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~Seek first to understand, then be understood~
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If you're looking for information on a particular topic, type that word in the search box below. If I have written about that subject, a list of posts will appear. If no posts come up, I haven't written about it...yet. Emails, and questions in the comments section for possible posts, are welcome.
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I have a "friend" who shows up once a month. She turns my world upside down, over and over again.
I am a good person, caring and sweet, but when she comes to visit, I could rip off your head.
She takes no prisoners, foul words she does spout, I try to keep the words in, she lets them come out.
People don't understand me, or what this is about, to have this creature inside my head.
I despise who I am, half of the time, I feel sorry for my daughter, family and friends.
There's no way to describe it, for those who don't know, it's a living nightmare, she really needs to go.
~Neysia Manor, Rest in Peace
Showing posts with label encouragement. Show all posts
Showing posts with label encouragement. Show all posts

Friday, March 29, 2019

Shine a Light on PMDD - April is PMDD Awareness Month

BOSTON, MA, March 29, 2019 -- A global awareness campaign will kick off this April to help “Shine a Light on PMDD” on a little known, debilitating and life-threatening condition that takes an average of 12 years to be correctly diagnosed. 
Premenstrual Dysphoric Disorder (PMDD) is a cyclical, hormone-based mood disorder which impacts approximately 1 in 20 women and individuals assigned female at birth (AFAB) of reproductive age - a staggering 60 million worldwide. With symptoms including severe depression, overwhelm, and anxiety appearing in the two weeks before menses, PMDD takes a toll on sufferers’ ability to work and maintain relationships with partners and family. In the 2018 Global Survey of Premenstrual Disorders, out of 1,425 patients with prospectively-confirmed PMDD: 
● 16.8% reported having lost a job due to PMDD 
● 56.7% reported having lost an intimate partner relationship due to PMDD 
● 98% and 97% feel PMDD puts a significant strain on their intimate partner relationship and family relationships, respectively 
● 42.7% reported problems with parenting due to PMDD, with 10.5% feeling completely unable to parent during PMDD 
The relentless emotional and (for some) physical pain also drastically increases the risk of suicidal behaviors. In the same survey, 30% of patients with PMDD reported that they had attempted suicide to escape their symptoms. Sadly, this number does not include those with PMDD who have died by suicide, which suggests that 30% is a low estimate for the rate of suicidal behaviors in PMDD. Appropriate identification and treatment of PMDD are therefore important not only for reducing suffering but also for saving lives. 
The same survey also showed it takes an average of twelve years and six healthcare providers to receive an accurate diagnosis of PMDD. After years of suffering, individuals with PMDD describe learning about the disorder as a ‘lightbulb moment’. 
“PMDD has been invisible for far too long,” according to Amanda LaFleur, Co-Founder & Executive Director, International Association for Premenstrual Disorders (IAPMD), the global leader of PMDD awareness and education. “It’s underdiagnosed, misdiagnosed and, at worst, the lack of understanding leads to harmful ridicule and shaming of suffers. During PMDD Awareness Month we need to create millions of life-changing lightbulb moments across the globe so people can get the support and treatment they need!” 
This year, IAPMD is again collaborating with a coalition of organizations, including U.S.-based Me v PMDD and U.K.-based Vicious Cycle: Making PMDD Visible, to ‘Shine a Light on PMDD.’ Resources to support awareness-building are available on pmddawarenessmonth.org. Website visitors can access the PMDD Awareness Month Toolkit, find facts and figures about PMDD, create a fundraiser, and share their story.
Individuals with PMDD are encouraged to add their voice to the women's reproductive and mental health movement and receive timely updates on work underway to inspire hope and end suffering in those with premenstrual disorders. 
“This is a galvanizing movement in women’s health,” according to Sandi MacDonald, IAPMD Board President. “PMDD is a perfect storm where #MeToo and #TimesUp, meets mental health awareness, meets suicide prevention. This campaign will be that ‘eureka!’ or ‘light bulb’ moment of insight, and then sufferers and activists around the world are empowered to raise awareness of PMDD and increase access to effective treatment options.” 
While PMDD is directly connected to the menstrual cycle, it is not a hormone imbalance but rather a severe neurobiological reaction to the natural rise and fall of estrogen and progesterone. Symptoms occur the week or two before menstruation and go away a few days after bleeding begins. There is no blood or saliva test to diagnose PMDD, but these tests can rule out other underlying disorders. Diagnosis is done by tracking symptoms for at least two menstrual cycles. As noted above, women and AFAB individuals with PMDD are at an increased risk for suicidal behavior. Although PMDD has been included in the Diagnostic and Statistical Manual of Mental Disorders (DSM) and International Classification of Diseases (ICD) for years, it continues to be disregarded or misunderstood by doctors and the general public.
# # # 
Organizational Contacts: 
Amanda LaFleur
Co-Founder & Executive Director, IAPMD 
1-800-609-PMDD (7633) 

