Showing posts with label hope. Show all posts
Showing posts with label hope. Show all posts
Saturday, December 9, 2017
My First Memory of Having PMDD
It’s hard to pinpoint my first true memory of having PMDD. I think I struggled against my PMDD for so long, denying that I had a problem, that it manifested long before I admitted there was something wrong with me. No one else I knew went through these struggles, or if they did, they didn’t talk about it. They managed, they coped…why couldn’t I? What was wrong with me that I was fine one day, and could barely get out of bed the next? I think I blamed it on everything and anything else but me, sources outside myself, school, work, friends, family, whoever I was in a relationship with at the time--because I was young and healthy and mental-type problems only happened to other people.
The first episode I can remember which I would now attribute to PMDD was a two-week period in my freshman year of college, toward the end of the semester and year, when I simply didn’t get out of bed except to go to class. I was doing well in my classes, not having any problems to speak of, and then suddenly this period of total sadness and hopelessness and lethargy hit, and I had no motivation to do anything or go anywhere. Then just as suddenly it lifted, and for the remaining weeks of the semester I raced around like a madwoman, trying to catch up and make sure my grades didn’t suffer. I was eighteen years old.
Now, looking back, I can see countless repetitions of this scenario, where I’m sailing along, and life is fine, and then suddenly...it isn’t. When all indications are that I should be happy beyond measure--having achieved every goal I’d set for myself to that date--but I wasn’t. I used to think there was just something inside of me that liked to make life a little more challenging. Something that liked to let me fall behind, just so I could prove that I could catch up and still come out ahead. Now I realize it was the PMDD dragging me down. Now I think about how much I could have accomplished, had I known what was happening and learned to manage my PMDD, like I eventually did.
But I don’t dwell on those thoughts, because those opportunities have come and gone, and negative thoughts will bring anybody down, not just a woman with PMDD. There’s no sense in feeding the fire. What’s come and gone has done just that…come and gone. The only moment we can do anything about is the moment we’re in right now. And right now, I know that most, if all negative thoughts I have stem from my PMDD and I’m just not going to give them any more air time. I’m still as stubborn as I was as a teenager, still as determined not to let the sadness and negativity get me down, only this time I know what I’m dealing with. Now I’m able to separate the two, my usual self and my PMDD self, and when my PMDD hits, I’m able to label my self-defeating thoughts as PMDD thoughts and just set them on a mental shelf to be dealt with later.
The beauty of this tactic? When later comes, those thoughts are no longer relevant. Mostly because they weren’t true to start with. On PMDD days now I rest and take it easy. I find something positive and uplifting to read or watch or listen to, and focus on small, sometimes mindless tasks that I know need to be done and have been saving up for just such a day. Organizing receipts or CDs or books on a shelf. Folding the laundry. Nothing heavy, nothing demanding either physically, mentally, or emotionally. For instance, sorting through old photographs probably wouldn’t be a good job for a PMDD day. The emotions they dredge up might not be positive, might make you miss someone or someplace or stir up regrets. Or they might remind you of a happier time, and instead of making you smile, might make you feel like you’ll never be happy again. That’s the PMDD brain talking, not you. And whatever it is saying is certainly not coming from God.
I bring God into this because my faith was and is a big part of my experience with PMDD. Without faith in something bigger than myself, I never would have come to have faith in myself. I can’t tell you how many times I thought there has to be a way to make this madness stop. The first book I picked up was Prayer, Faith and Healing: Cure Your Body, Heal Your Mind, and Restore Your Soul. I’d tried everything else. Maybe it was time to give prayer a chance. And so I started. With baby steps. One by one, one day at a time, learning how to listen to something positive outside myself for a change, until I learned that God was inside of me, too, and I could go within for the answers I needed. They didn’t have to come from outside sources.
The stronger I became on the inside, the more those negative external voices dimmed to background noise. Such as well-meaning friends and family with unsolicited advice, and not-so-well-meaning friends and family with selfish needs and demands. Not to mention well-crafted advertisements pointing out all the areas in which I was lacking in my life, or organizations with agendas on how I needed to live my life, and countless books, magazines, radio and television programs telling me I could have it all, while at the same time measuring me by artificial standards no one person could ever hope to attain.
It’s hard enough navigating life with all your faculties intact. But when you’re a woman with PMDD, operating on half power or less half the time or more, life gets really challenging. So don’t beat yourself up. The world is more than happy to do that for you. Accept that you’re not perfect and you’re never going to get there, then relax and enjoy your life. When you’re feeling good, take on all you want to, and when you’re not—take time out to take care of you.
If you take nothing else from this post, take this: Don’t spend another day beating yourself up for something you have no control over. Do start listening to your body, and giving it--and yourself--the respect you deserve. If you don’t know how to do that, if you’re scratching your head at the very thought of it, like I once was, then check out my blog, my Living with PMDD Facebook page, or my book, PMDD and Relationships, for more information on how to better manage your PMDD, as well as support, encouragement, and tips on how to be a better you…all month long.
