This event is for you if you are a menstruator with PMDD.
Sunday, April 18, 2021
Free Online PMDD Healing Summit Starts April 25!
Sunday, April 4, 2021
April is PMDD Awareness Month
This month, 41 landmarks around the world will light up teal for PMDD awareness! If you're able to visit a light-up near you, tag IAPMD @iapmdglobal on Instagram and use #PMDDAwarenessMonth2021 so we can share with the community. It's a beautiful experience to see these light-ups both in-person and online .Below you'll find the official light-up schedule separated by country and organized by date. All light-ups will run from dusk until dawn unless otherwise noted.
USA
- New York City, NY | April 1 - Helmsley Building
- Minneapolis, MN | April 2 - I-35W St. Anthony Falls Bridge
- Niagara Falls, NY | April 4 at 10-10:15 pm EDT - Niagara Falls
- Chattanooga, TN | April 4-24 - The Block
- Highland, NY | April 9 - Franklin Delano Roosevelt Mid-Hudson Bridge
- Denver, CO | April 11 - McNichol's Civic Center Building
- Boston, MA | April 14 - Zakim Bridge and Longfellow Bridge
- Worcester, MA | April 14 - Burns Bridge
- Quincy/Weymouth, MA | April 14 - Fore River Bridge
- St. Louis, MO | April 15 - McDonnell Planetarium
- Philadelphia, PA | April 16 - One & Two Liberty Place
- Nashville, TN | April 16 - Korean War Veterans Memorial Bridge
- Portland, ME | April 17 - Portland City Hall
- Kalamazoo, MI | April 19 - Kalamazoo City Hall
- Honolulu, HI | April 20 - Aloha Tower
- Philadelphia, PA | April 20 - Cira Centre South
- Gilbert, AZ | April 25 - Gilbert Water Tower
- Oklahoma City, OK | April 26 - Skydance Bridge
Canada
- Toronto, ON | April 1 - CN Tower
- Lethbridge, AB | April 3 - Lethbridge City Hall
- Calgary, AB | April 5 - Telus Spark
- Cambridge, ON | April 5 - Cambridge Pedestrian Bridge
- Regina, SK | April 5-9 - Regina City Hall
- Toronto, ON | April 6 - 3D Toronto Sign
- Halifax, NS | April 7 - Halifax City Hall
- Edmonton, AB | April 10 - High-Level Bridge
- Vancouver, BC | April 24 - BC Place
- Calgary, AB | April 28 - Calgary Tower
- Vancouver, BC | April 30 - Sails of Light at Canada Place
UK
- Lancaster, England | April 8 - Ashton Memorial
- Rochester, England | April 17 - Rochester Cathedral
- Glasgow, Scotland | April 23 - Glasgow Women's Library (in lieu of a building light-up they'll be shining a light on PMDD on social media)
- Edinburgh, Scotland | April 30 - Edinburgh Castle
- Belfast, Northern Ireland | April 30 - Belfast City Hall
- Northampton, England | University of Northampton will be showcasing a short video about PMDD on their Tower Screen throughout April
Australia
- Perth, WA | April 1 - The Bell Tower
- Sydney, NSW | April 12 - Royal Botanic Gardens (closed to the public)
- Brisbane, QLD | April 15 - Story Bridge and Victoria Bridge
Netherlands
- Muiden, Netherlands | April 6 - Muiderslot Castle
Along with the light-ups, you can get involved with PMDD Awareness Month by joining the PMDD Awareness Challenge on Instagram, taking the PMDD Pledge, or starting a community fundraiser.
Sunday, November 15, 2020
Singer-Songwriter, Grace Gonzalez, Joins Forces with Global Charity to Raise Awareness for Debilitating Health Condition That Puts Women “Out of Commission” for Nearly Half Their Life
BOSTON, MA, October 2020 -- Singer-songwriter, Grace Gonzalez, first found musical success when her songs gained the attention of Grammy-Award winning producer Trina Shoemaker, American Songwriter Magazine, chosen as a Yamaha guitar ambassador, and in a 2020 Toyota U.S. ad campaign featuring her own, “Little Piece of Home.” Now, Grace has turned her musical talents to a life-saving cause with the release of her new single, “Out of Commission.”
“Out of Commission” is about mental health and specifically the cyclical anxiety and depression that takes Grace out of commission after she ovulates or 10 days before her period each month. The condition she suffers from, Premenstrual Dysphoric Disorder (PMDD), is a life-threatening cyclical, hormone-based condition that is commonly underdiagnosed, misdiagnosed or dismissed entirely by many in the medical community. PMDD impacts approximately 1 in 20 women and AFAB (assigned female at birth) individuals of reproductive age - a staggering 60 million worldwide. Symptoms include severe depression, mood swings, irritability or anxiety in the two weeks before menstruation.
