PMDD and Suicide in the Luteal Phase Needs More Research: You can help!

Below is a request for help from a fellow PMDD Advocate.  Please contact her if you can help.  Together we can save lives.  And please go here to see the documents she has found so far.

Hey all

I need help.

Tonight I piqued the interest of my psychiatrist when I quoted a post from another PMDD group, "23 completed female suicide autopsies were performed - 22 of those were in the LUTEAL PHASE of their cycle." His jaw dropped. 

Last night I did 20 mins of research into the following theory that has been in my head for the last 12 months. 

Here it goes:

The true number of completed suicides resulting from PMDD cannot be known until all coroner reports are researched to see where the individual was at during her menstral cycle. Right now, even if 100% were in the luteal phase or menstruating phase of their cycle, it is highly likely those individuals would have a previous mental health diagnosis of another kind. For example, borderline personality disorder or bipolar, given PMDD mimics the symptoms of these two illnesses. Therefore, the completed suicides would then be attributed to either of those illnesses and not PMDD. 

IF PMDD is the culprit and merely mimicking BPD or BP, until further research is done and looked at, PMDD suicide rates will not be truly known. The accuracy of actual lives taken by PMDD cannot be measured. 

Therefore, it is imperative that further research into historical data on completed suicides and the menstral cycle stage the individal was at during the time of death is done - the true cost of lives due to PMDD suicides will not be known and neither will the severity of PMDD and it's potential to kill be taken seriously (thus SAVING lives). This is intricately connected to the amount of knowledge and extensive research that has been completed on BPD/BP and the lack of such for PMDD. 

If menstral cycles are indeed playing a part in the timing of completed (or attempted) suicides, it is currently the ghost in the machine.

Until this is ruled out, or confirmed, the true cost of life via PMDD deaths will not be known and neither will PMDD be taken as seriously as these other well known illnesses that it mimics. 

Could it also be that these illnesses are so prevalent in women to men (75:25) because of the mimicking and this unreasonable ratio of women to men is because PMDD is being counted as BPD or BP? If studies were completed and found menstral cycles to be a factor in completed suicides, could this be the turning point in diagnosing and treating PMDD in a more efficient and successful manner? 

Could understanding if menstral phases play a large part in completed suicides completely change the way in which the entire mental health system treats women? 

If the answer is yes, we are talking absolutely ground-breaking earth-shattering information that would change general practice, gynecology and psychiatry. It would blow everything out of the water. All of it. The whole medical industry would be brought to their knees... because right now, it is dismissing it as merely bad PMS when in fact, it is possibly one of the largest contributing factors to SUICIDES in the female population. 

So while my Doctor listened to me ramble about this, at the end of the spiel he told me that he thinks I'm on to something. I have spent an hour on Google and I am finding research mostly in Asia and India into this, but some say there is no evidence to show menstral cycles play a part in suicide while others have found 90% of 200 women were either menstruating or in the luteal phase when they died! 

If I can find studies for him - good/bad/ugly/useless, he is going to present it to one of the most prestigious universities in Australia as a PhD Thesis option for students. 

He flat out agrees that something is not right here. 

So.

I'm asking if everyone can help me out and comment with links they find into anything about this (please include the citation and page number). I can't do this alone and I really need some help this time. 

I feel this may be a big opportunity. I could be wrong, but ANY research into PMDD and ANYTHING that could save another life from being stolen by this illness, is worth our time. That's why we are all here. 

Australia is starting to light up and the ball has started to roll. This is another opportunity to possibly change something most of us think we won't live to see happen. 

Maybe, we will. 

If you can help me, please. I really need help with this one. 

Brie

(The Faces of PMDD) 

PMDD, A Conversation with Someone Who KNOWS

Trust the process that got you here to get you through.

For today's post, I have taken a rather lengthy reader comment from one of my previous posts and re-formatted my reply to resemble a question and answer session, because, as you will see, the original comment touched on several  questions/ideas many of us have wondered about over time. 

By answering the reader here, I can reach more people.  So here goes:

Hello, Liana, 

I can't thank you enough for having the courage to put this blog out there and then be honest and specific about your symptoms and coping mechanisms as it relates to them. You wrote "No egg, no sadness. Woo hoo! Party time!" which just explained to me why some months feel suicidal and some months LIFE IS WONDERFUL!

Hard not to think one is crazy when all of this bullshit is happening.

