Friday, March 25, 2016
A Special PMDD Quote of the Week for Easter
I thought this an especially appropriate quote for Easter, a time that is almost as busy and stressful for women with PMDD and their families as Christmas. Therefore I wish you a moment to yourself, the strength to dig deep down and survive the weekend no matter what you are facing, be it chaos or isolation, and the certain knowledge that many, many others who have PMDD know and understand what you are going through. You are not alone in your struggles on this, or any other day. ~Liana
Labels:
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Sunday, March 20, 2016
PMDD Quote of the Week
~I wasn't always easy to get along with and I used to be less under control, but now I will warn the people in my life that I have PMDD and take responsibility for it but I still get harassed about it, like they think I'm making things up, like when it makes me irritable, or cold, or cry for no reason. I make sure that they know it's that time and nothing is personal, yet they still act surprised when I show symptoms. They try to debate me about my emotions, which after years I have come to accept I have less control over, but they don't trust me about my own experiences.~
Wednesday, March 16, 2016
PMDD - One Woman's Prayer
Below is a poem written by a young woman before she had children. I asked to post it here because I spent many years hoping the same--and for the very same reason.
I Hope I Never Have a Daughter
I hope I never have a
daughter
I don't want to see her cry
I don't want to have to tell her
That sometimes there are no reasons why
Why you feel completely alone
And that no one really cares
Why you cry yourself to sleep at night
And, get angry/upset unawares
Other people just don't get it
But your Mama she understands
Because she went through the same thing
And will be there to hold your hand
Some people just think it's an 'excuse'
Well, I'm here to tell you it's not
Don't blame it on yourself, love
This isn't a disease that you've got
It might have a few names or titles, if you will
But, if you haven't suffered from it
Others usually tell you to just 'chill'
Chilling doesn't really help
'Cause the pain doesn't disappear
I can't quite put my finger on it
'Cause nothing at all is clear
If I ever have a daughter
I hope she isn't like me
I don't want her to suffer
incessantly
because of
PMDD
©Sarah Prais - 2016
Labels:
anger,
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emotional rollercoaster,
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Sunday, February 14, 2016
A PMDD Valentine: Not All Chocolates Are Equal
For Valentine's Day, a
post about chocolate (and a few other things), first written in 2009, but updated and still relevant today.
Having come freshly off a week of spending up close and
personal time with my evil twin, who kicked my butt so badly the last day she
was here I had to take a three-hour nap in the middle of the day, on top of
getting a full night's sleep, today I feel uber-qualified to write about how it
feels to experience PMDD. The thing is, now that the episode (aka her latest
visit) is over, it's the last thing I want to think about.
I look around and see all that didn't get done over the week,
the laundry piling up, the floors that need to be cleaned, the clutter of all I
didn't feel up to coping with and simply set aside, and would much rather
regain some semblance of control over my life—if only its external appearance—than
write about the dark place I inhabited for eight full days and change this time
around.
Why such a long visit this time? I think I know. I think it
had something to do with my recent road trip: the stress of travel, the staying
up later than usual, sleeping in strange environments, the change in diet, the
miniscule amount of alcohol consumed, although in comparison to my usual
alcohol intake, it was a big jump. Add that to the copious amounts of caffeine
I consumed while on the road, the pasta-heavy fare at the conference, and I
think I'm getting the picture. At home, I'm usually alcohol and caffeine
free-or close to it. An occasional cup of coffee, usually one cup of
caffeinated tea in the morning, if I feel the need, and chocolate only when
"the cravings" come. I hadn't
had pasta or bread in weeks before the conference.
Why? All of these are bad for women with PMDD. Caffeine,
alcohol, sugar, flour, hence the bread and pasta. But why am I so sensitive to their effects? I know
women who practically live on caffeine and sugar, others who drink freely,
others who love their bread and pasta. Is it possible they feel as miserable as
I do, or more so, but deny their misery and continue to self-medicate with food
and drink?
Because attempts to self-medicate is what these addictions
(for lack of a better word) are. My research is showing there are very few true
physical addictions in life. Most compulsions are emotionally or
psychologically based. Only in rare cases is an addiction physiological.