“I have received my deepest inspiration during “hell week,” said Gonzalez. “It is in that time, where I feel so disconnected from myself and the world, that I can channel my suffering into songs. I feel so lucky for the gift of songwriting and don't know how I would get through the depths of PMDD without it. And I’m honored to help shine a light on this devastating condition by working with the International Association for Premenstrual Disorders (IAPMD).”
Grace’s journey with PMDD began when she got her period. Like many, her life changed drastically and the cyclical life-altering symptoms occurred for years without a clear understanding or diagnosis. At the age of 21, she withdrew from college due to severe cyclical anxiety and depression, and was finally diagnosed with PMDD. After her diagnosis, Grace turned to IAPMD for information and support when she was feeling lost and alone. “IAPMD helped me make sense of it all and find ways to move forward and heal,” added Grace.
“We’re grateful that Grace is helping raise awareness and funds for PMDD,” said Sandi MacDonald, IAPMD Co-founder and Executive Director. “As an IAPMD Ambassador, Grace is sharing her music and her story to help shatter the stigma and accelerate progress toward a world where people with PMDD and PME can survive and thrive.”
The IAPMD’s Global Survey of PMDs 2018 showed that 30% of those experiencing the condition have made a suicide attempt during a PMDD episode. Shockingly, patients also waited an average of 12 years for an accurate diagnosis and saw six healthcare providers in the process. Although PMDD has been included in the Diagnostic and Statistical Manual of Mental Disorders (DSM) and International Classification of Diseases (ICD) for years, it continues to be disregarded or misunderstood by doctors and the general public.
About IAPMD:
The International Association for Premenstrual Disorders (IAPMD) is the leading patient-led health organization with a mission to inspire hope and end suffering in those affected by Premenstrual Disorders (PMDs) through peer support, education, research, and advocacy. Since our founding in 2013, we’ve helped over half a million people from more than 100 countries find answers, community, and hope. What began as a collective of fellow sufferers has grown into a global movement accelerating progress being made around the world on PMDs and PMDD in particular.
About PMDD:
While PMDD is directly connected to the menstrual cycle, it is not a hormone imbalance but rather a severe neurobiological reaction to the natural rise and fall of estrogen and progesterone. Symptoms occur the week or two before menstruation and go away a few days after bleeding begins. There is no blood or saliva test to diagnose PMDD, but these tests can rule out other underlying disorders. Diagnosis is done by tracking symptoms for at least two menstrual cycles.
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Sunday, February 16, 2020
What Real Love Looks Like
To read more, please go here.
Tuesday, October 8, 2019
PMDD and Suicide in the Luteal Phase Needs More Research: You can help!
Friday, June 14, 2019
World Health Organization Validates Premenstrual Disorder as a Global Health Concern
BOSTON, MA, 14 June 2019 -- In a landmark decision, the World Health Organization (WHO) has added Premenstrual Dysphoric Disorder (PMDD) to the International Statistical Classification of Diseases and Related Health Problems, Eleventh Revision (ICD-11), validating PMDD as a medical diagnosis worldwide and confirming the growing scientific and medical understanding of this little known, debilitating and life-threatening condition.
This groundbreaking move gives PMDD its own ICD code (GA34.41), which will help drive diagnosis, treatment, reimbursement, and research. A staggering 60 million people globally, 1 in 20 people with menstrual cycles, suffer from PMDD, caused by an increased sensitivity to reproductive hormones during the luteal phase between ovulation and menstruation. This sensitivity leads to alterations in the brain chemicals and pathways that control mood and well-being. Symptoms include severe depression, mood swings, irritability or anxiety, and drastically increases the risk of suicidal behaviors. Appropriate diagnosis and treatment of PMDD are therefore important not only for reducing suffering but also for saving lives.
“This decision is a game changer for PMDD,” according to Sandi MacDonald, Board President of the International Association for Premenstrual Disorders (IAPMD). “The WHO has officially classified PMDD as a true and diagnosable disorder, and differentiated it from the wide collection of premenstrual symptoms commonly known as PMS.”
Historically, PMDD has been studied and treated by both (1) nervous system (brain) experts (neuroscientists and psychiatrists) and (2) reproductive system experts (reproductive endocrinologists, obstetrician-gynecologists). This multi-specialty approach has been reinforced by PMDD’s ICD-11 cross-listing in multiple chapters; the chapter on mental, behavioral, and neurodevelopmental disorders, as well as the chapter on diseases of the genitourinary system (system of the reproductive organs and the urinary system). This will foster more effective collaboration between these specialties.
