Laura Murphy
Showing posts with label awareness. Show all posts
Showing posts with label awareness. Show all posts
Friday, March 29, 2019
Shine a Light on PMDD - April is PMDD Awareness Month
BOSTON, MA, March 29, 2019 -- A global awareness campaign will kick off this April to help
“Shine a Light on PMDD” on a little known, debilitating and life-threatening condition that
takes an average of 12 years to be correctly diagnosed.
Premenstrual Dysphoric Disorder (PMDD) is a cyclical, hormone-based mood disorder which
impacts approximately 1 in 20 women and individuals assigned female at birth (AFAB) of
reproductive age - a staggering 60 million worldwide. With symptoms including severe
depression, overwhelm, and anxiety appearing in the two weeks before menses, PMDD takes
a toll on sufferers’ ability to work and maintain relationships with partners and family. In the
2018 Global Survey of Premenstrual Disorders, out of 1,425 patients with
prospectively-confirmed PMDD:
● 16.8% reported having lost a job due to PMDD
● 56.7% reported having lost an intimate partner relationship due to PMDD
● 98% and 97% feel PMDD puts a significant strain on their intimate partner relationship
and family relationships, respectively
● 42.7% reported problems with parenting due to PMDD, with 10.5% feeling completely
unable to parent during PMDD
The relentless emotional and (for some) physical pain also drastically increases the risk of
suicidal behaviors. In the same survey, 30% of patients with PMDD reported that they had
attempted suicide to escape their symptoms. Sadly, this number does not include those with
PMDD who have died by suicide, which suggests that 30% is a low estimate for the rate of
suicidal behaviors in PMDD. Appropriate identification and treatment of PMDD are therefore
important not only for reducing suffering but also for saving lives.
The same survey also showed it takes an average of twelve years and six healthcare providers
to receive an accurate diagnosis of PMDD. After years of suffering, individuals with PMDD
describe learning about the disorder as a ‘lightbulb moment’.
“PMDD has been invisible for far too long,” according to Amanda LaFleur, Co-Founder &
Executive Director, International Association for Premenstrual Disorders (IAPMD), the global
leader of PMDD awareness and education. “It’s underdiagnosed, misdiagnosed and, at worst,
the lack of understanding leads to harmful ridicule and shaming of suffers. During PMDD
Awareness Month we need to create millions of life-changing lightbulb moments across the
globe so people can get the support and treatment they need!”
This year, IAPMD is again collaborating with a coalition of organizations, including U.S.-based
Me v PMDD and U.K.-based Vicious Cycle: Making PMDD Visible, to ‘Shine a Light on PMDD.’
Resources to support awareness-building are available on pmddawarenessmonth.org.
Website visitors can access the PMDD Awareness Month Toolkit, find facts and figures about
PMDD, create a fundraiser, and share their story.
Individuals with PMDD are encouraged to add their voice to the women's reproductive and
mental health movement and receive timely updates on work underway to inspire hope and
end suffering in those with premenstrual disorders.
“This is a galvanizing movement in women’s health,” according to Sandi MacDonald, IAPMD
Board President. “PMDD is a perfect storm where #MeToo and #TimesUp, meets mental
health awareness, meets suicide prevention. This campaign will be that ‘eureka!’ or ‘light
bulb’ moment of insight, and then sufferers and activists around the world are empowered
to raise awareness of PMDD and increase access to effective treatment options.”
While PMDD is directly connected to the menstrual cycle, it is not a hormone imbalance but
rather a severe neurobiological reaction to the natural rise and fall of estrogen and
progesterone. Symptoms occur the week or two before menstruation and go away a few
days after bleeding begins. There is no blood or saliva test to diagnose PMDD, but these tests
can rule out other underlying disorders. Diagnosis is done by tracking symptoms for at least
two menstrual cycles. As noted above, women and AFAB individuals with PMDD are at an
increased risk for suicidal behavior. Although PMDD has been included in the Diagnostic and
Statistical Manual of Mental Disorders (DSM) and International Classification of Diseases (ICD)
for years, it continues to be disregarded or misunderstood by doctors and the general public.
# # #
Organizational Contacts:
Amanda LaFleur
Co-Founder & Executive Director, IAPMD
1-800-609-PMDD (7633)
Laura Murphy
Project Co-Founder/Director, Vicious Cycle
Twitter: @viciouscyclepmd
+44 7739 342590
Sheila H. Buchert
Co-Founder & COO, Me v PMDD, Inc.
727-421-1489
Sunday, August 26, 2018
PMDD and Self-Awareness - What Has Your PMDD Taught You?
Today's post is an insightful guest post that describes a journey of self-awareness. I have long said that self-awareness (and then self-acceptance) is the key to mastering your PMDD. You know yourself better than anyone else does. Take the time to get to know you, and learn to be your own best friend. Not a moment of that will be wasted, because doing so will bring you many steps closer to wellness. Get to know who you are on good days and bad days. Learn to love and accept all of you. For me, personally, the results were life changing. I learned to focus on my strengths, and, on days when I could not be anything resembling strong, to focus on my needs. My guest today shares the difference it has made in her life, and in the comments we both hope you will share what you have learned about yourself through your PMDD.
Ladies here is what I have learned about my PMDD, or what PMDD means for me:
1) Low tolerance for fake and false people.
2) Hate lies and lying.
3) Low tolerance for people pleasers.
4) We are super intuitive and creative (could be blocked).
5) Don’t push me or have me multi-task above the pressure I
put on myself.
One thing I am grateful for is PMDD has allowed me to get to
know all of me, the good, the bad, the ugly. Yes, I am super loving and passionate and I can get super irritated
and angry as well especially if I feel sarcasm, slimy, abusive, inauthentic, people
pleasing, shifty behavior. Also, to the ‘super smiley-my life- is-perfect people’ - I don’t buy it one single bit.
I am glad that I know my rage, I know her well.
I know my grief, I get down on my knees and weep.
I know my sexy bad ass, she can be sensual AF.
I don’t want to be around fake people or people pleasers, I will
have to mirror that bullshit.
I am not interested in small talk.
I am an extrovert but my introvert demands a lot of alone time
and I love her for that!
I need to create and often. If I don’t I get cranky.
I need alone time. If I don’t I become a bitch on wheels.
BOUNDARIES are super important.
Successful relationships are ones that are mutually
beneficial and fair. I have stepped away from all the ones where I was giving more.
I follow my turn on. I don’t bother if I am not turned on by
a place, a person, an event, a function. If I do go I will just become cranky.
My anger and my bitch are there to protect me to remind me
to get back into my body and out of my head. To tell me when I have self-abandoned me
in order to please someone else or self-sabotaged me away from my dreams.
Next
time I will be kinder to me and not leave me again.
No means NO and does not convert to yes the more you whine or
beg. With my kids: I am your mom, I won’t always be popular. Suck it up.
On any request: I will tune into my body and ask Do I want
to do that now with this person? (It's okay to say maybe another day).
I need variety. People and places. Sameness bores me.
Nature turns me ON. It’s not a luxury but a necessity!
My body needs to move! OFTEN.
Music makes me FEEL good!!!
I would love to hear what you have learned about yourself on
your PMDD journey.