The first episode I can remember which I would now attribute to PMDD was a two-week period in my freshman year of college, toward the end of the semester and year, when I simply didn’t get out of bed except to go to class. I was doing well in my classes, not having any problems to speak of, and then suddenly this period of total sadness and hopelessness and lethargy hit, and I had no motivation to do anything or go anywhere. Then just as suddenly it lifted, and for the remaining weeks of the semester I raced around like a madwoman, trying to catch up and make sure my grades didn’t suffer. I was eighteen years old.
Now, looking back, I can see countless repetitions of this scenario, where I’m sailing along, and life is fine, and then suddenly...it isn’t. When all indications are that I should be happy beyond measure--having achieved every goal I’d set for myself to that date--but I wasn’t. I used to think there was just something inside of me that liked to make life a little more challenging. Something that liked to let me fall behind, just so I could prove that I could catch up and still come out ahead. Now I realize it was the PMDD dragging me down. Now I think about how much I could have accomplished, had I known what was happening and learned to manage my PMDD, like I eventually did.
But I don’t dwell on those thoughts, because those opportunities have come and gone, and negative thoughts will bring anybody down, not just a woman with PMDD. There’s no sense in feeding the fire. What’s come and gone has done just that…come and gone. The only moment we can do anything about is the moment we’re in right now. And right now, I know that most, if all negative thoughts I have stem from my PMDD and I’m just not going to give them any more air time. I’m still as stubborn as I was as a teenager, still as determined not to let the sadness and negativity get me down, only this time I know what I’m dealing with. Now I’m able to separate the two, my usual self and my PMDD self, and when my PMDD hits, I’m able to label my self-defeating thoughts as PMDD thoughts and just set them on a mental shelf to be dealt with later.
The beauty of this tactic? When later comes, those thoughts are no longer relevant. Mostly because they weren’t true to start with. On PMDD days now I rest and take it easy. I find something positive and uplifting to read or watch or listen to, and focus on small, sometimes mindless tasks that I know need to be done and have been saving up for just such a day. Organizing receipts or CDs or books on a shelf. Folding the laundry. Nothing heavy, nothing demanding either physically, mentally, or emotionally. For instance, sorting through old photographs probably wouldn’t be a good job for a PMDD day. The emotions they dredge up might not be positive, might make you miss someone or someplace or stir up regrets. Or they might remind you of a happier time, and instead of making you smile, might make you feel like you’ll never be happy again. That’s the PMDD brain talking, not you. And whatever it is saying is certainly not coming from God.
I bring God into this because my faith was and is a big part of my experience with PMDD. Without faith in something bigger than myself, I never would have come to have faith in myself. I can’t tell you how many times I thought there has to be a way to make this madness stop. The first book I picked up was Prayer, Faith and Healing: Cure Your Body, Heal Your Mind, and Restore Your Soul. I’d tried everything else. Maybe it was time to give prayer a chance. And so I started. With baby steps. One by one, one day at a time, learning how to listen to something positive outside myself for a change, until I learned that God was inside of me, too, and I could go within for the answers I needed. They didn’t have to come from outside sources.
The stronger I became on the inside, the more those negative external voices dimmed to background noise. Such as well-meaning friends and family with unsolicited advice, and not-so-well-meaning friends and family with selfish needs and demands. Not to mention well-crafted advertisements pointing out all the areas in which I was lacking in my life, or organizations with agendas on how I needed to live my life, and countless books, magazines, radio and television programs telling me I could have it all, while at the same time measuring me by artificial standards no one person could ever hope to attain.
It’s hard enough navigating life with all your faculties intact. But when you’re a woman with PMDD, operating on half power or less half the time or more, life gets really challenging. So don’t beat yourself up. The world is more than happy to do that for you. Accept that you’re not perfect and you’re never going to get there, then relax and enjoy your life. When you’re feeling good, take on all you want to, and when you’re not—take time out to take care of you.
If you take nothing else from this post, take this: Don’t spend another day beating yourself up for something you have no control over. Do start listening to your body, and giving it--and yourself--the respect you deserve. If you don’t know how to do that, if you’re scratching your head at the very thought of it, like I once was, then check out my blog, my Living with PMDD Facebook page, or my book, PMDD and Relationships, for more information on how to better manage your PMDD, as well as support, encouragement, and tips on how to be a better you…all month long.
Tuesday, January 24, 2017
Great News! PMDD Tied to Sex-Hormone Reactive Genes
Today's guest post welcomes author Eryn Speers' unvarnished reaction to the news that National Institutes of Health (NIH) researchers have
discovered molecular mechanisms that may underlie a woman’s susceptibility to
disabling irritability, sadness, and anxiety in the days leading up to her
menstrual period. I couldn't have said it better myself, which is why I asked permission to reprint Eryn's original Facebook post here.
The bottom line is this NIH discovery is good news for us all. Please be sure to watch the five minute video (link provided) at the end.