Laura Murphy
Project Co-Founder/Director, Vicious Cycle
Twitter: @viciouscyclepmd 
+44 7739 342590 

Sheila H. Buchert Co-Founder & COO, Me v PMDD, Inc. 
727-421-1489   

Sunday, June 4, 2017

An Open Letter to Partners of Women with PMDD


Today I'm honored to host a guest post by Chef Jay, who has decided to help raise PMDD awareness by starting a blog for men about PMDD.  You can find his original post, and others, here. 

Dearest Partners of Women with PMDD,

First of all, let me be clear. This letter does not come with answers or solutions. This is not a "be all & end all" to the chaos of PMDD. Every situation for every woman is different. Ergo (a word not used often enough), no household is the same. After many conversations and emails with men and women around the world, I've realized a few common traits, however. There are similar feelings, circumstances, emotions, issues and experiences...this letter addresses and recognizes them. This note recognizes the real, true emotions and thoughts emanating from the souls of men (and women) coping with a partner with PMDD. This is not a happy letter to make everyone feel better...it's one that draws attention to the mindset reality of living with PMDD. This isn't about me. It's about all of us.

I know you.

You're tired. Exhausted. You feel drained of all energy - emotional, physical, spiritual. Perhaps you feel absolutely nothing at all. You're like a zombie, going through the motions every day. But you're used to it...it's who you've become. You don't like it - you wish you had more energy and lust for life - but you give yourself a daily pep talk to survive the day, praying that today might be better...and you're not even the one with PMDD.

You are constantly on edge. You never know when her hurricane will hit. Predicting how one day to the next will transpire is fruitless. Hour to hour, day to day...hell, even minute to minute, is a pointless exercise. You see her, you love her, you feel for her but you wonder, "What else can I do?" - you've already tried everything!

You've thought about divorce. You've thought about having an affair. You've questioned your life choices...and those thoughts scare the hell out of you. So why do you stay? Why do you remain committed in a relationship that causes you stress and, most likely, shaves years off your life? Perhaps it's because of the words, "...in sickness and health...'til death do us part..." or maybe you're a glutton for punishment or feel, deep down, you can fix her or save her. Possibly, you fear what she'd do if you left. If you have kids, my guess is, you're there for them, more than her.

You've probably heard from her, more times than can count, that she "needs to do (this) or (that) because it might help" - this may include taking a course, going for a run, spending a day or two at the spa, getting massages, nights out with her girlfriends, binge watching Sex & the City or Supernatural, spending a few days here and there away from you (and the kids)...but can you do the same? No. Can you just take off for a few hours and have the day just for you? Probably not. Deep down, you wonder, could she handle the kids for 3 days without me? Your/my gut says no. The time you have out of the house is, most likely, spent getting groceries and doing things that need to be done to make the house and your life a little better.

You don't get enough downtime and, when you do have the opportunity to sit back and chill, your mind's still racing. Most likely, you just want to watch something pointless or mindless, have a beer and fall asleep. The thought of watching a show that has deep thoughts, intellectual content or educational information further stresses you out because your mind can't relax...there's no shut off switch to settle your brain.

