit-storm of body and mind go away. It is still
there, demanding attention, making me behave in ways I cannot stand. But there
are things that do bring modicums of comfort. I can take a bath. Sitting in the
sunshine smelling the grass helps, too. There are also my standbys of yoga and
meditation. I would be lost without them, but sometimes, they aren’t enough.
Really, they’re never enough…not during PMDD. They just offer a bit of relief
and keep me as stable as possible.
The saddest thing may just be that so
many of us have to get through this pretty much unsupported and alone. Very few
people get it enough to be of help. The fact is, if you don’t have it, you just
don’t get it. This includes friends, roommates and partners who, needless to
say, have a very hard time of it, and often wind up making everything worse,
even if they don’t intend to. Even if it was me on the receiving end of this
phenomenon, I don’t know how I would respond. I guess it would depend on my own
mental state that day. Sadly, PMDD ruins plenty of relationships.
But one can dream that suddenly, it
wasn’t such a horrible thing for others to cope with…
Dream Sequence
I wake up and I can feel the stirring of
hormonal reaction inside my body. The good days have passed. Shit! Here we go
again. Two weeks until my period when I can think and act straight again and
not detest myself for having no control.
In walks my husband with a bouquet of
flowers. “Good morning, sunshine!” he says.
“Drop dead.” Shit, I think to myself.
Did that just come out? Oh, crap, oh crap, oh crap. I want to enjoy the
flowers. They are so beautiful. Please, please, please let me just enjoy the
flowers. How did he know how much they would mean to me? And yet, I can’t
express it. The only words out of my mouth are “drop dead?” What is wrong with
me?
“Honey, I won’t take what you said to
mean anything,” he says. “I know what day this is…um…I know any day now I’ll be
losing you for a week or two to that whatever it is…but I just want you to
know, I’m going to do everything I can to make it easier for you this time.”
Really? I think, heart melting inside
while I roll my eyes on the outside thinking of what a damned irritating
[insert cuss word] he usually is at this time. How does he intend to do that?
Go on vacation for two weeks without me? He would abandon me like that!
I go down to the kitchen expecting
crumbs on the cutting board, knowing I’m about to get all wound up, and what’s
this? The kitchen has been cleaned! I mean, really cleaned! The floor actually
sparkles. It’s a miracle!
“Do you want breakfast?”
“Just leave me alone,” comes out of my
mouth while "Yes, please make me your lovely eggs" never leaves my lips.
“I’ll make some eggs. If you don’t want
them, you don’t have to eat them. If you do, I’ll leave them here for you.”
Hmm…what’s gotten into him? I start to
think paranoid and judgmental thoughts. I just manage to hold back the bitter
words that want to exert my independence, “I can make my own eggs!”
“Oh, by the way, I know how much it’s
been bothering you that I hadn’t fixed that sink since we moved in two months
ago, so guess what?”
What? Another empty promise to fix
it…someday…next year? I’m biting my tongue because I KNOW I’m thinking with way
too much exaggeration. Words start leaking out…words I KNOW will only do more
harm than good…
“I called the plumber. He’ll be here
next week when you feel better.”
He… I can’t help but smile. The tension
in my body that usually just gets tighter and tighter is starting to untwine.
This is all getting to be too much.
“I also tidied my room just so you won’t
have to be repeatedly irritated by the disorder in there. I know it affects you
and makes things worse. In fact, I’ve decided to take care of everything on
this here list that I normally force you to tolerate and remind me of month
after month like I’m deaf. I may let things slide at other times, but I realize
it just makes things worse once your cycle again. Besides, it really is my
responsibility…”
Oh, my God! I just want to cry now. I
have to cry. So out it comes. I am sobbing uncontrollably. Great. Now he’ll
take it personally and the world falls to shit.
He doesn’t say anything. He gets a
pained look on his face…and then, it happens. Another miracle. He takes me by
the hand, leads me upstairs, and holds me on the bed while I finish crying. At
first, I push him away. I can’t bear to be touched. It actually hurts. But he
holds me even tighter. He isn’t trying to get me to stop crying, or offering me
Kleenex, or asking me what’s wrong. He’s just there. Strong. Reassuring. And I
feel safe for what feels like the first time in my life.