Hello, T!  Welcome to my blog, and thank you for taking the time to write, especially in such detail.  I appreciate your affirmation and support.  And yes, the "no released egg, no symptoms" aspect of PMDD tends to throw just about everybody off and make countless women doubt their sanity.  Especially in our later years, as we begin to release fewer and fewer eggs.

It would almost make it bearable if there was a higher purpose to it, a reason why.

I've thought that same thing many times.  One day I decided the higher purpose to my PMDD is to write about it.  I spent many years thinking I was crazy, and then, finally, it hit me that "Surely there must be others out there like me, who think they are crazy.  I need to let them know (through writing about my PMDD experiences and research) that they are not."

So my blog was born during a five month period when my book editing business was slow.  I had three website pages completed before I realized the website was too static, and I needed to do a blog.  20 blog posts later my business picked up again and it's been a struggle to find time for my PMDD research and writing ever since. 

For a few years, I let my research slide.  No time.  Then, when I was ready to start up again, I had to re-do all of my research, in case new information had surfaced while I was busy doing other things.

And it had.  In the past two years, the news about PMDD has increased exponentially.  I get a Google alert every other day about someone writing something about PMDD.  So I go there to check it out.  Because, as many of us have learned the hard way, you can't trust just anything you read on the internet.  There are a LOT of supposed health sites that have jumped on the PMDD bandwagon, just to pull in readers.  Sites that I can now pick out when (because I've been researching PMDD for over a decade) they don't understand the first thing about PMDD.  Old information recycled as new, some information slanted to achieve a certain goal or just plain false, but enough of the article close enough to known facts to confuse someone new to the subject....

Anyway, I decided my mission/higher purpose would be to sort out the fact from fiction, and publish my findings here and elsewhere.

I haven't gotten to the elsewhere part yet, due to family and work obligations, and then, in 2013, there was my surprise brain surgery. 

But back to your comments:  I don't see a lot of people mentioning ANXIETY! as a symptom but it sure is one of mine, a surge of cortisol and other hormones so big it triggers obsessive violent thoughts and then it all subsides once period time gets here.

Anxiety is a huge problem for a lot of people.  I'm not sure if I'm one of them, mostly because I manage my environment around my PMDD,  so I don't put myself in situations that feed my anxiety.  But my anxieties are different from those of others, because there are a LOT of things I think nothing of, that terrify others.  And some things that terrify me, that don't bother others at all.

Educate yourself, learn to love yourself in spite of all the shit your head comes up with; there is some putting up with [this shit] that goes along with [PMDD].

I couldn't agree more, and that is what my blog is about.  I've sifted through probably 90% of the current information on the internet and in books relevant to PMDD and put the best of it on my blog.  If not in the posts, then on the sidebars, where there are links to all sorts of good resources.

For the men, if you love the woman, get educated about this as much as you can, I strongly recommend reading "Female Brain Gone Insane" by Mia Lundin.

I agree completely, and have a link to that same book in the sidebar of my blog.  Another excellent read is The Female Brain, by Dr. Louann Brizendine.

In it [Ms. Lundin] sheds tremendous light on this subject and offers great natural suggestions for relief,  but the only way out [of PMDD] is [to go] through it. [That] doesn't mean you guys take any abuse, but for the love of everything that is holy do not get confrontational—rather go for a walk or something.

Again, I agree 100% and have written three blog posts specifically for the partners of women with PMDD. 

For the ladies thinking hysterectomy as an end to this, PLEASE DON'T DO IT.  It is the easy way out and when the storm-tsunami-holocaust of this mess passes you will need those eggs!  Hysterectomy is the first thing OBGYN offers because it is a money maker.

I agree in that I believe most hysterectomies to lessen the horror of PMDD are unnecessary, and find it very saddening that there are so many women willing to die early (because hysterectomies do shorten your life span), risk their lives with major surgery, and take the very real chance that the operation won't help your PMDD symptoms at all if they don't take out your ovaries as well.  Also, when you get a hysterectomy, you go on hormone replacement therapy afterward, which just messes with your hormones all over again.  I would LOVE to hear from women who have had a hysterectomy for PMDD (not any other reason) and found it to be worth the risk, cost, lost time, health complications, and shortened life span in the end. 

I know your PMDD symptoms make you feel desperate, but I do not believe a hysterectomy is the answer.  Neither does Winnifed B. Cutler, PhD, and her reasons why are outlined in her book, Hormones and Your Health, also pictured in the sidebar of this blog. 

Please, please, ladies, do your research before you make this life altering decision.  Don't let emotion guide you, but rather the facts.

