Hello and Welcome!!

~Seek first to understand, then be understood~
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If you're looking for information on a particular topic, type that word in the search box below. If I have written about that subject, a list of posts will appear. If no posts come up, I haven't written about it...yet. Emails, and questions in the comments section for possible posts, are welcome.
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I have a "friend" who shows up once a month. She turns my world upside down, over and over again.
I am a good person, caring and sweet, but when she comes to visit, I could rip off your head.
She takes no prisoners, foul words she does spout, I try to keep the words in, she lets them come out.
People don't understand me, or what this is about, to have this creature inside my head.
I despise who I am, half of the time, I feel sorry for my daughter, family and friends.
There's no way to describe it, for those who don't know, it's a living nightmare, she really needs to go.
~Neysia Manor, Rest in Peace
Showing posts with label awareness. Show all posts
Showing posts with label awareness. Show all posts

Friday, March 29, 2019

Shine a Light on PMDD - April is PMDD Awareness Month

BOSTON, MA, March 29, 2019 -- A global awareness campaign will kick off this April to help “Shine a Light on PMDD” on a little known, debilitating and life-threatening condition that takes an average of 12 years to be correctly diagnosed. 
Premenstrual Dysphoric Disorder (PMDD) is a cyclical, hormone-based mood disorder which impacts approximately 1 in 20 women and individuals assigned female at birth (AFAB) of reproductive age - a staggering 60 million worldwide. With symptoms including severe depression, overwhelm, and anxiety appearing in the two weeks before menses, PMDD takes a toll on sufferers’ ability to work and maintain relationships with partners and family. In the 2018 Global Survey of Premenstrual Disorders, out of 1,425 patients with prospectively-confirmed PMDD: 
● 16.8% reported having lost a job due to PMDD 
● 56.7% reported having lost an intimate partner relationship due to PMDD 
● 98% and 97% feel PMDD puts a significant strain on their intimate partner relationship and family relationships, respectively 
● 42.7% reported problems with parenting due to PMDD, with 10.5% feeling completely unable to parent during PMDD 
The relentless emotional and (for some) physical pain also drastically increases the risk of suicidal behaviors. In the same survey, 30% of patients with PMDD reported that they had attempted suicide to escape their symptoms. Sadly, this number does not include those with PMDD who have died by suicide, which suggests that 30% is a low estimate for the rate of suicidal behaviors in PMDD. Appropriate identification and treatment of PMDD are therefore important not only for reducing suffering but also for saving lives. 
The same survey also showed it takes an average of twelve years and six healthcare providers to receive an accurate diagnosis of PMDD. After years of suffering, individuals with PMDD describe learning about the disorder as a ‘lightbulb moment’. 
“PMDD has been invisible for far too long,” according to Amanda LaFleur, Co-Founder & Executive Director, International Association for Premenstrual Disorders (IAPMD), the global leader of PMDD awareness and education. “It’s underdiagnosed, misdiagnosed and, at worst, the lack of understanding leads to harmful ridicule and shaming of suffers. During PMDD Awareness Month we need to create millions of life-changing lightbulb moments across the globe so people can get the support and treatment they need!” 
This year, IAPMD is again collaborating with a coalition of organizations, including U.S.-based Me v PMDD and U.K.-based Vicious Cycle: Making PMDD Visible, to ‘Shine a Light on PMDD.’ Resources to support awareness-building are available on pmddawarenessmonth.org. Website visitors can access the PMDD Awareness Month Toolkit, find facts and figures about PMDD, create a fundraiser, and share their story.
Individuals with PMDD are encouraged to add their voice to the women's reproductive and mental health movement and receive timely updates on work underway to inspire hope and end suffering in those with premenstrual disorders. 
“This is a galvanizing movement in women’s health,” according to Sandi MacDonald, IAPMD Board President. “PMDD is a perfect storm where #MeToo and #TimesUp, meets mental health awareness, meets suicide prevention. This campaign will be that ‘eureka!’ or ‘light bulb’ moment of insight, and then sufferers and activists around the world are empowered to raise awareness of PMDD and increase access to effective treatment options.” 
While PMDD is directly connected to the menstrual cycle, it is not a hormone imbalance but rather a severe neurobiological reaction to the natural rise and fall of estrogen and progesterone. Symptoms occur the week or two before menstruation and go away a few days after bleeding begins. There is no blood or saliva test to diagnose PMDD, but these tests can rule out other underlying disorders. Diagnosis is done by tracking symptoms for at least two menstrual cycles. As noted above, women and AFAB individuals with PMDD are at an increased risk for suicidal behavior. Although PMDD has been included in the Diagnostic and Statistical Manual of Mental Disorders (DSM) and International Classification of Diseases (ICD) for years, it continues to be disregarded or misunderstood by doctors and the general public.
# # # 
Organizational Contacts: 
Amanda LaFleur
Co-Founder & Executive Director, IAPMD 
1-800-609-PMDD (7633) 

Laura Murphy
Project Co-Founder/Director, Vicious Cycle
Twitter: @viciouscyclepmd 
+44 7739 342590 

Sheila H. Buchert Co-Founder & COO, Me v PMDD, Inc. 
727-421-1489   

Sunday, August 26, 2018

PMDD and Self-Awareness - What Has Your PMDD Taught You?


Today's post is an insightful guest post that describes a journey of self-awareness.  I have long said that self-awareness (and then self-acceptance) is the key to mastering your PMDD. You know yourself better than anyone else does.  Take the time to get to know you, and learn to be your own best friend. Not a moment of that will be wasted, because doing so will bring you many steps closer to wellness.  Get to know who you are on good days and bad days.  Learn to love and accept all of you.  For me, personally, the results were life changing.  I learned to focus on my strengths, and, on days when I could not be anything resembling strong, to focus on my needs. My guest today shares the difference it has made in her life, and in the comments we both hope you will share what you have learned about yourself through your PMDD.