I have been through the gambit, had my moments of doubt, and
a few good months where I thought I was "free" of PMDD. Chalking it
up to stress, or difficult times, only to have it return with a vengeance. In
my frustration I began my research again, shaking my head every time I ended up
down the same road: eat clean, eliminate sugar and caffeine, get your hormone
levels checked, get acupuncture, see a naturopath, try anti-depressants and
Cognitive Behavior Theory. The list goes on and on, as we know. What I, myself, have come to realize,
is that all this conflicting information just makes it all worse. That's why I
am taking this new research as a cue to stop blaming myself, and to stop
listening to all the noise and babble about what the "correct"
treatment of PMDD is. While it's a good idea for anyone to reduce sugar intake,
exercise regularly, and investigate possible food sensitivities - these things
will make anyone feel better in general, but to continue to go in circles just
adds stress to what is already a stressful situation.
I hope this new research helps others to do the same. Yes,
it means we still suffer until they find a way to use the info to come up with
a therapy that targets the actual cause of the problem, as opposed to the
symptoms. However, at least those of us who are desperate and tired of trying
everything to no avail, can try to find some hope in knowing that they are
really working on it.
This is a disorder on a cellular level, and I am ready to
accept whatever treatments they come up with in order to get my life back. My
hope is that those of you who are very anti-pharma will try to trust, for a
while, and give yourself a break from feeling that the only one who can correct
the problem is you.
This puts so much undo pressure on us, and also nurtures an
environment of pessimism and fear. We deserve to feel better! This problem is
not caused by us. This is not a matter of poor diet or lifestyle choices, or a
hormonal imbalance. All we can do right now is cope as best we can, and we're
all doing that.
We're here to support one another, and I feel that we should
all encourage one another to stay open to the possibilities as the research
advances. Please, I implore you to keep trying new therapies until you are
finally free of this awful disease. If you want to take anti-depressants in the
meantime because they help, great! If you want to take birth control, or stay
100% natural in your efforts to get through and lessen the severity of your
symptoms - also great!
However, please don't let the way this disease makes you
feel hopeless and useless allow others to tell you exactly how to approach your
own health. Don't let the fear and skepticism of others stop you from trying a
drug that has been specifically developed to treat this issue in the future.
They ARE working on it.
Have faith! ~ES
Sunday, June 5, 2016
PMDD in the Trenches -- A Partner Speaks Out
Hello. My wife is a survivor of PMDD and successfully had a
hysterectomy last year.
Everybody's partner has their own unique perspective, story,
and battle scars. However, I can only imagine what it is or was like for each
and every woman that has battled uphill fighting PMDD. My story plays out in three segments: Pre-PMDD, PMDD in the trenches, and post-PMDD. I'll present the first two here today.
Pre-PMDD: The Quiet
Volcano
Before our daughter was born, my wife had fundamental
characteristics, that looking back now could have somewhat prepared us for what
was to be PMDD. However, I am not a doctor and I don't play one on TV and I am
not the Amazing Kreskin, so in hindsight, it wasn't our fault that we were not able to
predict the future. We had a wonderful courtship, engagement, and newlywed
life; everything that you would want pre-children.
But bubbling under the surface was the volcano. I still
somewhat to this day wished I had been a more cognizant partner. Maybe those
fundamental characteristics could have prepared me to be on the lookout
postpartum. I am a planner. I like to stick to schedules, show up on time, and
live by the preparation sword. So you can imagine that when my wife and PMDD
met; it was nothing you can prepare for.
No partner can gameplan to tackle PMDD head-on. Heck, 90% of
the country hasn't even heard of it. Those
of you who might be reading this as a partner, might feel the same way I did.
I implore you to step back and give yourself some reprieve today and every day
moving forward. Likely now you might be in the thick of it, or maybe you're in
the [somewhat more peaceful] post-PMDD phase. All you can do [either way] is live
in the present moment because there is no point--I promise you--in focusing on
anything else [when you are in the throes of PMDD].
PMDD in the Trenches
I can honestly say there has never been a period in my
life and during my married life that I felt the walls caving in like they were
during "PMDD in the trenches." This is where all the battle scars
happened, horrible words were thrown around, bombs dropped, and at the end of
it all there were no winners. It was nearly a 5 year period of some of the most
tumultuous scenes of my life played out for all to see sometimes, sometimes
played out in a shroud of silence. Scenes that looked like they could have been
on a Thursday Night Lifetime Movie event, or sometimes things that you see on
the local news channel --Yeah, that bad. Remember, I'm a planner; I like things
in order, I believe that all things have a place...I am a huge advocate for
keeping my life as efficiently run as a possible. My wife having PMDD was the
antithesis of all those things.
PMDD ran our life. It was a Gestapo, a real son of a bitch.
My wife's life was controlled by a parasitic mind fuck over mind, body, and
soul. It took everything out of her and undoubtedly took everything out of me.
I wanted to quit. I wanted to run away. I wanted nothing more than to take my
children away and never come back. I found solitude in imaginary places that
existed far from my wife and far away from any PMDD.
For 2 weeks a month, we were at the mercy of PMDD. It had a
massive effect on our lives. I lived by the theory of "hope." I
continually held out hope that things would improve. Maybe this month she won't
want to lock herself in the closet. Maybe this month she'll want to parent her
children. Maybe this month she won't have a panic attack. Maybe this month
she'll toughen up--Yes I was thinking that, sadly enough. I was desperate for
truth...Desperate for answers....Desperate for normalcy.