Of course all I have said is from personal experience and is easier said than done. So  please, please, please, take what you like and leave the rest.

To that I add, if you have already had a hysterectomy for your PMDD, just start where you are with improving your health and living the best and fullest life you can for the rest of your days.  Good nutrition, rest, exercise, and lowering stress are a recipe for better health for everyone, not just those of us with PMDD or hormonal mood disorders.

Pray a lot! Talk it out, DO NOT ISOLATE. This monster wants you in a corner and it wants you dead or to make you hurt someone else and usually that someone else is a loved one, although strangers can get a backlash too.

She nails it, don't you think?  PMDD is a monster determined to bend you to its will, and do as much damage as it can to your world along the way. 

I take megadoses of vitamin C, to bowel tolerance and after a few months, something inside is building back up, [and my] energy is slowly starting to come back, [but] JUST FOR TODAY.

One day at a time.  It's all any of us can do.  But vitamin C is a great place to start. 

I am 48 now. Something new is I get my period twice a month for the last two months and I feel my ovaries churning when an egg is released. I also feel hard in the lower belly before [my] period starts (something new).

I, too, get my period more often now.  Every three weeks instead of four. And I can feel when I ovulate as well.

In addition I want to shed some light from another blog I read, women who go through this, usually have had some early trauma in their lives (even or especially if they don't consciously remember) and then, spiritually speaking, the pain (stuck energy) is trying to work itself out of your body through the horrors of PMDD (just something to think about).

Don't sell yourself short, T.  I believe this can be the case as well.  And there have been scientific studies that prove a correlation between a traumatic childhood, childhood trauma in general, and sexual abuse and PMDD.  I plan to write more about it one day.  But for now I will say that for me personally, my PMDD and then period at the end of the cycle is like a huge purging of all that has distressed me in life and not yet been dealt with.  I used to let it take control.  No more.  Now I basically make note of what comes up during that time and deal with it when I'm feeling strong enough to handle it like a responsible adult. 

As for you Liana, you are the first person [to] have actually made feel and believe to the core of my being that this is not forever, that in fact "this too shall pass" and that I am not bad or crazy or being punished by the gods for all of my sins of being an imperfect human.

You are correct.  PMDD does not last forever.  It ends with menopause.  (It does, however, get worse during perimenopause if left untreated.)

You are not bad.

You are not crazy.

And you are not being punished for any sins.

I can't thank you enough and these posts in and of themselves are very cathartic. This is such an amazing twisted, enlightening, terrifying process, that I even wrote poetry a few years back and I never wrote a poem in my life...it is as if the garbage [we] accumulate over a lifetime is trying to get out of you and your true beautiful Self is trying to shine through.

Every woman's experience is different, but yes, writing or journaling about your PMDD can be extremely cathartic, and like I said above, I have long felt that my PMDD brings to the surface many things I tend overlook/avoid/suppress during my "good" times... either out of fear, denial, or the desire to avoid a confrontation.  I have read so many Facebook posts where women describe having a meltdown and then take the blame for the entire incident and don't even realize or acknowledge that the other person was yes, indeed, being a jerk.  (And that anyone in that same situation would have a right to be upset.)  It's always the PMDD that takes 100% of the blame, and not the 50% actions of the other party. 

Ladies, it takes two to make a relationship and it takes two to break one.  It's that simple.

So stop blaming your PMDD for every confrontation/mishap that happens in your life.  Other people do mean and stupid things too...what is their explanation?

Because PMDD is an explanation, not an excuse.  If you take nothing more away from this blog post than that, you will be doing something positive for yourself in 2015.

And now, a fitting farewell from our special guest interviewer, which I think sums up what many of us are feeling and experiencing.

Because [of] ALL OF YOU, I feel less alone, less insane and more hopeful. Something that comes HARD to me, but that I am working on is: SURRENDER, ACCEPTANCE AND TRUST.

As are we all; me, as well.  At the moment, I am working on exactly those three things.  Starting January 1, I've taken a 6-month hiatus from my income-generating work to focus on my PMDD blog and books, and it's going to take a lot of surrender, acceptance, and trust to see this whole thing through.

But letters like T's have convinced me it's the right thing to do.

That said, I join T. in wishing you all love and light and tons of resilience, faith, and strength in the coming year.  Happy 2015, ladies, and may it be the year YOUR beautiful Self shines through!
Blessings,

Liana

Dealing With PMDD - Advice for Men

I’ve spent quite a bit of time searching the internet for Resources and Advice for men dealing with a woman who suffers from PMDD. Unfortunately, most articles lump PMS and PMDD together, which does a great disservice to women with PMDD. In the comment sections of these articles both men and women express anger and resentment toward the women who experience true PMDD: the men claiming the articles give women a license to behave badly two weeks out of the month, and the women claiming the women with extreme mood swings give all women a bad name.