You probably don't hear "Thank you" or "I love you" nearly often enough...and, as for, physical expressions of love? Not so much. (Or, at least, not like it used to be). But when SHE wants it, you must provide! Perhaps sex - or any form of intimacy - feels like a chore...another task to complete. Or perhaps, when it finally happens - a moment together, both of you in a positive, awake state of mind - it's a relief...an opportunity to forget about the trials of tribulations of the past few days.

You say words but may not mean them...or they don't have the same feeling behind them like they used to: "I love you" - perhaps it's said so she can hear the words but, your feeling behind them is different. "It'll be okay" - knowing, deep down, it'll get better for her but not for you. Her diatribes, constant needs, argumentative statements, vitriolic, mean words...you'll remember them and hold onto them and think of them all too often. You'll start to believe them - or, at minimum, question who you are based on her hurtful words. You say, "I'm here for you" but, perhaps deep down, you wish at that moment, you weren't. "

You question everything & constantly overthink. When you're sitting on the porch with her, having your coffee or glass of wine, and you hear her sigh heavily, you wonder if that's a sign of impending doom - something dark on her mind, or a coping mechanism to calm herself...or maybe she's just relaxing for the first time in awhile. In any case, you don't ask because "is everything okay?" or "what're you thinking?" or "something wrong?" might set off a chain of events you don't want to deal with.

You constantly look for ways to control your environment - from the way you schedule your day to what you cook for supper or how you organize things around the house. More often than not, when she's in her state, decisions are a further stress and amplify her anxiety. What do you do? You make all the decisions, thinking that'll make life easier for her. Yet, unfortunately, it doesn't often work out that way. Perhaps it's her response of "you should've asked/told me" or "why didn't you let me know?" or "if you loved me you'd have..." Friends may say, "Damned if you do, damned if you don't" but, to you, it had to be done. Survival instinct kicks in and you do what you need to do.

On the good days, when she's positive, upbeat, full of energy, revitalized, you struggle to enjoy the moment...you don't know how long it'll last...you fear the bubble popping...you're still on edge and, most likely, get down on yourself for not being fully present with her. Even when you know you SHOULD be enjoying yourself, you can't.

You're not fully present on a good day. You're not fully present when you're supposed to be having fun or enjoying life. But you ARE fully present when you're surrounded by her chaos, negativity, anger, frustration and darkness. Think about that for a moment:

You're only fully alive when you're being torn down, when your life force is being given to someone else, when every moment of your day is spent making sure your partner (and your household) lives to see another day.

You probably mutter or mumble under your breath as you walk away from her...things you wish you could say out loud but, knowing the damage they'd do to both of you, respecting her mental state, you keep it to yourself, tucking it deep inside where the feelings fester and ferment. Maybe those words of resentment will go away...or, maybe they've established a symbiotic relationship with your soul. These periods of resentment...they grow in number as the years go on...your thought process dips its toes into the murky waters of ire more frequently and easily.

You're constantly seeking an outlet for your tension. Nothing seems to work. Perhaps you go to the gym but, for some reason, you cut your workout short because you're worried about her...or you're too stressed to even relax to workout fully. Or, maybe, you go for a pint with your mates but, you're not fully present...your mind is elsewhere, wondering if she's okay. And you cut your night short because you know you need your energy to deal with the next day.

You feel guilty when you do something for you. Whether a ball game or buying something online, you wonder how she'll react or what she'll think or if she'll resent your 'selfish' ways. So you begin doing less and less for yourself, channeling your energy into your family and her.

If you have kids, you wonder what they'll remember about life in the house, growing up. Will they remember how Mommy hardly slept in the same bed as Daddy? Will they remember how Daddy would always wake them up in the morning, get them dressed, make them breakfast, pack their lunches, cook supper, clean the kitchen, do the laundry, get the groceries? Or will they remember that Daddy didn't have enough time to play with them because of everything he did to make the house function?

You cry. Sometimes there are tears streaming down your face or sometimes you're crying on the inside. But, regardless, you're sad. You're upset - at yourself, at her, at a higher power, at anyone, at no one - yet you keep it to yourself. It's your burden. Perhaps you feel like you asked for this. Perhaps you believe this is your own private challenge. Know you're not alone. There are people out there to help. People are there for you. They want to help...they're waiting at your doorstep...it's up to you to let them in.