“Given that evidence-based treatment algorithms for PMDD require a broad set of clinical expertise and skills, it is becoming increasingly clear that multiple providers with different specialties are required to offer truly comprehensive care for PMDD,” according to Tory Eisenlohr-Moul, PhD, IAPMD Clinical Advisory Board Chair and Associate Director of Translational Research in Women’s Mental Health at the University of Illinois at Chicago.
“The IAPMD recommends that clinicians build collaborative, multidisciplinary treatment teams for PMDD patients in order to facilitate patient access to the full range of evidence-based treatments. It is our hope that the inclusion of PMDD in ICD-11 will facilitate greater collaboration among treatment providers of differing specialties,” added Eisenlohr-Moul.
The ICD is published by the WHO and used worldwide for morbidity and mortality statistics, reimbursement systems, and automated decision support in health care. In May 2019, member states agreed to adopt the ICD-11, to come into effect on 1 January 2022. The system is designed to promote international comparability in the collection, processing, classification, and presentation of these statistics. Like the analogous DSM (which is limited to psychiatric disorders and almost exclusive to the United States), the ICD provides a common language that allows health professionals to compare and share health information across the globe.
The International Association for Premenstrual Disorders (IAPMD) is the leading voluntary health organization which aspires to create a world where people with Premenstrual Dysphoric Disorder (PMDD) and Premenstrual Exacerbation (PME) can survive and thrive. Our mission is to inspire hope and end suffering in those affected by Premenstrual Disorders (PMDs) through peer support, education, research, and advocacy. What began as a collective of fellow suffers in 2013 has grown into a global movement accelerating the progress being made around the world.
Friday, March 29, 2019
Shine a Light on PMDD - April is PMDD Awareness Month
Laura Murphy
Sunday, August 26, 2018
PMDD and Self-Awareness - What Has Your PMDD Taught You?
Sunday, May 13, 2018
PMDD and Your Brain
On the one hand, I wished I’d read this book years earlier than I did, as it was first published in 1999. On the other, I’m glad I didn’t. While the authors completely explain the devastating effects women's hormones can have on your emotional life, they are firmly in the camp of using medication to treat these brain disorders that affect women throughout our reproductive years.
That’s fine if you want to go that route, but there are other options available now to women who suffer from hormonal issues. In 1999, these options were given a cursory mention and dismissed. Which means if I’d read the book any earlier than I did, I would have come to the conclusion that there was no alternative to my PMDD, short of medication.
That, for me, would have been very depressing indeed.
I know there are millions of women out there who have severe hormonal issues that may well require medication to control them—notice I say control them—not manage them. Me, I manage my symptoms through nutrition and exercise and positive lifestyle choices. If I took medication I wouldn’t need to be so vigilant about my health—the medication would theoretically handle the problem for me. But in my case, with the PMDD, I can’t see taking medication every day for something that only occurs a few days a month.
Still, there are days when the thought of it tempts me. But most days it does not.
As I said, to have read this book any earlier would have been devastating for me. Because the authors insist over and over that without treatment, your hormonal issues will only get worse. That there is no light at the end of the tunnel without treatment—this is absolutely true--but their treatment of choice is not mine.
That aside, I was able to read the book and learn much about the causes of hormonal issues and how and why these issues can and do get worse later in life without some type of intervention.
Hormonal issues are a very serious and practically rampant problem for women. Yet some days it seems like the only people paying any attention to us are those who can profit from our condition(s). Most of the information women receive regarding "hormonal imbalances" (a term I take exception to) comes from companies whose drugs have been approved for treatment of these "imbalances."
We need more than to be told a certain medication (or two, or three) can solve our problems. We need to understand the underlying causes of our hormonal issues and find ways to heal ourselves from within and prevent the need for chemical solutions. We need to understand the unique female brain/body connection and how it makes us vulnerable to mood problems at the most challenging times in our lives. Puberty, pregnancy, post-partum, peri-menopause, menopause, and post menopause.
Every time you have a child, your hormones undergo an enormous amount of stress, and yet society acts as if there’s nothing to it. Life goes on and you cope.
But what happens when your ability to cope fails you? What happens when, as these authors aptly describe it, you have an internal “earthquake” and mood disorders erupt?