So, to clear a few things up…

20% of women suffer no pre-menstrual symptoms at all
80% of women suffer from some combination of pre-menstrual symptoms
20-40% experience moderate discomfort pre-menstrually
Up to 10% of women suffer from PMDD

This post is written for the men who have partners in the last category.

But before we get started, a quick primer on the differences between PMS and PMDD.

PMS deals primarily with physical symptoms. Bloating, aching, cramping, tenderness, fatigue, headaches, food cravings, and mild mood swings are the most well-known of the more than 150 symptoms possible. A little irritability, tension, sadness, weepiness, or any combination thereof is par for the course.

The major component of PMDD is mood swings in the extreme. PMDD actually affects your brain’s capability to regulate itself, and therefore affects just about every other hormone in your body. That’s not to say a woman can’t have the bloating, aching, cramping, fatigue, cravings, and other physical symptoms. If she does, it may well be that she suffers from both PMDD and PMS, and once she gets her PMDD under control, all she’ll be left with is some PMS.

Frankly, I think most women with PMDD would be happy to simply suffer some form of PMS. Because PMS is to PMDD what a headache is to a migraine. There is a distinct difference, and that difference is biological—not mental. The biology of PMS and PMDD share many similarities, but at some point they split into completely different paths. An explanation of that is beyond the scope of this post, but I’ll be happy to write about it some other time.

For now, it’s enough to know that PMS and PMDD are two completely different things.

That’s not to say your relationship won’t benefit from the advice in this post if your partner simply has PMS. But we’re not talking about PMS here today, we’re talking full-blown PMDD.

1. Both you and your partner should mark the time on a calendar when you expect her to be pre-menstrual. This can be hard if her cycle is not regular, but do the best you can to identify patterns. An explanation of my pattern is here, and can give you an idea of what symptoms to look for.

If your partner is in denial, and claims there’s nothing wrong with her—mark your own calendar separately. In many cases, the man can tell before the woman that she’s entering into her pre-menstrual phase, because he’s watching from the outside, while she’s busy trying to cope—either consciously or sub-consciously--with the unwanted changes going on in her brain and body.

Please note: There are women who are in complete denial that anything different is happening to them, and then there are women who know what’s happening, but “really don’t want to deal with this right now” because they are too busy to, and so they pretend nothing is happening, and they really aren’t feeling any differently, until it’s too late to do anything about it, and the episode erupts full force.

Determine which type of woman you are living with, and keep track accordingly. Apparently there are several applications available on the iPhone and Android phones to help you track her cycle, but an old-fashioned calendar will do just as well.

2. If she’s indicated that this is what she would prefer, try to stay clear of her until the episode passes. This has nothing to do with you, or her love for you. It’s simply due to her heightened sensitivity to any combination of the five senses. She literally can’t handle any more sensory input—be it bright lights, loud noises, touch of any kind, strong smells, or even certain foods. If a PMDD woman has allergies of any kind, they can be exacerbated pre-menstrually. If she has any another condition, such as arthritis, diabetes, or fibromyalgia, they can be exacerbated as well.

Even if she’s otherwise healthy, during an episode of PMDD a woman is literally is a walking bundle of nerves. Unfortunately for both of you, this heightened sensitivity and discomfort can be so distracting that it causes her an inability to focus on things like questions, requests, conversations, or simple instructions. (Now you know why she forgot to pick up your suit at the cleaners.)

Take the first one, for example: You have a question that requires more than minimal thought and consideration.
Examples would be:
Major purchases—car, appliances, maybe that boat/motorcycle/sportscar you’ve always wanted (not a good time to bring it up)
Health decisions
Financial decisions
Employment decisions
Decisions involving having or raising children
Vacation plans
Any change of routine or structure in your life

Why? Because during a PMDD episode a woman’s brain is not functioning properly. This has nothing to do with how smart or intelligent she is. This is her brain chemistry being disrupted due to the hormonal shifts taking place in her body. During a PMDD episode it can take all of her concentration simply to focus on the basics of getting through each day. If you come at her with anything resembling a major decision, it could overload her brain and cause a meltdown.

So if she asks for space during that time, please give it to her.