This letter is part vent, part affirmation. Maybe you've had some (or all) of these thoughts. Maybe you can't relate at all. In any case, you aren't alone. Like a phoenix rising from the ashes, strength builds from pain. For whatever your reasons, your resolve to remain committed to someone struggling with the very fabric of being, is powerful. While my words may not be enough, you are a great person, standing beside someone who needs you more than words. You may not hear it enough or feel it or even believe it but your presence is an amazing gift - not only to her but to the universe. You make her world - and the world around you - a better place.


Tuesday, January 24, 2017

Great News! PMDD Tied to Sex-Hormone Reactive Genes

Today's guest post welcomes author Eryn Speers' unvarnished reaction to the news that National Institutes of Health (NIH) researchers have discovered molecular mechanisms that may underlie a woman’s susceptibility to disabling irritability, sadness, and anxiety in the days leading up to her menstrual period.  I couldn't have said it better myself, which is why I asked permission to reprint Eryn's original Facebook post here.  
The bottom line is this NIH discovery is good news for us all.  Please be sure to watch the five minute video (link provided) at the end.
I have been through the gambit, had my moments of doubt, and a few good months where I thought I was "free" of PMDD. Chalking it up to stress, or difficult times, only to have it return with a vengeance. In my frustration I began my research again, shaking my head every time I ended up down the same road: eat clean, eliminate sugar and caffeine, get your hormone levels checked, get acupuncture, see a naturopath, try anti-depressants and Cognitive Behavior Theory. The list goes on and on, as we know. What I, myself, have come to realize, is that all this conflicting information just makes it all worse. That's why I am taking this new research as a cue to stop blaming myself, and to stop listening to all the noise and babble about what the "correct" treatment of PMDD is. While it's a good idea for anyone to reduce sugar intake, exercise regularly, and investigate possible food sensitivities - these things will make anyone feel better in general, but to continue to go in circles just adds stress to what is already a stressful situation.
I hope this new research helps others to do the same. Yes, it means we still suffer until they find a way to use the info to come up with a therapy that targets the actual cause of the problem, as opposed to the symptoms. However, at least those of us who are desperate and tired of trying everything to no avail, can try to find some hope in knowing that they are really working on it.
This is a disorder on a cellular level, and I am ready to accept whatever treatments they come up with in order to get my life back. My hope is that those of you who are very anti-pharma will try to trust, for a while, and give yourself a break from feeling that the only one who can correct the problem is you.
This puts so much undo pressure on us, and also nurtures an environment of pessimism and fear. We deserve to feel better! This problem is not caused by us. This is not a matter of poor diet or lifestyle choices, or a hormonal imbalance. All we can do right now is cope as best we can, and we're all doing that.
We're here to support one another, and I feel that we should all encourage one another to stay open to the possibilities as the research advances. Please, I implore you to keep trying new therapies until you are finally free of this awful disease. If you want to take anti-depressants in the meantime because they help, great! If you want to take birth control, or stay 100% natural in your efforts to get through and lessen the severity of your symptoms - also great!
However, please don't let the way this disease makes you feel hopeless and useless allow others to tell you exactly how to approach your own health. Don't let the fear and skepticism of others stop you from trying a drug that has been specifically developed to treat this issue in the future. They ARE working on it.
Have faith! ~ES

