Taking Time Out to Catch Up on My PMDD Research

It’s Wednesday, and time to put up another post. Things have been hit or miss the past few months, due to having so much non-PMDD stuff going on in my life, and not having enough time to write any well-researched posts. I’m grateful to Cat Stone for allowing me to share her awesome artwork and PMDD Crisis Guide, which has allowed me to keep something new and fresh on the blog at least every other week. She’s been a lifesaver in that regard.

Yesterday, when I was thinking about what to write for today’s post, I realized I once again didn’t want to throw something out there just to have something to post. This is a blog devoted to helping people with PMDD and those who love them to better understand this often debilitating disorder. It’s not about me and my ups and downs, it’s about using what I’ve learned to help others to find peace and some sense of normality. So there’s no need for me to share whatever vague thoughts are rumbling around in my mind just to fill up an empty space.

That said, I haven’t been completely idle regarding the blog. To follow up on my last post, I’ve been busy doing more research into the connection between PMDD and the cycle of menstruation—have uncovered some fascinating stuff--and once I have my thoughts and facts in order, I’ll post them here. On a more personal front, I’ve been seeing a nutritionist in my ongoing efforts to manage my PMDD. That is not going well, and when I write up the account of my experience, I’m sure a lot of you will nod your heads in understanding, as I’m sure many, if not most of you have experienced the same frustrations. But again, I need to wait until my research is complete to write about it.

So for this week, I invite you to browse through past posts—a good place to start would be the over on the sidebar, under Popular Posts. (I’ve moved it to the top of the page for now to make it easier to find.) You’ll notice three of the top ten are posts for men on how to deal with a partner who has PMDD. Lots of good information there, and well worth reading (or passing on to a caring partner) if your relationship is in any kind of trouble.

Another good post is More Things That Make Your PMDD worse. A Perfect Storm of PMDD describes in detail what it’s like to have an episode of PMDD. And if you haven’t read it already, my favorite post is They Only See Our Failures.

Until next time…please continue to read, learn, rest, relax…and Be Well.

The Connection Between Menstruation and PMDD

There’s one school of thought regarding PMDD that claims PMDD is not biological in nature at all, but rather a set of fanciful and imaginary symptoms devised by women as a means of expressing our discontent with our lot in life. Mad at your husband? Claim PMDD. Mad that you don’t get paid as much as a man when you’re doing the same work? Claim PMDD. Mad that the evils of the world have been attributed to women by organized religion? Claim PMDD. Feel like it’s unfair that you have to stay home with the kids while your partner gets to go out into the world and make his mark during power lunches, golf games, and beers with the guys? Claim PMDD.

In short, we’re not happy with our designated role in society, and so we have come up with a way to protest this arrangement by behaving badly and (hopefully) getting away with it. Science and medicine have nothing to do with it. There are no biological reasons for behaving the way we do. We’re simply a bunch of disgruntled women who have decided we don’t like the status quo.

So the best way to combat this insurgency is to deem us mentally ill, and classify our behavior as insane. Socially insane, if not legally so. The next step is to get us to buy into the stereotype. To get us to believe we are as crazy as they say we are. I’ve just been over at Facebook on the PMDD pages. The posts are full of women calling themselves crazy bitches and other references to insanity.

You are not insane. Your PMDD is real. It’s a biological condition, caused by a temporary fluctuation in your female hormones that *somehow* creates an imbalance in the chemicals in your brain, which in turn causes a disconnect in your thinking processes. It’s this mysterious *somehow* that nobody in the medical field seems to be able to pinpoint, any more than we know the underlying cause of cancer, or diabetes, or any number of disorders and conditions. Just as with those diseases, we’ve been able to identify many contributing factors, but not the actual cause(s).

Having just this week taken another quick dip into that realm of being disconnected, the memory is fresh in my mind. For the past three days, the weather here has been phenomenal. Perfect. Warm, sunny, splashes of vibrant color breaking out everywhere. It’s spring here, and rebirth and renewal are in the air. How can we help but feel blessed by the natural beauty that surrounds us? The generation of new life, the knowledge that whatever may be happening in our own, small, individual lives, overall, Life goes on, and it is inherently good.

As I sit or walk outside and experience nature blossoming all around me, hear the birds chirping, feel the sun and breeze on my face, see and smell the trees and flowers coming into bloom, I can intellectually understand the wonder and beauty of it all, can mentally acknowledge that Life is indeed beautiful—and it is--but am I feeling the Love?

Not. Why not? Because my brain chemistry has been temporarily altered, due to the fluctuations in my menstrual cycle, and there is a clear and distinct disconnect between my thoughts and my emotions.

Yesterday I wanted to weep. The day before that, I wanted to rage. The day before that, I was too tired to appreciate anything but the chance to take a nap.

This has nothing to do with my designated role in society. This has to do with my brain chemistry, period. I am not wanting to weep over the fact that women don’t get paid as much as men who do the same work. I am not raging at the idea that women have been blamed for all the evils in the world due to the doctrines of organized religion. I am not exhausted from having to take care of the dishes and the laundry and the myriad tasks that comprise taking care of a household and family. In fact, I do these tasks with love, as they bring me great satisfaction, knowing my home and family are lovingly cared for.

While I’m not happy with the societal conditions described above—I’d certainly like to get paid as much as a man in the workforce, and I’m not at all thrilled with the idea that women have been relegated to the status of a less than second class citizen by my faith, or that society in general sees women as either sexual objects or useless, with no in-between--those conditions are ever present every single day of my life. Those are my reality.