3. Be patient. Dealing with anybody on a short fuse can be challenging. If she snaps at you, or does something that irritates you, don't lose your temper and fight back. It won't do any good, and in most cases will only make things worse. Just (discreetly) take a deep breath, maybe say a prayer, and ignore whatever she just did that bothered you. Remember that she's not normally like this and she’ll be herself again soon.

4. Do not enable immature behavior. I’ve said all along, PMDD is an explanation, not an excuse. Being emotional does not excuse inappropriate behavior, any more than being drunk excuses offensive behavior. If she’s being immature, yelling, shouting, stomping, snapping, cursing, slamming or throwing things, don’t respond with your own immature behavior. She at least has an explanation for it—a biological explanation. What’s your excuse?

Stay calm and leave the room if you have to, until she settles down. Let her know you love her and you’ll be nearby, but you can’t have a conversation with her when she’s being irrational. Believe me, she knows she’s being irrational. But without conscious effort at awareness, she can’t stop herself any more than she could stop an allergic reaction. If you calmly point out that she’s being immature or irrational and say you’ll be happy to continue this conversation another time, things will settle down a lot more quickly than if you respond with your own emotional outburst.

5. Listen to her, even if she’s not making any sense. Try to figure out what the REAL problem is. If she’s complaining about something that’s never bothered her before, or doesn’t usually bother her, most likely what she’s saying is “I feel miserable, and there’s nothing I can do about it, so I’m looking for something else to change and hoping that will make me feel better.” This is a time of true desperation for her. She’s looking for anything, rational or irrational, that will make her feel better. This is a good time to suggest she take some time out for herself, maybe a hot bath, or a cup of tea and a good book, or whatever soothes her soul. Let her know you support her need to have a little time to pamper herself in whatever way makes her the happiest.

But beware of sending her out on a shopping spree. Retail therapy will only make things worse when the mood has passed and the bills come in.

6. Don't take it personally. During an episode of PMDD, you can count on her emotions getting the best of her, and she'll probably question your relationship. She might question you. Might question her whole life and everything she believes or stands for. This is normal and natural for a woman during an episode of PMDD. As mentioned in Number 5 above, she's feeling helpless, and sometimes when people feel helpless they look for other things they can control, and that might mean bringing up topics or suggesting changes that trigger your emotions. Your best defense against this is to stay level-headed and calmly say, "Ok, I understand." What you really understand is that you're still the same person she loved before her PMDD episode kicked in, and her change in perception of you and her life overall is the PMDD talking, not her. For more information on this, see my post It’s Not Personal – It’s Just My PMDD.

7. Be compassionate. Think about a time when stress or physical changes made you hard to get along with. Have you ever been sleep-deprived? Maybe you had an accident or were the hospital, and the chronic pain made you want to lash out at everybody. Put yourself in her shoes. Not only is she experiencing uncomfortable physical symptoms, but her hormones also ebbing and flowing, making it almost impossible for her to know how she feels or what she wants. Think of the effect testosterone has had on you, like when you get sexually aroused, or on any occasion when you felt aggression or rage. You remember how you felt caught up in the emotion, how it made you want to say and do things you ordinarily wouldn’t say or do. That’s what’s happening to her.

8. Be forgiving and reassuring. Her insecurities will definitely come up during an episode of PMDD, and with her heightened sensitivity, every negative thought she has will be magnified ten times over. If she doesn’t consciously stop the negative thoughts, they will flow through her mind in an endless loop. If you can get her to talk about them, fine. Some women won’t want to, because they know the thoughts are irrational, even while they are having them, they just don’t know how to stop them. Nobody wants to share irrational thoughts, and then remember they did so when the episode is over—even if the only one remembering them is her.

If she feels unloved and insecure, she’ll probably act out, which will make you not want to be around her, which will "confirm" her negative thoughts. Most women feel insecure about their bodies to start with, maybe even their lovemaking, child-rearing, housekeeping, or professional skills, and if they’re in any way insecure about your feelings for them, this is when that insecurity will come out. So try to give her a few extra compliments (and don’t be offended if she doesn’t believe you, or snaps at you for it), and—if she’ll let you (remember those heightened sensory sensitivities)--be more affectionate. If she won’t let you near her, don’t make her feel badly by taking it personally. Guilt is the last thing she needs when she’s feeling unlovable. Tell her you understand and you’ll be around if she changes her mind. That could well be all it takes to melt her defenses.

More on this next week, as that’s enough for now. For more information, I invite you to scroll through my most popular posts, as indicated in the sidebar.

Take care, and good luck!