Sunday, March 4, 2018
The Voices of PMDD: Tough on Relationships
Anyone with experience can tell you,
PMDD is tough on relationships. By the time I was 25, it was certainly getting
tough on my parents and sisters, and then my first husband. This was before I
knew anything about PMDD. I thought it was just PMS, but no one else with “just
PMS” seemed to be going through what I was. When I would try and explain to
confidants, I would be warned off blaming everything on hormones. Yet once a
month, like clockwork, I would dread interacting; I could feel my personality
morphing. I would cancel plans, back out of things, even leave vacations to go
home! I would have massive flip-outs. Family thought I was just a moody,
selfish and spoiled brat. In truth, I was being ruled by my hormones. I hated
it as much as they did. It made it so hard to make plans or get excited about
anything. And since it was cyclical, it seemed like “just who I was”.
I’m married for the second time now, and
it seems I decide to divorce my husband pretty much every month. For nearly a
year, I’ve been pulling my luggage out of storage and packing my bags only to
put it all away again a week or so later when my cycle shifts again.
Maybe I had no business getting married
in the first place, but we had to. We lived in separate countries, and it was
the only way to be together. As much as I may have wanted to live abroad, I
quickly realized I didn’t have it in me to deal with the culture shock,
language shock, new roommate shock, etc. and all of the loss…of home, work,
friends, family, belongings, car, etc. I had no idea the impact of moving
overseas and all it entailed would have on PMDD!
Over the first two years of our
relationship, the stress I endured was enough to give me PTSD and a whole new
level of experience with PMDD, which by the way, I had only learned about
half-way through our marriage, as I desperately looked for answers about why I
was suddenly such a full-on raging lunatic every month. When I read about it,
it was like a string of lights lit up in my DNA. When I started tracking my
symptoms, I had all the evidence I needed. I hadn’t been imagining this plague!
It was only in hindsight I was able to piece together aspects of my history
that pointed toward PMDD and that those pieces of a near life-long puzzle
started snapping into place.
In this marriage, our problems have
centered around my PMDD. It’s an easy target. Once I knew what it was, we’d
talk about it on the good days; I’d try to explain it and tell him what I
needed from him. He’d listen and nod and say he understood. But for some
reason, month after month, he just couldn’t deliver. Was it me? I thought so. I
really, honestly blamed myself. Maybe I was asking for too much space. Maybe I
was demanding too much help. Maybe I wasn’t trying hard enough!
Our marriage passed through a very
difficult season of intense arguments, usually when I was in the throes of
PMDD. These arguments only served to further impair my already affected mental
state and merely re-traumatize me in all the ways I’d lived with growing up. It
was becoming unbearably painful. Again, I blamed myself. If only I didn’t have
this disorder. If only I wasn’t so needy, so messed up, so controlling, so…me.
Of course, I blamed him too. If only he’d clean up, do what he promised, give
me space, be…someone else!
Then one day, after an excruciating and
emotionally abusive exchange between us, a genuine turning point arrived. I
realized this endless struggle simply wasn’t what I wanted for my life. If I
had a disorder that made relationships challenging, then I had to decide
whether my marriage was a help or hindrance to my healing. I realized it had
become a hindrance. Yes, I had my issues, AND my husband had his own issues,
and all of it was creating a mess I couldn’t bear. We weren’t being “good for
each other”. It was plain and simple reality, regardless of fault. That’s when
I knew it was really over. I told him I wanted out, for real this time.
I started to focus on my own healing (or
refocus, truth be told). I got into positive psychology, started taking B-12,
Magnesium, and Ashwaganda for my blown-out adrenals, and hired a counselor,
too. I learned to focus my mind out of hormone-created mental “shit storms”,
and on the days I couldn’t, I treated myself gently. I began to process all the
changes and losses of the past couple of years. I thought about what I still
valued in life and took notes. I also realized that I had to at least try and
communicate with my husband what I was going through, if just for my own
experience. It didn’t matter if he got it or not; I just had to learn to
communicate it. I began to want to understand what it was like for him too. I
wanted to know all the ways I had been unskillful in our marriage so that if I
ever got into another one, it would be better. It was really painful work,
digging in the underbelly of so much suffering, much of it self-created. It was
also difficult letting go of all the things I simply couldn’t control…like
certain symptoms of PMDD or my husband’s perception, understanding, or lack
thereof.
Shortly after I took on this mending, a
miracle happened. We started really talking again and meeting each other in a
different playing field. We both got more skillful. We accepted what we’d been
resisting and/or taking personally. We found our love for each other again. We
were finding our way to being “good for each other” again.
We are definitely a work-in-progress.
Believe me, we still piss each other off, but now, we know when to back off and
give each other space, and we know and understand a little better the ways we
are either too different or too much alike to help one another. There’s more
respect between us.
So, despite hiring a divorce lawyer,
we’re still married and going on three years now. Will we make it to four? It’s
possible now, though it had gotten to a point where it wasn’t. There are still
times of the month when my cycle shifts gears that I see through the eyes of
judgment instead of love, when I just want to get the hell out of here, and
when fear tries to take a hold and make me see only problems. Yeah, yeah.
Whatever, dragon!
When I try too hard to understand it
all, I often don’t know what to believe. Do I believe the judgments that say
he’s a total jerk, agonize over the crumbs and spills in the kitchen, and
ruminate on stories about how everything is so terribly wrong? Or do I put my
faith in the days when I’m overjoyed to see him, love his hugs and kisses,
laugh with him, and feel grateful for his presence in my life and all the ways
he blesses it? I know now that for the most part, both heaven and hell are
inside me, and no matter where I go, I’ll take them with me. It all boils down
to where I place my focus!
Liana's note: The above guest post was written by the
blogger Cheekyminx. With her permission, several of her posts about PMDD are featured
on this blog. In the meantime, to find out more about her work as a PMDD
Advocate, please visit her Facebook page, PMDD Life
Support.
Saturday, December 9, 2017
My First Memory of Having PMDD
It’s hard to pinpoint my first true memory of having PMDD. I think I struggled against my PMDD for so long, denying that I had a problem, that it manifested long before I admitted there was something wrong with me. No one else I knew went through these struggles, or if they did, they didn’t talk about it. They managed, they coped…why couldn’t I? What was wrong with me that I was fine one day, and could barely get out of bed the next? I think I blamed it on everything and anything else but me, sources outside myself, school, work, friends, family, whoever I was in a relationship with at the time--because I was young and healthy and mental-type problems only happened to other people.
The first episode I can remember which I would now attribute to PMDD was a two-week period in my freshman year of college, toward the end of the semester and year, when I simply didn’t get out of bed except to go to class. I was doing well in my classes, not having any problems to speak of, and then suddenly this period of total sadness and hopelessness and lethargy hit, and I had no motivation to do anything or go anywhere. Then just as suddenly it lifted, and for the remaining weeks of the semester I raced around like a madwoman, trying to catch up and make sure my grades didn’t suffer. I was eighteen years old.
Now, looking back, I can see countless repetitions of this scenario, where I’m sailing along, and life is fine, and then suddenly...it isn’t. When all indications are that I should be happy beyond measure--having achieved every goal I’d set for myself to that date--but I wasn’t. I used to think there was just something inside of me that liked to make life a little more challenging. Something that liked to let me fall behind, just so I could prove that I could catch up and still come out ahead. Now I realize it was the PMDD dragging me down. Now I think about how much I could have accomplished, had I known what was happening and learned to manage my PMDD, like I eventually did.