When I stop, I feel stupid. I feel
embarrassed. And I push him away. He doesn’t say, “I can never do anything
right.” He doesn’t throw up his hands. He doesn’t call me crazy or make me feel
worse than I already do. He just says, “Honey, I love you. I’ll give you some
time and space. I’ll go get some groceries because I know we are out of bananas
and chocolate…and frankly, that scares me right now.”
I want to say, “and we need lettuce” but
I can’t get it out my mouth. Why the fuck can’t he remember the fucking
lettuce? And then I cry some more, ashamed of my ridiculous thoughts but also,
feeling a strange sweetness inside. I think I’ll bake him some cookies.
I know. It’s just a dream. Maybe it is
too much to ask. Is it catering and kowtowing? Is it just too utopian? To
expect another person to be able to behave this way when faced with judgment,
contempt, rage, and the other unpleasantries that consume a woman in PMDD? Is
it too much to expect someone not to take such seemingly personal attacks
personally? To be able to be in our heads knowing what it is we need or want
when it is suddenly impossible for us to just speak it? To be able to set aside
their own discomforts with whatever has taken us over to wonder, my God, what
is it like for her?
I suppose so. People are people after
all. There no such thing as a Stepford Husband.
Then again, maybe this is all it would
take to change the patterns and break the cycles. Maybe, PMDD is a dis-ease in
consciousness designed to make us learn things we never would have otherwise
about ourselves and each other, given the compassion and support to get through
it. What are the lessons? If we knew that, we wouldn’t be going through it.
Maybe learning them would be the difference between escalation and management.
Or is it just spiritual bullshit to
think there are lessons. And even if there are, what if they aren’t being
learned?
If nothing else, maybe this little dream
illuminates the secret machinations of the very complicated and unsettling PMDD
mind.
I hope so.
Postscript: I shared this with my
husband who said it helped him understand me better. I told him I wasn’t going
to post it because it just felt too exposing. But then, on one of the Facebook
forums, I read a post from a young woman who had just had a blowout with her
boyfriend. She was so upset, and I could feel the shaking in my own body… I thought about what my husband said, that
this helped him understand. I thought about what he did for me after reading
this: fixed the sink, took me grocery shopping, didn’t walk away when I was
emotionally over-stimulated but held me instead. He just wants me to be happy.
Given a little information, he actually wants to put it into practice. So, I’m
getting over my damned self and sharing this now because it just may help
someone else.
Wednesday, February 8, 2017
PMDD, From One Man to Another, Part 2
How do I survive? If I'm doing all of this, what am I doing
for me? Well, it's taken a long time but, I've accepted the fact that it's not
about me. It's not even about her. It's about the boys. If she's in a state, I
trust her to handle it. I deal with the dudes.
WHAT ABOUT ME?
Don't get me wrong. I do things for me. I'm not talking
about drinking or smoking or drugs (though my alcohol intake does increase on
those PMDD days). For me, it's cooking. Something that has a beginning, middle,
end. Something that involves the boys (so they don't bug mommy on the couch or
in bed). Something that satisfies us. Something that's controllable by me.
Something that's as challenging as I want to make it. Something that allows me
to express myself to others. I can immerse myself in the process, pushing the
stresses of the day to the side (at least temporarily).
Recently, I've been writing. I write how I'm feeling when
she ups and leaves the dinner table or lashes out at me or tries to pick a
fight just because she wants to argue. I keep track of the number of days she
sleeps downstairs, while I deal with the boys through the night. I write lists
(bucket, shopping, chores). I write quotes or words of wisdom and inspiration
(to remind myself that I'm not alone...though it often feels like I am.)
My big one, though, is music. No, I don't write it or sing
it or perform it. I listen to it. I have my 'mood music' to centre me. And,
like her needs during her PMDD spells, what I need varies each time. It could
be punk or rap or chillout or metal or classic rock or country...but when it's
on, I'm in the zone, in the moment and in the mood. When I'm cooking, there's
ALWAYS music on. Again, it shifts with my moods.