I knew as much as she did. I knew probably as much as some
of the doctors & therapists knew. What I knew more than anybody though is I
still loved my wife through and through. I wasn't going to run, though I wanted
to. I wasn't going to get divorced, though I wanted to. I just wanted PMDD to
stop ruining our lives. I wanted my lovely wife healthy, happy, balanced, and
present--no longer consumed by the heavy fog that is PMDD. I can honestly say
we were both held as emotional hostages each and every month. By a pair of ovaries.
Note from Liana: A hysterectomy alone will not eliminate
PMDD. If you choose this treatment option, you need to have the ovaries removed as well. PMDD stems from something that starts in the
ovaries.
I encourage you all today to hold out hope. Hope is all we
have. Like Andy Dufresne in The Shawshank
Redemption said to Red, "Remember Red, hope is a good thing, maybe the
best of things, and no good thing ever dies." I am glad I held out hope
because, know this....there is a light at the end of the tunnel. There is an end [to PMDD] and a post-PMDD world exists......
More on this next week.
Sunday, January 17, 2016
PMDD Quote of the Week
Women with PMDD want to feel normal, We don't want to admit there's something going on in our brain that isn't right. Something that even the medical professionals can't agree on, much less define. We can find a thousand excuses for why we are so clumsy at times, or so ravenous, or irritable, edgy, disoriented, anxious, or weepy. We deny and deny and deny there is anything wrong with us, or that we are in any way acting strangely, because to admit that we are doing so means we will have to stop and deal with it somehow, and how can you deal with something that defies description?
Sometimes it's a battle you just don't want to fight.
From my books, PMDD and Relationships and PMDD: A Handbook for Partners
Wednesday, December 30, 2015
PMDD: A Handbook for Partners
At the request of my readers, I have written a PMDD book especially for partners of women with PMDD:
Inspired by the most-read posts in the blog Living on a Prayer, Living with PMDD, this book is for the partners of women with PMDD. Inside you will find insights as to what is going on in her mind during her seemingly inexplicable bouts of confusion, irritability, anger, rage, fear, anxiety, sadness and/or despair, what contributes to her state of emotional chaos, and tips on how to cope with and care for the woman you love during these, her most vulnerable days of the month.
Thereʼs no need for you to ride the rollercoaster of PMDD like you do. There are ways to help her manage her PMDD. Let this book help you to do just that, and find peace in the midst of the wildly careening emotions that PMDD brings into your relationship and life.
PMDD: A Handbook for Partners
Does your wife or girlfriendʼs personality change
drastically every month? Like clockwork? Youʼre far from alone. It
could be Pre-Menstrual Dysphoric Disorder, or PMDD, a debilitating hormonal
disorder which affects 3 - 8% of women in their fertile years, including many
using birth control. PMDD is what makes it seem like sheʼs gone Dr. Jekyll and
Mr. Hyde on you once, sometimes twice a month. Sometimes even for half of each
month or more.
Inspired by the most-read posts in the blog Living on a Prayer, Living with PMDD, this book is for the partners of women with PMDD. Inside you will find insights as to what is going on in her mind during her seemingly inexplicable bouts of confusion, irritability, anger, rage, fear, anxiety, sadness and/or despair, what contributes to her state of emotional chaos, and tips on how to cope with and care for the woman you love during these, her most vulnerable days of the month.
Thereʼs no need for you to ride the rollercoaster of PMDD like you do. There are ways to help her manage her PMDD. Let this book help you to do just that, and find peace in the midst of the wildly careening emotions that PMDD brings into your relationship and life.
On sale now for Kindle at Amazon. Introductory price of $4.99. Available in print from Amazon as well for $9.99. More than 200 pages of information and understanding about what
itʼs like to be caught up in the unpredictability of a relationship with a
woman who has PMDD, and what you can do about it.
Sunday, August 23, 2015
Welcome to the NAPMDD Conference, Where The Real You Is Welcome
Two weeks ago today in Colorado, the first ever National
Organization for PMDD (NAPMDD) Conference and Expo ended amid hugs, kisses,
smiles, laughter, and tears...many, many tears.
Tears of hope, tears of joy, tears of relief, renewal, exhaustion, and—for
the first time in what I would venture to say almost every attendees' life—tears
of pure recognition and acceptance.
For Acceptance—in addition to Hope—was the overall theme,
message, and atmosphere of our time together in Denver.
While leading up to the conference many jokes were made
in the PMDD community about what could happen in a room full of angry women
with PMDD, the opposite was our reality.
There was no need to be angry because we had all "been
there."
Empathy was the reigning emotion of the weekend, because we understood each other—all too well. Not just our emotions, but the process and pitfalls, jargon and results of the disorder. I'm in Day 5. Day 15 here. I've been on six different drugs in ten years. I'm on progesterone therapy. I'm getting a divorce. I'm thinking of getting a hysterectomy. I hate my family. I'm taking (name your medication). I've been diagnosed as bipolar. I think about suicide every month. My doctor told me to "Just go shopping."