Ladies here is what I have learned about my PMDD, or what PMDD means for me:

1) Low tolerance for fake and false people.
2) Hate lies and lying.
3) Low tolerance for people pleasers.
4) We are super intuitive and creative (could be blocked).
5) Don’t push me or have me multi-task above the pressure I put on myself.
One thing I am grateful for is PMDD has allowed me to get to know all of me, the good, the bad, the ugly. Yes, I am super loving and passionate and I can get super irritated and angry as well especially if I feel sarcasm, slimy, abusive, inauthentic, people pleasing, shifty behavior.  Also, to the ‘super smiley-my life- is-perfect people’ - I don’t buy it one single bit.
I am glad that I know my rage, I know her well.
I know my grief, I get down on my knees and weep.
I know my sexy bad ass, she can be sensual AF.
I don’t want to be around fake people or people pleasers, I will have to mirror that bullshit.
I am not interested in small talk.
I am an extrovert but my introvert demands a lot of alone time and I love her for that!
I need to create and often. If I don’t I get cranky.
I need alone time. If I don’t I become a bitch on wheels.
BOUNDARIES are super important.
Successful relationships are ones that are mutually beneficial and fair. I have stepped away from all the ones where I was giving more.
I follow my turn on. I don’t bother if I am not turned on by a place, a person, an event, a function. If I do go I will just become cranky.
My anger and my bitch are there to protect me to remind me to get back into my body and out of my head. To tell me when I have self-abandoned me in order to please someone else or self-sabotaged me away from my dreams.
Next time I will be kinder to me and not leave me again.
No means NO and does not convert to yes the more you whine or beg. With my kids: I am your mom, I won’t always be popular. Suck it up.
On any request: I will tune into my body and ask Do I want to do that now with this person? (It's okay to say maybe another day).
I need variety. People and places. Sameness bores me.
Nature turns me ON. It’s not a luxury but a necessity!
My body needs to move! OFTEN.
Music makes me FEEL good!!!
I would love to hear what you have learned about yourself on your PMDD journey.

Sunday, March 4, 2018

The Voices of PMDD: Tough on Relationships

Anyone with experience can tell you, PMDD is tough on relationships. By the time I was 25, it was certainly getting tough on my parents and sisters, and then my first husband. This was before I knew anything about PMDD. I thought it was just PMS, but no one else with “just PMS” seemed to be going through what I was. When I would try and explain to confidants, I would be warned off blaming everything on hormones. Yet once a month, like clockwork, I would dread interacting; I could feel my personality morphing. I would cancel plans, back out of things, even leave vacations to go home! I would have massive flip-outs. Family thought I was just a moody, selfish and spoiled brat. In truth, I was being ruled by my hormones. I hated it as much as they did. It made it so hard to make plans or get excited about anything. And since it was cyclical, it seemed like “just who I was”.
I’m married for the second time now, and it seems I decide to divorce my husband pretty much every month. For nearly a year, I’ve been pulling my luggage out of storage and packing my bags only to put it all away again a week or so later when my cycle shifts again.
Maybe I had no business getting married in the first place, but we had to. We lived in separate countries, and it was the only way to be together. As much as I may have wanted to live abroad, I quickly realized I didn’t have it in me to deal with the culture shock, language shock, new roommate shock, etc. and all of the loss…of home, work, friends, family, belongings, car, etc. I had no idea the impact of moving overseas and all it entailed would have on PMDD!
Over the first two years of our relationship, the stress I endured was enough to give me PTSD and a whole new level of experience with PMDD, which by the way, I had only learned about half-way through our marriage, as I desperately looked for answers about why I was suddenly such a full-on raging lunatic every month. When I read about it, it was like a string of lights lit up in my DNA. When I started tracking my symptoms, I had all the evidence I needed. I hadn’t been imagining this plague! It was only in hindsight I was able to piece together aspects of my history that pointed toward PMDD and that those pieces of a near life-long puzzle started snapping into place.
In this marriage, our problems have centered around my PMDD. It’s an easy target. Once I knew what it was, we’d talk about it on the good days; I’d try to explain it and tell him what I needed from him. He’d listen and nod and say he understood. But for some reason, month after month, he just couldn’t deliver. Was it me? I thought so. I really, honestly blamed myself. Maybe I was asking for too much space. Maybe I was demanding too much help. Maybe I wasn’t trying hard enough!
Our marriage passed through a very difficult season of intense arguments, usually when I was in the throes of PMDD. These arguments only served to further impair my already affected mental state and merely re-traumatize me in all the ways I’d lived with growing up. It was becoming unbearably painful. Again, I blamed myself. If only I didn’t have this disorder. If only I wasn’t so needy, so messed up, so controlling, so…me. Of course, I blamed him too. If only he’d clean up, do what he promised, give me space, be…someone else!
Then one day, after an excruciating and emotionally abusive exchange between us, a genuine turning point arrived. I realized this endless struggle simply wasn’t what I wanted for my life. If I had a disorder that made relationships challenging, then I had to decide whether my marriage was a help or hindrance to my healing. I realized it had become a hindrance. Yes, I had my issues, AND my husband had his own issues, and all of it was creating a mess I couldn’t bear. We weren’t being “good for each other”. It was plain and simple reality, regardless of fault. That’s when I knew it was really over. I told him I wanted out, for real this time.
I started to focus on my own healing (or refocus, truth be told). I got into positive psychology, started taking B-12, Magnesium, and Ashwaganda for my blown-out adrenals, and hired a counselor, too. I learned to focus my mind out of hormone-created mental “shit storms”, and on the days I couldn’t, I treated myself gently. I began to process all the changes and losses of the past couple of years. I thought about what I still valued in life and took notes. I also realized that I had to at least try and communicate with my husband what I was going through, if just for my own experience. It didn’t matter if he got it or not; I just had to learn to communicate it. I began to want to understand what it was like for him too. I wanted to know all the ways I had been unskillful in our marriage so that if I ever got into another one, it would be better. It was really painful work, digging in the underbelly of so much suffering, much of it self-created. It was also difficult letting go of all the things I simply couldn’t control…like certain symptoms of PMDD or my husband’s perception, understanding, or lack thereof.
Shortly after I took on this mending, a miracle happened. We started really talking again and meeting each other in a different playing field. We both got more skillful. We accepted what we’d been resisting and/or taking personally. We found our love for each other again. We were finding our way to being “good for each other” again.
We are definitely a work-in-progress. Believe me, we still piss each other off, but now, we know when to back off and give each other space, and we know and understand a little better the ways we are either too different or too much alike to help one another. There’s more respect between us.
 So, despite hiring a divorce lawyer, we’re still married and going on three years now. Will we make it to four? It’s possible now, though it had gotten to a point where it wasn’t. There are still times of the month when my cycle shifts gears that I see through the eyes of judgment instead of love, when I just want to get the hell out of here, and when fear tries to take a hold and make me see only problems. Yeah, yeah.
Whatever, dragon!
When I try too hard to understand it all, I often don’t know what to believe. Do I believe the judgments that say he’s a total jerk, agonize over the crumbs and spills in the kitchen, and ruminate on stories about how everything is so terribly wrong? Or do I put my faith in the days when I’m overjoyed to see him, love his hugs and kisses, laugh with him, and feel grateful for his presence in my life and all the ways he blesses it? I know now that for the most part, both heaven and hell are inside me, and no matter where I go, I’ll take them with me. It all boils down to where I place my focus! 
Liana's note:  The above guest post was written by the blogger Cheekyminx. With her permission, several of her posts about PMDD are featured on this blog. In the meantime, to find out more about her work as a PMDD Advocate, please visit her Facebook page, PMDD Life Support.