I'll say it: PMDD can be a selfish disorder if your partner
blames every given frustration or moodiness or anxieties on it. And, trust me,
it can go there. She will do what she needs to do for her when she needs to do
it. Regardless of your intentions, there's very little you can do. She's been
dealing with it, coping with it, handling it well before you entered the
picture. She's dealt with it on her own and will continue to do so...ON HER
OWN. Get over it. Seriously.
WHAT CAN YOU DO?
For the love of humanity, when she says to leave her alone,
LEAVE HER ALONE.
When you're trying to decide what to make for supper, avoid
at all costs, asking question after question after question. Stick to one
simple question with a yes or no answer. Most likely, she won't eat any food
anyway so it doesn't matter what you make!
Please ask her, once, "is there anything you need"
or "can I get you anything" or "is there anything I can
do?" - but do NOT ask every few minutes.
Be prepared. It's the scout's motto. It's important here,
too. Have her comfort foods on hand: perhaps it's a particular chocolate bar
(Lindt dark chocolate with hot peppers for my wife) or salty snacks (chips?
nachos?) - don't be surprised if they disappear during her moments of deep
darkness. Even if you wanted some, you can buy more. Again, this can lead down
the road of selfishness but get over it.
This is a disorder requiring frequent, unexpected sacrifice.
You're going to need to give up stuff - she may need your
attention...ooooooooorrrrrrrr....she may tell you to 'get the f--- out' meaning
you need to find somewhere else to be (pub? friend's place? ANYWHERE but home).
The nice thing is that, if she's coming out of her state, she'll text you to
come home. When you do go home, say very little. Maybe a 'how are you feeling?'
but don't you dare overwhelm her with story after story about what you saw,
did, or heard. It's not - and never will be - about you during these times.
One more thing. YOU. CAN'T. FIX. HER. Don't try. Don't tell
her to 'go for a walk' or ask to go out for dinner or sex. Don't even consider
telling her to 'get over it' or 'snap out of it' or tell her that it's nothing.
It's everything. It's all consuming and all encompassing. It is a deep, dark
hole that she's allowed herself to explore and it's scary as fu--. She doesn't
want you down there with her. This is her own hell. You cannot and will not be
her tour guide. Trust me. I've had my nuts in a sling one too many times
thinking I could be the fixer...like I could be the solution to her problems.
It sucks to not be able to solve a problem for her. I love my wife, but not
having the tools to fix her hurts like hell. She's stronger than words can
express...and it'll make you stronger the moment you accept the fact that you
are not her knight in shining armor, rescuing her from a pit of despair.
So what are the solutions? There aren't any. Every month may
be a different hell. Every time it rears its ugly head, it may be a different
stimulus that exacerbates her anxiety. You can usually predict when the
darkness may arise but be prepared for spontaneous combustion.
There are medications (my wife's on Cipralex). Does it help?
Yes. Is it a cure? No. Her PMDD still comes...but not as frequently. We're down
to ~8-10 days a month now. It lowers sex drive. Decreases appetite (with
sporadic bouts of gorging). Ironically, it CAN increase anxiety (!) which, I
thought, it was supposed to minimize...but, whatever.
There's therapy. I'm sure there is. We just haven't explored
it. Yet.
There's exercise or yoga...something that centers the mind
and body. But, dear man, don't suggest she work out while she's in the middle
of an episode. You're likely to have a rolled up exercise mat shoved deep
inside you through a very tiny orifice.
Why don't I go out more? Because I never know when the PMDD
will kick in or when the depression or anxiety will hit. I never know, going to
get groceries, if I'll come home to find her on the floor. I fear leaving her
with the boys on 'bad' days because I never know what to expect when I come
home - will they be trying to wake her up? will she be locked in her bedroom,
sobbing? will she be unleashing her fury on the boys as they wildly chase each
other through the house? It's the fear of the unknown.
Don't be surprised if you slip into your own funk after a
particular bout of PMDD. It's draining. It's exhausting. You'll be physically,
mentally and emotionally wiped. You'll be worrying about her, questioning
yourself, wishing you could do more (once you've accepted you can't), wondering
if she's ok...it's a whirlwind that is uncontrollable. It keeps you on edge.