Why then, am I not furious, weepy, and/or exhausted every day if I’m so discontented with my lot in life?

You see? The theory that PMDD is just an excuse for women to express their unhappiness with the way things are just doesn’t make sense.

There are some theories that during a woman’s pre-menstrual time the so-called *veil* is lifted and we can see our overall connection to Life more clearly. For a few brief, shining moments, somewhere in the middle of our busy, overscheduled days, or maybe even the middle of our restless nights, we might suddenly see our relationships as they truly are, or discover an important revelation about our finances, our work situations, our living conditions--maybe entertain a thought or two that causes us to consider or reconsider any doubts we might have about our choices or our beliefs…

But it doesn’t cause us to go bat shit insane.

Think about this. It can’t be just your period coming that makes you go over the edge. Periods are a natural, normal part of the cycle of life, of fertility, of renewal.

To send you over the edge, something else has to be going on. Maybe even a lot of something else’s. Maybe even someone standing there, giving you a push.

Hey, it happens. More often than we’d like to admit. But that’s a topic for another day.

Today, we want to try to sort out what your part in all of this is.

So traditionally, the second half of the menstrual cycle is a time of personal insight, intuition, and clarity. This is normal. This is natural. This is the way God intended it to be. There was a time when a woman’s menstrual cycle was revered, respected, and yes, celebrated. A time of rest, reflection, and the potential for great wisdom.

Unfortunately, for us and for society in general, now it’s become nothing more than a curse, an inconvenience, a way for society to deem us as somehow unclean and flawed. Something to be ridiculed, suppressed, and avoided as much as possible.

Why is this, and how did it come to be?

That, too, is a topic for another day, but something we need to be thinking about in the meantime. So please, take some time out this week to think about your period. What it means to you. How it was explained to you, how you think about it, feel about it, handle it, and discuss it—if you even do. Or do you ignore it, pretend it simply isn’t happening?

How can we ignore something so fundamentally crucial to the well being of our bodies? How can we hate it?

PMDD women hate it because our menstrual cycle is what sets off this monthly--sometimes bi-weekly if we’re especially sensitive—chemical imbalance in our brains. The chemical imbalance that causes us to say things we don’t mean, do things we don’t want to (and would never do otherwise), make bad choices and decisions, hurt the people we love the most, and want to hurt ourselves.

But what if we came to understand it better? Came to understand that it’s not really the menstrual cycle—I mean, at least 90% of women who menstruate don’t have PMDD—but rather something unique that happens to PMDD women, in concert with our menstrual cycles.

In other words, don’t kill the messenger.

Just like women have been unfairly blamed for most of what’s wrong in the world by various sources, aren’t we unfairly blaming something normal and natural and an essential part of Life for something that really happens in our brains?

After all, isn’t when your period starts when the PMDD symptoms stop?

So let’s try flipping this idea around and see what happens. Can you just, just for a month or two, try seeing your period coming as something good and positive? Can you start to learn the natural rhythms of your body, and come to realize that your PMDD is just one aspect of a really complicated biological condition? A condition caused by something somewhere out of balance?

Can you start to look for the things in your life that might be out of balance, and allow the natural and normal process of wisdom and clarity to come through as you wait for your period to come? Can you make note of the thoughts that arise, and not act on them in your PMDD state, but set them aside until the PMDD passes and you can deal with your thoughts rationally?

In short, can you learn to be your own best friend? Can you stop beating yourself up for things you can’t control? Can you stop buying into the societal conditioning that women are too emotional and irrational to start with, and you’re just a crazy bitch in the extreme?

Because I think that once you do…once you take a few minutes out to stop and THINK about what you are allowing yourself to believe, about yourself and others, and once you try to view your menstrual cycle in just a slightly different manner, as I’ve suggested here, you might come a little closer to understanding this mysterious chemical imbalance that wreaks so much havoc in your life.

And once you do that, you’ll be able to start sorting out what is your PMDD, and what is not.

And as you begin to start untangling all the different threads that make up your Life, you’ll start to feel better.

Count on it.

PMDD Crisis Guide - The Mental Realm of PMDD

This week we continue with Cat Stone's PMDD Crisis Guide...welcome back, Cat!

You can find the Introduction to Cat's Crisis Guide here.. and her post on the Physical Realm here.

The Mental Realm

This realm is where you will find your thoughts, and inevitably, the things you say. Over time this realm is programmed with reactions and responses to things that you are told, or things that happen around you. This realm for a PMDD sufferer is usually very chaotic.

During the hormonal changes in a woman's cycle, her body will undergo changes and present physical problems. These are a little easier to deal with than the changes that go on in the mind during this time.

This is probably best represented by the term, 'mood swings' although that would suggest the problem is just an emotional one. It isn't. The chemical changes in the body actually create false moods, which often bring about 'false thinking'.

A PMDD sufferer will experience random thoughts, seemingly crazy thoughts during their 'bad' time of the month. Thinking outwardly becomes impossible. Seeing the bigger picture seems impossible. All thoughts become inward and bad memories surface. Reactions to what people say, can trigger a negative spiral of thinking that can be overwhelming.