Saturday, December 9, 2017

My First Memory of Having PMDD

It’s hard to pinpoint my first true memory of having PMDD. I think I struggled against my PMDD for so long, denying that I had a problem, that it manifested long before I admitted there was something wrong with me. No one else I knew went through these struggles, or if they did, they didn’t talk about it. They managed, they coped…why couldn’t I? What was wrong with me that I was fine one day, and could barely get out of bed the next? I think I blamed it on everything and anything else but me, sources outside myself, school, work, friends, family, whoever I was in a relationship with at the time--because I was young and healthy and mental-type problems only happened to other people.

The first episode I can remember which I would now attribute to PMDD was a two-week period in my freshman year of college, toward the end of the semester and year, when I simply didn’t get out of bed except to go to class. I was doing well in my classes, not having any problems to speak of, and then suddenly this period of total sadness and hopelessness and lethargy hit, and I had no motivation to do anything or go anywhere. Then just as suddenly it lifted, and for the remaining weeks of the semester I raced around like a madwoman, trying to catch up and make sure my grades didn’t suffer.  I was eighteen years old.

Now, looking back, I can see countless repetitions of this scenario, where I’m sailing along, and life is fine, and then suddenly...it isn’t. When all indications are that I should be happy beyond measure--having achieved every goal I’d set for myself to that date--but I wasn’t. I used to think there was just something inside of me that liked to make life a little more challenging. Something that liked to let me fall behind, just so I could prove that I could catch up and still come out ahead. Now I realize it was the PMDD dragging me down. Now I think about how much I could have accomplished, had I known what was happening and learned to manage my PMDD, like I eventually did.

But I don’t dwell on those thoughts, because those opportunities have come and gone, and negative thoughts will bring anybody down, not just a woman with PMDD. There’s no sense in feeding the fire. What’s come and gone has done just that…come and gone. The only moment we can do anything about is the moment we’re in right now. And right now, I know that most, if all negative thoughts I have stem from my PMDD and I’m just not going to give them any more air time. I’m still as stubborn as I was as a teenager, still as determined not to let the sadness and negativity get me down, only this time I know what I’m dealing with. Now I’m able to separate the two, my usual self and my PMDD self, and when my PMDD hits, I’m able to label my self-defeating thoughts as PMDD thoughts and just set them on a mental shelf to be dealt with later.

The beauty of this tactic? When later comes, those thoughts are no longer relevant. Mostly because they weren’t true to start with. On PMDD days now I rest and take it easy. I find something positive and uplifting to read or watch or listen to, and focus on small, sometimes mindless tasks that I know need to be done and have been saving up for just such a day. Organizing receipts or CDs or books on a shelf. Folding the laundry. Nothing heavy, nothing demanding either physically, mentally, or emotionally. For instance, sorting through old photographs probably wouldn’t be a good job for a PMDD day. The emotions they dredge up might not be positive, might make you miss someone or someplace or stir up regrets. Or they might remind you of a happier time, and instead of making you smile, might make you feel like you’ll never be happy again. That’s the PMDD brain talking, not you. And whatever it is saying is certainly not coming from God.

I bring God into this because my faith was and is a big part of my experience with PMDD. Without faith in something bigger than myself, I never would have come to have faith in myself. I can’t tell you how many times I thought there has to be a way to make this madness stop. The first book I picked up was Prayer, Faith and Healing: Cure Your Body, Heal Your Mind, and Restore Your Soul. I’d tried everything else. Maybe it was time to give prayer a chance. And so I started. With baby steps. One by one, one day at a time, learning how to listen to something positive outside myself for a change, until I learned that God was inside of me, too, and I could go within for the answers I needed. They didn’t have to come from outside sources.

The stronger I became on the inside, the more those negative external voices dimmed to background noise. Such as well-meaning friends and family with unsolicited advice, and not-so-well-meaning friends and family with selfish needs and demands.  Not to mention well-crafted advertisements pointing out all the areas in which I was lacking in my life, or organizations with agendas on how I needed to live my life, and countless books, magazines, radio and television programs telling me I could have it all, while at the same time measuring me by artificial standards no one person could ever hope to attain.

It’s hard enough navigating life with all your faculties intact. But when you’re a woman with PMDD, operating on half power or less half the time or more, life gets really challenging. So don’t beat yourself up. The world is more than happy to do that for you. Accept that you’re not perfect and you’re never going to get there, then relax and enjoy your life. When you’re feeling good, take on all you want to, and when you’re not—take time out to take care of you.

If you take nothing else from this post, take this: Don’t spend another day beating yourself up for something you have no control over. Do start listening to your body, and giving it--and yourself--the respect you deserve. If you don’t know how to do that, if you’re scratching your head at the very thought of it,  like I once was, then check out my blog, my Living with PMDD Facebook page, or my book, PMDD and Relationships, for more information on how to better manage your PMDD, as well as support, encouragement, and tips on how to be a better you…all month long.

