The following guest post was written by the blogger Cheekyminx. With her permission, several of her posts about PMDD are being featured on this blog. To find out more about her work as a PMDD Advocate, please visit her Facebook page, PMDD Life Support.
Many women the world over experience the
usual discomforts associated with the premenstrual cycle. PMS is a well-known
condition that often includes irritability, bloating, and physical pain. But if
you feel like PMS takes you out of commission every month, there may be more to
it for you. Could you be one of the growing numbers of women who realize they
are suffering from Premenstrual Dysphoric Disorder, or PMDD? What many women,
and indeed many doctors, do not know is that in 2013, PMDD was officially
recognized as a mood disorder (this classification will have to do for now)
experienced by about 10% of all women who menstruate.
Now word is getting out. So how do women
who have PMDD discover they have it? PMDD is caused by a sensitivity to normal
hormone fluctuations rather than a hormonal imbalance, and getting tested for
hormone levels usually reveals nothing. Many women discover it when they are at
their wit’s end, having tried birth control, antidepressants, and other
treatments to target symptoms they often think are the result of something
else…like bipolar disorder or depression. In fact, many women with PMDD report
not only PMS-like symptoms that are extreme and debilitating, but also much more
dramatic and difficult-to-manage changes in mood and thought patterns, often
leading to misdiagnosis. But intuitively, they know there’s something about
their monthly cycle that seems to be playing a role, so they begin to chart
their symptoms.
These symptoms are numerous and vary
from person to person but generally involve anxiety, increasing irritability,
hypersensitivity of the senses, depression, rage and other uncontrollable
emotions. Thoughts can become insistent and feel “uncharacteristic” to the
person having them. It is as though the mind becomes polluted, distorting
everything. PMDD also seems to exacerbate underlying medical conditions, making
it unique to every woman and can include dizziness, sluggishness, bloating,
heavy bleeding, and sore muscles. But by and large, it is the increasing loss
of patience and intensifying irrationality that makes PMDD such a nightmare,
not only for the women, but for the people they love.
In fact, many find that during the 10-15
days of their hormonal sensitivity, they lose interest in their partners…not
just sexually, but often to the extent of detesting them altogether. Some
report regularly breaking up with their partners on a monthly basis. This
Jekyll and Hyde transformation wrecks havoc on relationships of all kinds, not
just romantic ones. It’s difficult for mothers to parent and for employees to
continue with duties as usual. Overwhelmed by fatigue, cravings, paranoia, or
even suicidal thoughts, normal life remains out of reach until the sensitivity ends,
usually with the onset of menses–though there is debate the sensitivity
fluctuates for some women at other times in their cycle. What’s important to
realize is that the symptoms do disappear, sometimes instantaneously, whether
it is the day the menstrual cycle starts or several days later. And suddenly,
things are back to normal…but often leaving a great deal of destruction behind.
In fact, women with PMDD often feel as though they spend two or more weeks a
month in hell and the other two or less making up for it.
Think you might have PMDD? Here’s what
you’ll want to do:
1. Start by paying attention to your
cycle and taking notes. Get yourself a pocket calendar or use and app like
iPeriod or PMS Tracker. Then start keeping track. When do symptoms hit? When do
they stop? What are the main symptoms and to what degree are they experienced?
Do they progressively get worse? Think not just of physical symptoms. Consider
your emotional and mental states as well. Are you more prone to tears or
anxiety? Is it more difficult to think positively? Have others commented about
a change in your mood?
2. Take several months of your notes
with you to your doctor if you decide to take a Western approach. Explain that
you think you may have PMDD. If he or she dismisses you, find another
doctor–one who will help you determine whether or not you have it, explain your
options (they aren’t all that great at the moment and there is no known cure),
and work with you to help you cope.
3. Educate yourself and find additional
support. As a relatively new disorder, there is still much to be discussed and
researched about PMDD. Read up on it online and talk to others who have it.
Women who realize they have a condition with a name to it are usually very
relieved when they realize they are not alone…and not crazy! Facebook has
several groups, both open and closed, including a support group for family
members of PMDD sufferers that offer insight, coping strategies, the latest
science, and a safe place to vent.
If you do indeed have PMDD, now that you
know, you can give yourself the support you need to get through it. It may call
for changes in your diet, supplements, exercise and meditation, or even
medication. And if you don’t have it? Chances are you know someone who does,
and she might not realize what it is. So share what you’ve learned with others
and help spread the word about PMDD.
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