For me, it's like a constant battle in my head. I KNOW how I would normally react, what I would normally think, but during that time, things are not normal. I begin thinking I'm the worst person in the world, that my kids would be better off without me. I think about my past and all the painful things that have happened. I think people should leave me alone, not bother with me.. I lose all my self esteem and belief. All the things that normally get me through no longer work... The clothes I wore last week don't look right, even though it's the exact same outfit. I look in the mirror and see something completely different. This change in perception is quite common in all women who suffer from PMS, but when it means you don't leave the house because you have tried on 10 outfits, are full of tears, anxious, stressed out and frustrated, you know you are suffering from something worse.

My thoughts spiral out of control during my PMDD time, but I am learning to control them. Realising that your thoughts are not really your truth, takes time to happen. I often say... 'In my good head, I know this is true... but right now, I think that blah negative blah' I can recognise what I would think if I were in a good week, and what I am actually thinking. Dealing with the emotions that these bad thoughts bring up is harder than trying to control the thoughts, but keeping your thoughts in check goes a long way to steering a breakdown off course.
After talking to many women who have PMDD, it is obvious that they all feel like 'Jekyll and Hyde'. In fact, you will find that term used quite often when describing PMDD.

A woman with PMDD will find herself thinking about abandoning her kids, and how she'd do it, and how she'd get away. Or leaving family, friends or job. She may think the answer is suicide and spend many hours debating suicide, going through plans or writing her note to leave behind. She may think about drinking till she sleeps, or hurting herself. Her thoughts will turn to guilt, and she'll sit and think about all the damage she has done to her family or friendships, how lonely she is, how no one will ever understand. I know this to be true because I have done all these things, on repeat... for years. These thoughts are what drive people to harm themselves, along with the negative emotions, and it's why it is important to try and get these thoughts under control.

What also changes at this time of the month is the way you speak. This is governed by your feelings, and the things that are going on in your head. A chilled-out, mild-mannered woman will turn into a screaming, shouting, crazy, scary beast. You think I'm joking? This is one area the most damage can be done to your family and friends. The things you say. I would bet that every woman with PMDD has had an episode, and when the storm has died down, has had to think about what she has said to the people she loves. Nasty, spiteful, bitchy, outrageous things. Stuff you would never let leave your mouth. Goddess forbid you argue or fight with a PMDD woman having a bad episode.... Sanity has left the room. Like a caged animal, you want to fight. You are feeling so tired, so low, frustrated, wired, scared, you want to die, you don't care what happens. In your head, your mind is telling you you are terrible, shameful, worthless, then it tells you you will never get away from this nightmare, you will have to do this till the day you die. You worry about every aspect of your life. Will my partner stay with me? What if I hurt my kids? How can I keep doing this? I'm tired... oh so tired... I just want to go to sleep and not wake up.... What will happen if I just walk out the front door now. Mind is on OVERDRIVE.

There is a great lyric, by one of my favourite 'bands'.

How hard is it to decide to be in a good mood, And then just be.. in.. a good mood?
Dan le Sac vs Scroobious Pip - Waiting for the beat to kick in.

Ha.. yes, it's a man talking, and he has never experienced PMDD, but sometimes, you do HAVE to just decide to have a better day! FOCUS on having a better day. Focus on other things other than the thoughts.

Writing or creative outlets can help focus the mind on other things. Baking a cake, going for a walk, going to the library. Having a job can be a great focus... Distraction, distraction, distraction.
If you cant work, volunteer.. or use your time more wisely. It is too easy to let yourself dwell on the past, and mistake hormonal thoughts for the truth. It's easy to let yourself spiral. It's much harder to find the strength to change your thoughts. (Italics added by Liana.)

Some days, it is too hard to get out of the spiral. Some days, you just CAN'T. So what do you do?
Allow the thoughts to come, acknowledge them, then let them go. It's holding on almost compulsively to negative thoughts that feeds the downward spiral. You can even start talking to yourself (assuming you don't already!) and by that I mean...

'Oh hello, negative thought... what was that? I am crap mother?'

'Yes.. you are the worst mother ever, look at you, you hardly take the kids out anywhere, and most the time you are so caught up in your selfish head, You are so selfish. You slept the whole day away and someone else looked after your kids... '

Now this can go two ways.... You can either agree, or totally kick its ass.

'So, you think I'm a bad Mum? Who else cooks for the kids and washes their clothes? Who else finds things to do on a shoe-string? Who else creates a tea party in the garden, with 5 mins notice?

I have seen my kids through everything, to the best of my ability... I love them, I put 100% in when I can, and when I can't, I may sleep, or be a bit distant, but isn't that better than screaming and shouting at them. I am not a bad Mum, and will not accept that. Next?

'You dont have a life.. you sit on your fat arse all day, and never go out. What career have you got? People think you are a sponger, you drain everyone. Your friends never ask you out, cos you never go. You might as well be dead.'

(Are you going to take that?)

'Of course I have a life! I'm here, aren't I? I have this and that, and am planning on doing lots of things in the future. Just because things have been difficult, doesn't mean I will always be like this. I do have friends! And the ones that don't bother with me, aren't worth worrying about. I'm happier with a few close friends, doesn't mean I'm not liked. I give what I can to others, when I can, so, NO, I don't accept that, today I'm feeling vulnerable and a bit depressed, but thats today. Not tomorrow.. or forever...'

Don't commit the future by how you are thinking or feeling on a bad day. (Again, Liana chiming in!)

If you can learn to remain calm, and blow up every negative with a missile of positive you will soon feel stronger and more in control.

We often feel we need outside help, but there is much that can be done by you, by just changing your thoughts.