Sunday, December 11, 2016

Five Secrets for Surviving PMDD

Sometimes when we’re on the edge, a little dose of truth is all we need to keep from toppling over. Here are 5 secrets that can make surviving PMDD a lot easier.
1. Resistance creates suffering. Yes, PMDD causes unbelievable discomfort and mental agony. But were you aware that when you resist that discomfort and agony, you are actually creating MORE of the same? The human race is quite masterful at wanting things to be different. We’ve gotten quite adept at overanalyzing, strategizing, manipulating, denying, oppressing, and yes, even brooding over what is. But what is, still is. With or without all the energy we expend pushing things away, blaming ourselves or others, and replaying events of the past or imagining disasters in our future, reality is still reality. The trick, and I tell you true, is to use that very same energy you’ve been wasting on what you cannot change and divert it into new channels that actually make you feel better. It’s so flippin’ simple and obvious, and yet doing it takes tremendous energy and refocus.  
2. Build your energy. Okay, so now you know. You’ve got to spend the energy you have differently and also increase your energy enough to be able to break out of old habits. So, you have to identify all the ways you waste or leak energy. It could be through crappy relationships, through poor diet, not getting enough sleep, and the less obvious ways of stuffing emotions, harboring negative thoughts, or denying yourself as a matter of habit everything you truly want in life (by, for example, not even asking for it!). And here’s another tip: the more comfortable you can become with your discomfort, the more energy you will reserve and build. When you want to flee or fight, but there’s no imminent threat, stop. Feel. Breathe, woman! I promise it will pass. 
3. You don’t need to fix yourself. I know. It’s hard to believe. But it is true. You don’t NEED to be any different than you are…no matter what you or anyone else has been telling you. I know PMDD sucks. I know it can turn you from sweet and loving to bitter and hateful in under 3 seconds. But the thing is, neither of those personalities is you. You are a deep and beautiful mystery created by Life, infused by life, and guided by life. Flawless! Next time you get the message that you suck, duck! Let that bullshit ride the airwaves right over your head and out the window. There’s nothing you can do to change what is until Life decides it’s time. And then all you have to do is not resist! So until then, dream a better life but without the underlying judgment that says, “I am not doing enough.” 
4. Let yourself off the hook. The nature of PMDD ensures you’re going to have bad days. Why beat yourself up about them? Why bash yourself with judgments and shame or guilt over what you thought or felt or did? Make reparations if you can, of course. But it is actually a complete waste of energy to chastise yourself for losing your temper or getting depressed again. It is useless to tell yourself to get a grip or get over it. And you certainly wouldn’t appreciate hearing that from someone else, so why do it to yourself? Accept that in every moment, you unquestionably do the best you can. If you could do any better, you would. Allow yourself your mistakes, forgetfulness, reactions… Whatever thoughts or feelings or emotions you experience, they really aren’t personal. They pass and evaporate, eventually. They aren’t YOU. 
5. Stop believing your complaints. PMDD causes sufficient misery to provoke numerous complaints. You’ve earned the right to complain. So if you need to vent, vent! It’s healthy! But that doesn’t mean you have to believe your complaints or use other people like sponges to absorb all of your problems. Whatever you need to express, do it with people who aren’t going to buy into and reinforce the story. But take care you don’t reach out to people who are going to devalue your experience either. What you feel is real. What you believe about it…not so much. It is a delicate balance, and it starts with you. Recognize that sensations arise in consciousness. You will never be able to control them, so don’t waste that precious energy trying so hard. Instead, learn to doubt them. Learn to see them for what they are. You’re not broken, doomed, hopeless, or useless and life hasn’t handed you an impenetrable bum deal. The truth is, life is so much easier than we make it…if we’re willing to let it be.
Liana's note:  The above guest post was written by the blogger Cheekyminx. With her permission, several of her posts about PMDD are being featured on this blog. To find out more about her work as a PMDD Advocate, please visit her Facebook page, PMDD Life Support.