That's not to say we can't get cravings. But cravings are
cravings, temporary urges for some kind of substance to relieve our mental,
emotional, or physical discomfort. Cravings are not addictions, although when
you are in the throes of one, it can feel like an addiction. But as someone
writing a book on dealing with addiction recently pointed out to me,
"You're not going to stick a gun in someone's face for a piece of
cake."
Cravings are the body's signals that some physiological need is not being met. You're low on some vital nutrient, to be exact. Your body is
saying, for instance, "I'm low on magnesium," and you feel a sudden
urge to eat a banana, or some almonds, maybe some oatmeal, or, yes, some
chocolate.
Chocolate is one of the best known substances we crave. What
confuses the issue with chocolate is not only its physical healing properties (of
which there are many), but its emotional associations. We associate chocolate
with feeling good. But not all chocolate is equal. Some are better for us than
others. Much better. Others are almost useless, physiologically speaking. In
the example above, a banana would provide as much magnesium as a 1.5 ounce
chocolate candy bar, but a handful of almonds or cashews would provide almost three times as much magnesium as either the banana or candy bar.
So why do we reach for chocolate? It's as much for the
emotional fix as the nutrients needed. More confusion arises when we don't know
the difference between types of chocolate, due to the marketing and advertising
claims of their manufacturers. Manufacturers is the key word here. Quality
chocolates from true chocolatiers abound with the beneficial properties of
chocolate. True dark chocolate is a rich source of flavanoids and antioxidants,
with the cacao bean containing more than twice as many antioxidants the
so-called superfoods like blueberries, kale, spinach, or broccoli.
It's the cheap, mass-marketed brands that—while they may
contain tiny amounts of chocolate's beneficial properties—have processed most
of the antioxidants and flavanoids right out of the chocolate. To derive any
benefit from eating these lower quality chocolates, you need to eat way more
than is healthy for you. When this happens, the negatives outweigh the
positives—and you could end up outweighing all your friends.
Meanwhile you're bewildered, thinking, "Chocolate is
supposed to be good for me, right? Milk is supposed to be healthy for me. Isn't
that what the ads say? By eating chocolate and drinking milk, I'm doing
something good for my body, right? So why do I feel so miserable?"
Because all the chocolate in the world isn't going to solve
your problems, honey, and while I may crave it like mad at times, neither is it
going to make my PMDD go away. For all its mood-enhancing abilities, even the
finest Belgian chocolate won't "cure" dysphoria.
Dysphoric is the opposite of euphoric. Euphoric means happy,
dysphoric means depressed. As in depression. But only pre-menstrually, which I
suppose can be considered a blessing.
In some atypical cases, however, the dysphoria can come
AFTER a woman begins her period. Lucky me, I'm atypical. Mine usually starts on
Day 3, if it's going to come. It doesn't always come. Which is what drives me
batty, trying to keep on top of what I need to do—or to avoid—to keep it from
returning.
I lead too full and rich a life to keep being knocked flat
by this unwelcome change in my body. It makes me feel like I'm constantly
behind—on everything.
As women, we all know "it will never get done,"
but to have something come along and steal a full week or more out of your
month, something that no matter what you do or don't do seems to be totally
beyond your control...it's more than frustrating. It's crazymaking.
I'm here to tell you you're not crazy. I'm here to tell you
there are scientifically proven physiological reasons for why you crave the
things you do—like carbs—and what happens to your body as a result of that. I'm
here to tell you there's help, and hope, but it's far from easy, living in a
body that seems to have a will of its own at times, and a manufacturing and
marketing culture that promotes unhealthy foods as healthy because of their
base ingredients, while completely ignoring the toxic effects of their
processing processes.
That said, the first step is to forgive yourself for falling short of your own expectations, and to
understand that what is happening to you is as involuntary a response as an
allergic reaction. You cannot control it. You can try to soften it, to be sure,
by living a universally healthy lifestyle (once you understand what that truly
is) but you cannot control it.
Nor can you deny it and simply plow through it, as most
women do. We have commitments, responsibilities, schedules, and deadlines. We
have people counting on us to be there for them.
But first, we have to learn how to be there for ourselves.
My book PMDD and Relationships, addresses this topic in detail. I can hit on a subject
here and there in a blog post, but the book...the book covers it all, from
start to finish. And if you are a partner here looking for information about
PMDD and how to live with the woman you love: PMDD: A Handbook for Partners is
for you. Click on the book covers in the sidebar for more information.