But I don’t dwell on those thoughts, because those opportunities have come and gone, and negative thoughts will bring anybody down, not just a woman with PMDD. There’s no sense in feeding the fire. What’s come and gone has done just that…come and gone. The only moment we can do anything about is the moment we’re in right now. And right now, I know that most, if all negative thoughts I have stem from my PMDD and I’m just not going to give them any more air time. I’m still as stubborn as I was as a teenager, still as determined not to let the sadness and negativity get me down, only this time I know what I’m dealing with. Now I’m able to separate the two, my usual self and my PMDD self, and when my PMDD hits, I’m able to label my self-defeating thoughts as PMDD thoughts and just set them on a mental shelf to be dealt with later.
The beauty of this tactic? When later comes, those thoughts are no longer relevant. Mostly because they weren’t true to start with. On PMDD days now I rest and take it easy. I find something positive and uplifting to read or watch or listen to, and focus on small, sometimes mindless tasks that I know need to be done and have been saving up for just such a day. Organizing receipts or CDs or books on a shelf. Folding the laundry. Nothing heavy, nothing demanding either physically, mentally, or emotionally. For instance, sorting through old photographs probably wouldn’t be a good job for a PMDD day. The emotions they dredge up might not be positive, might make you miss someone or someplace or stir up regrets. Or they might remind you of a happier time, and instead of making you smile, might make you feel like you’ll never be happy again. That’s the PMDD brain talking, not you. And whatever it is saying is certainly not coming from God.
I bring God into this because my faith was and is a big part of my experience with PMDD. Without faith in something bigger than myself, I never would have come to have faith in myself. I can’t tell you how many times I thought there has to be a way to make this madness stop. The first book I picked up was Prayer, Faith and Healing: Cure Your Body, Heal Your Mind, and Restore Your Soul. I’d tried everything else. Maybe it was time to give prayer a chance. And so I started. With baby steps. One by one, one day at a time, learning how to listen to something positive outside myself for a change, until I learned that God was inside of me, too, and I could go within for the answers I needed. They didn’t have to come from outside sources.
The stronger I became on the inside, the more those negative external voices dimmed to background noise. Such as well-meaning friends and family with unsolicited advice, and not-so-well-meaning friends and family with selfish needs and demands. Not to mention well-crafted advertisements pointing out all the areas in which I was lacking in my life, or organizations with agendas on how I needed to live my life, and countless books, magazines, radio and television programs telling me I could have it all, while at the same time measuring me by artificial standards no one person could ever hope to attain.
It’s hard enough navigating life with all your faculties intact. But when you’re a woman with PMDD, operating on half power or less half the time or more, life gets really challenging. So don’t beat yourself up. The world is more than happy to do that for you. Accept that you’re not perfect and you’re never going to get there, then relax and enjoy your life. When you’re feeling good, take on all you want to, and when you’re not—take time out to take care of you.
If you take nothing else from this post, take this: Don’t spend another day beating yourself up for something you have no control over. Do start listening to your body, and giving it--and yourself--the respect you deserve. If you don’t know how to do that, if you’re scratching your head at the very thought of it, like I once was, then check out my blog, my Living with PMDD Facebook page, or my book, PMDD and Relationships, for more information on how to better manage your PMDD, as well as support, encouragement, and tips on how to be a better you…all month long.
The first episode I can remember which I would now attribute to PMDD was a two-week period in my freshman year of college, toward the end of the semester and year, when I simply didn’t get out of bed except to go to class. I was doing well in my classes, not having any problems to speak of, and then suddenly this period of total sadness and hopelessness and lethargy hit, and I had no motivation to do anything or go anywhere. Then just as suddenly it lifted, and for the remaining weeks of the semester I raced around like a madwoman, trying to catch up and make sure my grades didn’t suffer. I was eighteen years old.
Now, looking back, I can see countless repetitions of this scenario, where I’m sailing along, and life is fine, and then suddenly...it isn’t. When all indications are that I should be happy beyond measure--having achieved every goal I’d set for myself to that date--but I wasn’t. I used to think there was just something inside of me that liked to make life a little more challenging. Something that liked to let me fall behind, just so I could prove that I could catch up and still come out ahead. Now I realize it was the PMDD dragging me down. Now I think about how much I could have accomplished, had I known what was happening and learned to manage my PMDD, like I eventually did.
But I don’t dwell on those thoughts, because those opportunities have come and gone, and negative thoughts will bring anybody down, not just a woman with PMDD. There’s no sense in feeding the fire. What’s come and gone has done just that…come and gone. The only moment we can do anything about is the moment we’re in right now. And right now, I know that most, if all negative thoughts I have stem from my PMDD and I’m just not going to give them any more air time. I’m still as stubborn as I was as a teenager, still as determined not to let the sadness and negativity get me down, only this time I know what I’m dealing with. Now I’m able to separate the two, my usual self and my PMDD self, and when my PMDD hits, I’m able to label my self-defeating thoughts as PMDD thoughts and just set them on a mental shelf to be dealt with later.
The beauty of this tactic? When later comes, those thoughts are no longer relevant. Mostly because they weren’t true to start with. On PMDD days now I rest and take it easy. I find something positive and uplifting to read or watch or listen to, and focus on small, sometimes mindless tasks that I know need to be done and have been saving up for just such a day. Organizing receipts or CDs or books on a shelf. Folding the laundry. Nothing heavy, nothing demanding either physically, mentally, or emotionally. For instance, sorting through old photographs probably wouldn’t be a good job for a PMDD day. The emotions they dredge up might not be positive, might make you miss someone or someplace or stir up regrets. Or they might remind you of a happier time, and instead of making you smile, might make you feel like you’ll never be happy again. That’s the PMDD brain talking, not you. And whatever it is saying is certainly not coming from God.
I bring God into this because my faith was and is a big part of my experience with PMDD. Without faith in something bigger than myself, I never would have come to have faith in myself. I can’t tell you how many times I thought there has to be a way to make this madness stop. The first book I picked up was Prayer, Faith and Healing: Cure Your Body, Heal Your Mind, and Restore Your Soul. I’d tried everything else. Maybe it was time to give prayer a chance. And so I started. With baby steps. One by one, one day at a time, learning how to listen to something positive outside myself for a change, until I learned that God was inside of me, too, and I could go within for the answers I needed. They didn’t have to come from outside sources.
The stronger I became on the inside, the more those negative external voices dimmed to background noise. Such as well-meaning friends and family with unsolicited advice, and not-so-well-meaning friends and family with selfish needs and demands. Not to mention well-crafted advertisements pointing out all the areas in which I was lacking in my life, or organizations with agendas on how I needed to live my life, and countless books, magazines, radio and television programs telling me I could have it all, while at the same time measuring me by artificial standards no one person could ever hope to attain.
It’s hard enough navigating life with all your faculties intact. But when you’re a woman with PMDD, operating on half power or less half the time or more, life gets really challenging. So don’t beat yourself up. The world is more than happy to do that for you. Accept that you’re not perfect and you’re never going to get there, then relax and enjoy your life. When you’re feeling good, take on all you want to, and when you’re not—take time out to take care of you.