Empathy was the reigning emotion of the weekend, because we understood each other—all too well. Not just our emotions, but the process and pitfalls, jargon and results of the disorder. I'm in Day 5. Day 15 here. I've been on six different drugs in ten years. I'm on progesterone therapy. I'm getting a divorce. I'm thinking of getting a hysterectomy. I hate my family. I'm taking (name your medication). I've been diagnosed as bipolar. I think about suicide every month. My doctor told me to "Just go shopping."
And where else could you go and tell a group of strangers
about the color and condition of your cervix? Better yet, splash pictures of it onscreen,
then ask if anybody has questions?
I loved the openness of the conference. Information was shared with total
professionalism and respect, but also with a dash of humor when warranted. The program provided by the speakers was
invaluable. The sessions sparked
conversations about subjects such as nutrition, detoxification, inflammation,
self-care, self-love, wellness, and healing.
Learning to live your cycle rather than fight it; learning to work with
it rather than against it.
So many options; so many choices. But all with the same goal of wellness. For that alone the conference was huge success. (I'm just writing about it now, because I
took a two week vacation to travel out West afterward.) Kudos all around go out to Amanda and Melanie
and Elizabeth and their well-organized team of volunteers.
But what struck me most about the event—in addition to
the great food, hotel, conversation, and stellar line up of speakers—was how much
love and acceptance everyone shared.
Yes, people cried throughout the weekend, in the
audience, in corners, in hallways, on couches, and at the podium—but that was okay.
For the first time in history, women with PMDD (and their partners) were
allowed the safe space to "be ourselves" in public. Nobody had to go back to their room and
suffer alone. Nobody had to hide in the
bathroom to cry. Nobody had to excuse
themselves because they made other people uncomfortable with their messy emotions. Our tears and fears were welcome. Our conversations were real. Our hopes, dreams, sadness, and anxieties were
out there for everyone to see.
And it was wonderful.
Freeing. Empowering.
I'm sure the energy of welcoming acceptance that flowed
throughout the conference will help to sustain attendees for many months to
come.
And that is what NAPMDD is all about.
Support.
Encouragement. Acceptance.
Hope.
In sum, all I can say is while the educational
information received at the conference was by far the bargain of the year, the warmth,
friendship, and empathy I experienced at the NAPMDD conference was...
Priceless.
*For those who were unable to attend the
conference, please check the NAPMDD site for links to free videos of the speaker sessions.
Sunday, May 18, 2014
The Voices of PMDD, A Guest Post by Alice
I have a demon living in my head, and it is
a part of me. There are two of me existing in the same space. We share the same
face, the same experiences and the same memories, yet one half of me is a
rational and pleasant person to be around, and the other is living a crazy,
illogical and chaotic existence.
The sensible and sane version of me feels
weak and small, and powerless to resist the overwhelming and destructive demon
that can only be caged for 10 days of the month.
I have a fear that builds within me on day
8 of my cycle. I sit and wait for the demon to come crawling into my headspace
and start making a mockery of me. The moment I open my eyes of day 10, the
paranoia starts rumbling in my solar plexus. It starts as a vibration, then
rumbles into a deep thunder roll, before bringing a brain fog down over my
eyes. My ears are open, but I cannot hear. My eyes are open, but I am blind. My
hands are strong, but my body is weak. I
am aware of this happening to me, but I have been removed from my body and I am
watching myself from above. I am screaming at myself to stop, breathe and take
heed, but I cannot make myself hear. I begin to live the next two and a half
weeks behind a think pane of frosted glass. I see and hear the evil bubbling up
in my throat, ready to come blurting out. Some days I can gather my strength
and control the demon and suppress it, but others I am overpowered and subdued.
When the demon is released, I feel it
creeping out the crown of my head. I feel a cold, slimy gel like substance
slide down over my face. My eyes get heavy. The muscles in my face drop, and
feel sad. The corners of my mouth droop, and the tone is lost in my neck. My
eyelids are heavy and downcast, and my soul retreats. My shoulders slump, and I
become a hunched shell of a woman. My breathing slows and my abdomen tenses and
flops at the same time. My legs are heavy and my shoes feel like they have lead
soles.
Then the anger sets it. The demon steps
into my shoes and grows tall. It stretches its limbs and cracks its knuckles
ready for battle. It starts to look for a fight. The anger simmers in my chest,
using my heart as a power source. I feel it spreading out. A burning rage runs
through my veins. A chemical fuelled fire that burns so hot. I am now in the
cage. I cannot get free. I watch this demon take over my body. I scream, shout,
and destroy everyone and everything around me. I hit myself and slap my face. I
scratch myself and tell myself I am stupid, pathetic and don’t deserve to
exist. I am evil and utterly disgusting. I hate myself. I am a vile creature,
not worthy of love, not worthy of being called a person, not worthy of life. I
wish that I had the courage to end it all, but I don’t really want to die. I
just want to be free.
I collapse in a heap, exhausted. My life is
in tatters around me. I have told my husband to leave and have cried and begged
for forgiveness. I want him to touch me and then I want him to hurt me and then
I want to be alone.