All this attention is given to heart health, but brain health is equally important. We need to learn to care for our brain as diligently as we do our heart. Not only the heart can be compromised by a woman’s genetic make up, life experiences, and stress load, but so can the brain.
If our brain doesn’t work right, we don’t work right, and all sorts of life-chaos can happen. No amount of "being strong" or "powering through" is going to re-regulate a brain that has gone askew. It just isn’t going to happen.
The way this book and many others describe it, our brains have neurological pathways that become worn over time like ruts in a road. When any situation arises, our brains immediately locate the memory of how we dealt with that situation in the past, so that we can effectively do so again. And each time we deal with that situation again, a new pathway is created over the old pathway.
This works fine if your brain is healthy, or operating at optimum level. But what if your brain is not? Then your brain is creating new pathways over damaged roads, and only more damage ensues.
Genetics plays a factor in this, of course, but so do your thought processes. In short, how we deal with stress affects our hormones, which in turn affects our brain. This stress can come from any and all sources, trauma from an accident or abuse, be it physical, emotional, sexual, mental, spiritual, financial, you name it, or from naturally occurring life events such as birth, death, marriage, divorce, loss of a job or health or relationship, to name just a few.
When your hormones are doing what they should, your body deals with these stresses in a normal and healthy way. When your hormones are compromised, your body and brain do not. Little stresses can be magnified into big stresses, completely out of proportion to the situation. When your hormones are compromised and your brain is dysregulated, you can feel like you are under attack 24/7. Your brain makes no distinction between the threat of an oncoming car or someone who simply disagrees with your point of view. Both, to your dysregulated brain, are threats to your very existence.
It’s not logical, in fact it is completely irrational, but that’s what it is. Your dysregulated brain is not properly processing the threat.
This is why women with mood disorders like PMDD or even simple hormonal fluctuations seem so irrational at times.
But we’re not crazy, or imbalanced--far from it. Rather, something has compromised our hormonal system, something that has yet to be scientifically identified and verified, something we have no more control over than we do an allergic reaction.
This is not to say there is nothing we can do to prevent our hormonal eruptions. We all know that once one begins, it is unstoppable, because the PMDD brain is out to win at all costs. But there are ways to minimize our eruptions, and this blog* is full of tips for that. If you're looking for the information all in one place, try my book, PMDD and Relationships, or, for the supportive partner, PMDD: A Handbook for Partners. Both are based on the posts in this blog.
*Use the search box at the top of the page to locate topics you are interested in reading more about. Type in the subject, and if I have written anything about it, a list of posts will appear. This will save you a lot of time spent scrolling past stuff you're not interested in.
Tuesday, April 24, 2018
The Voices of PMDD - Don't Wait Until It's Too Late
Saturday, April 14, 2018
The Voices of PMDD: Sharing our Struggles
Sunday, March 4, 2018
The Voices of PMDD: Tough on Relationships
Thursday, February 8, 2018
The Voices of PMDD - My Ten Year Struggle With PMDD
I was 20 years old when I knew things were not quite right. After suppressing my ovarian cycle for 3 months my symptoms were resolved and it was very clear I had a serious intolerance to my own hormones. I was told this is a complex situation that would disrupt my daily/monthly activities. What did this even mean? I struggled to understand this at such a young age, comparing my life (or lack of it) with my friends and those around me. I didn't even know it was called PMDD at this stage. I struggled to maintain relationships with family/friends, struggled to have a balance of life and each month was very much half lived. There were many dark days, spent alone hiding from the world.
Thursday, January 18, 2018
Living with PMDD - Realize, Relief, Repeat
[Living With PMDD]
By: Danni Hanna
When you REALIZE it’s time, it’s already too late
Being engulfed in its flame is always your fate
Depression sets in.. in its bi monthly routine
Next comes the anxiety and the fatigue
Panic attacks make their appearance
And the joys in life make their disappearance
Suicidal thoughts fill your brain
But you know soon enough you’ll be off this train
The train runs on an endless track
Circling, circling, circling back
Exercise, medication, eating right
Won’t help you win this fight
Two weeks free, two weeks trapped
Two separate identities on constant relapse
One identity starving for control
The other is on an easy stroll
Career and relationship changes fill the void of sleepless nights
But freedom is coming into sight
The day of RELIEF has arrived
As per usual, right on time
An exchange of pain occurs in an instant
From mental to physical, it’s always consistent
Anxiety and depression leave your side
Feelings of comfort and amusement fill your mind
Quickly forgetting the two weeks of hell
You become trapped within its spell
You never seek help
Because this is the best you’ve ever felt
Unaware you’re still riding the train
Two weeks pass by and the hormones enter your brain
Once again the exchange has been made
Those joyous feelings briskly fade
So go ahead and take a seat
The journey of this train is about to REPEAT
Saturday, December 9, 2017
My First Memory of Having PMDD
The first episode I can remember which I would now attribute to PMDD was a two-week period in my freshman year of college, toward the end of the semester and year, when I simply didn’t get out of bed except to go to class. I was doing well in my classes, not having any problems to speak of, and then suddenly this period of total sadness and hopelessness and lethargy hit, and I had no motivation to do anything or go anywhere. Then just as suddenly it lifted, and for the remaining weeks of the semester I raced around like a madwoman, trying to catch up and make sure my grades didn’t suffer. I was eighteen years old.