Sunday, June 12, 2016

PMDD - After the Hysterectomy

In my first post, I shared what it was like for us in the trenches with PMDD.  This installment, I want to discuss what happened after my wife's hysterectomy, or how we finally got to life without PMDD.
The decision, I remember, was discussed a handful of times regarding whether my partner should have a hysterectomy. I remember us doing a lot of due diligence on the topic, mostly surrounded around her health. We knew we were at peace with the idea that we would no longer be able to have children—we already had two beautiful, healthy kids and we were truly blessed. The larger conversations centered around "then what?" What are the guarantees? What are the potential complications? What if the surgery doesn't work and what would the domino effect be, knowing she just had her entire reproductive house torn down and she still had PMDD?!
The decision was ultimately hers. She decided it was worth the risk of everything we had discussed, knowing the reward would mean so much more.
She had her surgery. It went well and we were told there would be no major side effects, just 6-8 weeks or physical recovery time. All good, right?
Let's harken back to PMDD and how most of us, even doctors, are learning on the fly. I obviously wasn't prepared for the three months after surgery and how PMDD kept creeping into our lives. It wouldn't go down without a kick in the gut, a roundhouse right to the head, and headlock for good measure. One of the hardest battles lied ahead and I was not any wiser to what the hell it was—again my preparation—or lack of it—didn't matter.
My wife fought for three months after her surgery. It was probably just as hard as when she had PMDD. I remember the emotional strain it took on her—how her body would never be the same. How the same place that had housed our children for almost 10 months was gone. It was an emotional rollercoaster. The fights still existed, the threats of divorce were still present, and it seemed at times as if one of my fears had come true—IT DIDN'T WORK!
As each day went by I was looking for a ray of hope. After she was fully recovered physically (try more like 3 months, not 6-8 weeks) some normalcy started to happen and it felt odd. We were always waiting for the next fight to happen. I was always tracking her episodes on my iPhone, trying to prepare for the next hostile takeover. We went back and forth at times really questioning if the surgery worked 100%.
It was a long road back emotionally for my wife post-surgery. It was harder, and took longer than any of us expected. PMDD gave us one last fight and didn't go down quietly...why should I have expected it to?
For whoever reads this, I leave you with this: It can and will get better. There are options for you and your partner. You don't have to live this way any longer. I know it is easier to run like hell than to stand and fight. I chose to stand and fight when at times I wanted to run far, far away.
I leave you with three points to help get you through it all:
1) Remember why you fell in love with her. It will carry you at times through the muck even though the woman you fell in love with might be a shadow of herself during PMDD.
2) It's okay to feel the way you do, no matter how much you might feel guilty for feeling a certain way. Things will cross your mind during her PMDD episodes that will have you questioning your sanity. You will feel like snapping at times. You will feel like doing irrational things just in the hopes that your wrong behaviors or attitudes are not so much payback for PMDD, but a pathway between staying balanced and losing your mind.
Talk about the way you feel with others even if they might not fully understand it. Just letting it go and letting out a good cry is also therapeutic. Don't hold it in. Find an outlet for yourself too. Your health still matters.
3) Lastly...Don't give up. She needs you still. She is fighting a swarm of demons that she doesn't want around. She doesn't want this any more than you do. [Whichever treatment option(s) you choose] Work towards achieving healthy solutions for both of you. There are solutions out there. Do your homework, reach out to PMDD survivors and their peers, and never, ever give up Hope.
You are stronger than you ever realized, partner, and God wouldn't give you anything you couldn't handle. Call it cliché but it's true. You were built for this for now, but it is not yours or hers to live with forever.
Liana's note: For more information on the basics of PMDD, please read my posts Dealing with PMDD - Advice for Men, and Confusion City.   Also worth reading are Top 20 Tips for Dealing with PMDD, and More Tips for Men Whose Partners Have PMDD.  All four posts are included in my book PMDD: A Handbook for Partners.  For those who prefer to have all this information (and much more!) in one convenient place, it's the book with the blue cover at the top of the sidebar. 


Wednesday, December 30, 2015

PMDD: A Handbook for Partners

At the request of my readers, I have written a PMDD book especially for partners of women with PMDD:

PMDD: A Handbook for Partners  
Does your wife or girlfriendʼs personality change drastically every month? Like clockwork? Youʼre far from alone. It could be Pre-Menstrual Dysphoric Disorder, or PMDD, a debilitating hormonal disorder which affects 3 - 8% of women in their fertile years, including many using birth control. PMDD is what makes it seem like sheʼs gone Dr. Jekyll and Mr. Hyde on you once, sometimes twice a month. Sometimes even for half of each month or more.

Inspired by the most-read posts in the blog Living on a Prayer, Living with PMDD, this book is for the partners of women with PMDD. Inside you will find insights as to what is going on in her mind during her seemingly inexplicable bouts of confusion, irritability, anger, rage, fear, anxiety, sadness and/or despair, what contributes to her state of emotional chaos, and tips on how to cope with and care for the woman you love during these, her most vulnerable days of the month.