If you feel you would like more professional help with your thoughts, I would recommend looking into CBT – Cognitive Behaviour Therapy, which helps you to define your thinking patterns so you can begin to change them, and NLP – Neuro Linguistic Programming, which helps you learn about your own ways of communicating and has an excellent way of re-shaping the way you perceive yourself, others and your thoughts and words..

We only use about 20% of our brains, and unfortunately, with PMDD sufferers, we have created such strong neural pathways, that we really do end up in one cycle of thinking. The connections our brain first started making years ago, that created the chemical imbalance, have become stronger and stronger. The more you sit back and allow it to happen, the more the brain feeds off the same thinking patterns. By attempting to break the cycle of negative thinking, you can start re-training your thoughts to support you, be your friend, rather than be your enemy.

Be careful of your thoughts, for your thought become your words.
Be careful of your words, for your words become your actions.
Be careful of your actions, for your actions become your habits.
Be careful of your habits, for your habits become your character.
Be careful of your character, for your character becomes your destiny.
~Author unknown

"Any intelligent fool can make things bigger, more complex, and more violent. It takes a touch of genius -- and a lot of courage -- to move in the opposite direction." ~Albert Einstein

Taken By Surprise...

This has been an odd month for me. After a couple of years of only experiencing PMDD symptoms every few months--due to the onset of menopause--for the past two cycles I’ve been back to my regular clockwork schedule of symptoms and a refresher course of how miserable PMDD can be.

But now, I also know how to manage and minimize it. I now know I am not my PMDD, and my PMDD is not me. After nearly forty years of cycling through it, being buffeted by first regular, then random storms of PMDD, I have finally learned to separate myself from my PMDD.

To do that, however, takes a great deal of self-attention and self-awareness. You have to listen to everything your body tells you. The body never lies.

But a PMDD body does lie. Imagine that. Your own body lies to you.

No wonder you feel like you’re going crazy sometimes.

I am a very much a positive thinker. Calm, creative, goal-oriented, and optimistic. Generally I sail through my days without a problem. I don’t sweat the small stuff, and half the time don’t even sweat the big stuff. Life has a way of working out for me, and for that, I am grateful. The more it happens, the more I learn to trust—to trust in myself and my higher power—that all choices made from that quiet place within me can be trusted and will lead me to good and positive outcomes.

So imagine my surprise last week, when a day I had willingly chosen to give over to helping a loved one get the medical help he needed, for me turned into an endless loop of mental frustration. What is this? I kept asking myself. This day is no surprise, and I chose to spend it this way, and yet….

And yet I can’t seem to stop the thoughts of anger, resentment, and frustration from welling up inside of me.

I did not let them out. I knew well enough that the person I was spending the day with was not the problem. But Lord, how I wanted to. Just wanted to let loose with every negative thought on my mind. We even joked about it.

Did you catch that? I was able to joke about my feelings in the midst of a PMDD episode.

And I didn’t even know I was having one. I just knew something was “off.”

It wasn’t until the following afternoon that I began to suspect it was PMDD. Thursday morning I procrastinated until it was too late to leave for my Qigong class, which I absolutely love. There’s no reason for me to miss the class, as everyone there knows about my PMDD and accepts me as I am. They welcome my arrival no matter what my mood, which I often announce upon coming in the door.

“Brain’s not working right today,” I will say, and everyone will know I’m a little off my stride.

So I skipped class—all the while asking myself, “Why would you skip something that brings such good things into your life?”

Remember, PMDD doesn’t make sense. It just is.

That afternoon, I found myself unable to focus on what I needed to be doing. My handwriting was off, and I kept getting distracted by the latest shiny thing—a new email, a new link to explore, a phone call to answer, a note to write, a snack to make.

Speaking of snacks, suddenly, for the first time in weeks, I wanted chocolate.

Should have been another clue, but I wasn’t thinking PMDD yet.

Not until the next morning, Friday morning, when I literally did not want to wake up. I swear to you, it felt exactly like when I woke up to a carbon monoxide leak in my house last November. Debilitating, bone deep lack of motivation and fatigue. All I wanted to do was sleep.

The phone rang and I dragged myself out of bed. An hour and a half later, I’m still yawning, yawning, yawning. It took extreme effort to keep my eyes open. Coffee didn’t help. At all. I don’t normally drink coffee, so if I do have a cup, the effect is immediate.

Not today. Not a blip of relief. I felt like I had an iron band around my head, my tongue was made of cotton and was also thick and swollen (which is one of my PMDD symptoms—allergy aggravation), I couldn’t get enough water to drink, and I was ravenous both before breakfast and less than an hour after.

I finally realized I wasn’t truly hungry…I just wanted to eat. Believe it or not, there is a difference. My stomach was full. But my brain was sending distress messages. What those messages were, I have no clue, because there was nothing distressing that I know of going on in my life—you know, like the kind of situation that spurs emotional eating…

I just know the signals my brain was sending were manifesting as a nearly overwhelming desire to eat.

It was hard, but I didn’t succumb. My food charting (another experiment I hope to share the details of some day) told me I had already eaten as much as, if not a little more than, I had on any other day. So this was not true hunger. This was my PMDD talking, not me. I was not hungry. The chart clearly showed that on any other day, I wouldn’t have been the least bit hungry…and believe me, I am not one to deprive myself of basic nutrition, because I learned long ago that it will only make my PMDD worse.

So I compromised with my PMDD, and spent the day sipping my favorite chocolate drink, because suddenly all I wanted was chocolate.