So be good to yourself today, and every day, and when it
comes to chocolate—insist on the good stuff.
Because you are most definitely worth it.
Happy Valentine's Day, all!
Remember: When it
comes to chocolate, the darker, the better.
You might have to work your way up to it (I'm now at 70% cacao), as it
can taste bitter at first. But the
darker it is, the better it is for you (and your blood pressure!).
And don't drink milk with it because that interferes with your body's ability to absorb the antioxidants in the chocolate and therefore dims its beneficial/healing effects.
Liana Laverentz is the award-winning author of two books on PMDD, PMDD and Relationships, and PMDD: A Handbook for Partners. Both books are based on the most asked questions by her readers, and therefore the most popular posts on this blog. Both books are also an excellent resource for understanding your PMDD and for starting a meaningful conversation with loved ones who want to know more about this debilitating disorder we live with daily. More information on PMDD can also be found on Liana's Facebook page, Living with PMDD.
Liana Laverentz is the award-winning author of two books on PMDD, PMDD and Relationships, and PMDD: A Handbook for Partners. Both books are based on the most asked questions by her readers, and therefore the most popular posts on this blog. Both books are also an excellent resource for understanding your PMDD and for starting a meaningful conversation with loved ones who want to know more about this debilitating disorder we live with daily. More information on PMDD can also be found on Liana's Facebook page, Living with PMDD.
Thursday, January 28, 2016
The Voices of PMDD: Our Seven-Year Struggle With My Wife's PMDD
Recently
on Facebook I came across a conversation where one couple who had experienced
PMDD was reaching out to help another. The first woman had asked her husband to
write a letter to the other woman, to help the second woman explain PMDD to her
husband. She then posted his letter on Facebook. I knew right away this man's
wisdom and clarity could help so many others...so I asked the couple if I might
share the letter on my blog, and they graciously agreed.
Her
name is Twilah, and she
has a blog of her own, one having to do with navigating the American medical
system. His name is Alec Johnson, and here is his letter:
I was asked to write this in an attempt to explain PMDD
from my perspective as a husband who has experienced PMDD. I am also a Clinical
Scientist with a quarter century experience in medicine and healthcare. I can
tell you from my experience, PMDD is one of the most difficult disorders [to
diagnose and cope with], for both the patient and her family.
I speak from seven years of experience living with my
wife, who was Jekyll and Hyde. I only hope to provide some assurance to you
that your feelings of frustration, anger, hurt, and disbelief are normal and
understandable.
I also wish to convey from a clinical standpoint that
your wife is not making anything up, nor is she able to control her disorder.
Even if she had the greatest willpower of any human, she cannot will a
hormonally-mediated disorder away.
My wife is a very intelligent, driven, and willful
person whom I adore. That's why I married her! When we met she was a runner who
ran 4-6 miles every day of the week. She was less than 10% body fat, and thus
did not have periods. It is common for women with this low amount of body fat
to stop menstruating. When we began dating we went out to dinner often, and
shared more than a few bottles of wine. This slight change in her lifestyle
over approximately 2 years caused her to gain a small amount of weight. Maybe
8-10 pounds on her 105-pound frame was enough to restart her hormones and
periods. She began to change.
I noticed her becoming moody and anxious as well as not
being very nice to me. I marked it off as stress from our upcoming wedding and
honeymoon as well as normal work and life stress. Things were mostly fine and
then one morning she called me from the emergency room saying she wanted to kill
herself. This was all completely from left field. I had no idea what was going
on.
My wife had been experiencing PMDD for a number of
months at that point, and was doing okay at suppressing the symptoms. On this
particular day she could no longer control the most powerful human chemical,
hormones. Hormones are intensely powerful chemicals for both men and women. I
would imagine you and I are at least similar in experiences as teen men. You
most likely remember the intense desire for girls. Hormones, and particularly
testosterone, were front and center in that. You and I could no more control
that intense desire that my wife could control her desire to die due to
progesterone and PMDD.
I will not bore you with many details, but she and I
went through hell for 7 years before her PMDD was eventually properly diagnosed
and treated.
PMDD primarily manifests as a mental disorder. It
appears as if the woman is depressed, or anxious, or suicidal, or any number of
mental disorders or combination of mental disorders. My wife was treated
with every depression, anxiety, and mood compound known to man—with no positive
effect. There were numerous bad side effects though. After 4 years it was
obvious that it was directly linked to her hormonal cycle. For about 2 weeks of
the month she was perfectly normal. Then every month without fail she would wake up as a person I didn't recognize.