Friday, December 8, 2017

PMDD Symptom Play by Play Number 2

The following guest post was written by the blogger Cheekyminx. With her permission, several of her posts about PMDD are being featured on this blog. To find out more about her work as a PMDD Advocate, please visit her Facebook page, PMDD Life Support.
I did promise to write another PMDD symptom play by play, and since my symptoms just kicked in today, I thought now would be as good a time as any to bare my "hormotional" soul. This isn't easy. In fact, it sucks. It's dreadfully intimate, questionably revealing, and even harder to admit. But I am committing. So here we go...
8 Days Out
So what changed in me that I knew that symptoms had kicked in anyway? Well, I felt constipated and bloated today (first time since last cycle), I started pulling my hair out (not intentionally...my fingers just go to my hair and when I pull them away, my hair follows!), and most importantly, I feel just plain flippin' irritated for no extraordinary reason about EVERYTHING. I feel somewhat hair-triggerable, if you will. So I'm starting to avoid the things that trigger me (being everything, meaning isolated myself). I have to add that this month has been an incredibly stressful one already with plenty of relationship tensions. I was already irritable, but it felt different than it does today. I wish I could explain it. There is an accompanying intolerance now that wasn't there before...an inability to censor. My diplomacy skills are fading. Many say that PMDD magnifies what is already there. If that's true, this month ought to be a "real blast".
7 Days Out
I just flipped out over my husband saying, "don't worry", when I couldn't find how to reverse an action he told me to take in some software, messing up my work view. I did warn him my symptoms were coming on.
So are men really that stupid? Don't ever effing tell me how to feel! And certainly DO NOT belittle my frustrations with your petty sentiments of projection. YOU "don't worry"! I'm frustrated. Deal with it! Ouch! Okay, last two nights...a touch of insomnia. Today, RAGE! I think I could pick up this 20-ton glass desk and hurl it out the window like it was made of cardboard! There is a jittery tension just underneath my skin accompanied by an overwhelming desire to be alone in the house...for the rest of my life. I have ghost cramps too. That's what I call cramps that arrive before my period.
6 Days Out
6 days? I don't know if I can last another six days. Today was rough. I cried this morning. I cried this afternoon. I cried tonight. I'm feeling incredibly insecure, let down by and estranged from everyone in my life, anxious, grumpy, and deeply sad. I have wished that I would simply die. Since that's unlikely, I just vegetate with Netflix until bedtime with grateful anticipation of the total unconsciousness it brings...and hope I never wake up.
5 Days Out
Didn't sleep well last night, ironically. In fact, I was ruminating in a way that only comes on with PMDD...a hateful, angry way. I swear, I don't know where this shit comes from. I seem to manufacture it in spite of my desire for peace. Each time I woke in the night, I pounded my pillow and cursed bitterly. This morning, I did my best to isolate myself. I tried to be on my best behavior too, bearing in mind today's best bore more resemblance to a caged animal than to a somewhat decent human. Despite my PMDD Tourette's, a lovely symptom where pure shit just gushes from my lips, I managed to hold-back on some of my impulses to push and stomp. With every bite of my tongue, a part of me celebrated the tiny victory (quite alone...as it was evident to no one but me) while in the next moment I was unbridled...judging, criticizing, blaming, fed up with the same old crap...emotionally abusing my husband while at the same time hearing in some vague and distant background all the kinder things I wish I was saying instead. They were too remote for access. They were a distant land. I wanted to run to my room, to be safe, to protect not only myself but him--the only measure I have at my disposal...isolation. It was too late. His deepest wounds were activated, his own mind becoming the same enemy mine had become to me. It would seem PMDD can be contagious, even without the hormones. My husband reacted and in turn became the emotional abuser, taunting me, drilling me, pressing me, driving me to tears with his own screams of how crazy I am, how uncaring, how hopeless, telling me nothing my PMDD mind hasn't already been telling me, but reinforcing it in a way that broke and battered my already damaged spirit. He threatened me...with quitting, with walking out. He's promised that so many times, and today, I wish he'd follow through. That same distant part of me was proud of him for speaking up for himself in the only way he knew how...not for how he did it, though. How he did it hurt. I must admit today, I had suicidal thoughts. I had world-destroying thoughts. And I cried and heaved, shook and crouched in a corner, desperate to be free of this storm inside of me and the external manifestations of it. Emotionally spent, I listened to a looping recording of a mantra about 20 times which calmed my suspiciously empty mind. I can't believe I'm writing this.
4 Days Out
After yesterday, I'm really emotionally exhausted and kind of blank. I've lost a day. I thought it was Thursday but it's only Wednesday. That's been happening a lot, but I don't relate it to PMDD. It's living in the middle of nowhere! There's nothing I want to do...or feel or think. Despite needing some groceries, I can't make myself go. I feel like the remnants of a bird that has burned in flames but has yet to arise once more from the ashes. I continue my deluge of mantra listening. And I eat chocolate. I know my situation is complex. I have many marks against me right now. To be honest, I probably have some form of PTSD after two years of the worst stress of my life which I admit at least half of it I took on willingly, arrogantly even, in addition to being peri-menopausal and PMDD. I also have no grounding, having moved to a foreign country where I cannot speak the language and where my support network is still fairly non-existent. I had a massage therapist when I could afford her, and now, I have a talk therapist who I will have my first session with tomorrow (Thursday. Not today, Wednesday.) It's a trade-off. There's the recent passing of my mother, too. It's a lot to cope with. Add "relationshit" to the mix, and it's tough to tease apart the symptoms of PMDD from the disaster that is my life. So everything just swirls together into a big complicated mess. Charting saves the day and preserves what little sanity I have left by revealing an intensity of symptoms at certain times of the month. I will persevere. I am resilient. I am determined, too. And in moments, I am remembering who I am.
3 Days Out
This morning, every bone hurts. It was very difficult to get myself up and moving. I would love a massage, but I don't have the funds for one. Yin yoga will have to suffice. My symptoms were less today, which historically, has happened...things can actually mellow before the actual onset of my period. Although, usually without fail, I blow out the day before. We'll soon know...
2 Days Out
Last night, I slept 12 hours!! Pretty typical right before. My dreams were very bizarre. My hair continues to fall, and I had ghost cramps again. Another thing that's started today is a weird head-to-toe itchiness; I've heard other women complain of this too, so I'm no longer surprised. When provoked earlier, I quite easily lost my cool outwardly, but overall, in my head, I feel more stable today, so I'd have to relate any emotional symptoms to other things in my life and not necessarily PMDD. Or maybe I'll start early. The cramps are a good indication I might.
1 Day Out
Surprise! Guess what's here, sparing me an extra day of misery and uncertainty? How am I feeling? The first thing I noticed was the intense ache from head to toe as I pulled myself out of bed at a fairly human time of day. I feel about 20 years older in body. Add a headache and the typical cramping in my lower gut, too. But I can handle the physical symptoms; they are kind of a joy after the week I've had. Emotionally, I feel tentative (as the rest of my life is still incredibly challenging). But I don't feel that uncontrollable sense of building blood-level tension that prompts me to catastrophize and explode (not that I couldn't given the right stimulus...but that I don't feel that "hair-trigger" thing). My mind is also quieter. When I woke this morning, from a dream about pastries and cookies, my first thought wasn't "Oh, fuck, I'm still here; shit, shit, shit!", it was more like, "I'm up." There was no punching of pillows or immediate tears. How do I explain it? It's like an equilibrium, a balancing out. A relief! So can I count on a few days of relief? Or will something fluctuate and turn me mental again? Sometimes, on day 5 or 6, I rebound into "crazy-land" for a day. Sometimes, I'm okay until I ovulate. It's difficult not knowing. It's difficult not knowing, too, whether outside circumstances will inflict traumas that bring the stormy inner waters back to the surface. I hope not. I need some peace. I need some rest. My problems are all still there. My relationship is still falling apart. I still live in the middle of nowhere in a foreign country. I'm still dealing with loss and grief and change of massive proportions and living an unrecognizable life. Somehow, somehow, there's something accessible now that feels like strength, like resilience, like patience, and even serenity. Holy crap! Did I just feel myself smile?