I did, however, go to bed really early that evening, in deference to my fatigue. Added to that was now a strange aching in my legs, all the way down into my arches.

What had happened? Had I pulled/strained a muscle somewhere? Somehow? How could I, when I’d skipped class on Thursday? It didn’t make sense.

I woke up 12 hours later, still sleepy. Still ravenous. Still wanting chocolate. Still aching.

Okay…by now I am beginning to realize what is happening here. It must be my PMDD. By noon it was confirmed. I started spotting.

Suddenly everything that happened the previous three days made complete sense. The strange and unreasonable irritability on Wednesday, the clumsiness, disorientation, and inability to stay focused on Thursday, the lack of motivation, intense lethargy, fatigue, and ravenous appetite on Friday. The chocolate craving, the sensation of an iron band tightening around my head, the urge to weep, the dull ache in my legs.

I continued to eat normally, despite the ravenous hunger, sip my favorite chocolate drink, and headed off to the gym to walk around the track, even knowing it was the last thing I wanted to do. But exercise had helped before, and I wanted to experiment, wanted to see if there was actually something I could DO to make it better.

The first twenty minutes I felt like I wanted to vomit. No lie. Around the half hour mark, I started to feel a little better. By the 45 minute mark I was heading back toward an even keel. Came home, made a healthy, carb-laden supper, then went to church.

Things weren’t completely right, however, until I went out for a salty bowl of chicken noodle soup afterward.

Go figure. But for some reason, after the soup, I came home full of more energy than I’d had in three days. I was psyched, ready to take on the world.

Instead I rested and read and had a cup of tea. The storm wasn’t over yet; that was just the eye of it. Been here, done this enough times to know this thing comes in waves.

Sunday morning I was dozing again when the phone rang and woke me up. I didn’t have nearly as tough a time waking up as I had on Friday morning. Huge difference between then and now.

Why? The menstrual blood was flowing.

And because of that, I made it to my next Qigong class and the grocery store and was able to focus on a couple of creative projects I needed to complete.

The first wave of the storm had hit, and I weathered it. Mostly by repeating this is not me, this is my PMDD. I am not angry, resentful, mad—that’s my PMDD talking. I am not hungry, that’s my PMDD talking. I have no reason to cry—that’s my PMDD talking.

Unfortunately, there was not much I could do about the fatigue. But getting out for a walk definitely helped with that.

The good news is (except for one cup of coffee) I managed to avoid the quick-fix stimulants that so many of us use to get past our fatigue, stimulants that only make our PMDD hit back even harder. Tobacco, alcohol, caffeine, sugar, energy drinks.

You, too, can weather the storm, whether yours comes in waves, or all at once. It just takes an enormous amount of effort to do so. Not everyone has the time or energy or circumstances to be able to do it. I understand that. I accept that. You need to accept that too, and simply start wherever you are right now.

Start with what you have, start with whatever symptoms present themselves. Try to sort them out like tangled threads. This part is me, this part is my PMDD. I am not my PMDD. I am better than my PMDD. I am stronger than my PMDD. I will not allow my PMDD to define me.

And I will not allow anyone else to define me by it, either.

Because they have never slogged through the storm in my shoes.

Until you know how it feels to have a brain and body that sends basic biological signals contrary to all conventional wisdom and common sense, you will never understand.

To those who do, you deserve to be congratulated and applauded--not dismissed, discounted, and ridiculed.

We are the strong ones, we are the survivors, and we are not our PMDD.

PMDD - They Only See Our Failures

I’m one of the fortunate few. Through years of carefully cultivated self-awareness, I’ve finally learned how to separate myself from my PMDD. I know that I am not my PMDD. But millions more women are out there, valiantly struggling to get though each day, secretly convinced they are going mad, and simply hoping, even praying, that one day they will wake up and the nightmare that lives inside their minds will be over.

On the outside these women may seem to be coping—some of them even coping brilliantly by all external accounts--but on the inside they are terrified by--and of--this mystifying cycle of emotional imbalance that hardly anyone understands.

They’re also afraid to tell anyone, for fear that those people, too, will think they are crazy.

Or worse, they’ve tried to tell others—friends, family, medical professionals--and have been discounted, dismissed, or simply not believed. Or perhaps the symptoms of PMDD have crashed over their internal walls and manifested themselves, and those they spend the most time with and/or are closest to have already deemed them as somehow defective. She’s a moody one all right, sweetness and light one minute, a raving bitch the next. What gives? What’s wrong with her? How can anyone be so freaking out of control?

Everyone wants to be normal, and PMDD women are no exception. But PMDD doesn’t do normal. PMDD is a biological imbalance in your brain that manifests itself both physically and emotionally. It’s the emotional part people can’t deal with. Women the world over are no stranger to physical discomfort. We can be feeling like something the dog dragged in three days ago and still meet our commitments, care for our families, run households and offices and companies and governments, head up foundations, give speeches, present or accept awards, create beautiful works of art, love our partners, and still get dinner on the table in time.

Women are awesome. We are born with the gifts of joy, laughter, insight, intuition, sensitivity, kindness, compassion, creativity, cooperation, and multi-tasking (our biggest downfall, as we routinely take on too much.) We have more endurance than men. We have more tolerance for pain, be it physical, mental, spiritual, or emotional. We are passionate in our beliefs, and loyal to those we love—even when that loyalty is far from returned.