She was suicidal, depressed, and most of all had the
worst anxiety imaginable. We told every physician we could tell that her
symptoms were hormonal and directly linked to her cycle. They gave her more
mood drugs and ignored the hormonal aspect.
Finally quite by accident she saw a reproductive
endocrinologist doctor. This physician not only recognized PMDD, she knew how
to treat it appropriately. Some women can be treated successfully with birth
control pills or psychiatric drugs. Some women can't take those because of side
effects or other reasons. For some women there are only 2 cures for PMDD, either
a COMPLETE hysterectomy, or menopause.
To prove that it was PMDD, the reproductive endocrinologist
prescribed a drug named Lupron. This is a once a month or once every 3 months
injection. My wife was to take the injection for 6 months. Lupron shuts off the
ovaries and hence mimics menopause or hysterectomy. After a couple of weeks on
Lupron my wife was back. It was completely obvious that what we had been
telling many doctors for years was true. She had PMDD. No amount of willpower
or mood drugs was going to fix or control my wife's complete [and biological]
inability to tolerate progesterone.
Progesterone intolerance made her crazy and out of
control, and controlled our lives for 7 years.
After 4 months the side effects of Lupron became
debilitating, so the doctor referred my wife for a complete hysterectomy.
That's when the real hell began. From the time between when the Lupron wore off
and before the surgery could be arranged, my wife's ovaries rebounded. They
produced massive amounts of hormone in an attempt to bring her absent hormone
levels back into range. It was so bad I truly believed my wife would be
arrested and put in jail before we could get her into surgery. I could tell you
stories...
She finally had surgery on 24 December 2014. Literally
the next day my wife looked at me and said, "I feel a calmness I've not
felt in many years."
She was cured and our life together saved. This is our
story.
I would imagine that right now you are experiencing the
worst PMDD has to offer. Please understand that your wife can't will her PMDD
away. She cannot "just try harder." She cannot simply "pull
herself up" and "get it done" at times you might feel she
should. I COMPLETELY understand. I'm sure I was not the nicest husband all the
time when we were going through our hell. There were times I could barely
maintain my sanity.
The only things that got me through was my love for my
wife and knowing it was not her fault or choice. If I ever thought she could have
chosen to act differently and she just chose not to, I would have left.
Thankfully I knew it was not her fault.
From someone who has been in your shoes, I ask you to
please understand your wife needs you more than ever. I know how completely
maddening and frustrating it is to deal with right now. Get her to a
reproductive endocrinologist who understands PMDD. Make peace with the fact
that she may need birth control, psychiatric medication, or even a complete
hysterectomy, and do what you can to get her the necessary treatment.
If surgery is appropriate do not allow a doctor to
leave either of her ovaries. Ovaries
are the problem.
As an aside, both my wife and I had our DNA sequenced
for genealogy purposes last year. After that we found a website that would analyze our DNA
and give us health information. It shows my wife has a known genetic mutation that makes her unable to metabolize her own
progesterone.
I didn't need a DNA test to know that, but it was a
nice confirmation of what we had experienced.
Labels:
acceptance,
anger,
biology,
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men and PMDD,
mental health,
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Sunday, January 24, 2016
PMDD Quote of the Week
~During an episode of PMDD everything is magnified 100 times and everything in life sucks...but to those around us life stays the same. That's the insane part of PMDD. Everything in your life is the exact same as it was the day before, or even an hour before, but suddenly, in your mind, it's all gone to shit.~
Sunday, January 17, 2016
PMDD Quote of the Week
Women with PMDD want to feel normal, We don't want to admit there's something going on in our brain that isn't right. Something that even the medical professionals can't agree on, much less define. We can find a thousand excuses for why we are so clumsy at times, or so ravenous, or irritable, edgy, disoriented, anxious, or weepy. We deny and deny and deny there is anything wrong with us, or that we are in any way acting strangely, because to admit that we are doing so means we will have to stop and deal with it somehow, and how can you deal with something that defies description?
Sometimes it's a battle you just don't want to fight.
From my books, PMDD and Relationships and PMDD: A Handbook for Partners
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