Tuesday, September 5, 2017

PMDD: Suddenly it All Makes Sense

Now I know why!
I know why two weeks out of every month I am waiting to feel like myself again. I know why for two weeks I suddenly don’t give a crap about anything I was excited or cared about in the weeks before. I know why I feel contempt for everyone and everything when I recently felt so in love with it all. I know why I suddenly doubt my abilities and talents. I know why I isolate myself on certain days…when I just know I’m not going to be able to accomplish the simplest of tasks without getting irritated or downright angry. I know why I am afraid to schedule anything in advance, lest whatever I have to do falls on a day when I am incapable of behaving reasonably. I know why hateful thoughts become so insistent and pervasive despite the fact that just two weeks ago, I was 100% certain I had finally transcended them all. I know why I can’t stand to be touched, when just last week, I couldn’t get or give enough hugs. I know why I suddenly feel so disconnected from my friends, doubt their friendships, and suddenly want to walk out on my husband.
In my quest to understand, I’ve been given plenty of opinions. I’ve heard some labels, and some I even tried to make fit. But in the end, I knew they didn’t. I knew I wasn’t “bipolar”. I knew I wasn’t “borderline” or “mood disordered” (even though that’s still the involuntary category in which I’m pegged). I knew I wasn’t “just imagining things” either. Nor was it the whole story that I was “just hormonal”. Something inside me had changed in the last couple of years and something was happening throughout my menstrual cycle to make me feel like two completely different people. Only recently, it had gotten much worse.
The Fighting Bell Rings
In one corner: a woman full of radiance and quick to smile. She can be so full of love inside herself to the point of bursting. She is centered and enthusiastic, bright and cheerful, optimistic and strong. She’s not perfect, of course, but she’s so okay with that. She’s on top of her thoughts and more than willing to be alive. She is excited about projects and new ventures…even if they are challenging. Anything seems possible…anything reasonable, that is. (She isn’t about to jump off a building or into traffic.) She believes in an abundant universe and that she has something to offer the world. She enjoys the company of others and lives to laugh, create, and feel gratitude. She would never dream of hurting herself or anyone else. She may have bad days, but she recovers quickly.
In the opposite corner: a bedraggled, wild-haired psycho who has to apply every ounce of her will to not lash out…though she eventually does, usually by imploding on herself or exploding at those closest to her. She is the wily animal who shudders at her own hateful attitude as she mourns the loss of her other self. She is the one who simply CAN’T control anything. She is full of shame for her inability to control herself. After all, hasn’t she learned anything? She cannot forgive or forget. Everything is the end of the world. She stomps to feel she exists, yet the very force of her enraged feelings lifts her off the ground. There is no justice, no joy, no purpose, and no comfort to give or receive. All is bullshit. She isolates to protect herself and others from this “thing” that has overtaken her, but life pokes and prods all the same.
Eckhart Tolle, author of The Power of Now, talks about the pain body in his work which comes close to matching the insane being that shows up in my mirror every month. There’s also this idea in spiritual circles about embracing and integrating the shadow-self. I wholeheartedly agree with the importance of doing that. It’s powerful stuff, but I don’t think it is the whole story for me. Always favoring the holistic over the quick fix, I’ve been exposed to a lot of different teachings in my quest for well-being. But none of them have satisfied this itch under my skin that what I was dealing with wasn’t just some egoist resistance on my part, wasn’t just some weakness in my character, lack of awareness in my being, or deep wounding from childhood . In fact, I have LOADS of awareness and more strength than a lot of people. So, something wasn’t jiving.
Something else is going on. Whatever it is, this pain body feels universal…not personal…yet it attacks in a personal way for sure. It isn’t a permanent state of being but it is one that, when I’m in it, feels like the only state of being I will ever know. Sometimes, it turns on a dime…a cruel word, a task gone wrong, a frustration or irritation that sends ever-widening ripples of tension out into my environment…but, and here’s the key, only at certain times within my cycle.
What I’ve discovered is the term PMDD or Premenstrual Dysphoric Disorder. Though I don’t agree with a lot of the psychological/medical establishment bullshit (excuse my language…but let’s call it what it is) behind it, it has come closer than anything else I’ve ever encountered to explain what’s been happening increasingly so with me since going through a period of intense and prolonged stress.
I feel like I have to start by saying that I’m not interested in excuses for bad behavior. I’m not looking for a convenient explanation for bouts of anger or anxiety or anything else. I’m not trying to protect my identity as a “got my act together--no problems here” person, nor am I holding my shadow aspects in a closet of denial. I’m not interested in using the label of PMDD to explain away or justify crazy-making, just as I’ve never been interested in the label of “depression” to explain away unexamined pain and the absolutely natural waves of ups and downs that society would rather call a disease than a sign of being human in the world in which we live. What interests me about PMDD is that elements of it actually fit and explains myself to myself.  What fascinates me is that there are other women who feel like I do…that it is a real phenomenon to be examined and explored. It is a real phenomenon to be healed.
I’ve joined a couple of online PMDD groups, and what I’m noticing is that a lot of women feel they have no choice but to treat PMDD with very toxic antidepressants and hormone-related treatments that further disturb the delicate balance of the body. Some even decide to remove a part of their bodies, having hysterectomies, and are overjoyed with the results. I know many women get absolutely ill with vomiting. Why is the newly established “disorder” which was recognized in 2013 seem to be increasingly prevalent? I have my own theories circling around my head…the poisoning of our food supply perhaps or our increasing exposure to radiation and toxins. Who knows?