If you take nothing else from this post, take this: Don’t spend another day beating yourself up for something you have no control over. Do start listening to your body, and giving it--and yourself--the respect you deserve. If you don’t know how to do that, if you’re scratching your head at the very thought of it, like I once was, then check out my blog, my Living with PMDD Facebook page, or my book, PMDD and Relationships, for more information on how to better manage your PMDD, as well as support, encouragement, and tips on how to be a better you…all month long.
Friday, December 8, 2017
PMDD Symptom Play by Play Number 2
The following guest post was written by the blogger Cheekyminx. With
her permission, several of her posts about PMDD are being featured on this
blog. To find out more about her work as a PMDD Advocate, please visit her
Facebook page, PMDD Life Support.
I did promise to write another PMDD
symptom play by play, and since my symptoms just kicked in today, I thought now
would be as good a time as any to bare my "hormotional" soul. This
isn't easy. In fact, it sucks. It's dreadfully intimate, questionably revealing,
and even harder to admit. But I am committing. So here we go...
8 Days Out
So what changed in me that I knew that
symptoms had kicked in anyway? Well, I felt constipated and bloated today
(first time since last cycle), I started pulling my hair out (not intentionally...my
fingers just go to my hair and when I pull them away, my hair follows!), and
most importantly, I feel just plain flippin' irritated for no extraordinary
reason about EVERYTHING. I feel somewhat hair-triggerable, if you will. So I'm
starting to avoid the things that trigger me (being everything, meaning
isolated myself). I have to add that this month has been an incredibly stressful
one already with plenty of relationship tensions. I was already irritable, but
it felt different than it does today. I wish I could explain it. There is an
accompanying intolerance now that wasn't there before...an inability to censor.
My diplomacy skills are fading. Many say that PMDD magnifies what is already
there. If that's true, this month ought to be a "real blast".
7 Days Out
I just flipped out over my husband
saying, "don't worry", when I couldn't find how to reverse an action
he told me to take in some software, messing up my work view. I did warn him my
symptoms were coming on.
So are men really that stupid? Don't
ever effing tell me how to feel! And certainly DO NOT belittle my frustrations
with your petty sentiments of projection. YOU "don't worry"! I'm
frustrated. Deal with it! Ouch! Okay, last two nights...a touch of insomnia.
Today, RAGE! I think I could pick up this 20-ton glass desk and hurl it out the
window like it was made of cardboard! There is a jittery tension just
underneath my skin accompanied by an overwhelming desire to be alone in the
house...for the rest of my life. I have ghost cramps too. That's what I call
cramps that arrive before my period.
6 Days Out
6 days? I don't know if I can last
another six days. Today was rough. I cried this morning. I cried this
afternoon. I cried tonight. I'm feeling incredibly insecure, let down by and
estranged from everyone in my life, anxious, grumpy, and deeply sad. I have
wished that I would simply die. Since that's unlikely, I just vegetate with
Netflix until bedtime with grateful anticipation of the total unconsciousness it
brings...and hope I never wake up.
5 Days Out
Didn't sleep well last night,
ironically. In fact, I was ruminating in a way that only comes on with PMDD...a
hateful, angry way. I swear, I don't know where this shit comes from. I seem to
manufacture it in spite of my desire for peace. Each time I woke in the night,
I pounded my pillow and cursed bitterly. This morning, I did my best to isolate
myself. I tried to be on my best behavior too, bearing in mind today's best
bore more resemblance to a caged animal than to a somewhat decent human.
Despite my PMDD Tourette's, a lovely symptom where pure shit just gushes from
my lips, I managed to hold-back on some of my impulses to push and stomp. With
every bite of my tongue, a part of me celebrated the tiny victory (quite
alone...as it was evident to no one but me) while in the next moment I was
unbridled...judging, criticizing, blaming, fed up with the same old
crap...emotionally abusing my husband while at the same time hearing in some
vague and distant background all the kinder things I wish I was saying instead.
They were too remote for access. They were a distant land. I wanted to run to
my room, to be safe, to protect not only myself but him--the only measure I
have at my disposal...isolation. It was too late. His deepest wounds were
activated, his own mind becoming the same enemy mine had become to me. It would
seem PMDD can be contagious, even without the hormones. My husband reacted and
in turn became the emotional abuser, taunting me, drilling me, pressing me,
driving me to tears with his own screams of how crazy I am, how uncaring, how
hopeless, telling me nothing my PMDD mind hasn't already been telling me, but
reinforcing it in a way that broke and battered my already damaged spirit. He
threatened me...with quitting, with walking out. He's promised that so many
times, and today, I wish he'd follow through. That same distant part of me was
proud of him for speaking up for himself in the only way he knew how...not for
how he did it, though. How he did it hurt. I must admit today, I had suicidal
thoughts. I had world-destroying thoughts. And I cried and heaved, shook and
crouched in a corner, desperate to be free of this storm inside of me and the
external manifestations of it. Emotionally spent, I listened to a looping
recording of a mantra about 20 times which calmed my suspiciously empty mind. I
can't believe I'm writing this.
4 Days Out
After yesterday, I'm really emotionally
exhausted and kind of blank. I've lost a day. I thought it was Thursday but
it's only Wednesday. That's been happening a lot, but I don't relate it to
PMDD. It's living in the middle of nowhere! There's nothing I want to do...or
feel or think. Despite needing some groceries, I can't make myself go. I feel
like the remnants of a bird that has burned in flames but has yet to arise once
more from the ashes. I continue my deluge of mantra listening. And I eat chocolate.
I know my situation is complex. I have many marks against me right now. To be
honest, I probably have some form of PTSD after two years of the worst stress
of my life which I admit at least half of it I took on willingly, arrogantly
even, in addition to being peri-menopausal and PMDD. I also have no grounding,
having moved to a foreign country where I cannot speak the language and where
my support network is still fairly non-existent. I had a massage therapist when
I could afford her, and now, I have a talk therapist who I will have my first
session with tomorrow (Thursday. Not today, Wednesday.) It's a trade-off.
There's the recent passing of my mother, too. It's a lot to cope with. Add
"relationshit" to the mix, and it's tough to tease apart the symptoms
of PMDD from the disaster that is my life. So everything just swirls together
into a big complicated mess. Charting saves the day and preserves what little
sanity I have left by revealing an intensity of symptoms at certain times of
the month. I will persevere. I am resilient. I am determined, too. And in
moments, I am remembering who I am.
3 Days Out
This morning, every bone hurts. It was
very difficult to get myself up and moving. I would love a massage, but I don't
have the funds for one. Yin yoga will have to suffice. My symptoms were less
today, which historically, has happened...things can actually mellow before the
actual onset of my period. Although, usually without fail, I blow out the day
before. We'll soon know...
2 Days Out
Last night, I slept 12 hours!! Pretty
typical right before. My dreams were very bizarre. My hair continues to fall,
and I had ghost cramps again. Another thing that's started today is a weird
head-to-toe itchiness; I've heard other women complain of this too, so I'm no
longer surprised. When provoked earlier, I quite easily lost my cool outwardly,
but overall, in my head, I feel more stable today, so I'd have to relate any
emotional symptoms to other things in my life and not necessarily PMDD. Or
maybe I'll start early. The cramps are a good indication I might.