Thereʼs no need for you to ride the rollercoaster of PMDD like you do. There are ways to help her manage her PMDD. Let this book help you to do just that, and find peace in the midst of the wildly careening emotions that PMDD brings into your relationship and life.

On sale now for Kindle at Amazon.  Introductory price of $4.99.  Available in print from Amazon as well for $9.99.  More than 200 pages of information and understanding about what itʼs like to be caught up in the unpredictability of a relationship with a woman who has PMDD, and what you can do about it.

Sunday, November 22, 2015

PMDD Wisdom for the Holidays and Beyond



I received two excellent comments from readers this week, both of them spot on, and rather than leave this straightforward wisdom buried in the comments section at the end of an older post, I thought I'd bring it front and center for your consideration.  Please keep these comments in mind as we move into the craziest and most emotion-filled time of the year, and may your next six weeks be filled with more peace and understanding because of it:

Here’s some advice for anybody who lives with a woman experiencing PMDD from somebody who has it herself: If you suddenly find that the woman you live with is irritable, seems distant, or has actually left to be by herself, leave her alone! She’s not mad at you, you didn’t do anything wrong. If you follow her around, touch her, stare at her, and ask her questions when all she needs is to be by herself for a bit, you’re going to piss her off. Look at the calendar. Is she premenstrual? Yes? Then that is your explanation for her behavior. She doesn’t need to explain it to you every month. She doesn’t want to talk about it. This is super predictable, guys. I know you may see her not feeling well and worry about her and your natural reaction is to touch and comfort and find out what’s wrong. For the love of all that is holy, just leave her alone. She can’t control how she feels and she doesn’t like it either. Don’t make it worse. She most likely already feels terrible you have to deal with her. :(  ~Anonymous comment on my post, Dealing with PMDD - Advice for Men

Guys. I’m a wife. I’m a mom. I have PMDD. I get how you would think that if your wife/girlfriend can keep it together at work that you would think you are not her top priority. But, consider this. What if she is a mess around you because you and your kids are everything to her? Think about it. Work is important, but it’s just a job. Friends are important, but they are just friends. Wanting to be a good wife and mom is everything to most women I know. Personally, I find it challenging, if not impossible, to be a good wife and a good mom at the same time. Both roles require completely different demands. This is stressful. So then, take into account that when your wife is premenstrual, she has lost her ability to cope. She’s so stressed out and so overwhelmed she cannot deal with anything. It’s upsetting when the toast is taking too long to pop up let alone the child who is screaming because she said he can’t play with the electrical cords. So, it’s hard. We care so much about being a good wife and mom, that when we can’t be, we feel incredible guilt. We are incapable of being loving, fun and efficient all time and feel so bad about it that we think you and the kids would be better off without us. These feelings can affect us physically to the point that we can’t fulfill any of our roles. If we didn’t care about being a good wife and mom, it wouldn’t stress us out. When we’re premenstrual, we can’t handle the stress.
If that’s not the case with your wife, there’s another explanation. If she’s at work all day and comes home to you and the kids at night, that means she has spent the whole day trying so hard to not be a monster. This is exhausting. There is so much she wants to do and say, but she can’t. She holds it in. Coming home to the demands of being a wife and mom put her over the top, she has nothing left. She just can’t deal with it anymore. It’s not that you aren’t her top priority, it’s that when she has time with you, she literally has nothing left to offer.
Another reason would be that work is validating for her. She's probably good at what she does, and she gets a paycheck for it. There's a reward and purpose and it feels good to be a good employee. There is not much that makes you feel good about being a wife and mom. If the house is messy, you don't know what to make for dinner, dinner sucks, laundry isn't done, etc., it's easy to feel like a subpar wife. If your 3 year old isn't potty trained, your 15 year old doesn't know how to load a dishwasher, your kids watch too much t.v., your kids eat nothing but junk, your kids fight, your kids don't obey, you forgot your tooth fairy duties, etc., it's easy to feel like a failure as a mom. It's not hard to feel inadequate at home. Maybe the "needed benefit" for her going to work is that she feels good about herself the 8 hours she's there, and that 8 hours is what gets her through the other 16 every day.
There you have three explanations. I hope this gives you insight on what you’re wife might be thinking. We’re all different, but it was sad for me to hear you think you’re not a priority or of less importance to your wife because for me, it’s the opposite. It’s the anger and frustration and questioning of our love for you that gets us stuck in depression. Try responding to her with love. If she comes home from work a crazy angry person, or if you come home from work and she’s clearly irritable, that would be a good time for you to say, “Kids, Mom doesn’t feel well. Come to me for everything you need. Let’s clean up your toys, I’ll help with homework, I’ll feed you dinner, I’ll give you baths, I’ll put you to bed.” Just try it. See how much sooner she feels better. She needs to know you love her even though she’s having a bad day. I know it’s a lot of work to do everything at home after you’ve worked so hard all day, but contemplate this: If you get divorced or she kills herself, which is something women with PMDD think of often, you’re going to be doing everything every day anyway for the rest of time. ~Anonymous comment on my post, Dealing with PMDD - Advice for Men