The next day finally arrives and I am so
exhausted I cannot move. The demon is sleeping. For now. I hurt. Every muscle
and joint in my body is excruciating. My pelvis is mobile and I can feel each
bone grinding. Every step is an effort. I cannot think how I will make it
through the day. I force myself out of bed because if I don’t I never will. I
feel like my back will split open and my hips will fall out of their sockets.
I am riddled with guilt. I hate myself and am filled is embarrassment
and disgrace. I have humiliated myself and all of those around me by seeking to
destroy every relationship that is there to protect me. I have spat in the face
of love and kicked it when it was down. I deserve to be in the gutter. I did
not deserve to wake up today. Everyone would be better off if I had never
opened my eyes again. The demon would be dead. I would be gone from everyone’s
life. Their suffering would be over. My pain would end. I no longer have the
strength to think about this anymore, so I allow the brain fog to be my shield.
I spend the day trying to apologise, but
each time I do it becomes less and less valid and more meaningless. I am a
liability. I cannot be relied upon to be stable. I scared my husband, my one
true love. I made a mockery of our marriage.
Then the cravings start. I have to have
food! I don’t care what food, but it must be now and it must be good. The pain
in my stomach is unbearable. It feels like I haven’t eaten for a month. I could
cut off my arm and eat it. I need sugar. I need carbs. I need starchy and
stodgy food. Give it to me now or I will kill you!
I know I should do the washing up, clean
the bathroom, vacuum the house, wash my hair, brush my teeth and change my
underwear. But I do not care. I cannot move off the sofa. I will do it another
day. I will do it later. Anything but do it now. I try to overcome this lethargy by writing a
list, but I get distracted, I get tired, I get frustrated. I panic. I freeze. I
cannot breathe. My heart will explode. I am going to die if I do not hide under
the blanket and suck my thumb.
I go to bed. The tears roll down my face.
They are warm and soothing. The demon runs over me and claims me for its own.
The sobbing is uncontrollable but feels so good. I sleep.
I wait for my period to come. I wait for
the release. The flow of blood that drains my anger, drains my anxiety, my
despair and my hatred from my body. I am cleansed. I am released from my cage. The walls of my cage are stripped away as my
womb cries with relief. I can breathe fresh air. I can feel the touch of my
husband. I can laugh again.
The demon is a hot, fierce animal that
lives within me. Only it is me. I am the demon. My greatest fear is that this
will always be a part of me. I fear that I will fight this demon until I take
my last breath. I fear that it will take away everything that is precious to me
and leave me a shadow of the woman I could be. I will not let it win. I cannot
let it win. This is not who I was born to be. I can be great, I can be
wonderful, I can be beautiful.
I have PMDD, it does not have me. I am
beautiful. One day I will believe this.
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Wednesday, October 6, 2010
PMDD and Maple Syrup
Okay, time to check in again. One of the things I make a point of here is to be as honest with you as I possibly can. But my information is only as good as what I have personally experienced, so I can’t—and won’t--recommend things I haven’t tried. I’m just as eager—and sometimes just as desperate—as the next woman to find a way to feel well all the time, but I’m not one to just throw things out there to see if they stick. I’ve chased enough dream cures for PMDD in my forty years to know I don’t want to send any of you down the same road of futility and despair.
Because every time one of these so-called “miracle cures” fails to take away our PMDD, we tend to blame ourselves, and not the product we just spent another $20, $50, or $100 on. The problem must be with us, right?---not the stuff in the pretty package with all the glowing testimonials of how it worked for other women.
Wrong. The only problem here is you fell prey to hope.
That said, the only thing I know for sure is a woman with PMDD needs to pay careful attention to what she eats and drinks, and needs to listen to the signals her body sends her about whatever she is putting into her body, be it food, drink, supplements, creams, hormones, or medication of any sort. It’s only through this total body awareness that we’ll be able to get a handle on our PMDD.
Our bodies are amazing, and communicate with us constantly. Think aches, pains, tingles, queasiness, sleepiness, nervousness, whatever. Unfortunately, we’ve been conditioned to ignore these distress signals from bodies, and therefore our health and well-being, as long as we are able to get done all the things we need to do. It’s this ignoring of our bodies that leaves us wide open to using and abusing them in ways that invariably come back to haunt us, via cravings and weight gain, irritability and mood swings, and susceptibility to illnesses of all sorts, both physical and mental.
So the number one thing you need to do is take the time to get to know your body, what nourishes and sustains it, and what sends it, and therefore you and your life, out of kilter.
Last week I thought it was the cottage cheese bringing me down. I’ve since figured out that it was--and it wasn’t. It wasn’t bringing me down in the way I thought it was. As most women with PMDD, I need a certain level of carbs to be functional. Carbs are the precursor to making serotonin, which is a hormone a woman with PMDD lacks during certain times of the month.
There aren’t a lot of carbs in cottage cheese :). So after coming off the fast, which was a cleansing fast, and not one I would recommend for everybody (which is why I’m not openly promoting it here), I was (and still am) determined to watch my calories. Not count them—never again will I count calories—but I am determined in general to stick to a reasonable level of healthy fuel for my body intake.