1 Day Out
Surprise! Guess what's here, sparing me
an extra day of misery and uncertainty? How am I feeling? The first thing I
noticed was the intense ache from head to toe as I pulled myself out of bed at
a fairly human time of day. I feel about 20 years older in body. Add a headache
and the typical cramping in my lower gut, too. But I can handle the physical
symptoms; they are kind of a joy after the week I've had. Emotionally, I feel
tentative (as the rest of my life is still incredibly challenging). But I don't
feel that uncontrollable sense of building blood-level tension that prompts me
to catastrophize and explode (not that I couldn't given the right
stimulus...but that I don't feel that "hair-trigger" thing). My mind
is also quieter. When I woke this morning, from a dream about pastries and
cookies, my first thought wasn't "Oh, fuck, I'm still here; shit, shit,
shit!", it was more like, "I'm up." There was no punching of
pillows or immediate tears. How do I explain it? It's like an equilibrium, a
balancing out. A relief! So can I count on a few days of relief? Or will
something fluctuate and turn me mental again? Sometimes, on day 5 or 6, I
rebound into "crazy-land" for a day. Sometimes, I'm okay until I
ovulate. It's difficult not knowing. It's difficult not knowing, too, whether
outside circumstances will inflict traumas that bring the stormy inner waters
back to the surface. I hope not. I need some peace. I need some rest. My
problems are all still there. My relationship is still falling apart. I still
live in the middle of nowhere in a foreign country. I'm still dealing with loss
and grief and change of massive proportions and living an unrecognizable life.
Somehow, somehow, there's something accessible now that feels like strength,
like resilience, like patience, and even serenity. Holy crap! Did I just feel
myself smile?
Tuesday, September 5, 2017
PMDD: Suddenly it All Makes Sense
Now I know why!
I know why two weeks out of every month
I am waiting to feel like myself again. I know why for two weeks I suddenly
don’t give a crap about anything I was excited or cared about in the weeks
before. I know why I feel contempt for everyone and everything when I recently
felt so in love with it all. I know why I suddenly doubt my abilities and
talents. I know why I isolate myself on certain days…when I just know I’m not
going to be able to accomplish the simplest of tasks without getting irritated
or downright angry. I know why I am afraid to schedule anything in advance,
lest whatever I have to do falls on a day when I am incapable of behaving
reasonably. I know why hateful thoughts become so insistent and pervasive
despite the fact that just two weeks ago, I was 100% certain I had finally
transcended them all. I know why I can’t stand to be touched, when just last
week, I couldn’t get or give enough hugs. I know why I suddenly feel so
disconnected from my friends, doubt their friendships, and suddenly want to
walk out on my husband.
In my quest to understand, I’ve been
given plenty of opinions. I’ve heard some labels, and some I even tried to make
fit. But in the end, I knew they didn’t. I knew I wasn’t “bipolar”. I knew I
wasn’t “borderline” or “mood disordered” (even though that’s still the
involuntary category in which I’m pegged). I knew I wasn’t “just imagining
things” either. Nor was it the whole story that I was “just hormonal”.
Something inside me had changed in the last couple of years and something was
happening throughout my menstrual cycle to make me feel like two completely
different people. Only recently, it had gotten much worse.
The Fighting Bell Rings
In one corner: a woman full of radiance
and quick to smile. She can be so full of love inside herself to the point of
bursting. She is centered and enthusiastic, bright and cheerful, optimistic and
strong. She’s not perfect, of course, but she’s so okay with that. She’s on top
of her thoughts and more than willing to be alive. She is excited about
projects and new ventures…even if they are challenging. Anything seems
possible…anything reasonable, that is. (She isn’t about to jump off a building
or into traffic.) She believes in an abundant universe and that she has
something to offer the world. She enjoys the company of others and lives to
laugh, create, and feel gratitude. She would never dream of hurting herself or
anyone else. She may have bad days, but she recovers quickly.
In the opposite corner: a bedraggled,
wild-haired psycho who has to apply every ounce of her will to not lash
out…though she eventually does, usually by imploding on herself or exploding at
those closest to her. She is the wily animal who shudders at her own hateful
attitude as she mourns the loss of her other self. She is the one who simply
CAN’T control anything. She is full of shame for her inability to control
herself. After all, hasn’t she learned anything? She cannot forgive or forget.
Everything is the end of the world. She stomps to feel she exists, yet the very
force of her enraged feelings lifts her off the ground. There is no justice, no
joy, no purpose, and no comfort to give or receive. All is bullshit. She
isolates to protect herself and others from this “thing” that has overtaken
her, but life pokes and prods all the same.
Eckhart Tolle, author of The Power of
Now, talks about the pain body in his work which comes close to matching the
insane being that shows up in my mirror every month. There’s also this idea in
spiritual circles about embracing and integrating the shadow-self. I
wholeheartedly agree with the importance of doing that. It’s powerful stuff,
but I don’t think it is the whole story for me. Always favoring the holistic
over the quick fix, I’ve been exposed to a lot of different teachings in my
quest for well-being. But none of them have satisfied this itch under my skin
that what I was dealing with wasn’t just some egoist resistance on my part,
wasn’t just some weakness in my character, lack of awareness in my being, or
deep wounding from childhood . In fact, I have LOADS of awareness and more
strength than a lot of people. So, something wasn’t jiving.
Something else is going on. Whatever it
is, this pain body feels universal…not personal…yet it attacks in a personal
way for sure. It isn’t a permanent state of being but it is one that, when I’m
in it, feels like the only state of being I will ever know. Sometimes, it turns
on a dime…a cruel word, a task gone wrong, a frustration or irritation that
sends ever-widening ripples of tension out into my environment…but, and here’s
the key, only at certain times within my cycle.
What I’ve discovered is the term PMDD or
Premenstrual Dysphoric Disorder. Though I don’t agree with a lot of the
psychological/medical establishment bullshit (excuse my language…but let’s call
it what it is) behind it, it has come closer than anything else I’ve ever
encountered to explain what’s been happening increasingly so with me since
going through a period of intense and prolonged stress.
I feel like I have to start by saying
that I’m not interested in excuses for bad behavior. I’m not looking for a
convenient explanation for bouts of anger or anxiety or anything else. I’m not
trying to protect my identity as a “got my act together--no problems here”
person, nor am I holding my shadow aspects in a closet of denial. I’m not
interested in using the label of PMDD to explain away or justify crazy-making, just
as I’ve never been interested in the label of “depression” to explain away
unexamined pain and the absolutely natural waves of ups and downs that society
would rather call a disease than a sign of being human in the world in which we
live. What interests me about PMDD is that elements of it actually fit and
explains myself to myself. What
fascinates me is that there are other women who feel like I do…that it is a
real phenomenon to be examined and explored. It is a real phenomenon to be
healed.