If a woman had a broken leg, and was temporarily hobbling around on crutches, most people would understand if she was a little tired or edgy or weepy during the course of her day. Most people would offer to help, open doors, fetch and carry things for her, run some errands, give her opportunities to rest and refresh herself. Most would give her some leeway to maneuver as she tries to navigate through her suddenly complicated day. At the very least, they would try to be tolerant if her frustration spilled over.

But when our brains are temporarily broken, as in the case of the PMDD phase of our menstrual cycles, there are no boldly visible cues, like a pair of crutches. Sure, the sparkle in our eyes may dim, our heads and hearts and joints may hurt, our handwriting may become stiff and awkward, our reflexes slow and clutzy, but only those intimately acquainted with us may be able to notice. We might not even notice these things ourselves, if we aren’t paying close attention to our bodies. Which most women don’t, we’re so used to putting our own needs aside and fulfilling the roles we play for others—mother, daughter, sister, partner, caretaker, breadwinner, coordinator, confidante.

So silently we slog through our PMDD days, knowing we feel fragile inside, but with no visible way to communicate that to the world—other than our emotions. All through our lives, we’ve been socialized to believe emotions are bad for everybody but actors and actresses. Real people need to suppress their emotions. Emotions get you in trouble. Emotions are counterproductive. Emotions are messy and scary. Don’t make a scene, don’t make a fuss, don’t get hysterical, and for God’s sake, don’t ever cry.

People can’t handle it when other people cry. Men especially can’t handle it when women cry.

Anger is the accepted emotional outlet for men, but there is no acceptable emotional outlet for women. Women are not supposed to get angry. If we get angry, there’s something wrong with us—we’re being countercultural. Little girls are sugar and spice and everything nice. Women who show anger are frowned upon, called all sorts of derogatory names, dismissed, discounted, deterred and destroyed, one way or another.

And so most women turn that anger inward, where it manifests as depression.

This is what happens to someone who passes for a *normal* woman, mind you. But remember, PMDD doesn’t do normal. PMDD lifts the veil on all those suppressed emotions, all those bitten lips and mounting frustrations life throws at us, turns off the biological mechanism that holds all that suppressed emotion back, and flips the switch to ON.

PMDD is your steam valve, honey, and like clockwork, once a month it lets loose.

If you’re especially unlucky, it happens twice a month, catching you on your ovulation cycle, as well.

And when that happens, we fail. We fail spectacularly. We rant, we rave, we cry and throw things. We break things, too. Dishes and doors, spirits and hearts and hopes and dreams. We say things we don’t mean, and hurt the people we love the most.

Why? Because they can’t see inside our heads to where the synapses are temporarily not working right, because they can’t see that we’re fragile inside on those days.

Because they can’t see we’re temporarily on crutches.

And for that, people call us crazy.

We’re not crazy. We’re pre-menstrual. More about what this means next week. In the meantime, remember, You Are Not Your PMDD. It might take up a huge chunk of your life, especially since you probably spend your non-PMDD days trying to make up to everyone for the way you *supposedly* let them down on your PMDD days--but really, who let who down?

Think about it. If you were on crutches, wouldn't the people in your life treat you with more care?

So you are not your PMDD, and your PMDD is not you. It’s something you have to deal with, like you would if you broke your leg, but it does not define you. No one who doesn’t have PMDD has a clue about how much energy and effort is expended in trying NOT to blow up, NOT to burst into tears, NOT to ruin the party, the family outing, the meeting, the conference, the trip…

The relationship.

All others see is our failures. But I read the Facebook posts, and I see how hard everyone tries, and my heart goes out to each and every one of you as you describe for the others how you feel it coming on, how you feel the tension building, how you are in the middle of the storm, how you hate all of it…

And how you ache inside as you do your best to deal with the heartbreaking aftermath.

I am here, and I understand. Because while I have a better handle than most on my PMDD, can even separate it out and still get my work done when my mind is acting up the most, I know all too well how much energy that takes, and how drained you can feel at the end of the day.

And even when I make it through 90% of the day without weeping or snapping or snarling at someone, even when I’ve spent the day protecting others from myself and my moods, moods I have as much control over as I would an allergic reaction, even when I’ve done everything I can to make sure I don’t ruin their day…

There’s always the chance the dam will break.

And that is all they see.

Do not let anyone define you by your failures. It’s not right, it’s not fair, and you wouldn’t do it to them.

Take care and God Bless.

How Mandalas Helped Me Cope With PMDD, by Cat Stone

Today Cat Stone returns to guest blog about Mandalas and how they have helped her cope with PMDD. Since I have yet to master the art of inserting pictures into my blog, and trying will keep me here all day, I have posted them off to the side for you to enjoy. Thank you, Cat, for sharing your art with us.

I can't remember when I first became aware of mandalas.

As a teen I was always interested in the esoteric and other faiths and cultures, but it was probably around the age of 19, when I began following a pagan path, that I began to learn about the circle, the quarters, symbolism, colours... Along my path, I found a branch that fitted my specific beliefs. It was witchcraft. I worked in ritual with covens, I worked solitary, I studied, I practised, I meditated. I have suffered with PMDD since I was 13, and life has always been difficult. Being active in the Pagan scene gave me somewhere to belong, and something else to focus on.

Meditation became an big interest of mine, as my mind was always full of swirly thoughts and ideas, that and my body being filled with false feelings and tension. I found it very hard to meditate, just sitting still, and joined a meditation class. We tried lots of different ways to meditate, and the most success I had, was with a moving meditation, or mudra meditation.