For me, it is mostly a mood challenge though I also get headaches, stomach aches, sleep disturbance, and other physical manifestations. Nothing like vomiting, thankfully. I feel incredibly blessed by and grateful for the management tools I’ve found that are side-effect free and have a great deal of sympathy for those who are buying into the system of big pharma (whose sole interest is to get everyone on their drugs regardless of whether it actually helps or even does more harm than good) and a patriarchal medical system (with a track-record of locking women away for their complaints). We can be products of the system that would call us “mentally disordered” offering us only what they deem as the answer or we can access inner qualities we can cultivate to cope and turn to more natural therapies until we discover what combination works for us. I know what my choice will always be. And that means that sometimes, I choose to live with a very difficult, very challenging state of being with very little outside assistance at my disposal. So be it.
Not just regarding treatment, PMDD is a hot topic of debate. In addition to being controversial in the medical community, there is, as with all conditions, a lot of general ignorance around PMDD. As I mentioned, it’s only been acknowledged since 2013. Right away, people assume it is PMS with a different name or an excuse for why a woman suddenly gets bitchy, tired or crampy. Or they draw other ill-informed conclusions. One woman made the mistake of sharing her condition with her employer to be told they feared she posed a threat to either herself or coworkers at work. I suspect there are people in their employ at far greater risk of flying off the handle, the ones they’d least suspect. Others are told, even by well-meaning friends, that it is all in the head and are told to chill out or get over it or try some quick fix. Clearly, those who don’t experience it are not in a position to offer advice!
Here’s the thing about PMDD. We may think about bludgeoning judgmental, self-righteous ignoramuses who think they know all the answers, but we tend not to act on it. Good thing, because there are plenty of them around.
Just as I have been (unprofessionally) mislabeled before discovering what is known as PMDD, I am sure there are women ascribing their behavior to PMDD when it truly belongs in another camp altogether. Supposedly, 40% of women who seek treatment for PMDD may have either what is known as PME (premenstrual exacerbation) or even an underlying mood disorder such as bipolar. It’s complicated. Of course, the professionals will continue to debate if any of this is real or not, some kind of anti-female rhetoric or not, or whether it is a mental disorder or not. This just muddies the waters, but what’s to be done? Human beings are intricate and unknowable and this “dis-ease” is extremely complicated because there are so many variables! In the meantime, there are those of us who live the spectrum. There are those of us who know.
Speaking of the spectrum…
There is PMS, the catchall that pertains to the mild, acute fluctuations of mood, irritability, fatigue, appetite changes, and cramping that affect 30 to 80% of menstruating women. It may be uncomfortable, but it is not generally debilitating.
There is PME. This is when a condition from which a woman suffers, such as asthma or an eating disorder, is worsened during PMS. So, PMS disappears after one’s period whereas PME symptoms merely improve.
Now there is PMDD which affects 3-9% of menstruating women. (With a female population of over 3 billion on the planet, 3-9% of those with periods is no small number!) With PMDD, the symptoms associated with PMS become debilitating and can include: depression or hopelessness, anxiousness, irritability, low energy, lack of interest, sleep and focus disturbance, loss of control and feelings of overwhelm, and suicidal thoughts. These symptoms tend to intensify as a woman nears her period and finally begin to abate a few days into her period. Women with PMDD generally feel themselves again for 7 – 10 days after their menses before entering the cycle again.
I’m not crazy about another label…another diagnosis…especially one categorized as a depressive disorder which, to me, shows very little understanding of the scope of symptoms different women have. I’m not crazy about listening to “experts” tell me about myself and never have been. What I am interested in is knowing my own truth for myself, suffering less, finding ways to cope and relate, and living as fully as I can. And I want to help other women reeling with this monthly curse and feeling that they are robbed of half of their lives to do the same.
Do I believe in PMDD? Not as boxed-in psychological babble and checklists, certainly. I’ll never see a doctor for it myself. But it is a condition with which I resonate with unquestionable certainty. I’ve charted my cycles. I know when “the shift” is about to occur. I know when it is over. I know it is linked to my cycle. I know the changes I feel are described by other women who think they have PMDD, too. I know the challenges such changes bring and the impact they have on my life. I know my perspective goes out the window. I know some months are worse than others. And I totally relate to the increasing amplification of symptoms as I near my period and that feeling of complete and utter relief when suddenly the sun is shining again a day into it.
Maybe we need another word for it…one not bound up with so much baloney…one immune to the twisted machinations of men who hate women and women who hate themselves. I don’t know. Here’s what I do know: this is my experience. Maybe it won’t be mine in two years. Maybe it wasn’t mine two year ago. But it is mine now. Bravely facing that self and being open about it with others going through the same experience is crucial. There is power in numbers, and we’ll learn more by exploring this together. If nothing else, maybe the diagnosis of PMDD will simply prove to be a means for women to talk about what being alive as a women today is like for them. That itself is a relief.