I’ve joined a couple of online PMDD
groups, and what I’m noticing is that a lot of women feel they have no choice
but to treat PMDD with very toxic antidepressants and hormone-related
treatments that further disturb the delicate balance of the body. Some even decide
to remove a part of their bodies, having hysterectomies, and are overjoyed with
the results. I know many women get absolutely ill with vomiting. Why is the
newly established “disorder” which was recognized in 2013 seem to be
increasingly prevalent? I have my own theories circling around my head…the
poisoning of our food supply perhaps or our increasing exposure to radiation
and toxins. Who knows?
For me, it is mostly a mood challenge
though I also get headaches, stomach aches, sleep disturbance, and other
physical manifestations. Nothing like vomiting, thankfully. I feel incredibly
blessed by and grateful for the management tools I’ve found that are
side-effect free and have a great deal of sympathy for those who are buying
into the system of big pharma (whose sole interest is to get everyone on their
drugs regardless of whether it actually helps or even does more harm than good)
and a patriarchal medical system (with a track-record of locking women away for
their complaints). We can be products of the system that would call us
“mentally disordered” offering us only what they deem as the answer or we can
access inner qualities we can cultivate to cope and turn to more natural
therapies until we discover what combination works for us. I know what my choice
will always be. And that means that sometimes, I choose to live with a very
difficult, very challenging state of being with very little outside assistance
at my disposal. So be it.
Not just regarding treatment, PMDD is a
hot topic of debate. In addition to being controversial in the medical
community, there is, as with all conditions, a lot of general ignorance around
PMDD. As I mentioned, it’s only been acknowledged since 2013. Right away,
people assume it is PMS with a different name or an excuse for why a woman
suddenly gets bitchy, tired or crampy. Or they draw other ill-informed
conclusions. One woman made the mistake of sharing her condition with her
employer to be told they feared she posed a threat to either herself or
coworkers at work. I suspect there are people in their employ at far greater
risk of flying off the handle, the ones they’d least suspect. Others are told,
even by well-meaning friends, that it is all in the head and are told to chill
out or get over it or try some quick fix. Clearly, those who don’t experience
it are not in a position to offer advice!
Here’s the thing about PMDD. We may
think about bludgeoning judgmental, self-righteous ignoramuses who think they
know all the answers, but we tend not to act on it. Good thing, because there
are plenty of them around.
Just as I have been (unprofessionally)
mislabeled before discovering what is known as PMDD, I am sure there are women
ascribing their behavior to PMDD when it truly belongs in another camp
altogether. Supposedly, 40% of women who seek treatment for PMDD may have
either what is known as PME (premenstrual exacerbation) or even an underlying
mood disorder such as bipolar. It’s complicated. Of course, the professionals
will continue to debate if any of this is real or not, some kind of anti-female
rhetoric or not, or whether it is a mental disorder or not. This just muddies
the waters, but what’s to be done? Human beings are intricate and unknowable
and this “dis-ease” is extremely complicated because there are so many variables!
In the meantime, there are those of us who live the spectrum. There are those
of us who know.
Speaking of the spectrum…
There is PMS, the catchall that pertains
to the mild, acute fluctuations of mood, irritability, fatigue, appetite
changes, and cramping that affect 30 to 80% of menstruating women. It may be
uncomfortable, but it is not generally debilitating.
There is PME. This is when a condition
from which a woman suffers, such as asthma or an eating disorder, is worsened
during PMS. So, PMS disappears after one’s period whereas PME symptoms merely
improve.
Now there is PMDD which affects 3-9% of
menstruating women. (With a female population of over 3 billion on the planet,
3-9% of those with periods is no small number!) With PMDD, the symptoms
associated with PMS become debilitating and can include: depression or
hopelessness, anxiousness, irritability, low energy, lack of interest, sleep
and focus disturbance, loss of control and feelings of overwhelm, and suicidal
thoughts. These symptoms tend to intensify as a woman nears her period and
finally begin to abate a few days into her period. Women with PMDD generally
feel themselves again for 7 – 10 days after their menses before entering the
cycle again.
I’m not crazy about another
label…another diagnosis…especially one categorized as a depressive disorder
which, to me, shows very little understanding of the scope of symptoms
different women have. I’m not crazy about listening to “experts” tell me about
myself and never have been. What I am interested in is knowing my own truth for
myself, suffering less, finding ways to cope and relate, and living as fully as
I can. And I want to help other women reeling with this monthly curse and
feeling that they are robbed of half of their lives to do the same.
Do I believe in PMDD? Not as boxed-in
psychological babble and checklists, certainly. I’ll never see a doctor for it
myself. But it is a condition with which I resonate with unquestionable
certainty. I’ve charted my cycles. I know when “the shift” is about to occur. I
know when it is over. I know it is linked to my cycle. I know the changes I
feel are described by other women who think they have PMDD, too. I know the
challenges such changes bring and the impact they have on my life. I know my
perspective goes out the window. I know some months are worse than others. And
I totally relate to the increasing amplification of symptoms as I near my
period and that feeling of complete and utter relief when suddenly the sun is
shining again a day into it.
Maybe we need another word for it…one
not bound up with so much baloney…one immune to the twisted machinations of men
who hate women and women who hate themselves. I don’t know. Here’s what I do
know: this is my experience. Maybe it won’t be mine in two years. Maybe it
wasn’t mine two year ago. But it is mine now. Bravely facing that self and
being open about it with others going through the same experience is crucial.
There is power in numbers, and we’ll learn more by exploring this together. If
nothing else, maybe the diagnosis of PMDD will simply prove to be a means for
women to talk about what being alive as a women today is like for them. That
itself is a relief.
Liana's
note: The above guest post was written
by the blogger Cheekyminx. With her permission, several of her posts about PMDD
are featured on this blog. In the meantime, to find out more about her work as
a PMDD Advocate, please visit her Facebook page, PMDD Life Support.
Sunday, July 30, 2017
CIZE Does Matter - A PMDD Exercise Challenge
For todayʼs guest
post, please welcome The Healthy Hackress.
Her PMDD thread will be ongoing, and I will be happy to post updates
here, but if you don't want to wait for me, please follow her journey with PMDD
and exercise either on her Facebook
page or blog. She also has a lot of great ideas for—What
else?—healthy hacks! Well worth checking
into, even if you donʼt have PMDD.
Recently I was diagnosed with PMDD. Here is my journey from
diagnosis, to treatment and more importantly, how Cize by Shaun T gave me my
life back.
According to research, PMDD affects 2-10% of women during
their reproductive years. It’s common. Very common – but misdiagnosed and
misunderstood. Thousands of women right now feel at a loss and don’t truly
understand why they don’t feel “normal” or worse, why their life literally
falls apart starting two weeks prior to their cycle. Isolation, fear and shame
are all too familiar feelings of women suffering from PMDD. I am one of them.
Do these symptoms seem familiar? Is it you or someone you love?
PMDD is a mood-based
hormone disorder that is cyclic and reoccurring. Sounds like a death sentence,
right? Imagine, every single month you know “ITʼS” coming. You’re not sure why
but two weeks prior your cycle you’re all over the place. It's like ADD meets
Bi-Polar for a 2 week fling, then they break up…until next month. You’re
clingy. You’re crying one minute, screaming the next, then sitting quietly,
unsure of WHAT just happened. Feeling a bit like Norman Bates with those “episodes.”