Full fat cottage cheese is 30% fat—that’s what makes it so tasty. But by eating the cottage cheese, I was putting something in my body that wasn’t going to help improve my mood. What I should have been eating was something that would provide some healthy carbs to fuel my serotonin production.
In short, I substituted fat for carbs. And while it satisfied my hunger and the pleasure/reward area of my brain, it did nothing to improve my mood, or sense of mental clarity and well being. The key, in my case, is to keep a steady supply of carbs in my system, so my body has enough resources to make the level of serotonin I need to stay happy and focused. There are a few ways to do this. One, by eating some dense, healthy carbs—like oatmeal, or multi-grain toast with no sugar added preserves, or even bananas, grapes, apples, or oranges. (But you have to be careful about eating too much fruit if you have problems with insulin resistance.)
Another way to boost your serotonin levels is by exercising moderately. Too much exercise, and you deplete your body’s stores of carbs, therefore defeating the whole purpose. So a nice, moderate, 2-mile walk really helps. Maybe a some kind of dance (Zumba is great for this) or Pilates class. But if you don’t have time for that, even 10-20 minutes of walking or light aerobic exercise will help—just enough to get your heart rate up and break a light sweat.
A third alternative is to take some 5-HTP. I have two kinds here…one with 37 grams per capsule, and one with 100 grams per capsule. That way I can take whatever I need, based on whether I feel like I need a big boost in mood and focus or a small one. However, it is not recommended that you take 5-HTP if you are already taking any MAOI drugs or SSRI anti-depressants. The main reason being that they accomplish the same purpose so you could easily overdose by taking both. For more information on Serotonin Syndrome, go here.
An alternative to 5-HTP is to take a SSRI-type antidepressant—but only while you are feeling symptomatic. There’s no need to take any kind of drug every single day, day in and day out, for something that troubles you only part of the month. SSRIs have been proven to help with symptoms of PMDD in 60% of the women who take them. You won’t know if you’re one of the 60% unless you try. But what they don’t tell you is that for PMDD, you only need to take them when you are feeling symptomatic. It’s just easier to prescribe one for you to take all the time, and when it starts to fail, up the dosage (and all the unpleasant side effects). It’s like we can’t be trusted to know when we need a boost and when we don’t.
But while an anti-depressant takes a few weeks to kick in for those who are truly depressed, if you have PMDD, a SSRI can somehow affect the part of your brain that boosts your serotonin level within hours. So yes, I have a 10 mg prescription handy for those days when nothing else seems to work. But those days are few and far between, Thank God (in six months I’ve taken them three times, for 2-3 days each time), and I much prefer to use the natural methods of treatment available.
Other options are to increase your intake of Vitamin D, or to simply get more sleep. I realize that this last one is the least simple of the options available, but sometimes nothing less will do. For it's when we sleep that our body has a chance to re-set itself, and put everything back into balance if it can.
I did mention that while on the cleansing fast, I had no symptoms of PMDD. My guess is this was due to the maple syrup component of the fast, which kept a slow, steady supply of carbs circulating through my body and brain all day long. One serving of maple syrup contains 53 grams of sugar, 10 more grams than a can of regular soda. But all sugars are not alike. Sodas not only don’t add anything to your body but calories, they actually rob your of vitality and nutrition, and leave you dehydrated, to boot.
But since I was using organic Grade B maple syrup, I was getting all of the nutritional benefits (Grade B organic maple syrup is filled with all sorts of vitamins and minerals), without any negative side effects. However, at one point I was running out of Grade B syrup, and since the Whole Foods store was on the other side of town, I went to the grocery store instead to find a replacement to get me through the weekend.
No dice. All I could find was 100% pure Grade A maple syrup (not organic). One serving of that, and I had an immediate headache and was sick to my stomach. I went to the internet to find out why, and learned that non-organic Grade A maple syrup is sometimes processed with formaldehyde.
My body was letting me know I was not giving it something that was good and healthy. Back to the Whole Foods store I went, and the problem immediately went away.
So now I sweeten my tea with a little Grade B organic syrup, and it does wonders to keep the healthy carbs flowing.
Because every time one of these so-called “miracle cures” fails to take away our PMDD, we tend to blame ourselves, and not the product we just spent another $20, $50, or $100 on. The problem must be with us, right?---not the stuff in the pretty package with all the glowing testimonials of how it worked for other women.
Wrong. The only problem here is you fell prey to hope.
That said, the only thing I know for sure is a woman with PMDD needs to pay careful attention to what she eats and drinks, and needs to listen to the signals her body sends her about whatever she is putting into her body, be it food, drink, supplements, creams, hormones, or medication of any sort. It’s only through this total body awareness that we’ll be able to get a handle on our PMDD.
Our bodies are amazing, and communicate with us constantly. Think aches, pains, tingles, queasiness, sleepiness, nervousness, whatever. Unfortunately, we’ve been conditioned to ignore these distress signals from bodies, and therefore our health and well-being, as long as we are able to get done all the things we need to do. It’s this ignoring of our bodies that leaves us wide open to using and abusing them in ways that invariably come back to haunt us, via cravings and weight gain, irritability and mood swings, and susceptibility to illnesses of all sorts, both physical and mental.