During the pregnancy of my first child at 21, my PMDD became very bad, contrary to the idea that pregnancy brings relief to PMDD, for me, my changing hormones threw me into severe depression, agrophobia, anxiety and panic attacks. Mixed up with post natal depression, and my marriage breaking up when my daughter was 3 years old, I found myself homeless. I had left the Witches behind, choosing to follow my own path, one that wasn't full of fear and hierarchy. I studied The Tarot and developed even more interest into the symbols, colours and correspondences of the cards

It was then that I began to draw my own mandalas. About 11 years ago, I bought a Tibetan mandala print, and began to research them more. I had opened up a whole new world.

As an artist, I had studied art and art theory since school. I had qualifications in Art and Graphic Design. But with everything that had happened to me, and the PMDD worsening, I had been unable to create anything. My research into mandalas spurred off a frenzy of creation. At first, my mandalas weren't geometric, they were just drawings in a circle, but the fact I HAD created was the buzz.

(See the Orange Eye, Dance, and Stars Mandalas, off to the side)

It didn't take long before I started using a ruler and protractor and began dividing the circle. Division and geometric designs take you into the realms of sacred geometry, and designs that repeat themselves lend themselves to meditation very well, during the creation and the colouring in.

(See the Medley and Universe Mandalas)

At college, I did a project on repetition, and I began to look into mantras and chanting. Repeating something over and over, such as the word OM, brings about a calm to the mind. It stops the mind from stressing by letting it focus on the sound, and sound that promotes healing. I became aware that that was what I was doing with the mandalas. In hand drawing, you have to repeat the same pattern or shape over and over.. in the colouring, your have to think about each shape you colour in.

It is like a moving meditation. For about 2 years, I drew nothing but mandalas. I drew them when I needed to have a focus, when I needed to escape what was going on around and inside me. I ended up drawing them as wedding presents, birth mandalas, and gifts.

My love for them has never waned. I have recently come out of a long dark period of my life, caused mainly by trying different hormone medications, and my ability to draw had completely vanished again. Thankfully, after a long and very missed break, my inspiration has returned. I still find it hard to draw during the really bad times, but I'm already creating more than I have for the whole of last year!

The best way to start, is to print off a free mandala design from the net. I have recently started a Moon Mandala Group on Facebook, and download page on my website, where you can regularly download new and original mandalas, created by me, using the inspiration of the current moon signs. There will be info about the full and new moons, and mandalas to download. The Facebook group is there for you to upload your creation and share with the rest of the mandala loving world! I also upload other mandala designs to colour in between new and full moons.

Once you have your mandala, find a quiet place, alone, with your favourite music. If this is impossible, just sit in front of the TV, you'll soon tune out of that and into your page.

Buy yourself some nice colouring pencils. I use Prismacolor, but there are other really nice makes out there. They are gonna be adult pencils, so spend a little more than you normally would. The results will be worth it! If you prefer colour felt tips.. get a big set with all the colours of the rainbow! If you've got kids.. mark them 'Mummys' and keep them out of their reach!

Sit with your mandala, and choose a colour. Pick a part of the mandala to colour, and get going. It's that simple. Grown up colouring. The next colour will almost choose itself, and if you start getting fretful over how it's turning out, just walk away, go make a cuppa, and relax. Its a colouring sheet. There is NOTHING to stress over. Even if you completed it and hated the colours you used, you can throw it in the bin, tear it up... print off another one and start again, or leave it till another day.

There should never be any worries or stress over creating a mandala, it's just for fun. You cant just click your fingers and meditate, not without years of practice, so you will find there will be times it flows and times when it's just not a good time to be trying.

It's good to date your mandala and note any particular feelings or thoughts you may have. Put it up somewhere, and keep looking at it. This mandala, represents your ability to focus, choose, make decisions, your stamina and attention, and your ability to see something through to the end. When you suffer from PMDD it is easy to feel like you cant make any decisions, it is easy to feel scared of starting things, and rare to feel like we have achieved something and seen it through. The ups and downs leave us feeling tired, stressed out, unable to relax or sleep. Using mandalas to quieten the mind, focus thoughts and relax our bodies can in turn help with our general stress levels. You can turn to a mandala when you have that urge to do something but you don't know what, or when you're bored and feeling lonely.

Mandalas, can help women deal with the many facets of her life. Mother, wife, daughter, sister, lover, friend, bill payer, money earner... it is hard to juggle all this, especially hard when you suffer with PMDD. The calm and peace creating mandalas can bring will help you to discover who you are, what you really feel about things, or even develop more self confidence.

(See the Goddess Mandala)

I have found that many ladies with PMDD are also very creative and have various ways of occupying their minds, from knitting to baking, photography to poetry. I hope that other sufferers of PMDD will give it a try and see if it helps!

You can find all my mandalas at www.chaoticat.com and all my PMDD artwork and blog at www.meetmypmdd.blospot.com.

Cat Stone

Sharing Our Stories of PMDD

Today we have a guest blogger, Joya, who has graciously agreed to share her story of PMDD. I invite others to contact me who would like to share your story of how you discovered you had PMDD, were diagnosed, and what treatments--both successful and unsuccessful--you have tried in an effort to cope with this debilitating disorder. This helps every woman with PMDD to understand that while you are not alone, every case is as individual you are.

Welcome, Joya, and thank you for sharing your story with us.

I was diagnosed about three years ago.