Seriously – that’s PMDD. If you have a significant other and
they haven’t left you already (because, PMDD truly affects all relationships) –
then you’re lucky. They feel it too – but they don’t understand.
You don’t need to wait for a medical professional to confirm
a diagnosis of PMDD – it’s self- diagnosable. You track your symptoms and
report to your doctor. This is a great tracker that you can use from The National Association for Premenstrual Dysphoric Disorder [now known as the Gia Allemand Foundation]. Basically, track how
you’re feeling before, during, and after your cycle (anxiety, mood swings,
irritability, sleep issues, etc). Your doctor is going to ask you to do this –
so, if you go in already prepared you’re that much further ahead. This process
took me 10 LONG months. Each month I tracked my symptoms so when I went to the
doctor they couldn’t turn me away and just tell me, “Everything is
normal.” If you’re living with someone
or have close friends/family – ask them to track for, or along with you. When
you’re in “IT” – it’s very difficult to emotionally and mentally report back.
Having someone point certain behaviors out can be hard – what I mean is,
someone is going to tell you the RIGHT thing at the WRONG time – because,
you’re not mentally/emotionally grounded. Try to remember – you NEED to hear
it. Their unbiased observation is going to provide necessary data for yourself
and doctor when treating YOUR PMDD.
Once I had all my data I made that initial appointment and received
confirmation that Yes, “It’s PMDD.Ë® Finally, things fell into place and I could
breathe a huge sigh of relief knowing I wasn’t crazy. Finally, someone was
listening, and everything I had felt was real & important. I had done my
research going in. I knew how PMDD was treated. I had questions on top of
questions. I needed answers. After all, my children needed their mother and I
needed myself. They started me on Yaz—reportedly the only over the counter
birth control approved for PMDD. Yes, I know—bad reviews, lawsuits, etc.—BUT,
when you’re in the Pits of Hell in the middle of a fight between Bi-Polar and
ADD—you’ll try anything to destroy their toxic relationship. I tried Yaz. After
my 2nd week both myself and my husband noticed a huge difference. I was less
spacey – more clear in my thoughts and finally felt as if I had control. Did I
still have anxiety at times? Sure, but mentally/emotionally I could WORK
through it opposed to the constant feeling of drowning. Did I have irrational
thoughts? Yes, but I was able to work through them. Yaz gave me some mental
clarity back. Unfortunately, I developed an irregular heart rate at 145 – even
when at rest. Physically, I was breaking down. After an ER visit and a couple
visits to the Dr. – I came off of Yaz.
Then I tried Zoloft. *sigh* If you know me – I’m ALL natural—from
giving birth naturally to treating headaches with almonds. I’m not huge on
medication unless it’s NEEDED. “Well,Ë® I said to myself, “I have to try everything
so I know at the end of the day – I did my best.Ë® 3 days later I caught myself staring out my
window watching birds & not caring that I was sitting there staring out a
window – Kathy Bates from Misery
anyone? The things that once made me laugh no longer put a smile on my face. I
wasn’t OK with that. I knew I wasn’t ME – bubbly, personable, caring – I wasn’t
me. I was only on 25mg and that’s not even the therapeutic recommended dose of
50mg for Zoloft. I then safely decreased (with the support of my Dr.) to 12.5
and discontinued it. Wasn’t for me. That isn’t to say that someone else may not
greatly benefit from SSRI’s.
Currently I’m on a different form of HRT (Hormone
Replacement Therapy) – Continuous Birth Control, which would halt the dramatic
changes in hormones and provide balance. I will need to report back on this as
this is my newest form of treatment. Along with the birth control I’m taking a
Vitamin B Complex, Daily Multi for Women – I Prefer Rainbow. Natural. Plant
based. Also, I’ve added 2 TBSP of Ground Flax Seed to my oatmeal in the
morning. According to research, Flax Seed can mimic the female hormone Estrogen
and provide other benefits such as relief from Depression. In my search for
Vitamins and Minerals that could/would provide potential relief from PMDD – I
came across some great work by Dr. Mark Hyman – He’s truly fantastic. I’m a
Certified PLATE by Zumba Instructor and he provided some of the training. Here
is a great article he wrote with vitamins and remedies in helping to relieve
PMS/PMDD.
Now, you ask “Why does Cize Matter Again?” I woke up one
morning very early. I couldn’t sleep and was just DONE with doctors not knowing
how to help. Done with being turned away. Done with being told “Everything is
normal.Ë® I was just done. From one failed medication to another I had it and
wanted/needed to take control back. Then I watched the infomercial for Cize. I
asked my husband to get it for me because I was willing to try anything to get
my new self and leave my old self behind. He did. I was nervous and hesitant. After
all, I had tried Insanity and Shaun T delivered. He kicked my A$$ and that felt
good. This time around I knew I needed something a bit more “me” – this was it.
Cize gave me that. From the minute I played the first day I was hooked. Losing
weight and becoming a size 5 was no longer relevant. Waking up everyday knowing
I could beat my anxiety became my goal.
Each day it became easier. I felt a bit better. I still had
the PMDD symptoms – but mentally, I felt stronger than ever. Shaun T will never
truly understand what he helped me get back. I’m in week 4 and I feel better. I
look forward to my routines with him because I know he’s right there telling me,
“You got this.” I know missing a day isn’t acceptable. Each day Cize is my
Zoloft, except I don't suffer from any side effects – like staring out a window
for 20 minutes or losing the ability to laugh at everything that once brought a
smile to my face.
Some women may need some additional SSRI as a support. Please
don't take my experience as true for everyone. Don't be ashamed. Each and every
woman needs to find THEIR treatment because PMDD for one is VASTLY different
for another. Listen to your body and
remember – doctors aren’t always right. Be your own doctor and researcher. Keep
a journal of symptoms and never, ever – stop fighting.
This thread will be ongoing. I will keep everyone posted on
my 60 day Cize challenge that I intend on making a routine for the rest of my
life. Each day I laugh more, feel the fight harder and see the results I’ve
been looking for all along. Mental and emotional health are far more important
than your physical appearance. That will come in time. Nourish your soul and
show yourself everyday that you matter – release those feel-good hormones
because exercise and movement is truly the first line of treatment for any
disorder.
Don't be ashamed to share your story, ask questions and or
seek support. If it isn’t a fight and doesn’t hurt getting it, it isn’t worth
it. Fight hard. Remember, it isn’t about the scale, it’s about how you feel!
If you know someone presenting with PMDD symptoms. Reach
out. Don’t push them away. Be a support. Share this blog. The biggest and most
deficient need of women suffering from PMDD is support. The National Association for Premenstrual Dysphoric Disorder provides great support.
Thank you Shaun T for being there & giving me the
strength to fight back.
Sunday, June 4, 2017
An Open Letter to Partners of Women with PMDD
Dearest Partners of Women with PMDD,
First of all, let me be clear. This letter does not come
with answers or solutions. This is not a "be all & end all" to
the chaos of PMDD. Every situation for every woman is different. Ergo (a word
not used often enough), no household is the same. After many conversations and
emails with men and women around the world, I've realized a few common traits,
however. There are similar feelings, circumstances, emotions, issues and
experiences...this letter addresses and recognizes them. This note recognizes
the real, true emotions and thoughts emanating from the souls of men (and
women) coping with a partner with PMDD. This is not a happy letter to make
everyone feel better...it's one that draws attention to the mindset reality of
living with PMDD. This isn't about me. It's about all of us.