She may have said something particularly hurtful or mean (just to get you
going). That sucks big time. Then, when the dark clouds pass, when she's all
kinds of relieved and 'nice again', you may be relieved...but you'll be
mentally overwhelmed. You'll want to talk to her...and, perhaps, she'll want to
share her thoughts (what you did right, what you did wrong) and that, in
itself, further drains you. You don't want to hear all the things you did wrong
(or didn't do at all) do you?
It sounds mean or cruel or insensitive but, guys, suck it
up. Man up and accept that your wife or partner or lover has PMDD. The more you
learn about her & how she handles it the better off your relationship will
be. It is an ongoing process, kind of like the Hobbits on their quest for the
ring. It's an adventure but one fraught with chaos, insanity, danger and doubt.
What can you do? What can you say? It's easier said than
done.
When she's not in a PMDD state, (and, please, don't inundate
her with all of these questions at one time!)
~Ask her what you can have on hand for her (salty? sweet? Sex
& the City box set?)
~Ask what you can do to help (tell her to be specific in
what she wants from you - rub her lower back, check in without saying a word,
hand her a cup of tea and walk out, etc)
~Ask her what, specifically, she needs from you (a
conversation afterwards? a walk? etc)
~If you think
medication is needed, tread carefully - choosing a safe time to mention
intervention is paramount.
If asking her to seek
treatment is tricky, wait until you mention 'therapy'...that's another whole
kettle of fish.
There's more, I'm sure...but if you have any questions,
comments, ideas, suggestions, tips or stories to share, please do so...though
it may feel like you're alone, know you're not...the fact you're exploring how
you can help your partner demonstrates your strength and resolve.
Well done.
The above is a guest post in two parts by
Chef Jay, who has decided to help raise PMDD awareness by starting a blog for men about PMDD. You can find his original post, and others, here.
Monday, February 6, 2017
PMDD, From One Man to Another, Part 1
What follows is a
guest post in two parts by Chef Jay, who has decided to help raise PMDD
awareness by starting a blog for men
about PMDD. You can find his original post, and others, here.
Why am I writing this dissertation on PMDD? Simple. I need
to. There aren't many resources out there for guys. There isn't a strong
support system - the number of comments I've seen by guys saying "run
away" or "get the F out of the relationship" or "she's
crazy" are overwhelming, insulting and, at the very least, a disappointing
commentary on the state of men.
Living with a wife with PMDD (who's had it most of her life)
and growing up with a sister who, looking back, had something along the same
lines, I can say the following: It's worse that what's described. Does it need
to be said that PMDD is NOT PMS? Duh.
"...symptoms begin 7 to 10 days" - not always. It
can hit at a moment's notice. The anxieties can skyrocket in a heartbeat. The
moodiness can take over without warning...a sound, a question, proximity to
other humans...anything. One moment, she's sitting at the dining room table,
the next, she's heading to the basement to burrow into pillows and blankets,
watching Downton Abbey (or whichever show makes her feel better).
If your partner, wife, girlfriend, significant other is
anything like my wife (who, according to her doctor, is a textbook case for
PMDD), hopefully my words might help, enlighten or support you in your
relationship. It's not easy. I feel for you. Really. It's hard as hell. You can
do this.
Let me say this first (and I'll say it a couple more times
before this is through):
YOU ARE NOT ALONE.
Family is key. Hers, Yours...they need to understand what
you're going through, why she couldn't make it to Thanksgiving supper or church
or your nephew's recital. She probably doesn't want to be around people.
Including you. Your life must continue.
But here's the tough part: she will take it out on you. Why?
Because she loves you. If she's letting loose her irritations, her tirades, her
anger, her frustrations upon you, it means she trusts you. She's let you behind
the curtain. But what sucks is that you will be yelled at, loathed, be the
focal point of her ire. And, most likely, she won't want to talk about it. She
won't want to dwell on it. Once its passed, she's done with it, not wanting to
recall the dark place she endured. Why? Because it's over...and, most likely,
she won't want to consider how her words or actions (which she may or may not
remember expressing) affect you or those around her. It makes matters worse.