Sunday, August 23, 2015

Welcome to the NAPMDD Conference, Where The Real You Is Welcome

Two weeks ago today in Colorado, the first ever National Organization for PMDD (NAPMDD) Conference and Expo ended amid hugs, kisses, smiles, laughter, and tears...many, many tears.  Tears of hope, tears of joy, tears of relief, renewal, exhaustion, and—for the first time in what I would venture to say almost every attendees' life—tears of pure recognition and acceptance. 
For Acceptance—in addition to Hope—was the overall theme, message, and atmosphere of our time together in Denver.
While leading up to the conference many jokes were made in the PMDD community about what could happen in a room full of angry women with PMDD, the opposite was our reality.  There was no need to be angry because we had all "been there."  
Empathy was the reigning emotion of the weekend, because we understood each other—all too well.  Not just our emotions, but the process and pitfalls, jargon and results of the disorder.  I'm in Day 5.  Day 15 here.  I've been on six different drugs in ten years.  I'm on progesterone therapy.  I'm getting a divorce.  I'm thinking of getting a hysterectomy.  I hate my family.  I'm taking (name your medication).  I've been diagnosed as bipolar.  I think about suicide every month.  My doctor told me to "Just go shopping."
And where else could you go and tell a group of strangers about the color and condition of your cervix?  Better yet, splash pictures of it onscreen, then ask if anybody has questions?
I loved the openness of the conference.  Information was shared with total professionalism and respect, but also with a dash of humor when warranted.  The program provided by the speakers was invaluable.  The sessions sparked conversations about subjects such as nutrition, detoxification, inflammation, self-care, self-love, wellness, and healing.  Learning to live your cycle rather than fight it; learning to work with it rather than against it.       
So many options; so many choices.  But all with the same goal of wellness.  For that alone the conference was huge success.  (I'm just writing about it now, because I took a two week vacation to travel out West afterward.)  Kudos all around go out to Amanda and Melanie and Elizabeth and their well-organized team of volunteers. 
But what struck me most about the event—in addition to the great food, hotel, conversation, and stellar line up of speakers—was how much love and acceptance everyone shared. 
Yes, people cried throughout the weekend, in the audience, in corners, in hallways, on couches, and at the podium—but that was okay.  For the first time in history, women with PMDD (and their partners) were allowed the safe space to "be ourselves" in public.  Nobody had to go back to their room and suffer alone.  Nobody had to hide in the bathroom to cry.  Nobody had to excuse themselves because they made other people uncomfortable with their messy emotions.  Our tears and fears were welcome.  Our conversations were real.  Our hopes, dreams, sadness, and anxieties were out there for everyone to see.
And it was wonderful.  Freeing.  Empowering.
I'm sure the energy of welcoming acceptance that flowed throughout the conference will help to sustain attendees for many months to come.
And that is what NAPMDD is all about.
Support.  Encouragement. Acceptance. 
Hope.
In sum, all I can say is while the educational information received at the conference was by far the bargain of the year, the warmth, friendship, and empathy I experienced at the NAPMDD conference was...
Priceless.
*For those who were unable to attend the conference, please check the NAPMDD site for links to free videos of the speaker sessions.