I know you.
You're tired. Exhausted. You feel drained of all energy -
emotional, physical, spiritual. Perhaps you feel absolutely nothing at all.
You're like a zombie, going through the motions every day. But you're used to
it...it's who you've become. You don't like it - you wish you had more energy
and lust for life - but you give yourself a daily pep talk to survive the day,
praying that today might be better...and you're not even the one with PMDD.
You are constantly on edge. You never know when her
hurricane will hit. Predicting how one day to the next will transpire is
fruitless. Hour to hour, day to day...hell, even minute to minute, is a
pointless exercise. You see her, you love her, you feel for her but you wonder,
"What else can I do?" - you've already tried everything!
You've thought about divorce. You've thought about having an
affair. You've questioned your life choices...and those thoughts scare the hell
out of you. So why do you stay? Why do you remain committed in a relationship
that causes you stress and, most likely, shaves years off your life? Perhaps
it's because of the words, "...in sickness and health...'til death do us
part..." or maybe you're a glutton for punishment or feel, deep down, you
can fix her or save her. Possibly, you fear what she'd do if you left. If you
have kids, my guess is, you're there for them, more than her.
You've probably heard from her, more times than can count,
that she "needs to do (this) or (that) because it might help" - this
may include taking a course, going for a run, spending a day or two at the spa,
getting massages, nights out with her girlfriends, binge watching Sex & the
City or Supernatural, spending a few days here and there away from you (and the
kids)...but can you do the same? No. Can you just take off for a few hours and
have the day just for you? Probably not. Deep down, you wonder, could she handle
the kids for 3 days without me? Your/my gut says no. The time you have out of
the house is, most likely, spent getting groceries and doing things that need
to be done to make the house and your life a little better.
You don't get enough downtime and, when you do have the
opportunity to sit back and chill, your mind's still racing. Most likely, you
just want to watch something pointless or mindless, have a beer and fall
asleep. The thought of watching a show that has deep thoughts, intellectual
content or educational information further stresses you out because your mind
can't relax...there's no shut off switch to settle your brain.
You probably don't hear "Thank you" or "I
love you" nearly often enough...and, as for, physical expressions of love?
Not so much. (Or, at least, not like it used to be). But when SHE wants it, you
must provide! Perhaps sex - or any form of intimacy - feels like a
chore...another task to complete. Or perhaps, when it finally happens - a
moment together, both of you in a positive, awake state of mind - it's a
relief...an opportunity to forget about the trials of tribulations of the past
few days.
You say words but may not mean them...or they don't have the
same feeling behind them like they used to: "I love you" - perhaps
it's said so she can hear the words but, your feeling behind them is different.
"It'll be okay" - knowing, deep down, it'll get better for her but
not for you. Her diatribes, constant needs, argumentative statements,
vitriolic, mean words...you'll remember them and hold onto them and think of
them all too often. You'll start to believe them - or, at minimum, question who
you are based on her hurtful words. You say, "I'm here for you" but,
perhaps deep down, you wish at that moment, you weren't. "
You question everything & constantly overthink. When
you're sitting on the porch with her, having your coffee or glass of wine, and
you hear her sigh heavily, you wonder if that's a sign of impending doom -
something dark on her mind, or a coping mechanism to calm herself...or maybe
she's just relaxing for the first time in awhile. In any case, you don't ask
because "is everything okay?" or "what're you thinking?" or
"something wrong?" might set off a chain of events you don't want to
deal with.
You constantly look for ways to control your environment -
from the way you schedule your day to what you cook for supper or how you
organize things around the house. More often than not, when she's in her state,
decisions are a further stress and amplify her anxiety. What do you do? You
make all the decisions, thinking that'll make life easier for her. Yet,
unfortunately, it doesn't often work out that way. Perhaps it's her response of
"you should've asked/told me" or "why didn't you let me
know?" or "if you loved me you'd have..." Friends may say,
"Damned if you do, damned if you don't" but, to you, it had to be
done. Survival instinct kicks in and you do what you need to do.
On the good days, when she's positive, upbeat, full of
energy, revitalized, you struggle to enjoy the moment...you don't know how long
it'll last...you fear the bubble popping...you're still on edge and, most
likely, get down on yourself for not being fully present with her. Even when
you know you SHOULD be enjoying yourself, you can't.
You're not fully present on a good day. You're not fully
present when you're supposed to be having fun or enjoying life. But you ARE
fully present when you're surrounded by her chaos, negativity, anger,
frustration and darkness. Think about that for a moment:
You're only fully alive when you're being torn down, when
your life force is being given to someone else, when every moment of your day
is spent making sure your partner (and your household) lives to see another
day.
You probably mutter or mumble under your breath as you walk away
from her...things you wish you could say out loud but, knowing the damage
they'd do to both of you, respecting her mental state, you keep it to yourself,
tucking it deep inside where the feelings fester and ferment. Maybe those words
of resentment will go away...or, maybe they've established a symbiotic
relationship with your soul. These periods of resentment...they grow in number
as the years go on...your thought process dips its toes into the murky waters
of ire more frequently and easily.
You're constantly seeking an outlet for your tension.
Nothing seems to work. Perhaps you go to the gym but, for some reason, you cut
your workout short because you're worried about her...or you're too stressed to
even relax to workout fully. Or, maybe, you go for a pint with your mates but,
you're not fully present...your mind is elsewhere, wondering if she's okay. And
you cut your night short because you know you need your energy to deal with the
next day.
You feel guilty when you do something for you. Whether a
ball game or buying something online, you wonder how she'll react or what
she'll think or if she'll resent your 'selfish' ways. So you begin doing less
and less for yourself, channeling your energy into your family and her.
If you have kids, you wonder what they'll remember about
life in the house, growing up. Will they remember how Mommy hardly slept in the
same bed as Daddy? Will they remember how Daddy would always wake them up in
the morning, get them dressed, make them breakfast, pack their lunches, cook supper,
clean the kitchen, do the laundry, get the groceries? Or will they remember
that Daddy didn't have enough time to play with them because of everything he
did to make the house function?
You cry. Sometimes there are tears streaming down your face
or sometimes you're crying on the inside. But, regardless, you're sad. You're
upset - at yourself, at her, at a higher power, at anyone, at no one - yet you
keep it to yourself. It's your burden. Perhaps you feel like you asked for
this. Perhaps you believe this is your own private challenge. Know you're not
alone. There are people out there to help. People are there for you. They want
to help...they're waiting at your doorstep...it's up to you to let them in.
This letter is part vent, part affirmation. Maybe you've had
some (or all) of these thoughts. Maybe you can't relate at all. In any case,
you aren't alone. Like a phoenix rising from the ashes, strength builds from
pain. For whatever your reasons, your resolve to remain committed to someone
struggling with the very fabric of being, is powerful. While my words may not
be enough, you are a great person, standing beside someone who needs you more
than words. You may not hear it enough or feel it or even believe it but your
presence is an amazing gift - not only to her but to the universe. You make her
world - and the world around you - a better place.
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