Before I was diagnosed I felt awful & sick. I also thought I was losing my mind. It took a while for me to realize the awful feelings and the craziness were associated with my monthly cycle. I began to dread my cycle, but always looked forward to getting my period because I felt such a relief. There were times when I literally thought I was going insane. And the awful physical symptoms were at times too much to bear. I am grateful for my diagnosis as I have been empowered to find ways to help myself.

I am very fortunate I have a wonderful Doctor who listens to me and I believe he actually cares about my well being.

I have tried the following:

The Pill

Anti-Depressants

Accupuncture

Herbal treatments

Supplements

And I am currently using the Mirena IUD

Side effects & benefits I have experienced:

The pill was not a good choice, I cannot handle the extra estrogen at all. I completely lose it. For whatever reason the pill intensifies my symptoms.

Anti-Depressants-at first seemed like a cure! Then I started to feel depressed all the time, and I became listless and lethargic. I gained 25 pounds and felt awful and the benefits seemed to have flown out the window. I am not a fan of anti-depressants. I am no longer using them for treatment of my PMDD.

Acupuncture helps-mainly it helps with relaxation. It is also not a cure-all, but can be very helpful in terms of relaxation. It can be expensive and it takes quite some time before it actually reduces any symptoms. I would like to return to acupuncture if for nothing else, but the calming effect it as.

Herbal supplements & supplements: for me they help, but do not have the strength to reduce my symptoms to a manageable level. I use supplements in conjunction with the IUD.

The IUD has been helpful, it has reduced my symptoms. However, after a little over a year of using the IUD I feel the effectiveness wearing off. It makes me want to cry. And I do not really have a period at all and I don't like this part of it. The idea of searching for another effective treatment feels a little frustrating at the moment.

I consider myself blessed. I have very loving and supportive friends and family. I have been honest about my PMDD-it does affect my ability to socialize and I can withdraw pretty easily. I hate when I am unkind, or I lash out at someone I love when I am PMDD-ing. It is awful and I feel horrible, and guilty. In some ways I try to keep to myself so that I do not do anything I will regret later. I live alone and work primarily alone, so I do control my interaction with people as much as possible. I have recently entered a romantic relationship-I have been upfront about my PMDD, and he is a very understanding person. However, I am terrified I will scare him away, and I know this is a large part of why I keep to myself. I try to keep myself and others safe, but I am starting to feel that it is not the solution.

I cannot think of a shape for PMDD, as it tends to have several forms for me. At times it may be rigid and square, uptight and bound, whereas other times-it is wide open and expansive...It encompasses many colors...red would be the primary color, as well as black and dark blue...perhaps with flashes of purples and greens.

The worst thing about PMDD for me is the darkness, the sadness, and the nasty voice inside me that gets so loud that I believe it. I believe every ugly lie the voice utters. I have made some serious life decisions while under the influence of the PMDD monster, only to wonder later-'what the hell was I thinking'. The other thing is I feel like I cannot trust myself and I do not want to be around anybody. It sucks, I am for the most part a friendly, upbeat and kind person. The PMDD twists things and I get twisted with them and then come out the other side-wondering what happened. I hate that I listen to the ugly angry distrustful voice, rather than my true core voice.

I have changed my diet, I eat mostly vegetarian. I focus on nutrition. Whole grains, veggies, I do have fats, like peanut butter and such. I love fruit too! I make 90% of my meals at home, this is very helpful. Honestly, diet and exercise have had a profound effect on my ability to cope. I make sure I get enough rest as I cannot function without adequate rest. I LOVE to exercise and I LOVE yoga and walking outdoors! However, when the monster (PMDD) is in house, I have to literally fight with myself to exercise, and do what is best for me. As there are times when I drink wine, or eat too much, and usually regret it.

I also remind myself what is happening and that it is not ME-it is PMDD and it is chemical and biological, but this is not always helpful. I take hot baths and drink tea, I use drops of white chestnut for anxiety. Basically, I try to take of myself and be loving towards myself. I do struggle and sometimes I cave to the cravings for fatty food, wine, or cigarettes. I realize that this is a work in progress, and from experience I KNOW that taking excellent care of myself is my best bet!

I work with a master metal smith-he is my dad. We design and create custom wedding rings. I work with 30 stores and retail clients from all across the globe! I am very fortunate to have the work I have. I work alone as most of my correspondence is via email. I love working with an artist and I love working with my clients. I am grateful for all of my clients. So I do not have a career I have a job, a wonderful job. I long for a career, but that is a long and painful subject for me. I have searched for 15, plus years to answer the 'what am I going to do with my life'? question only to still not know the answer. It causes me extreme grief. As I have taken endless classes and been in and out of school, etc...

For now, I am letting it go. I just recently withdrew from school, as the combination of work, school, PMDD and my learning disabilities proved to be too much for me. I am struggling with not feeling like an utter failure and feeling like I have liberated myself. I do not have children, I have a cat, whom has been with me for 15 years. I care for her deeply and she has been a most loving and loyal companion over the years.

I would like to have a career that I can pour my heart and soul into. I would like to love freely and create. I would like to be of service to the people, the Earth and the animals. It is unfortunate that every single month for two weeks I kinda fall apart and lose my grip. However, I refuse to give up and I hope that I can find a way to do what I long to and be even with PMDD.

I believe yoga and meditation are helpful. Yes, they help me to relax and change my focus and help me to slow down and breathe.

"Love all, trust a few. Do wrong to none." Unknown.

"Everything we see or seem is but a dream within a dream." Edger Allen Poe