Liana's note:  The above guest post was written by the blogger Cheekyminx. With her permission, several of her posts about PMDD are featured on this blog. In the meantime, to find out more about her work as a PMDD Advocate, please visit her Facebook page, PMDD Life Support. 

Sunday, July 30, 2017

CIZE Does Matter - A PMDD Exercise Challenge



For todayʼs guest post, please welcome The Healthy Hackress.  Her PMDD thread will be ongoing, and I will be happy to post updates here, but if you don't want to wait for me, please follow her journey with PMDD and exercise either on her Facebook page or blog.  She also has a lot of great ideas for—What else?—healthy hacks!  Well worth checking into, even if you donʼt have PMDD.
Recently I was diagnosed with PMDD. Here is my journey from diagnosis, to treatment and more importantly, how Cize by Shaun T gave me my life back.
According to research, PMDD affects 2-10% of women during their reproductive years. It’s common. Very common – but misdiagnosed and misunderstood. Thousands of women right now feel at a loss and don’t truly understand why they don’t feel “normal” or worse, why their life literally falls apart starting two weeks prior to their cycle. Isolation, fear and shame are all too familiar feelings of women suffering from PMDD. I am one of them. Do these symptoms seem familiar? Is it you or someone you love?
PMDD is a mood-based hormone disorder that is cyclic and reoccurring. Sounds like a death sentence, right? Imagine, every single month you know “ITʼS” coming. You’re not sure why but two weeks prior your cycle you’re all over the place. It's like ADD meets Bi-Polar for a 2 week fling, then they break up…until next month. You’re clingy. You’re crying one minute, screaming the next, then sitting quietly, unsure of WHAT just happened. Feeling a bit like Norman Bates with those “episodes.”
Seriously – that’s PMDD. If you have a significant other and they haven’t left you already (because, PMDD truly affects all relationships) – then you’re lucky. They feel it too – but they don’t understand.
You don’t need to wait for a medical professional to confirm a diagnosis of PMDD – it’s self- diagnosable. You track your symptoms and report to your doctor. This is a great tracker that you can use from The National Association for Premenstrual Dysphoric Disorder [now known as the Gia Allemand Foundation]. Basically, track how you’re feeling before, during, and after your cycle (anxiety, mood swings, irritability, sleep issues, etc). Your doctor is going to ask you to do this – so, if you go in already prepared you’re that much further ahead. This process took me 10 LONG months. Each month I tracked my symptoms so when I went to the doctor they couldn’t turn me away and just tell me, “Everything is normal.”  If you’re living with someone or have close friends/family – ask them to track for, or along with you. When you’re in “IT” – it’s very difficult to emotionally and mentally report back. Having someone point certain behaviors out can be hard – what I mean is, someone is going to tell you the RIGHT thing at the WRONG time – because, you’re not mentally/emotionally grounded. Try to remember – you NEED to hear it. Their unbiased observation is going to provide necessary data for yourself and doctor when treating YOUR PMDD.
Once I had all my data I made that initial appointment and received confirmation that Yes, “It’s PMDD.Ë® Finally, things fell into place and I could breathe a huge sigh of relief knowing I wasn’t crazy. Finally, someone was listening, and everything I had felt was real & important. I had done my research going in. I knew how PMDD was treated. I had questions on top of questions. I needed answers. After all, my children needed their mother and I needed myself. They started me on Yaz—reportedly the only over the counter birth control approved for PMDD. Yes, I know—bad reviews, lawsuits, etc.—BUT, when you’re in the Pits of Hell in the middle of a fight between Bi-Polar and ADD—you’ll try anything to destroy their toxic relationship. I tried Yaz. After my 2nd week both myself and my husband noticed a huge difference. I was less spacey – more clear in my thoughts and finally felt as if I had control. Did I still have anxiety at times? Sure, but mentally/emotionally I could WORK through it opposed to the constant feeling of drowning. Did I have irrational thoughts? Yes, but I was able to work through them. Yaz gave me some mental clarity back. Unfortunately, I developed an irregular heart rate at 145 – even when at rest. Physically, I was breaking down. After an ER visit and a couple visits to the Dr. – I came off of Yaz.
Then I tried Zoloft. *sigh* If you know me – I’m ALL natural—from giving birth naturally to treating headaches with almonds. I’m not huge on medication unless it’s NEEDED. “Well,Ë® I said to myself, “I have to try everything so I know at the end of the day – I did my best.Ë®  3 days later I caught myself staring out my window watching birds & not caring that I was sitting there staring out a window – Kathy Bates from Misery anyone? The things that once made me laugh no longer put a smile on my face. I wasn’t OK with that. I knew I wasn’t ME – bubbly, personable, caring – I wasn’t me. I was only on 25mg and that’s not even the therapeutic recommended dose of 50mg for Zoloft. I then safely decreased (with the support of my Dr.) to 12.5 and discontinued it. Wasn’t for me. That isn’t to say that someone else may not greatly benefit from SSRI’s.
Currently I’m on a different form of HRT (Hormone Replacement Therapy) – Continuous Birth Control, which would halt the dramatic changes in hormones and provide balance. I will need to report back on this as this is my newest form of treatment. Along with the birth control I’m taking a Vitamin B Complex, Daily Multi for Women – I Prefer Rainbow. Natural. Plant based. Also, I’ve added 2 TBSP of Ground Flax Seed to my oatmeal in the morning. According to research, Flax Seed can mimic the female hormone Estrogen and provide other benefits such as relief from Depression. In my search for Vitamins and Minerals that could/would provide potential relief from PMDD – I came across some great work by Dr. Mark Hyman – He’s truly fantastic. I’m a Certified PLATE by Zumba Instructor and he provided some of the training. Here is a great article he wrote with vitamins and remedies in helping to relieve PMS/PMDD.
Now, you ask “Why does Cize Matter Again?” I woke up one morning very early. I couldn’t sleep and was just DONE with doctors not knowing how to help. Done with being turned away. Done with being told “Everything is normal.Ë® I was just done. From one failed medication to another I had it and wanted/needed to take control back. Then I watched the infomercial for Cize. I asked my husband to get it for me because I was willing to try anything to get my new self and leave my old self behind. He did. I was nervous and hesitant. After all, I had tried Insanity and Shaun T delivered. He kicked my A$$ and that felt good. This time around I knew I needed something a bit more “me” – this was it. Cize gave me that. From the minute I played the first day I was hooked. Losing weight and becoming a size 5 was no longer relevant. Waking up everyday knowing I could beat my anxiety became my goal.
Each day it became easier. I felt a bit better. I still had the PMDD symptoms – but mentally, I felt stronger than ever. Shaun T will never truly understand what he helped me get back. I’m in week 4 and I feel better. I look forward to my routines with him because I know he’s right there telling me, “You got this.” I know missing a day isn’t acceptable. Each day Cize is my Zoloft, except I don't suffer from any side effects – like staring out a window for 20 minutes or losing the ability to laugh at everything that once brought a smile to my face.
Some women may need some additional SSRI as a support. Please don't take my experience as true for everyone. Don't be ashamed. Each and every woman needs to find THEIR treatment because PMDD for one is VASTLY different for another.  Listen to your body and remember – doctors aren’t always right. Be your own doctor and researcher. Keep a journal of symptoms and never, ever – stop fighting.
This thread will be ongoing. I will keep everyone posted on my 60 day Cize challenge that I intend on making a routine for the rest of my life. Each day I laugh more, feel the fight harder and see the results I’ve been looking for all along. Mental and emotional health are far more important than your physical appearance. That will come in time. Nourish your soul and show yourself everyday that you matter – release those feel-good hormones because exercise and movement is truly the first line of treatment for any disorder.
Don't be ashamed to share your story, ask questions and or seek support. If it isn’t a fight and doesn’t hurt getting it, it isn’t worth it. Fight hard. Remember, it isn’t about the scale, it’s about how you feel!
If you know someone presenting with PMDD symptoms. Reach out. Don’t push them away. Be a support. Share this blog. The biggest and most deficient need of women suffering from PMDD is support. The National Association for Premenstrual Dysphoric Disorder provides great support.
Thank you Shaun T for being there & giving me the strength to fight back.

Sunday, June 4, 2017

An Open Letter to Partners of Women with PMDD


Today I'm honored to host a guest post by Chef Jay, who has decided to help raise PMDD awareness by starting a blog for men about PMDD.  You can find his original post, and others, here. 

Dearest Partners of Women with PMDD,

First of all, let me be clear. This letter does not come with answers or solutions. This is not a "be all & end all" to the chaos of PMDD. Every situation for every woman is different. Ergo (a word not used often enough), no household is the same. After many conversations and emails with men and women around the world, I've realized a few common traits, however. There are similar feelings, circumstances, emotions, issues and experiences...this letter addresses and recognizes them. This note recognizes the real, true emotions and thoughts emanating from the souls of men (and women) coping with a partner with PMDD. This is not a happy letter to make everyone feel better...it's one that draws attention to the mindset reality of living with PMDD. This isn't about me. It's about all of us.

I know you.