Or, at least, that's what I've learned. Often, picking fights is an outlet for
the tension in her mind and body. My wife says it's because she loves me. It's
hard as hell, but don't give into the temptation to engage in an argument when
she's PMDD-y. Walk away. Seriously. She will, likely, say things to get you
going, get under your skin or piss you off. Walk away. She's only doing it to
drag you down. It'll make things so much worse because, likely, she won't
recall engaging you in a volatile discussion and you will. And, if you're like
me, you'll hold it against her. Remember, dysphoria is 'a state of unease or
generalized dissatisfaction with life' - compounded with her anxiety,
depression, restlessness, agitation and irritation...it's like a tornado within
her body and her words are letting some of the destructive forces out, wrecking
you in the process. The tornado knows not what it destroys. Walk away.
Here's the best way my wife described it: She's in a deep,
dark hole. There's only one way out and, to get there, she has to go through
the darkness. She said, 'when I come out, into the light, it helps if you're
there waiting for me...it makes things easier.' - that, for her, for our
family, I can do.
We have 2 kids. They're realising (at the ages of 4 & 6)
that "mommy doesn't feel very good" rather often. Until medication
entered our house, her PMDD symptoms were, on average, 16 out of 30 days.
Things are getting better...the boys are well versed in the "don't wake
mommy" talk...or "mommy's very tired today" chat...my 4 y/o will
come into our bedroom to sleep with me when mommy stays downstairs. As he puts
it "I'll sleep with you, daddy, so you don't get sad".
One thing that's not often identified when discussing
symptoms of PMDD is suicidal fantasies. I learned, quickly, that the fantasies
are VERY different from tendencies. I was told, "hide the pain pills away
from me because that's the way I'd probably do it...less mess for you to clean
up". WTF? Nobody prepares you for that mindset.
So...What do I do? How do I cope? What keeps me grounded?
Why do I stay in a relationship that, clearly, is emotionally volatile?
First off, the boys. Dude & Lil Dude. I'm there for
them. I take them away, keep them occupied, keep them entertained, keep them
busy...but I also get their meals, make their lunches, do their laundry, bathe
them and put them to bed...and I wake them up, make them breakfast, get them
ready for school...it's not an equal division of labor, I know...but it's what
needs to be done.
Why do I do all that? Why do I also do the groceries and the
laundry and make suppers? Simple. I don't know if it's going to be one of THOSE
days. I made a promise to myself that I'd do what I could to start the day off
positively and easily for her. I anticipate the worst (it's gotten to the point
where I have a 50/50 chance of being
right). I try and do everything I can so her anxiety is lessened. I can't get
rid of it...but I can lower it. She calls me a martyr. So be it. I'd rather do
that than be one of the guys who, at the first sign of adversity, turns tail
and runs.
Labels:
awareness,
coping,
courage,
guest post,
men and PMDD,
partners with PMDD,
PMDD,
PMDD is a bully,
PMDD stories,
rage,
the PMDD mind
Sunday, September 18, 2016
She - An Inside Look at What It's Like to Have PMDD
I can sense she is coming, as my world starts to blur, she climbs into my body and claims it as hers.
Nobody sees her, she causes such pain. She is nothing like me yet goes by my name.
It's like a possession no priest could exile, she's taken me over, she's stolen my smile.
My body is hurting, I'm wrecked and alone. For two weeks a month, my body's her home.
Her rage has no limit, she's hurtful and cruel, she says things I wouldn't, and I look like a fool.
She drags me by force to the depths of despair, until I don't know myself, I am no longer there.
She damages my friendships and destructs my work, has me laid up in bed, exhausted and hurt.
And when I'm broken and lost and she's had her fun, she climbs right back out, I've survived another month.
And I take back my body, my mind and my heart, I repair all the damage, I make a new start.
I'm back and I'm happy, I'm thankful and free, though I know in good time she'll return for me.
Maybe one day I'll be free from her hell, she will no longer own me, and I will be well.
Until that day, I will swim the rough seas.
I won't let her drown me, for she isn't ME.
by Nicola James, 2016
Labels:
despair,
pain,
PMDD,
rage,
relationships,
the PMDD mind,
women's wellness
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