Now, looking back, I can see countless repetitions of this scenario, where I’m sailing along, and life is fine, and then suddenly...it isn’t. When all indications are that I should be happy beyond measure--having achieved every goal I’d set for myself to that date--but I wasn’t. I used to think there was just something inside of me that liked to make life a little more challenging. Something that liked to let me fall behind, just so I could prove that I could catch up and still come out ahead. Now I realize it was the PMDD dragging me down. Now I think about how much I could have accomplished, had I known what was happening and learned to manage my PMDD, like I eventually did.
But I don’t dwell on those thoughts, because those opportunities have come and gone, and negative thoughts will bring anybody down, not just a woman with PMDD. There’s no sense in feeding the fire. What’s come and gone has done just that…come and gone. The only moment we can do anything about is the moment we’re in right now. And right now, I know that most, if all negative thoughts I have stem from my PMDD and I’m just not going to give them any more air time. I’m still as stubborn as I was as a teenager, still as determined not to let the sadness and negativity get me down, only this time I know what I’m dealing with. Now I’m able to separate the two, my usual self and my PMDD self, and when my PMDD hits, I’m able to label my self-defeating thoughts as PMDD thoughts and just set them on a mental shelf to be dealt with later.
The beauty of this tactic? When later comes, those thoughts are no longer relevant. Mostly because they weren’t true to start with. On PMDD days now I rest and take it easy. I find something positive and uplifting to read or watch or listen to, and focus on small, sometimes mindless tasks that I know need to be done and have been saving up for just such a day. Organizing receipts or CDs or books on a shelf. Folding the laundry. Nothing heavy, nothing demanding either physically, mentally, or emotionally. For instance, sorting through old photographs probably wouldn’t be a good job for a PMDD day. The emotions they dredge up might not be positive, might make you miss someone or someplace or stir up regrets. Or they might remind you of a happier time, and instead of making you smile, might make you feel like you’ll never be happy again. That’s the PMDD brain talking, not you. And whatever it is saying is certainly not coming from God.
I bring God into this because my faith was and is a big part of my experience with PMDD. Without faith in something bigger than myself, I never would have come to have faith in myself. I can’t tell you how many times I thought there has to be a way to make this madness stop. The first book I picked up was Prayer, Faith and Healing: Cure Your Body, Heal Your Mind, and Restore Your Soul. I’d tried everything else. Maybe it was time to give prayer a chance. And so I started. With baby steps. One by one, one day at a time, learning how to listen to something positive outside myself for a change, until I learned that God was inside of me, too, and I could go within for the answers I needed. They didn’t have to come from outside sources.
The stronger I became on the inside, the more those negative external voices dimmed to background noise. Such as well-meaning friends and family with unsolicited advice, and not-so-well-meaning friends and family with selfish needs and demands. Not to mention well-crafted advertisements pointing out all the areas in which I was lacking in my life, or organizations with agendas on how I needed to live my life, and countless books, magazines, radio and television programs telling me I could have it all, while at the same time measuring me by artificial standards no one person could ever hope to attain.
It’s hard enough navigating life with all your faculties intact. But when you’re a woman with PMDD, operating on half power or less half the time or more, life gets really challenging. So don’t beat yourself up. The world is more than happy to do that for you. Accept that you’re not perfect and you’re never going to get there, then relax and enjoy your life. When you’re feeling good, take on all you want to, and when you’re not—take time out to take care of you.
If you take nothing else from this post, take this: Don’t spend another day beating yourself up for something you have no control over. Do start listening to your body, and giving it--and yourself--the respect you deserve. If you don’t know how to do that, if you’re scratching your head at the very thought of it, like I once was, then check out my blog, my Living with PMDD Facebook page, or my book, PMDD and Relationships, for more information on how to better manage your PMDD, as well as support, encouragement, and tips on how to be a better you…all month long.