You're tired. Exhausted. You feel drained of all energy - emotional, physical, spiritual. Perhaps you feel absolutely nothing at all. You're like a zombie, going through the motions every day. But you're used to it...it's who you've become. You don't like it - you wish you had more energy and lust for life - but you give yourself a daily pep talk to survive the day, praying that today might be better...and you're not even the one with PMDD.

You are constantly on edge. You never know when her hurricane will hit. Predicting how one day to the next will transpire is fruitless. Hour to hour, day to day...hell, even minute to minute, is a pointless exercise. You see her, you love her, you feel for her but you wonder, "What else can I do?" - you've already tried everything!

You've thought about divorce. You've thought about having an affair. You've questioned your life choices...and those thoughts scare the hell out of you. So why do you stay? Why do you remain committed in a relationship that causes you stress and, most likely, shaves years off your life? Perhaps it's because of the words, "...in sickness and health...'til death do us part..." or maybe you're a glutton for punishment or feel, deep down, you can fix her or save her. Possibly, you fear what she'd do if you left. If you have kids, my guess is, you're there for them, more than her.

You've probably heard from her, more times than can count, that she "needs to do (this) or (that) because it might help" - this may include taking a course, going for a run, spending a day or two at the spa, getting massages, nights out with her girlfriends, binge watching Sex & the City or Supernatural, spending a few days here and there away from you (and the kids)...but can you do the same? No. Can you just take off for a few hours and have the day just for you? Probably not. Deep down, you wonder, could she handle the kids for 3 days without me? Your/my gut says no. The time you have out of the house is, most likely, spent getting groceries and doing things that need to be done to make the house and your life a little better.

You don't get enough downtime and, when you do have the opportunity to sit back and chill, your mind's still racing. Most likely, you just want to watch something pointless or mindless, have a beer and fall asleep. The thought of watching a show that has deep thoughts, intellectual content or educational information further stresses you out because your mind can't relax...there's no shut off switch to settle your brain.

You probably don't hear "Thank you" or "I love you" nearly often enough...and, as for, physical expressions of love? Not so much. (Or, at least, not like it used to be). But when SHE wants it, you must provide! Perhaps sex - or any form of intimacy - feels like a chore...another task to complete. Or perhaps, when it finally happens - a moment together, both of you in a positive, awake state of mind - it's a relief...an opportunity to forget about the trials of tribulations of the past few days.

You say words but may not mean them...or they don't have the same feeling behind them like they used to: "I love you" - perhaps it's said so she can hear the words but, your feeling behind them is different. "It'll be okay" - knowing, deep down, it'll get better for her but not for you. Her diatribes, constant needs, argumentative statements, vitriolic, mean words...you'll remember them and hold onto them and think of them all too often. You'll start to believe them - or, at minimum, question who you are based on her hurtful words. You say, "I'm here for you" but, perhaps deep down, you wish at that moment, you weren't. "

You question everything & constantly overthink. When you're sitting on the porch with her, having your coffee or glass of wine, and you hear her sigh heavily, you wonder if that's a sign of impending doom - something dark on her mind, or a coping mechanism to calm herself...or maybe she's just relaxing for the first time in awhile. In any case, you don't ask because "is everything okay?" or "what're you thinking?" or "something wrong?" might set off a chain of events you don't want to deal with.

You constantly look for ways to control your environment - from the way you schedule your day to what you cook for supper or how you organize things around the house. More often than not, when she's in her state, decisions are a further stress and amplify her anxiety. What do you do? You make all the decisions, thinking that'll make life easier for her. Yet, unfortunately, it doesn't often work out that way. Perhaps it's her response of "you should've asked/told me" or "why didn't you let me know?" or "if you loved me you'd have..." Friends may say, "Damned if you do, damned if you don't" but, to you, it had to be done. Survival instinct kicks in and you do what you need to do.

On the good days, when she's positive, upbeat, full of energy, revitalized, you struggle to enjoy the moment...you don't know how long it'll last...you fear the bubble popping...you're still on edge and, most likely, get down on yourself for not being fully present with her. Even when you know you SHOULD be enjoying yourself, you can't.

You're not fully present on a good day. You're not fully present when you're supposed to be having fun or enjoying life. But you ARE fully present when you're surrounded by her chaos, negativity, anger, frustration and darkness. Think about that for a moment:

You're only fully alive when you're being torn down, when your life force is being given to someone else, when every moment of your day is spent making sure your partner (and your household) lives to see another day.

You probably mutter or mumble under your breath as you walk away from her...things you wish you could say out loud but, knowing the damage they'd do to both of you, respecting her mental state, you keep it to yourself, tucking it deep inside where the feelings fester and ferment. Maybe those words of resentment will go away...or, maybe they've established a symbiotic relationship with your soul. These periods of resentment...they grow in number as the years go on...your thought process dips its toes into the murky waters of ire more frequently and easily.

You're constantly seeking an outlet for your tension. Nothing seems to work. Perhaps you go to the gym but, for some reason, you cut your workout short because you're worried about her...or you're too stressed to even relax to workout fully. Or, maybe, you go for a pint with your mates but, you're not fully present...your mind is elsewhere, wondering if she's okay. And you cut your night short because you know you need your energy to deal with the next day.

You feel guilty when you do something for you. Whether a ball game or buying something online, you wonder how she'll react or what she'll think or if she'll resent your 'selfish' ways. So you begin doing less and less for yourself, channeling your energy into your family and her.

If you have kids, you wonder what they'll remember about life in the house, growing up. Will they remember how Mommy hardly slept in the same bed as Daddy? Will they remember how Daddy would always wake them up in the morning, get them dressed, make them breakfast, pack their lunches, cook supper, clean the kitchen, do the laundry, get the groceries? Or will they remember that Daddy didn't have enough time to play with them because of everything he did to make the house function?

You cry. Sometimes there are tears streaming down your face or sometimes you're crying on the inside. But, regardless, you're sad. You're upset - at yourself, at her, at a higher power, at anyone, at no one - yet you keep it to yourself. It's your burden. Perhaps you feel like you asked for this. Perhaps you believe this is your own private challenge. Know you're not alone. There are people out there to help. People are there for you. They want to help...they're waiting at your doorstep...it's up to you to let them in.

This letter is part vent, part affirmation. Maybe you've had some (or all) of these thoughts. Maybe you can't relate at all. In any case, you aren't alone. Like a phoenix rising from the ashes, strength builds from pain. For whatever your reasons, your resolve to remain committed to someone struggling with the very fabric of being, is powerful. While my words may not be enough, you are a great person, standing beside someone who needs you more than words. You may not hear it enough or feel it or even believe it but your presence is an amazing gift - not only to her but to the universe. You make her world - and the world around you - a better place.