So the number one thing you need to do is take the time to get to know your body, what nourishes and sustains it, and what sends it, and therefore you and your life, out of kilter.
Last week I thought it was the cottage cheese bringing me down. I’ve since figured out that it was--and it wasn’t. It wasn’t bringing me down in the way I thought it was. As most women with PMDD, I need a certain level of carbs to be functional. Carbs are the precursor to making serotonin, which is a hormone a woman with PMDD lacks during certain times of the month.
There aren’t a lot of carbs in cottage cheese :). So after coming off the fast, which was a cleansing fast, and not one I would recommend for everybody (which is why I’m not openly promoting it here), I was (and still am) determined to watch my calories. Not count them—never again will I count calories—but I am determined in general to stick to a reasonable level of healthy fuel for my body intake.
Full fat cottage cheese is 30% fat—that’s what makes it so tasty. But by eating the cottage cheese, I was putting something in my body that wasn’t going to help improve my mood. What I should have been eating was something that would provide some healthy carbs to fuel my serotonin production.
In short, I substituted fat for carbs. And while it satisfied my hunger and the pleasure/reward area of my brain, it did nothing to improve my mood, or sense of mental clarity and well being. The key, in my case, is to keep a steady supply of carbs in my system, so my body has enough resources to make the level of serotonin I need to stay happy and focused. There are a few ways to do this. One, by eating some dense, healthy carbs—like oatmeal, or multi-grain toast with no sugar added preserves, or even bananas, grapes, apples, or oranges. (But you have to be careful about eating too much fruit if you have problems with insulin resistance.)
Another way to boost your serotonin levels is by exercising moderately. Too much exercise, and you deplete your body’s stores of carbs, therefore defeating the whole purpose. So a nice, moderate, 2-mile walk really helps. Maybe a some kind of dance (Zumba is great for this) or Pilates class. But if you don’t have time for that, even 10-20 minutes of walking or light aerobic exercise will help—just enough to get your heart rate up and break a light sweat.
A third alternative is to take some 5-HTP. I have two kinds here…one with 37 grams per capsule, and one with 100 grams per capsule. That way I can take whatever I need, based on whether I feel like I need a big boost in mood and focus or a small one. However, it is not recommended that you take 5-HTP if you are already taking any MAOI drugs or SSRI anti-depressants. The main reason being that they accomplish the same purpose so you could easily overdose by taking both. For more information on Serotonin Syndrome, go here.
An alternative to 5-HTP is to take a SSRI-type antidepressant—but only while you are feeling symptomatic. There’s no need to take any kind of drug every single day, day in and day out, for something that troubles you only part of the month. SSRIs have been proven to help with symptoms of PMDD in 60% of the women who take them. You won’t know if you’re one of the 60% unless you try. But what they don’t tell you is that for PMDD, you only need to take them when you are feeling symptomatic. It’s just easier to prescribe one for you to take all the time, and when it starts to fail, up the dosage (and all the unpleasant side effects). It’s like we can’t be trusted to know when we need a boost and when we don’t.
But while an anti-depressant takes a few weeks to kick in for those who are truly depressed, if you have PMDD, a SSRI can somehow affect the part of your brain that boosts your serotonin level within hours. So yes, I have a 10 mg prescription handy for those days when nothing else seems to work. But those days are few and far between, Thank God (in six months I’ve taken them three times, for 2-3 days each time), and I much prefer to use the natural methods of treatment available.
Other options are to increase your intake of Vitamin D, or to simply get more sleep. I realize that this last one is the least simple of the options available, but sometimes nothing less will do. For it's when we sleep that our body has a chance to re-set itself, and put everything back into balance if it can.
I did mention that while on the cleansing fast, I had no symptoms of PMDD. My guess is this was due to the maple syrup component of the fast, which kept a slow, steady supply of carbs circulating through my body and brain all day long. One serving of maple syrup contains 53 grams of sugar, 10 more grams than a can of regular soda. But all sugars are not alike. Sodas not only don’t add anything to your body but calories, they actually rob your of vitality and nutrition, and leave you dehydrated, to boot.
But since I was using organic Grade B maple syrup, I was getting all of the nutritional benefits (Grade B organic maple syrup is filled with all sorts of vitamins and minerals), without any negative side effects. However, at one point I was running out of Grade B syrup, and since the Whole Foods store was on the other side of town, I went to the grocery store instead to find a replacement to get me through the weekend.
No dice. All I could find was 100% pure Grade A maple syrup (not organic). One serving of that, and I had an immediate headache and was sick to my stomach. I went to the internet to find out why, and learned that non-organic Grade A maple syrup is sometimes processed with formaldehyde.
My body was letting me know I was not giving it something that was good and healthy. Back to the Whole Foods store I went, and the problem immediately went away.
So now I sweeten my tea with a little Grade B organic syrup, and it does wonders to keep the healthy carbs flowing.
Labels:
5-HTP,
anti-depressants,
carbs,
fat,
healthy eating,
hope,
maple syrup,
organic,
PMDD,
rest,
serotonin,
serotonin syndrome,
SSRIs,
Vitamin D
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